posted
Linky has been having trouble with neuropathy and other issues, including EMF sensitivity.
She's not able to be online very much to connect with her Lyme family. Please keep her in prayer and give her a shout out when you can.
If you have any tips for her neuropathy or sensitivities, fire away!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I will pray for Linky. Hopefully someone will have some useful info for her. In the meantime I will be praying.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Tramadol helps my neuropathy - no other pain medicine works. Only suggested if you are willing to take a narcotic and if Doc is willing to prescribe that for you.
Gabapentin was the first to help immensely, but that wore off.
I tripped over the tramadol/neuropathy relief by accident,well more like observation. I did an experiment after taking tramadol for headache pain instead of oxy and found that tramadol did nothing for my headache pain, but my neuropathic pain was way less! Oxy helps better for my out of control chronic daily headaches, but it doesn't do much for neuropathic pain.
My lyme doctor (prescribes tramadol) knows I take both as does my gp(prescribes oxy in a very small quantity). is okay with this.
Of course a pain doctor I went to get assessed by, freaked and I had to promise only to take one kind. (I stopped going because they would only burn nerves as solution to headache)
My insurance has no problem with filling two different pain prescriptions. I don't think I've ordered both at the same time/month however.
I don't know the herbal side very well, but I know that others here will help!
Hopefully things start letting up or you find workable solutions soon. My prayers are with you!
-Edessa
Posts: 138 | From Eden Prairie, MN | Registered: Dec 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Neurontin helps me.
. I also made my bedroom the most emf free room in house. It measures lowest with my tri meter and i use a lantern that turns on at night if i read in bed or get up at night.
I leave my phone in hall outside the door when i sleep. I can hear alarm.from there
I sleep a lot...8-10 hrs and i think that much time away fromemf is helpful
Also...microwave is pretty bad if she uses one
I have heard about special wallpaper and paint if she lives close to ppl and their wifi comes in her house.
Also she should be sure a smart meter isnt on the other side of her wall. Aluminum foil on the wall is supposed to cut down on the emfs from that
Hope you are able to fix what you can and feel better linky.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I know there are EMF blockers that you can buy too. You can put them on cellphones and computers.
Linky .. I know you will check this thread eventually. Make sure you are not supplementing Vit B6 or p5p.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Linky,
I am praying for you!!!!
Alpha Lipoic Acid may be helpful for the neuropathy if taken in a high enough dose.
You could try at least 300 mg twice daily.
Hugs!!!
Dr K recommends no wifi, only hardwired broadband and he says to turn off all breakers at night...not sure how that works if you need heat,etc.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I wanted to turn off breakers but my smoke detectorsare on thm so i dont. Ive heard of ppl wall papering whole bedroom to keep emfs out....
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Linky... I found this on a Gut Health board regarding B6:
-
"WARNING about Vitamin B6 Toxicity .... I got Vitamin B6 toxicity from H Pylori. Talk about a limited diet! I had to go on the HP restrictive diet, and the Candida restrictive diet, AND of those choices, they had to be low in vitamin B6!
One word for all of my fellow HP sufferers ... DO NOT consume any synthetic B6 while fighting ANY bad bacterial infection. They need the B6 to colonize. It somehow gets stored up in our muscle, including smooth muscles like the heart, stomach and bladder. It's a ***** to get rid of.
It's not the natural form of B6 found in food that causes the toxicity, but once you're toxic, the natural form exacerbates symptoms, which include severe peripheral neuropathy, tingling in extremities, parathesia almost anywhere, brain fog, frequent urination, headaches, mood changes, memory problems and more gut issues like "non-specific" gerd and gastritis, and heart arrhythmias.
Synthetic B6 is found in B Complex supplements, energy drinks, vitamin waters, protein shakes and bars, smoothie mixes, fortified and enriched foods, such as GRAINS (breads, pastas, cereals, oatmeal, crackers, potato chips, etc).
Here's the tricky part ... Producers aren't required to list B6 content on their label if they don't add it in themselves. But if they use a whole wheat flour, say, that's already enriched with synthetic B6, they don't have to list it.
I'm not saying avoid B6. Having a deficiency has almost the same symptoms. Just avoid the obvious synthetic forms, like supplements, energy drinks, etc. especially Red Bulls!
Producers need to put toxicity warnings on their labels. I LIVED on protein shakes and bars, vitamin waters and the like when I had HP. It's all I could eat. But the price I paid was horrible. And worse, some of that nerve damage can be permanent. Be careful. Avoid ALL synthetic vitamins, in fact -and get your vitamins from food."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Linky, I hope you find some betterness asap.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3560 | From Eastern USA | Registered: Jul 2013
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""Iodine deficiency is a big cause of PN because it causes a loss of myelination of peripheral and central nervous system tissues. A lack of iodine also means the person can not myelinate their nerves because they can not access the ketogenic pathway to myelinate nerves. This has two major effects on nerves.
One it decreases the insulation of nerves and can cause a short circuit to develop. The second is more interesting and more significant. It would decrease the the DC current of nerve fibers that has been found experimentally to be tied to tissue regeneration in mammals."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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