Topic: Hi there, Going thru Hearing and Vestibular testing tomorrow and Tue.
Silverwolf
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Hello <<<<< LymeNet Family >>>>>,
I hope all are fairing well, and/or feeling better as much as is possible.
I've had a rough summer, hoping fall will be better. The tests I will be going thru, make me feel a bit nervous.
Tomorrows [Mon.Oct.12] isn't supposed to be to bad, they are checking brain stem activity, electrodes attached to my head and so on. It's called an ABR.
Tuesdays test[Oct. 12],more electrodes, around eyes,and on ears. Its and ENG test. They are checking the nerves between ears and brain. This test, will mess with balance and may cause nausea, and such problems.
I won't be having anything to eat or drink for the four hours before the ENG test. And have been off of anything with caffeine for several days.
TxC' and I ,are hoping this will give some answers as to why mu hearing loss is worsening, and my balance is really messed up too. Oh, there is an auditory test too.
Will be really relieved when the tests are done, and when I can think again will let y'all know how it all went.
I'm pretty sure,it is more Lyme and Co's problems, but w/ no Lyme Literates around. We are doing what we can.
My bad summer, started out, w/ an Ambulance ride to ER June 30th. It was scary, didn't have my glasses, or my cane. I couldn't hear, I was hoarse from a choking accident [a supplement went down wrong.].
And we couldn't get them to let TxC' come in the back to help answer questions,even after he talked to security. It's a long story,and I'll start another thread to explain more later.Let's just say it was a nightmare.
Hopefully things will go much better, w/ theses tests. And I hope y'all are getting needed help and feeling better.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I'll be keeping you in prayer, Silver! Does not sound like fun at all, but with God's help you will get through it!!
Keep us posted on any results! I hope they can help you!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
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- The tests are pretty easy but with the second day, they may be putting some water into your ears so it's just a bit uncomfortable and disorienting. Do not get up until you are ready, though, and take it easy when you do . . . and then when you go out where there are sensory signals from traffic, etc.
You say that you "won't be having anything to eat or drink for the four hours before the ENG test . . ."
They don't need to make that so hard for you. IMO, That's really not the best way to approach this as blood sugar could drop hard and fast. You should very much be able to eat some kind of nutrition and light food and have a little water.
I have had those tests done and there is no reason for denying you food and drink for four hours. That is likely because there may be vomiting but if you don't eat for four hours,
you could pass out. Many with lyme cannot go through such a physically demanding effort of getting to a doctor's office much less tests that will involve sensory function without passing out if their blood sugar crashes.
There is surely some way to have some sips of water as well as some kind of food that won't be prone to do a repeat visit. But warm or room temp, NOT cold water.
Maybe a little coconut oil in your mouth would also help to keep it moist and also serve to help not have blood sugar drop.
I'm thinking maybe some Quinoa Flakes, as a thick gruel, a 1/4 cup, a couple times during that four hours - maybe about two hours prior. Quinoa Flakes (the FLAKES, not whole grain) are remarkably well balanced from a glycemic index point of view.
If you don't have flakes on hand, you might puree some quinoa, millet or cooked buckwheat groats (all non-gluten) and you'd have a paste of sorts.
With the meal before that 4 hour window starting time being one that is balanced with good, digestible protein, colorful veggies and good fat but just a little bit of it.
And, if you have "dry mouth" as many here do small sips of water should still be fine every half hour or so.
Be sure to take some good nutrition with you to have right after the exams. Inner ear irritation can cause blood sugar to drop, so you really need something right with you.
And some GINGER CAPSULES for afterward on the second day (not before) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- Good luck. I hope you find some helpful detail from these exams.
Not on your schedule for these two days, yet, after they come back and some study can be given to the results,
you might ask if they'd do the BALANCE test where you are in a sling of sorts and walk and then the floor sort of shifts or dances (but the harness holds you up).
That is actually fun - from a strange after the fact point of view - and can tell them SO much about the brain involvement in balance vs. just the inner / middle ear.
For those with lyme, the brain is often just as or more involved. Sure was for me. That kind of test told me things the others simply count not.
If VESTIBULAR TRAINING or Rehab is suggested, it is best to see if your LLMD (or any LLMD in the area if you don't have a current LLMD) can suggest a specific therapist trained in this but who might also be very lyme literate.
