posted
HO HO HO!! Santa is coming this week! Have you been naughty or nice?
Which one??
Hiker said she went to a Christmas Party today and ate some chocolate! Woohooo!! (I'm jealous)
Haven't done much this afternoon and evening. Enjoyed our church service and teaching Sunday School. Got a cute gift from our 6 yr old.
She gave us a "Frozen" bracelet. She wrapped them up last night for us. Her mom didn't even know about it. So we wore them. She's so danged cute!
See you guys tomorrow!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
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Im about done. I couldnt get to sleep til after 2 this morning. Pain and then breathing from that stupid rug. Then at 8 etta and i woke up when i fell out of the chair
All day i was a turtle ... work 2-4 hrs then rest an hour or so...and then work again...but i never did get to the bed the kids are suppised to sleep in. I have to start in that room in themorning
I did get four windows facing road with candles in and big red bow outside. Next yr i willbe able to afford wreathes. I love to see a house with a wreath in every window...
And all the snow and ice are gone from drive
Both son and. His wife are sick with pink eye and bad sore throat...she thinks she picked it up at school-shes a teacher. An. Then she gave it to him. I dont want to tell them.not to come but it does concern me. They have drops for eyes and are on second abx for throat
They are both post lyme but totally act like they had it and were cuurrd....no discussion about it might still be a problem. I see sx that could be lyme but they listen and do what their doc says now...so thats the way it is
Guys...i cant tell my family this....i havent told anyone ...you know i have esophagus biopsies out there...supposeably ready the 26 th
But last night i was crying out from.a pain (literally) in my a$$
Now i just had the colonoscopy and doc said all was fine but 3 days later im.crying out and cant sleep from this. It took two neurontin to calmit down...on top of ibu, fish oil, curcumin and other stuff
Then today in afternoon i had same pain in left breast(my cancer was in the other breast)
So im working and crying out and thinking what is going on and i feel.a huge lump. My last oncol appt and mamm was ok. They were concerned about something...took extra films....then said it was scar tissue. No discussion about about left breast at all
So i will call oncologist tomorrow but i have appt jan 6 already so i doubt she will see me sooner than that
Again i took two neurontin in middle of day and it dulled the pain enough so i am not screaming out. I feel like i just have to keep putting one foot ahead of the other and just keep on keepin on...but if i let myself think.about this and the other precancerous things its pretty creepy...
So if you could keep me in your prayers for a few weeks id appreciate it. I kinda feel like im tired of fighting...i dont know. Maybe its just how tired i am right now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Kayak .. I bet you have anal spasms. They probably got things stirred up down there. Hopefully they will go away in time!!!
I have a friend who had those and she had to use valium when they would hit.
Try not to worry ... You've been doing extra work and all those pains could be related. Even being on the step stool could be affecting things.
Will say some prayers for you!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
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Ty...why are you awake???
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
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kayak, I wil keep praying all is OK with yoU!
I cleaned to oven last night and this morn. made cookies last night an dthey tasted burnt like oven that was dirty (and smoking!) so I figured clean it.
and finished baking today. much better.
I am sewing PJs for kids. just got done with son'e pants. I goofed them up of course. o well, it isn'tin a easily noticed place so I guess they will do. stupid lyme brain.
I have one more pant and one top to do. will it happen????? hahaaa
I would like to make my own pair of pants too. mine will be last.
today I drive to lyme dr with #1 daughter to get rechecked. excited but discouraged. so many sx.
and he never answered my last email from 1.5 weeks ago. makes me mad and sad at same time.
I feel like switching drs. sigh, but it's such a process!!!!
I went to dollar store yesterday. I may go back. we are going to play family BINGO for fun little prizes so maybe I find some there.
I am nice, but naughty Lymetoo!
haha hohoho
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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hiker53
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LP--saying prayers for you and for everyone on this thread.
Tutu--are you home for the holidays are heading to the Longhorn state?
I think the chocolate and the merlot (did I forget to mention the wine) from the party caught up to me. Lots of mucous in the sinuses.
Decided to sleep in this morning but the phone rang really early and the voice said, "Hi, mom." Well, I don't have any kids. Turned out to be a friend who dialed the wrong number on her speed dial. Great to talk to her as I have not been in touch in a few months. And I was able to go back to sleep.
Went to the library to stock up on books. There is not much to do at my parents retirement center and I head there for 4 days tomorrow, so I got 4 books.
Rode the exercise bike for 20 minutes. Wanted to walk outside, but it is rainy. Better than snow, though.
I will go to the chiropractor this afternoon and then the dollar store. I need a big wall calendar (large print) and they usually have them.
I will try to get through the day without chocolate--the kids at school gave me so much and it is so tempting. I know my mom will ply me with chocolate and wine, so I had better be good today or Santa will think I am naughty.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8916 | From Illinois | Registered: Aug 2004
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lpkayak
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i slept. yea. something to be happy about. i havent done much else. had trouble with a few online orders and i have been at computer 4 hrs trying to figure out
also daughter is trying to help me sort out billing of stove hook up estimate was 280. and it came in at 540.
oncologist cant see me but gyn will. im hoping it is anything but cancer.. cancer doest usually hurt and this really hurts i cant take more neurontin cuz i drive to doc at 4
my house looks good in spots...two picture groupings on wall dining table decoration in blue and white with pinecones i moved a lot of furniture yesterday since i cant use that broken chair. i have two nice outside rockers that are the right color so i brought them in but i had to wipe them down good.
im shaking inside but really trying to hold it together i think im getting paid back for being a b___h during the procedure i hate what has happened to our local hospital now that mass gen has taken it over
and im really bitter about the whole lyme journey thing i really need to get my head on straight...it could be so much worse
50 ppl lost everything last night in a fire...im such a wimp
it seems like someone at target is using my debit card...but they are too busy to pick up phone and bank cant help so i guess i just have to keep an eye out...
i just want a quiet simple life. why is it so hard to find that?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Hurray. The internet is working on my computer.
