posted
Every state should adopt a law protecting the right of parents to follow the care and treatment recommendations of a licensed medical provider even if another provider disagrees.
-------------------- KarlaL Posts: 694 | From New Lebanon, NY | Registered: Dec 2010
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
That's great, but they really leave themselves some some latitude with section 3 though. If they consider long term lyme treatment illegal the child could still be taken right?
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I just hope this WILL PROTECT children from such abuse in the future. Justina is still in a bad way and it's such a travesty of justice. She is still unable to walk and the emotional damage done to this family is immeasurable.
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Section
iii) the licensed medical or mental health provider has prescribed a lawful course of treatment;
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I doubt this would protect parents desiring to treat according to the ILADS guidelines.. though it is LAWFUL .. so maybe??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
As far as I know, it is not illegal in any state to treat Lyme disease with long-term antibiotics.
There is documentation that at least one New York family, with a child diagnosed with Lyme disease and PANS took their child to Boston Children's Hospital. Like Justina Pelletier, she was also diagnosed with somatization disorder and removed from their family's custody by the MA DCF.
There are actually two "Justina's Laws." This article is referring to a MA bill, which would protect the rights of parents to follow the care and treatment recommendations of a licensed medical provider even if another provider disagrees.
The other Justina’s Law was introduced into the U.S. House to prevent federal funds from being used to conduct questionable research on children who like Justina were taken from their families and are wards of the state. One of the Boston Children’s Hospital doctor’s who was instrumental in diagnosing Justina with somatization disorder (the diagnosis which her parents disagreed with), removing her from her family, and placing her in a locked mental ward, was conducting federally funded research on somatization disorder in children. This is a gross conflict of interest.
KarlaL
Pelletier family pushes for passage of 'Justina's Law' Nashoba Publishing POSTED: 06/24/2015 04:59:49 PM EDT
STATE HOUSE -- Hoping to make parents the arbiter when medical professionals disagree about the care of a child and to avoid the repeat of a saga that embroiled the state's child protection department and a family from Connecticut, lawmakers on Wednesday pushed for "Justina's Law."
The bill filed by Republican Rep. Marc Lombardo, of Billerica, would also prohibit parents from being charged with abuse or neglect if they are following a lawful course of treatment recommended by a medical or mental health provider.
Justina Pelletier, who was under treatment for mitochondrial disease at Tufts Medical Center, was transferred to Boston Children's Hospital in February 2013, where medical staff there made a different diagnosis and ultimately ended her medication regime and moved her to a psychiatric unit, her father Lou Pelletier told the Judiciary Committee.
Relaying events that were covered in the media and drew national attention, Pelletier said he and his wife were ordered out of Children's Hospital when they attempted to return their daughter to Tufts, and the Department of Children and Families gained custody of her. . . .
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