The vestibular therapist I went to was clueless as to lyme and many of my very odd balance issues she had never seen before. She did teach me a few safety tricks but after that, she was pretty useless and rather judgmental.
Someone also trained in FELDENKRAIS could be excellent for vestibular movement therapy.
For these next two days, I hope you find the environments of the offices / exam rooms to be very "soft" and the people there very kind and helpful. That has been my experience with all the vestibular / hearing testing I've done.
If you need to go early and rest up a bit after arriving, call ahead and ask if they could put you in a quiet room or suggest a low key place to wait. Same with afterward. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
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Hi <<<<< Lymetoo and Keebler >>>>>,
Lymetoo, I have been thinking about how the Lord is with us.He got me thru that ER mess,end of June. I fight some White Coat anxiety, and possibly PTSD, after a surgery years ago that was botched, and I almost died.
So, I have to keep giving this to the Lord. Wonder if I should check w/ my case worker,about counseling?!
Keebler, I can have an early breakfast Tue., such as my gluten free crackers, and evidently a few sips of water. And I'll have an ice chest w/ a few things in it to nibble after the tests are over.
There has been a lot of folks vomit, and I think they were trying to keep that from happening. My instructions do a small sips of water are permissible.
Other than the light early breakfast,more than four hours before test, they said nothing after midnight to eat. I can take my blood pressure med, but that is about all.
I am glad you mentioned the blood sugar issue, I'll tell TxC,so we can get something protein wise and GF too!
Will let y'all know how the tests go,after I can think again hopefully fairly soon].My main concern, besides nausea,is the IC/IBS problem.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Oh, Just me again, my tests are ABR,Mon. at 12:45pm. and, Tue, ENG and Audio to start 12:30 pm.
My brain is keeps forgetting things, lost the phone 2x's today already.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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momindeep
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Will be thinking of you both. Sorry for a tough, tough summer. The Lord can use these doctors for your benefit...even if they are not LL.
Praying for a helpful outcome.
Good to see you are still with us.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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I wouldn't suggest eating if they told you not to.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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Hello <<<<< momindeep, Lymetoo, and Keebler >>>>>,
Keebler,hi, we were typing at the same time w/ your second post response, thanks for the info'!
Hi momindeep,thanks for the encouraging thot's! We are hopeful of finding some answers w/ the tests.
Lymetoo, hi there, your most welcome, and I will only have the cracker and water sips,for my way early breakfast. it was the suggestion for anyone having the ENG test in the afternoon.
I have ,I guess,a fear of vomiting, after that surgery of years back, they were giving me injections of a med' I turned out to be quite allergic to , I don't think I've ever vomited that much in my life, before or after.
So yeah, food intake will be seriously limited,and nothing w/in the four hours pretest.
Mondays test there are supposedly no restrictions for, but Tuesday, the food, medicine,and even lotion or makeup, are prohibited. It is because of all the electrodes around eyes and on the ears.
Will let y'all know how it goes as soon as we get home,and I am somewhat functional again.
Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Member # 9196
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Hi there <<<<< Lyme Family >>>>>,
First test is over, it was mostly listening to static, clicks, and a steady tone. It varied in the loudness.
I just sat in a chair, had electrodes on forehead,behind ears,and in front of ears, and a little ear phone in each ear.
I held a small box, w/ the wires to the electrodes coming from it. Most of the time I had my eyes closed. But had to open them a couple times,as I got a bit dizzy.
You don't have to close your eyes but many folk do. The Tester said that the frequencies and loudness occasionally brings on dizziness.It wasn't severe tho' and the test only took about 10 minutes.
Tomorrows [Tuesday] tests are a bit more involved. The ENG is only supposed to be about 30 min. long. TxC' talked to a friend of ours that's been thru theses tests and he didn't have any serious issues. So I am hoping it goes smoothly.
Audio test is also circled on my appt. card,so hopefully that wont take real long either. I be relieved to have it all out of the way. And see what the Doctor finds out.
Thanks for keeping me in prayers and thot's. Will update more when I am able to.
Just Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
When Bb attacks cranial nerve VII, the result can be Facial Palsy. It is clear for the world to see and the symptom is undeniable. The IDSA embraces this condition as a consequence of Lyme.