Tried to scan thru your posts but wasn't able to take in much..something about frozen bracelets and dang..brain forgot the rest bu tthe words I as picking up here and there I found humuours (sp?)
Last without you guys and being able to keep it together by posting what I was abel to do.
For the most part health was better at hotel. There were a variety of reasons for that.
I ate better for one reason. GF meals were delivered to me.
I had help every day if I needed it with housekeeping at the hotel.
Used p;ower chair more to get out and about. Able to talk with neighbors. Able to text. Able to make a few phones calls if they were short business calls.
STill doing OK at apartment but need to focus more on making sure I eat and don't wear myself out so I am too weak to eat.
A new ADA commercial carpet is being laid tomorrow so the apartment is upside down right now.
Hoping it will be right side up tomorrow
Had housekeeper come in and clean. There is still more to do. She was in my small kithcen for over an hour and the oven and floor did not get cleaned.
Lots of black water in the sink. She was focusing on getting dirt cleaned up...top of cupboards and wiping down cupbaords and top of frig, etc.
Baseboards till need to be celnaed in aparments
But,there are lots of other things for me to do a little at a time when able to do that is more important right now.
I am thinking the smoke from my nieghbors patio was not a good thing. That has changed. Smoking is going to be at the ends of the property now when they get around to it.
For now they are sitting on a bench outside of my windows but the wind is blowing the smoke away from the bldg so OK for now.
Maybe there was black mold in the heating system too...there had to be a reason they condemned the bldg.
Just hoping health continues to be a bit better.
Not sure what the temp is today. I just know I have the windows open and it is a bit cool but the fresh air is the goal.
Lots of new smells in the hallway etc. due to new carpets and painting there but the smells are OK for short periods of time.
People are still not settled in. Rent has not bee requested from us yet nor have we been told when rent is due.
Guessing they will send a newsletter out on the first.
WE paid rent on the first of November and then were not allowed back in on Nov 5th for 40 days plus.
I moved back in on Dec 15th.
Rosie did not eat at first at the hotel. CAt disappeared in the commotion. But, she showed up at 1 am the night we moved back in. I heard her crying outside my bedroom window and got up and let her in.
She had a lot to say. She was very verbal for a long time.
Fire truck was here this am. She jumped right on me and got right in my face. She had a little PTSD as did I with the sound of the fire truck.
But, it was a medical situation. A fixable one at that.
The cat is all bone. NO meat. But, she will fatten up. So glad she survived the cold and the coyotes.
They tried to trap her but I figured she would not go for that. When she first came around the neighbor called the police and they tried to put her in a cage.
The cat scratched the neighbor all over getting away from that trap.
She then started hanging around us and Rosie would let me know when she was at the door.
It took her awhile to come in the apartment. But, now she doesn't want to go out unless the weather is good or it is just in the am when I take Rosie out to toilet.
She goes with us and then comes right back.
The community was so kind and generous. I think we have the director of the senior center to thank for most of the things that happened along with two others who got on the phone and made sure we had a roof over our heads and meals.
I think about 40 of us ended up at a hotel in town. First it was a small hotel close by for a couple of days.
And then a larger hotel with more of us ...not really sure what the count was.
I heard about 12 of us at the hotel had the same insurance agent in town for renters insurance.
Many did not have insurance. This is where the Salvation Army came into play, a local church paid the $500 deductibe I think for those with renters insurance..
still not sure where I stand with renters insurance. I just know the hotel bill was being paid.
I have yet to hear from my insurance adjuster. I thought having a local insuranc would mean I would be dealing with local people.
But, i tturns out they just call somone some where elese and don't have much say on things.
State farm is a franchise I learned.
WE have a new person since I signed up running the franchise.
As with management here at the hotel all of my questions were above his pay grade.
A friend on the EAst Coast sent me clothing. And they fit. That was amazing to me,''
me to take a bath with the handicap bars to help me get out then it is to take a shower. I have only cleaned up once since coming home on the 15th.
And changed clohtes once.
or able to put on make up once.
The senior center director had people to help pack us up from the hotel and unpack at the apartments.
Volunteers. One family baked cookies for us.
Others had a bake sell outside of safeway to raise money
Red cross provided meals I think at first and laundry soap and some quarters for the laundry mat.
We did have one person die durin gthis time.
And two hopsitalized but one was due to home health nurse error.
The maintenace guys said they worked 7 days a week from NOv 5 to last weekend. First time they took time off.
Manger was a no show for th emost part in my book except when they had the first meeting at the senior center which I could not stay to listen to the whole deal due to health so missed most of it.
They had someone else from the property management tgo over the new leases with us.
Then had us sign leases before we could move back in...but left the part about rent blank and when it was due.
