beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
So totally freaked out tonight.
DD went to a party, held outdoors in a heavily wooded environment in our very tick-infested area.
Had her spray herself all over and made sure she showered when she came home.
Thrilled that she was able to have so much fun with friends. But terrified that she might have gotten bit, given the environment.
Kids think they are invincible, even when they've gone through hell.
Parents know better, and all too well. I've told my kids I can't endure anymore hell. Told them if they get sick due to their own stupidity, I am out the door. I just can't do "it" again.
Posts: 1885 | From here | Registered: Jul 2012
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Tincup
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posted
Mom mom mom! I feel your anxiety. I do.
But then it hit me.
We once hoped our kids wouldn't go out and drink alcohol.
Then we worried they would drink and drive and it drove us crazy. We formed Mothers Against Drunk Drivers.
Then we worried they would have sex and it was scary with HIV/AIDS and all the other STD's out there.
Then we worried they would do drugs, maybe smoke a joint.
Then we worried they would do drugs and drive and drink and have sex too.
Tincup
Honored Contributor (10K+ posts)
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posted
There is no way you aren't going to worry. It will always be something. Why? Because you are a good mother and you are very concerned as you should be. All kids should be that lucky.
And, in this situation, you did all you could to protect her, taught her what she needs to know too, and made sure she was slimed up with repellent.
All you can do now is let her go have a little fun.
But, just to be safe, the next time she wants to go out it wouldn't hurt to slip a can of tick spray in one hand as she heads toward the door, and slip a condom in the other hand.
posted
I hope that there are leaps and bounds made in research very soon!!! My son is so young and I am scared for him. Geez, I l am even scared for my husband as well!
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beaches
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posted
I don't think anyone could possibly understand what it's like to take care of children with TBDs for years unless they've been through it themselves, like most situations in life.
After the horror I have experienced with my kids with tick-born diseases, I easily handle drug, drinking and sex issues. Zero tolerance for any of that crap. Drink and drive, do drugs, off to jail/rehab/whatever and bye. Open your legs, don't depend on me. You're on your own.
Getting sick with tick-borne diseases is very different than these other issues.
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beaches
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posted
And yes, she was loaded up with sprays and the other kids used them. She was still eaten alive.
Bis, I have the same hope as you. But I am not holding my breath. As long as IDSA controls the reins on this horse, people will continue to suffer.
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lpkayak
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posted
i think yesterday tincup said in a post they found rmsf in skeeters in europe
ppl that know me already know im the wierdo that is afraid of skeeters
my kids have been out of the house , married , far away for ten years
i still worry and watch as dil continues nursing without abx after tick bite, and family holiday is held raking wet leaves and jumping in piles...
they all got treated...some long term , some many times...they are holding their own altho i see residual lyme stuff... all in denial and still make fun of me except one
beaches...it doesnt ever really end you still worry...you still hurt for them and the grand kids...
once theyre on their own i guess we really have to try to let it go...but in reality...i dont know if it is possible
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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beaches
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posted
I know kayak and tincup. The worrying will never end for me. Kayak, I don't know how you have dealt with so much for so long with your adult kids. My hat goes off to you.
And I could just cry. One of DD's friends (who was at the party) approached her today in school and asked her for advice "I know you had lyme..."
DD has NO idea how this girl knows this but as she said, news travels. To which my reply was "As long as it travels in a constructive way like it did today" Because as all parents of sick kids know, other kids can be really nasty and cruel, especially when kids have missed so much school ("we thought you were dead")
DD asked me what to do when the girl told her she had a rash. Told her to have the girl take a pic of it and get to the doc asap.
Sure enough, the rash is clearly a bullseye. Peds doc (a$$hole who I am familar with) told the mom that the rash "isn't big enough to be Lyme" and if the girl starts to develop symptoms like joint pain to come back!?!?!
Told DD to have the mom call me. So far no call. My DD is very concerned for her friend. I am proud of her for seeking further information for this girl but I am heartsick that due to yet another ignorant doctor (in an endemic/epidemic area, no less), this poor girl could end up with chronic Lyme.