When Bb attacks cranial nerve VIII, the results can be vestibular damage. This is not clear for the world to see. All the world sees is a person with equilibrium challenges. As far as I know, the IDSA does not accept Lyme damage to the VIIIth cranial nerve in the same forthright manner that it does the VIIth, i.e., that the vestibular damage is attributable to the Lyme infection.
So, you can see the effects of Lyme arthritis. You can see the effects of a Lyme assault on the VIIth cranial nerve.
I think I see where this is heading.
I have to see it for something to be present; if it is not visible to the naked eye, it does not exist. Accordingly, bacteria did not exist before the invention of the microscope.
Lyme science is a strange and magical voodoo.
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So happy that test #1 went so well! Praying that test #2 will be OK too!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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Hello <<<<< duncan, hopingandpraying, and Lymetoo >>>>>,
Hey Duncan In the case for Lyme and Co's gone chronic, it seems that IDSA is strange, and they are definitely not helpful.
Interesting info' about the 8th cranial nerve vs. the 7th. When I was a toddler, Western medicine tho't that MS was just histrionics[ I hope that's the right word??],and not a real illness too.
Hopinandpraying and Lymetoo, thanks for the prayers,and well wishes.Well these tests are over. We'll find out tomorrow[Thur. the 15th]. just what they think is wrong, and if they want more testing done.
The Audio test was interesting, unfortunately much of my upper hearing range is gone.
The ENG turned out to be a VNG [video] supposed to give more accurate results.,with less bother to the patient. There were no attached electrodes, interesting goggles tho' and much of the time,I was in pitch darkness.Part of the time, I had to 'chase little dots w/ my eyes,watching a computer /video screen.
When the air was placed in my ears,right ,then left, I got extremely dizzy-vertigo,and very off balance. Was glad I ate very early and very light!
I couldn't talk and make sense very well afterward. I'm still more off balance than usual. I didn't do much yesterday after the test. It could have been much worse tho'.
I wont be surprised if Dr. thinks it is Meniere's disease. Or possible MS. I have results from a CT scan in '06, w/some demylineating lesions. These folks are not LL Drs. so will see what they suggest.
TxC' has a chiropractic friend, from out of state, a few ours, that is interested a bit in Lyme disease issues. I don't think he knows a whole bunch yet...but if we can maybe travel a little, we might find some bit of help [?]. It's an option we may explore.
While setting up my tests, this ENT Dr. that I went to, wanted to know If I had ever had an MRI to head area, so that could be in the offing as well. We'll find out more tomorrow afternoon.
Thanks for the prayers and post replies from each one who replied,and all who were praying. Will update more after tomorrows appt.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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lpkayak
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Hope youre ok silver. Anxious to hear
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
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posted
- Be very careful about an MRI, it can cause hearing damage, even if earplugs or special non-metal ear muffs are used.
As for being able to see the bones in the ears, a CT scan would be better, when done with very specific specifications.
I had both MRI and CT scan of ears and the CT scan was worlds better and much quieter, too.
The CT scan is used to determine if a condition called SCD - Superior Canal Dehiscence might be part of the problem but can also outline bone for other inner / middle ear reasons.
If you decide to go further, a NEUROTOLOGIST might best know about SCD, but many still do not as it's relatively new.
Now, you may not have SCD, there are so many other factors, as you know. I've included so much about it here, though, as so many doctors just have no clue about its existence. And if it might be part of the picture, it's good to know the basics.
Still, as for what kinds of imaging, they are not all going to show what we think they might.
My main issue with MRI is the noise and vibration that is definitely in the decibel range to damage hearing. And an MRI just cannot show as much about the ear structure as a CT scan can, with the exact instructions for determining SCD.
Not all CT scans are done to the same specifications and that really matters, too.
Good luck with your quest for answers and relief. I'm all for relief. Hugs galore to you. -
[ 10-15-2015, 07:38 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Why Did an Ordinary Portland Teenager Suddenly Lose her Ability to Walk and Talk?
June 2015 - Portland Monthly Magazine.
Without warning, 16-year-old Kylie O’Keefe found the slightest sound excruciating. Was it all in her head?
. . . superior canal dehiscence . . .
. . . “They get a normal MRI, a normal CT scan, and are told, ‘There’s nothing wrong with you. It’s all in your head.’”