The manager was not around much for that either ...it was mostly the guy representing the management company and the director of the senior center helping direct poeple to help us.
We did not know from day to day if we would have a roof over our heads.
We would joke about well we know we have a roof over our head if the key card works.
There were times when the key cards did not work.
But, when we went to the office they said not to worry and set our key cards up again.
One time was during the thanksgiving weekend.
So no one to contact to see what was going on.
MOstly it was overwhelming as to how the community stepped up and made sure we all had a roof over our headas and meals.
I have yet to get food in the firg but mostly due to getting rady for the carptet people.
A dog park friend has been going to bashas and picking up cooked chicken and salads for me.
There also was grass at the hotel..something you don't see much around hree uless the bldg was built before a certain date.
An dpine trees and squirrels.
It was a big open area with sidewalks for me to cruise arond in the power chair.
It had a pool and jacuzzi too bu *** was closed down for winter.
It made me want to move where there are pine trees at least.
Several people tried to get their rent back when were were kicke dout but the mangement compnay would not refund it.
So, it left them without funds. Many of us pay rent, get groceries, fill the gas tank, pay utilities and that is it for the month.
The cmpansson the director at the senior center had was wonderful.
I was preparred to camp out and had set up my tent and got a warm sleeping bag for the cold nights.
But, the noise from that campsite near town was too much...traffic noise.
I went to state farm and was told I had to pay $500 deductible and that I had to pay the hotel bills and any other expenses and then turn in my receipts after I was back at the apartment before they would help.
One guy had Farmers. They started paying from day one.
We signed papers with the salvation army to allow them to contact our insurance companies.
Money was donated to the local bank ...I guess to help feed us and to keep rooofs ove rour heads until things settled down.
Some also learned they had alimit on how many days they could stay in the hotel with their insurance.
I asked my insurance if it would hold out until i moved back in...they just said it was designed for that but I needed to ask the insurance adjuster
After we moved back in i went into the insurance office again and asked how did things work out for the hotel
they looked at each other and said i think they started to pay th ehotel bill awhile back
so having a local insurance agent doesn't mean they will mknow any more than you what is going on.....
when able i will contact another agency that i heard from a reliable source that would be a good one to work with in town
OK Time to eat lunch.
ONe more thing. Refrigerators were cleaned out food wise and someone wiped them down.
So we all came bak to empty refigerators.
They did provide a gift card to help us a little. I think tha was from the community donations. ..not sure.
But, we all had things in the frig that could have been OK without having refrigeration for 48 hours.
You know ...those things you want to drink cold even though it doesn't need to be refirgerated or other things.
Those things were dumped too so not sure who di the celaning out of the frig but guessing they were told to dump everything.
Happy to get the new carpet. I think that will cut down on the runny nose I have
I also did not have a problem with the runny nose at the hotel.
I was able to load up power chair and visit two stores that were new since I Moved to town while at the hotle.
And able to go for a 20 min walk est in the forest once.
Looking forward to doing that again.
Mostly it was really nice to be able to have short conversations with neighbors and people in general.
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hiker53
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Kam,
Glad you are back! You have had quite the adventure. Hopefully the good outweighs the bad.
Perhaps the community will see the need you and others have and continue to step up.
Blessings. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8916 | From Illinois | Registered: Aug 2004
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lpkayak
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Good news from gyn...probably just cyst. Back later to read about kams adventure
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Really amazing story, kam. I knew most of it since I was able to keep up with you on FB, but when you write it all out you can REALLY see the many blessings that have come from this trauma.
Reminds me of the song a local entertainer wrote for our church this fall "Many Blessings Flowing Down." YES, indeed!
I think it will be wonderful when the smokers have to move to the end of the bldg! YEA!!
Poor kitty ... I know she is REALLY grateful to be back with you and Rosie. Poor little thing!!
I'm really glad to hear that hiker and Lisa are a little bit naughty. I would feel out of place with only "nice" people here.
kayak.. I'm usually up till at least 11 pm every night. I try to get to bed earlier, but I often put it off. Sometimes I'm still up at midnight. Remember that I'm an hour behind you.
Glad that your pain is not cancer, kayak. Remember to slow down a bit, OK??
I went to church this a.m. and worked on the banner we always make for newly baptized. How did I inherit yet another task?? I have to get it finished by Wednesday. I have to go find a dowel stick and then find someone to cut it.
That may be the least of my worries since I have to glue felt letters on the banner too. That will be tricky since I've never done it. Spent all morning cutting the letters out. Oh well... they will appreciate the banner. I know that.
I also went to exercise today and to the dentist. After that I went to pick up one more gift for my cousin. Getting anxious to get HOME now! I pray it will be the best trip ever.
May we ALL have the best Christmases ever!!
--
PS .. hiker ... When a person craves chocolate, it means they are deficient in magnesium. Get after it!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
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Wow kam. I cant believe about the cat.
Abd tutu...im naughty too. I ate healthy supper after doc appt...but the added small sundae
Im home....just resting tonight. Tomorrow i need to find bed for kids in case they come
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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No worries, kayak .. I KNEW how naughty YOU were!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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kam
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Trying to defrag brain.
Couch is gone. Caregiver said she would be back.
I was able to look at stuff on carpet and move a few boxes this am into bathroom.
Went back to try again and not able to figure out what I was looking at or move things or bend over and pick up things. So resting again.
Breakfast next.