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posted
It's a crime! Makes me sick to think about. That poor girl.
And my family wonders why I don't trust most drs., do a lot of research, and try to remind them our drs. work for us, not the other way around. Crikey.
-------------------- Bless the Lord, oh my soul. -- Psalm 103 Posts: 102 | From WA | Registered: May 2015
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Tincup
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posted
Not that it is my place to feel this way, but I am actually relieved to see your daughter step up and take action. You've taught her well and now she has shown it. Good girl. Good mommy!!!
If you can, go to www.TreatTheBite.com and print out the one page treatment recommendations by Dr. B. One is for adults and one for children.
Have your daughter share it with her friend as well as the site (link) info. It's basic, easy to read and gets the point across.
If the daughter approaches her mother it may be easier to get that mom moving in the right direction than you trying. You, after all, (in a good way) are trying to out rank a while coated doctor.
And no matter how right we are and wrong they are, the white coat usually wins just because.
LisaK
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Member # 41384
posted
no one in my family sprays except my husband and that is because I don't stop threatening him.
no one cares - until they feel like I felt. like how others have felt from this stuff. not being able to walk or talk or write or read or.....
and yeah, we can say " I have memory issues due to my lyme" and we hear from everyone "oh, yeah, I have that too- it's from getting old!"
humpf.
really?
you have no idea buddy. this shi*t will kill you and if not it will make you sick as H-E double hockey sticks.
no one I know understands my concern about spraying or checking. no one I know. no one. not one. and I do know a lot of friggin people.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
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posted
my neighbor down the street actually said to me , "Im not afraid of ticks. forget the spray, bring 'em on!"
I think if I had a wrench in my hand I would have tossed it at his ignorant *bleep bleep* head.
idiot
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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lpkayak
Honored Contributor (10K+ posts)
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posted
horrible that happened but im focused on positiveness of her coming to you and talking about it...as they get older the bonding moments are fewer and farther apart as they "launch"
oh wait...you mean horrible what doc did. i agree.
hey tin...thanks
"and yeah, we can say " I have memory issues due to my lyme" and we hear from everyone "oh, yeah, I have that too- it's from getting old!"
that statement was addressed in the moldy movie...the words used totally fit lyme
lisa your neighbor down the street is a...a... welli wont say whats on my tongue im sure you know the word.
beaches ... im getting pretty good at letting it go or giving it to god or shaking it off....what ever....
and also making sure i have have my happy moments with music or playing with dog or lookint at my flowers...those good feelings help take the sadness and worry away
things are happening with research too...maybe soon it will be easy to dx and easy to treat...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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beaches
Frequent Contributor (1K+ posts)
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posted
TC, I sent my DD the link re: Doc B tx protocol and she passed it along to her friend. I advised her to tell her friend to show it to her mom, but not sure if she did.
Also told DD to suggest that her friend see our peds...not that she is LL but she "gets it" after dealing with my family for years and there's a good shot she will rx doxy for at least a few weeks.
If I knew this family I would make a phone call and speak to the parents.
And sadly, the girl told my DD she is having symptoms---another chronic LD case in the making. And for no good reason at all. This makes me sick to my stomach.
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Rumigirl
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posted
But I thought that even the CDC, etc. says explicitly that a bulls-eye rash means you have Lyme and need to be treated!!! If someone could find that and give it to them . . . Yes, if the mom could take her to your ped, that would be good.
Yikes!!! Horrible, does he want to be sued? Not that they would do that, but people should for Pete's sake. Unreal.
beaches, my husband went to visit the wife of his childhood friend who was killed when he was cycling this weekend. In the country. I couldn't go, due to this horrible CRPS that has me
home-bound in horrible pain (from Bb & Bart & injuries/surgery). I was so worried that he might get a tick bite. Gave him spray, tick remover, said no walks in the grass, etc. Did a tick check
when he came home. Was grateful that it poured all weekend, so no time outside! Anyway, he knows. He pulls all the weight in our life, because I can't. He is there for me when I'm trying not
to scream in pain. It's been a long, long road with no end in sight.
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