And it is—more specifically, it’s in their ears. Both conditions disrupt the autonomic nervous system and hippocampus, which, in Wackym’s words, “really screws up people’s cognitive function.” . . .
Medical Mysteries: Doctors puzzled by woman’s dizziness and amplified body sounds
By Sandra G. Boodman - The New York Times - November 24, 2014
Excerpts:
. . superior canal dehiscence syndrome, or SCDS. Her increased sensitivity to sounds, along with the vertigo, unsteadiness, abnormal eye movements and visual disturbances were all symptoms of the recently identified disorder.
The syndrome results from a dehiscence — a thinning or a hole in the temporal bone, which covers the fluid-filled canal in the inner ear.
The hole allows the fluid, which helps control balance, to touch the brain, transmitting sounds such as a heartbeat, a voice or the ordinarily imperceptible sound of the patient’s eyeballs as they move.
In essence, the body’s internal gyroscope is damaged, which affects balance, vision and hearing.
In Miller’s case, the concussion she suffered in 2003 or an earlier head injury at age 15 when she was thrown from a horse may have triggered the problem. . . ." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- Some key detail here that is not in set above:
SUPERIOR CANAL DEHISCENCE SYNDROME - Johns Hopkins
While JH, as the institution, has been terrible regarding lyme disease, one department and a few of their vestibular researchers have been excellent in the discovery & understand of, and treatment of SCD.
Good images here that really help "picture" the inner / middle ear -
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Silverwolf
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Hello <<<<< 'Kayak, Keebler,And The various Lymenet Family who Reply >>>>>.
Hmmm, Well we found out more from the Testers than the Dr. Both testers said, look into hearing aids.
My upper hearing range is mostly gone, medium range is moderate-medium damage,and the low range isn't good either.
Right now, because of inner ear abnormalities,it seems the crystals [or rocks as some say tho', crystals is the more proper.]in the inner ear have gone out of alignment.
This causes all sorts of balance issues,and dizziness. Then the Tinnitus issue, it's rather severe. So the Dr. wants to have me try Niacin for 6 months,and specialized exercises[for balance to see if that will ease some of the issues].
He said in at least some cases you can cut back on about 95 % of the balance issues,by exercises.
We feel that the Dr. is hoping, the hearing loss isn't as bad as the testing showed, he seems to think that if we could lessen the tinnitus I might hear a good bit better.
I'm not sure that the Audio/VNG Tester would agree w/ the Doctor. As I said, both Testers, felt that hearing aids would be of benifit.
I have a check-up in Dec., to see if what exercises I am able to do, along w/ the Niacin might help at least ease some of the issues.
Being somewhat cynical, both TxCoord and myself feel that because I am just a Medicaid patient, they are not doing more aggressive treatment concerning the actual hearing loss.
Dr. said some people cannot do all of he exercises,if they have back /neck issues, I do. So Iam to do what I can, five minutes A.m.and five min. P.m. if there is no significant change then they will try other methods.
Most likely the MRI, I don't care for MRI's but we are limited to what medicaid will allow.
I'll report in from time to time if I notice any lessening of balance problems, or lessening of the infernal ringing and noises 'music' etc. that I live with constantly.
Just Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- If this is the case: "inner ear abnormalities,it seems the crystals [or rocks as some say tho', crystals is the more proper.]in the inner ear have gone out of alignment." (end quote)
the EPLEY MANUEVER could correct a lot of symptoms such as vertigo with BPV (benign positional vertigo). If you can find a doctor who can correctly diagnose that and one trained to do that specific maneuver. It does not work on other forms of vertigo but often does for the crystal stuff. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yes, the Epley is worth a try. Hope it helps.
We can learn a lot from nurses, that is for sure. I wonder if hearing aids would help the tinnitus?
For me, the ringing is less as long as I stay away from foods high in salicylates and high in histamine. (esp the sals)
Keep us posted, Silver. Don't give up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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posted
Hi there <<<<< Keebler and Lymetoo >>>>>,
I looked up the Eply Manuever, the VNG Tester did something somewhat similar to help me position for the test.
My problem is that we are greatly limited to what ever the medicaid-insurance group allow. we must go to their Doctor group, and follow those protocols. We cannot pay these things on our own.