Getting Rosie out via the power chair. She wants to run ...windy today...good running weather. but i don't know when the carpet people will be here
need to figure out what to have the caregiver do this am if she does come back
i would like to have food but she is not that good at getting what i write on the list for some reason. so need to go with her so she knows what it is i get.
i guess top priority is getting more things off of the carpet floor first.
Then food. She is only here an hour. not sure how much is left to move that we can move.
don't want to put things outside yet until i know they are coming
not able to read what you all wrote
did i mention it is windy today...icy wind...but i like it as long as i can stay warm
windows open again
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Kayak .. be sure to close out the Target card and get reimbursed for what was stolen.
Went to get some dowel rods and glue for the baptism banner I am making. Then I went to get a Dexascan. Had to walk up 8-9 steps. Now my hip is mad at me.
Hubby brought me a beautiful poinsettia plant. Actually it's 3 plants in one. One of the white ones too. Now if we were living in Texas, I could plant it in our yard and enjoy it next year!!
So .. I will just enjoy this while I can. Thankful that he brought me something!
We are going to go buy me a Kindle Fire HD this afternoon. I've been wanting one for 3 yrs now!
Have a great day, everyone!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
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Im not sure what to say. I crashed yesterday after rollercoaster ride of maybe cancer to probably not cancer. Then woke at 2 a m and attcked office where bed is for kids to sleep. I found it! Sorted some stuff. Put some away. And then with xtra pain meds was able to to sleep on daybed in living room as oppsed to recliner. I slept from 3-9...pretty good. Then turned phone on andthere was message fromson that was coming to call. They are both really sick. I found out his "sore throat" is related to reflux and he has been gulping down oj for thr vit c... thinking it would help. Also found out doc gave him omep "as needed"
Wth? He waits til he feels burning then takes it...no wonder he is getting worse
This stuff happens cuz they all think i am sick cuz i dont do what doc wants a lot. I think that is why i am still alive. But im under orders not to talk about health and this stuff happens
Just gotta let it go...or shake it off...
So i talked to my friend who helps me fix house. She was cooking a turkey for one of her sons for christmas. Now i will go over and one or two other old neighbor ladies. Again...have to feel bad for the 25 yo kid
Today i am just going at my own speed picking up and making rooms right. Mostly exetcise room today...but it has tv and pics and my comfy chair so i am using it a lot now
There are services at 5,7,9 tomorrow night but bad winds and rain.are forcast...we'll see
I tried to schedule ultra sound but they havent called back
Back to work.
Its gonna be hard to get in christmas mode at kams place...it would be nice if someone helped them with community dinner or something
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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Lp--Does this mean you son is not coming??? Tutu is right. Cancel you debit card right away before someone empties you bank account using it.
You are not responsible for the charges made on the debit card, but it may take longer to get a replacement.
I have gotten so I never use debit-only credit.
Drove the hour to parents to beat tomorrow's rain/snow. Went to the gym here at the retirement center and did the Nu-step for 20 minutes.
I will be sore tomorrow. I like the Nu-step. You sit and use your arms and legs. My 91 year dad does 30 minutes a day for his hip. It was part of his rehab after his hip replacement two years ago and he still does it daily.
Tutu--see if you can find a place with a new step to help your hip.
One of my high school friends has resurfaced. Her parents live in the same retirement home as mine, so we are going to get together this week.
Off to eat dinner.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8916 | From Illinois | Registered: Aug 2004
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Kayak .. So no one is coming? Dang! Hate that! I hope you can get to that church service you wanted .. play it safe though.
hiker .. hahaa.. I had the same thought in reverse. I was going to tell you to see if they had one of ergometer bikes. It's like an elliptical bike. You can use your arms too, but that hurts my neck.
We have Nu-steps at the rehab place. I tried one a long time ago and didn't like it. The action is different from the ergometer bike. I may check it out again though if that will help my hip.
I'll ask the nurses. I THINK that the ergometer helps my hip. It's definitely better since I've gone back to exercising. (till today when I aggravated it)
I plan to exercise in the morning for a bit. Then I'll get my car washed and go home and pack. We have a big Christmas Eve service at 7pm but I will leave here before 6pm. It should be a great service. Can't wait!
I spent all day running errands. I also bought the Kindle Fire. Haven't had time to get it set up though. I had to make that baptism banner and oh boy. Hubby had to run me to the church after supper because I forgot to bring home the sample. OOPS. Then I had to go back to Michael's because they sold me the wrong kind of glue.
I finally got it done. Took about 2 hours and that was after already having spent 2 hours cutting out the letters and symbols. Labor of love, as they say!
Hope everyone has a great Christmas. We'll be traveling all day .. 12 hours. There may be ice in the area just north of us, but hoping for it not to be a big issue.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
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Yeah...no one coming but honestly it would have been worse if they came sick orthru bad weather
I will begin to make new christmas traditions i guess. Me etta a new church this house friends who are close...and if my kids show up ever they will fit in
I would really like the four of them to agree to go simewhere central for everyone once a year...but i dont know if it will happen.
My kids are healthy, married, well educated, working....really..i have no business complaining.
