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» LymeNet Flash » Questions and Discussion » General Support » 12 hr-old who saw Pope, now has answer

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Author Topic: 12 hr-old who saw Pope, now has answer
Ann-Ohio
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The girl who was hoping for a miracle to resolve the reason she is no longer able to walk, said doctors confirmed that she has
Lyme disease.

I am very happy for her, but do not believe in miracles - just in honest and careful differential diagnosis.

This child should not have had to go through all this!

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Ann-OH

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Keebler
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She had the diagnosis before seeing the pope but her doctors, apparently, are not well educated [though she does not know that, and she continues to believe they don't know why she can't walk.

I sure hope someone will guide her to a true lyme literate doctor who will consider adequate treatment and also assess for other tick borne infections.


http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/

September 24, 2015 - CBS NYC

Excerpt:

. . . [the girl] said she had been confined to a wheelchair after a clinical diagnosis of Lyme disease. She said doctors still have yet to figure out exactly what left her unable to walk.

“I came here because I wanted to meet the pope, because I believe in a miracle,” she said.

. . . She said she was hoping for her miracle, and “I believe.” . . . . [she lives in Brooklyn]
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Keebler
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Oh, I see days later, a follow-up: the miracle of a follow-up test that showed positive. Hope she's got a miracle with the doctor's treatment plan. No mention of extent of treatment but that the doctor has offered to treat for free. Let's hope it's a doctor that knows what they are doing.

Is this how her previous doctors turn around malpractice? Bet they think they've hit a miracle in her for seeing it the way she does.

http://newyork.cbslocal.com/2015/09/29/wheelchair-bound-girl-finds-new-hope-after-encounter-with-pope-francis/

September 29, 2015 - CBS NYC

. . . They suspected it might be Lyme disease, but there was no actual evidence to confirm their suspicion. . . .

. . . Five days later, Julia believes she’s on her way to a miracle. Not the kind where she suddenly gets up out of her wheelchair and walks. Rather, as she told WCBS TV’s Dick Brennan, “The miracle has begun.

Yesterday, I went to the doctor and for the first time they saw Lyme disease activity in my blood and that just shows a miracle can happen if you believe, just like I did. If you believe and pray everything can happen.”

Julia still has a long road ahead, but for the first time in months she’s got real hope. And sometimes hope itself can lead to miracles. . . .
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Lymetoo
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quote:
Originally posted by Ann-Ohio:


I am very happy for her, but do not believe in miracles - just in honest and careful differential diagnosis.


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The miracle is that she was offered help FOR FREE. Now we just pray that this doctor knows what he is doing.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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I'm a bit more skeptical that the "free treatment" may be to make up for a misdiagnosis / improper care in the first place, if by the same doctor.

Or that the "free" treatment is not the full course (or office visits & Rx), with other tick borne infections also being assessed.

Still, I hope I'm wrong and she is with a new, actual LLMD now. But I don't see how any LLMD could afford to offer free treatment at this stage for as long as that would take.

Time will tell. She's brave.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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