posted
Hello I would like to say i have had better days but unfortunately not so much. I am 22 yr old licensed Emergency medical tech.
I have been on just about everything for my lyme and nothing has worked. Just a steady decline of mental cognitive, and Neuro symptom.
I have severe personality changes cannot remember anything more (no joke). I have bad apathy and muscle twitching.I cannot understand words and cannot talk right. My brain feels swollen
I am also positive for the HLA mutated detox gene and have tried every method I could think of to detox (coffee enema,lemon garlic olive oil)
I have no money and I have health insurance. I am seeing doc all the way in Virginia and running out of options.
I am lyme positive igenex, everything else neg.
I'm scared cause I am alone and can barley do this.
Is there finicial assistance (airline discounts, something)?
Are there docs that take insurance?
Am I at 22 going to die of dementia or something?
I am sorry for long message. Just running out of options. I cannot put my family through this.
Thank you all for what you on this site.
God bless.
Posts: 34 | From Mount Dora Fl | Registered: Feb 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I don't know what to suggest.
Your symptoms sound very similar to my neurolyme when it was at its worst.
Hopefully others will chime in soon regarding financial assistance for you.
Maybe there are some lyme charities.
You are very young (22); hopefully some of the charities include up to your age.
Can you rustle up $500 for a rife machine?
Or even borrow one from someone in your lyme support group?
Hugs to you, Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Very sorry it is so tough on you and that you are alone. The $500 rife machine would be an excellent idea. We can help you find a good one if you can find the money.
posted
Do you have any family that could help?
Posts: 911 | Registered: Mar 2005
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Just to get your body some support, maybe there's a Chinese Medicine school by you and you can see an herbalist. Places I know of charge between $20-$50 at the school (very affordable).
Even a Chinese medicine doctor may be able to help if there's a good one in your area. They shouldn't be charging a ton.
Skip the acupuncture, that can get pricey and you want someone who knows about Lyme.
A friend of mine herxed on the herbs before she even knew she had Lyme then felt better (made the connection later when she tried antibiotics).
You want the old-school kind of Chinese doctor that do the loose herbs that you boil
(***be sure they do the CUSTOM herb blends***).
At least it will keep you from getting worse.
Posts: 2839 | From California | Registered: Jul 2012
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
You have insurance, so you probably can find a doctor in your area who will treat you.
Go to Support Groups in the menu at the upper left and you will find some people who know of doctors in your area and find some people you can talk to.
Post your need for a doctor in FL on Seeking a Doctor on this Flash Discussion board. go to "Hop to:" on your right menu.
posted
I have no parental assistance unfortunately
I appreciate all your help.
Posts: 34 | From Mount Dora Fl | Registered: Feb 2014
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Emt, so sorry to hear this. I have the same HLA gene. Coffee enemas help, but binders are also very important for those of us who can't detox.
It's never just lyme. Lots of stuff comes with the tick bite: babs, bart and more. If you are deteriorating that means your doc is missing something. Is your doc an ILADS doc? I think there are some good docs in Florida, at least I've chatted with people in FL before who liked their docs. Maybe post in Seeking or go to www.lymediseaseassociation.org
Parasite treatment has helped my brain so much (neuro). Parasites are all too often missed even by the best lyme docs. Have you visited the PARASITE WARRIOR'S THREAD yet? Lots of info there to start. Don't wait to treat. They are THE NUMBER ONE CO INFECTION, as stated at the 2012 annual ILADS meeting.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Call the Lyme Disease United Coalition at (800) 311-7518. They are very knowledgeable and might be able to help you.
Posts: 8983 | From Illinois | Registered: May 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Can you tell us what tx you have had?
There are some tx you can buy without doc or prescription
I know ppl txing themselves this way
But you seem to be eligible for a grant so applying might be most impt thing to do now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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