My siblings have children who are not working, estranged from them, abuse substances, on and off homeless...one is raising an autistic daughter...he tld me last night "shes 26 and still believes in santa."..i am so proud of that brother...my other brother is 60 and raising a 2 yo grandson
You guys need to give me a kick in the pants when i whine
Im not sure if im a little depressed or just relieved i dont have to push myself...i havent done much but watch tv and cuddle with etta
I did get a call and ultrasound is scgeduled for 13th and the are insusting on mamm too even tho i had a clean one last may
So maybe church tomorrow night and small dinner with friend thursday and daughter and hubby still supposed to come on 30th for a few days
Hope everyone has a good one
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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Safe travels, Lymetoo. Lp--make the next two days restful for yourself.
I played pool (billiards) with a longtime family friend this morning at the retirement center. I was whipped soundly by an 80 year old. "Twas fun, though.
Am waiting for the cleaners to leave my parents apartment before I go back, so am in the library at the retirement center. I could move in to this place very easily were I old enough.
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8916 | From Illinois | Registered: Aug 2004
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kam
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Billars I think that is a first on this thread. Sounds like fun.
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kam
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Kayak. Sounds like a plan. Good to hear you are proud of your youngins. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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Tutu..i will need to go back and read your posts after I rest a bit. I did catch the Kindle Fire.
Looking forward to hearing if you like it and what you can do on it.
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kam
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Just got back on line. Again. Typed a long post and lost it. Oh well.
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kam
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OK able to scan a few more posts.
Exercise. Mine was a mind thing today. Worked at trying to set up computer and closed caption phone and TV before cable guy came.
Able to drive to cable office and ask for help with getting cable back on line...needed longer cord.
Very rare my brain is working well enough to do either things I did today.
Also able to set up small room so I can park the power chairs in there and charge them easily.
And had a conversation with a few people today. Short ones but good to be able to talk with people.
Lots to do: kitchen, bathroom, front room, get food in the frigerator and freezer, contact insurance guy and answer his messages on his voice mail.
Have yet to talk to insurance adjuster...always the voice mail but got his direct line this time.
And the local office wrote down questions he had.
He could have eamiled those questions to me but they said he needed to actually talk with me.
So hoping this talking thing holds out on leaving a message.
That works better for me than actaul phone conversations anyway.
Not sure if I mentioned bed is located so I can see out the window now.
Hoping to see snow.
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kam
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Eyes open at 4 am. Need to get up and turn heater on.
7:40 am Resting from trying to return laptop and skinny tv to walmart. walmart was closed but will be open tomorrow at 5 am.
hoping health is doing well enough to return things tomorrow am.
next step is to get up and eat. then look for mail from last week and this week.
hoping to open christmas cards.
Saw a beautiful sunrise out my bedroom window while laying in bed. I am looking at the north but still saw color in the clouds.
Hoping to find gloves and hat today and clean up kitchen along with putting things away in kitchen or moving them that the carpet layers put in the kitchen.
Learned to put screen on the tray I eat on while in bed. This is working better but wears me getting set up and putting things back.
Hope you all have a good day. No fun being sick any day but on holidays it is even worse.
Also hoping to call and leave message on state farms machine with answers to his questions.
waiting to see how things turn out with renters insurance.
but know that next time i will go with a different office. others who had state farm at a different office or just a different renters insurance were handled better.
i still have not made contact with the adgent. just gotten his voice mail.
and i was told i needed to come up with $500 deductible and pay hotel bills and any other bills first then bring in receipts after i am moved back in and will be reimburse.
that doesn't work for me. others had insurance paid hotel bill right away.
my insurance did pay the hotel but i did not know this. i think someone had to negotiate with them as there were about 15 of us that were from their office that lived at the apartments.
[ 12-25-2014, 09:49 AM: Message edited by: kam ]
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lpkayak
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Im feeling very weak. Got toast in at 1 and im trying to eat cottage cheese niw
Im happy cuddling with etta. But friend is pushing me to come to dinner. Im afraid i ll get everyone sick.
Son sent me pics of grand dauggter opening presents and that made me feel happy
Etta likes two of her three new toys but hates the bite size training treats...she likes big denta stix. But it hurts my handsto break them up
Welll...im really gonna try to do this
Hope everyone has a good day
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Able to kind of clean up in the kitchen. Maybe 10 min on my feet. Moved things the carpet guys put in the kitchen to in front of the bookcases in front room.
Floor was sticky so kind of mopped it with some kind of mop with a pad on the bottom...couldn't handle cleaning by hand or the string mop.
I am exhausted now. REsting.
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hiker53
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Ate Christmas dinner with my folks and then met an ol' high school buddy whose parents also live in this retirement center. Fun to catch up.
Did 20 minutes on the Nu-Step machine. I really like it and wish I had one. Breaks up the monotony of the exercise bike.
Tonight is champagne and appetizers--I am indulging.
Praying for all of you to have joy in this day of Christ's birth.
Hiker53
-------------------- Hiker53
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hiker53
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11 days of Christmas remain--right?
Went to the bank this morning then back to my parents and down to the exercise room for one more round with the Nu-step.
Will watch the Illini bowl game with my dad this afternoon and then to dinner with a friend.
Have a great day.
Hiker53
-------------------- Hiker53
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lpkayak
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I thought i postrd last night. Maybe its somewhere else. I shouldnt have gone to that dinner. It would have been ok if i stayed 2 hrs but i stayed 4 and it was too much. I slept 16 hrs i think. Today going very slow.