We are working w/ another group who were trying to help us before we got me the Medicaid, that helps low income/fixed income folk, when they are able and can get the funding. [They are aware,I finally qualified for Medicaid,and asked to be kept informed.].
We've gotten a few leads on some matters there. But I'm pretty sure we'd have to pay out some monies even so, for doctors/therapy and so on. We'll see what happens.
TxC' and I were made aware, that medicaid doesn't always provide the best solutions, in matters like hearing aids.
[ TxC' has a friend [in VA system], that is fighting to get some hearing help. That person was told, since it was, in VA medical opinion, mostly Tinnitus,that the VA wasn't going to help them procure hearing aids.]
My other big issue,is that many of the exercises I was given,are not easy for me. Because I have an extra cervical rib on the left side of my neck, which lead to TOS. I had surgery on the right side,but the left is still a mess.
After having a collapsed lung from the botched surgery, rt.side. We did not have the left side tended to. And Yes,the DX's and surgeries I've had are in my file for the Doctor to check on.
While I am thankful to finally have Medicaid,I am not sure if the Doc' really read the file. Technically, I am supposed to be very careful about turning my head back and forth. I learned over the years, to turn my body instead. I don't relish the idea of passing out.
I am doing what exercises I can from the Doctors info' sheet that don't seem to set the problems off further.
So that is where I'm at,and we'll see 2nd week of December,if it is enough to help reduce tinnitus. Will also be using Niacin for 6 month trial too [preferably niacinimide/non-flushing].
In Dec. I guess we'll also see what they may suggest about the actual hearing loss. Perhaps they'll want to do more testing,or some retesting?
I'll check in from time to time, to update progress,or lack of it.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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dbpei
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Member # 33574
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So sorry for what you are going through silverwolf. Hearing loss can actually cause tinnitus. It is a result of our brains trying to compensate for what they can no longer hear.
Lyme disease and related inflammation in our auditory canals and surrounding areas can also cause this. So anything that reduces inflammation may help out.
Your tinnitus may improve over time if your hearing loss was sudden. Listening to soft music or 'white noise' might help.
Lysine in high doses (at least 1g 2 x day) might help. I also take vinpocetine, which Stephen Buhner recommends to help tinnitus. Extra magnesium may help as well.
Sending good thoughts and prayers your way.
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Silverwolf
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posted
Hello <<<<< dbpei >>>>>,
Thanks for your reply, the condolences and the info'!
It was my understanding, as well, that tinnitus,and musical ears syndrome were the brains way of trying to compensate. Also any sounds that may get thru,the brain is trying to figure out.
I've had slowly increasing hearing issues since I was a toddler, lots of ear infections sinus and so on. Lately it has worsened greatly.
When i am able to afford it, I'll get more Lysine, I also will be taking Niacin [non-flushing if possible].
I'll check on the vinpocetine also. I do use turmeric, and fish oil w/ the Omegas,and flax and borage, also Magnesium. These are among many supplements that I take regularly.
Thanks again for the info' and the thot's and prayers as well.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< LymeNet Family >>>>>,
Well, I've been on the Niacin, and exercises for two weeks now.
The exercises, I can barely do half of them, and some days none. There are 16 to do, 2x's a day, 5 min. a.m. and 5 min. p.m.
I am not sure the Doctor really checked my chart info'. he had said don't do any that hurt your back. it is a lot of side to side head turning, standing, and sitting, laying all the way down flat, and then right back up and so on.
Having Thoraxic Outlet Syndrome w/ extra cervical rib complications, isn't helping, neither is an adhesion problem from some abdominal surgeries.
As far as I can determine, the Niacin is not helping the tinnitus, possibly it may be even worsening. We will probably have to try to reach the Doctor, before Dec..That's when my next appt. is to be.
I have tried to find ways to do the exercises, that do not cause pain,and dizziness, but it isn't working very well.
It is disappointing,especially when it seems the Dr. didn't really check my med. chart info'. And it doesn't make sense that inner ear abnormalities could be fixed w/ balance and head moving exercises really.
I guess we'll find out what the Dr. wants me to do next, after we manage to get a hold of the ENT clinic.
For now, there doesn't seem to be much I can do, still trying some careful,modified exercises. Have to modify, between neck pain,collar bone pain,and hip pain I don't get much else done otherwise.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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