Messy house is overwhelming but i am trying to deal with one small part at a time. Then rest. I sorted bills and found what i needed to go to irs and maybe get refund of fee. Its half hour away and hard to find parking. Im not sure if its worth it. No guarantee i ll get it and i think its only fifty bucks. I might go monday and then have lunch by the ocean
I also finally cleared kitchen counters and made them right.
I figured out how to put ottoman under my broken recliner so now i xan sit in the warm room.
I think i might try to sort and put away clcothes next. Its sunny. I might sit out and let etta run too.
Theres so. Much mire to do but my brain just cant figure it out. Baby steps for this brain
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lpkayak
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Yesterday was a real wake up call. I know my body does not respobd to exercise by getting stronger anymore. I think they callit exercise intolerance. But i didnt realuze i spend so much tume sitting and in recliner almost reclining i am not able to sit upright for more than an hour or so. I need to lue and rest and then be upright agin.
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kam
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kayak...i am the same way. i am not able to sit upright for long at all and for some reason i seem to do better if I am moving like in the car or in the power chair??
hiker...are talking about until you need to return to work>
Trying to recall what I did. Just woke from nap.
Able to return the laptop and tv I charged on credit card. Not a wise decision. Food comes first.
Able to get about 6 small containers of salad from the deli at bashas
not sure if this will work wtih budget but for now doing it as i learned while at the hotel that health was better
i feel one reason was that meals were prepared for me and i was eating better.
Able to leave message for insurance adjuster to answer his questions. want to read the letter again that he sent as my brain couldn't take in what i was reading the first time
did take in that it said as per conversation on the 25th of november..just got the letter...we did not have a conversation..have yet to talk to this guy.
hoping to open rest of cards today when brain is working well enough
able to do a few dishes but need to do more
also hoping to make lemon cucumber pitcher
able to kind of clean out litter box...short on litter but just ordered more from amazon..it will not be here until jan 6 so might need to pick up some locally when health allows
need to make a list of all the little stuff that pops in my mind to do when health allows
still need to sort thru the boxes in my bathroom or see if they are something i can just put in storage or in my bedroom closet
and sort thru boxes in front room
for now i just need to eat another salad and hydrate..hungry
feel like falling back to sleep
so frig still needs food but slowly getting things in there so far food is just for the next 2 days.
able to text on iphone to caregiver..she was supposed to show up at bashas this am or at walmart and did not show up at either place
which is ok as i know she put in her own time while i was at hotel a few times
so glad i am still able to text and use the phone at times...this started while at the hotel..wasn't able to do this while at apartment
glad it is continuing now i am back at apartment i have tried to read both at the hotel and at the apartment and what ever is stopping the brain from doing that still is not able to
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hiker53
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Kam-- I was referring to the song about the 12 days of Christmas.
I do have another week off and then back to work.
I think the shrimp I have eaten the past two days is doing a number on my stomach. Supposed to go with a friend to dinner. Will go but won't eat much.
Hiker53
-------------------- Hiker53
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kam
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OK Need to get organized on what I do each day too.
Need to defrag brain right now. Drove Rosie out to her off leash place.
She did her toileting and then wanted right back in the car. It is cold out.
I put in an order for household things on amazon and one on vitacost but really struggled brain wise.
I think I am Ok but know I forgot some things. I don't have prime so try and order enough to not have shipping charges.
That messed up the brain so waiting for it to defrag.
Inflamation a bit today.
Beautiful out. Blue skies and beautiful white clouds
Looks like it is nowing on the rim or raining.
NOt sure if I will be able to do anymore tonight or not.
REsting nfow and then I will see. 4:30 pm
Tried to look at mail but that part of the brain was still not working.
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lpkayak
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Yesterday was a real wake up call. I know my body does not respobd to exercise by getting stronger anymore. I think they callit exercise intolerance. But i didnt realuze i spend so much tume sitting and in recliner almost reclining i am not able to sit upright for more than an hour or so. I need to lue and rest and then be upright agin.
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kam
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Yep It doesn't make sense but it is what it is Kayak.
4:30 am eyes opened 5:30 am took 2 excedrin and able to be on my feet long enough to put dishes away and make the lemon drink...resting now..then I will cut up the cucumbers to put in the lemon drink.
8:00 am almost. Got up to eat but switched from the food channel to the tech channel.
Recalled how I had the computer set up before so tried to set it up like it was when room was arranged the other way.
Better but still an issue with the head having to be turned all the way to the right to see screen.
When able, I will move screen to tray on my lap but most of th etime that just exhausted me too much.
Also got Rosie out to toilet and stayed warm.
Next get up is to eat..I assume you can eat left over scrambled eggs from yesterday am.
I also would like to wash face, brush teeth and put on light make up
rest, then start in on bathroom maybe...pretty weak health wise today so we shall see how much movement the body can handle.
Also need to move the cpu and set up screen differently. Very uncomfortable tryint o ses screen right now.
Tping with eyes closed..makes it even more difficult to see screen. HA!
Put rug over cords in bedroom to lessen trip factor
Put large throw rug in front of door to hopefully catch dirt from power chair wheels.
Need another one or something for other door entry.
feels like 9 degrees out so far this am according to weahter report so holding off taking rosie out to toilet.
next get up will be to get dressed.
with ong johns.
Hoing to sort thru boxes in bathroom today and clear out bathroom..might take a few days
HOping to open more christmas cards today.
I think I got the cat food thing figured out so Rosie can not get to it..put it in the closet and left closet door open enough for cat to get in...pulled end table over in front of closet door so dog can't open door
Tricky business around here keeping dog out of cat food.
Hoping I am able to splash some water on my face and put some light makeup on....does not make sense but I feel better if I have make up on.
Hoping to find my hat too that matches my coat and keeps my head warm..but with this cold...I think I need to find the full face mask.
I have food for today so that is good. The kind where you just go to the frig and eat. Salads from basha deli
Just laying here trying to work up the couage to get up and get dressed
most likely will have to lay back down after I dress
Saturday. We made it thru antoher week.
I sure miss having the help I did at the hotle. Life is back to being an uphill task with every get up.
Looking forward to when I can use my get ups to be on my feet in the forest for 5 or 10 mim
[ 12-27-2014, 09:56 AM: Message edited by: kam ]
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kam
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Got up and brain switched channels again. SAw a post on FB about the localf bike shop. It as one of those rare times I felt strong enough to get my bike into the shop to get air in the tires.
But, do not have a way to transport it so tried to put it on my lift for the power chair. Made it to the bike shop around the corner...but they were closed.
Bike slipped off some when I tried to leave.
So, took Bike off of lift and tried to put it in the back seat
Made it home and put int back in the apartment.
Then drove to toehr bike shop in town.
There is the option of kind of sandwhiching the bike in with the power chair lift and using bungee cords but not so sure htat is good for the lift so need to think about it.
For now...riding the bike out where I take Rosie is back on the back burnerand getting air in the tires is on the back burner.
I know the shop around the coern will come and pick up the bike for me and put air in the tires. But, need a safe place to ride it and to find some way to get it there.
So maybe it would be worth trying the bike shop around the corner when they open next week.
I would not be able to ride far...maybe 10 min..but 10 min is better than no minutes
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kam
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10 am now. most likely down time for a couple of hours and then try to eat again. Could not get eggs down esphogus again this am.
If health is doing well enough later, I think I will stop in the health food juice bar and see what they use for their chocolate almond butter smoothie...that is easy for me to get down.
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hiker53
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Kam--I don't walk too well unless I have my trekking poles, but I can easily ride my bicycle.
Hope you can get yours fixed up to enjoy it.
Came home today from my parents and went grocery shopping. Am going to make meatloaf this afternoon.
Rode the exercise bike for 20 minutes and tried the rowing machine, but my shoulder only agreed to 5 minutes of that. Still feels good to exercise.
Rainy outside and getting colder. Winter is here.
Hiker53
-------------------- Hiker53
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LisaK
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wow, so much I missed in just a few days!
welcome back KAM!
Merry Christmas everyone.!
I am very pooped.
trying to recoup. I cooked like crazy for two straight days for Christmas eve an dday. saw tons of family. and had lots of fun mixed with drama as always.
kayak, glad you not have cancer. terrible roller coaster.
tried to read everyone's stuff above. just so fatigued.
went to lyme dr on wed. I have heavy metals. so I got IV and peed in a jug for 6 hours. now waiting for results. i guess chelation in my near future. ugh.
I really over did it this week- with cleaning, clooking, crafting, EATING tons of cookies 9no wheat though, so not totally evil) and drinking ALCOHOL- bad bad me. etc...... now totally fried.
I hope I am in menopause- or else I could be PREGO! or something entirely else! yikes. God help us.
and my hand and arm hurt right now from typing.. so bye for now.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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kam
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Lisa...wow...you were able to do a lot.
Yep. Down time sounds in order.
A friend brought over some bean soup. It was good. I reclined in recliner, ate the soup and had a conversation with her just like a regualr humanoid except this is not normal for me.
It was a short conversation and I am still trying to get my conversation skills back.
Yep. I am still at the stage where I consider having a conversation an exercise. It takes down time after wards to recover.
The Kennedy Center is having its show on the 30th....if you have not see that show it is a good one.
Tom Hanks and Lily Tomlin and Al Green and I can't recall the rest...are the honorees.
I noticed at the hotel that I did not have the fear factor going on. It showed up this afternoon.
I then realized I had only eaten a small container of brollie salad today...so I wondered if the fear thing is really hunger..I know..one would think I would be able to know the difference.
But, at the hotel we had meals 3 times a day. it as so good to have warm meals in the tummy.
I realized how poooryl I had been eating.
I don't want to go back to that so Need to figure something out.
So far getting salads from the deli at safeway or bashas and getting baked chicken
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kam
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4:30 am excedrin
able to get dressed and take rosie out to toilet
able to move a couple of boxes in front of shower so i can take a shower when up to it
feed dog and cat
kind of out of it so far this am...everything is an uphill climb..too much so
Able to drive Rosie to the dog park. In and out.
I was going to go pick up poop on the property here but that will have to wait
Tried to figure out which plastic mat to get to help with power chair but cog fog so that will have to wait too
kind of looks like purchasing two ..one for in front of the door and one foro where I am going to park the power chir will be less expensive than purchasing one large one and cover more area
now the ? is which one will handle hte power chair as she is movin??
Breakfast next...then veg time
pretty out of it this am
7:30 am now
got dog food ordered
i seemed to be doing better when comuter was not hooked up...i have it off most of the time...so not sure what i sgoing on
difficult to know with the different seasons of lyme and company
able to have a regular conversation with a friend last night
she brought over bean soup
i recilned in recliner and ate soup and we had a plaesant converstion
very rare for me to be able to do this
i was done in when she left but that was ok as it was bed time any way or veg time in front of tv
she did take the things from me while i was sitting in the chair..i doubt i would have been able to do that
very cold out this am maybe rain and snow wednesday and thursday
trying to figure out what to do about protecting the indoor outdoor carpets in apartment from the mud and snow, etc on the power chair wheels
looked on line for the office chair mats but cost is keeping me from giving one a try
i think that is most likely the best solution
if i could get one long enough to have in front of the door and then extend to the left of the door where i park the power chair that would help
guess i need to find something to measure with..
[ 12-28-2014, 10:51 AM: Message edited by: kam ]
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LisaK
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Kayak having trouble with her connections. I heard form her and she says she is "OK, but just having computer problems"
I don't think I am pregnant. I feel PMS-y. I have really overdone it with bad food. I feel like I ran a marathon and did 1,000 pushups.
today a friend might stop by to play Scrabble.
today I wwent to church and my hubby and I drove to store to get bagels and ate them with cream cheese and smoked salmon we got from discount store. it was good, but I kept thinking it would be lox for some reason, so haha on me. I had gluten free bagel. with capers and onion. it was so satisfying.
now I wanna blob out. and maybe watch my annual Lord of the Rings trilogy.
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hiker53
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Scrabble sounds fun. I haven't played that in ages.
I am eating Christmas leftovers--all healthy food, but I did eat too much chocolate this week.
Have been scouring the Bergner's department store website. My brother and sister-in-law gave me a bedspread for Christmas. It is for a queen and I have a double bed, so it needs to go back. I am looking for other options.
I am not a "foo-foo" type of gal, so a plain ivory or off white spread is fine for me, but my sil thought I needed more color in my room.
Mom bought me blue sheets for Christmas and they would not match the new spread at all, but that doesn't really matter to me.
The pillow shams are definitely going back as I don't have extra pillows to put them on and I will hopefully get a new small table top grill for the kitchen with that money. Can't believe how much bedpreads, shams etc cost.
The bummer is that I can't carry the bedspread and shams in one hand and use my walking stick to trek across the mall, so I need to get a friend to go with me. I will enjoy her company, but that means I have to wait until she is free.
It's little stuff like that which bother me about not being totally well. I am blessed to have such good friend and neighbors who do help me, though.
Hope to exercise a bit this afternoon, finish my laundry and then be a blob on the sofa.
I will start a new thread tomorrow since Tutu is not around.
Hiker53
-------------------- Hiker53
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lpkayak
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i cleaned my computer and was able to get back on my emal and here...
i am happy. i have been searching for smaller table for kit/dining area.. the one i had was too big especially for wc. i dont really have money for new table. then i remembered an old broken table i use for yard sales. it fit perfectly. it has leaves that fold down. i cleaned and painted it yesterday and i am using it today. i put other table in living room-i really love that table but it just didnt fit where it was.
i also cleaned last baseboards and they are drying and i will bring them in later it will be one hour job to nail all the basebords back
just got a call..i think i am selling old microwave!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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Lp--Glad you were able to use your older table--did it need fixing?
Great you might sell the microwave.
I went for a walk outside--sunny, but cool. Used my trekking poles. Ran into a neighbor who said I should stop using the poles--that obviously I don't need them as I was trucking along quickly. I decided not to comment as I felt too much anger.
The whole reason I can walk easily and quickly is because of the poles and because I am less toxic today.
I am always happy when I can get outside to walk.
Couch potato time.
Hiker53
-------------------- Hiker53
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kam
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kam
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lpkayak
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im back! a couple hours later and it is so hard to keep going. when brain and body work i get things done in a reasonable time.. when they dont i exhaust myself and hardly get anything done.
hiker i can so relate you your frustration and anger in both above posts that stuff keeps happening to me and i am done explaining. i just deadpan them now.
my alcoholic sister telling me i need to cut out carbs!?!? my extremely muscular, friend who is a champion marshall arts fighter(or what ever you call them) insisting i would be healthier if i ate four huge meat meals a day...
they are just so unaware of our reality
i have pushed myself hard the last two days cuz it looks like my daughter and her husband will come here for a few days on the 30th. so i have one more day. i have done a lot but still cant get to their bed to make it. my shoulder is so bad its like im moving all this stuff with one arm
the table needs two screws to make it more stable but i have to find a different screwdriver to do it. its still usable tho. i washed it good and put two coats of paint on it and it looks really good. fits in the space so much better
i am soooo close to having the living space right and then i hope i can make strides at getting back on treatment. i hope it isnt too late.
i texted with tutu today...shes with family.
kam i have a friend with lyme who cant afford an llmd.. she has decided to do the best she can with the basics...good food, sleep, air, sun, and things that make her happy. she also does a little buhner cuz that is cheap. but it is also tricky. but she is doing way better than me.
i think there is a lot to be said about starting with the basics. give your body a chance to start knocking down bugs. there are times when high dose abx are important and times when they arent. one problem i had with llmd was he told me to do tons of things i couldnt afford anyway and i was too sick to organize a lot of it.
you found out at motel how important regular meals and sleep and good air are. i think that should be your first goal.
how old is your youngest lisa? two in college? im not sure i could handle one in the oven at that point in my life.
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