Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeFamily >>>>>,
Both new and long term LymeNet Folk, please keep asking questions, and don't be afraid of sounding unknowledgeable!!!
So many times when I can't think or connect the dots on a problem, I read a question or replies to it, and the dots start to connect. It begins to make sense. It is so helpful and neccessary.
Again then, please ask those questions,and voice the tho'ts , you may be not only learning yourself, but helping others to learn. And it does make a difference.
Thanks to each LymeNet family member for sharing your stories, your questions and replies. Tho' I am sad so many are stricken with the Lyme and Co's, I am so glad y'all are here.
The support and caring is wonderful...
With Love from Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< LymeNet Family >>>>>,
Really, this Topic is good news, in the middle of the hard things happening to us, and to other LymeNet family...
Having LymeNet to come to,and find comfort, answers, and some guidance is a huge huge blessing!!!
Jus' Silverwolfi here,encouraged, and hoping to encourage others too!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I agree. Everyone here has helped me so much with my lyme learning curve..
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I couldn't agree more. I was pretty clueless before Lymenet. Not only have people helped me with questions, they have recommended great resources to help educate me.
Plus, people have provided great emotional support when I've needed it.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
Hello everyone! I am so happy to find this board maybe I can get some answers. I have the tex book lyme problems, but I also feel like my skin is on fire. From my scalp to my feet it feels like I am touching a hot wire and it does not go away. Sometimes it is not as bad as others but it never stops. Can anyone help?
-------------------- cc Posts: 2 | From tn | Registered: Oct 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey cc,
Welcome to LymeNet!
Sorry to hear about that painful skin burning. Are you being treated for Lyme disease now?
Have you been checked for another tick born infection- Bartonella?
This recent "Ask the Expert" article may be of interest. The painful burning here is thought to be the infection and inflammation hitting nerves.
Not one is sure which infection is responsible, but since Bartonella is famous for causing burning and painful feet, it might help to read it.
posted
Thank you tincup. I have gone through all the drugs that doctors that either don't care or just don't want to take the time to try and find out what is going on gives out. I also have lupus and now have to be careful what I take. I decided two weeks ago to try and help myself, I started electrifying my blood. I do this two to three hr's a day and I also drink colloidal silver,and sit in very hot tub everyday sometimes twice a day. If all this does not kill me it has to help,lol!
-------------------- cc Posts: 2 | From tn | Registered: Oct 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
You are welcome cc. Hoping you can find a Lyme treating doctor. If you check the Maryland link in my signature and click on the Doctor Referral link on the menu to your left you will see a site with names and contact info for Lyme friendly doctors.
You said.. "If all this does not kill me it has to help,lol!"
I agree! I can't rah rah rah those treatments, but if you will be doing them I do hope they help. Hoping you will get a good doc to guide you!
Hey Silver- so sorry to take over your post dear one. It was easier than trying to explain to cc how to post a new post, especially when I still have trouble doing it! Hope you don't mind!
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Welcome ccboyd ...the lupus is likely the lyme ..i would not take any of the medications they have to suppressbyour immune sx ..if your body is attacking organs then you must ask what pathogens are in there that is trying to get at ...?
Dna connexions has a solid test ,no doctor needed ...
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi ,I'm back, had to travel again...
<<<<< HW88, me, CC' ,Tinny' ,bluelyme, and Lymetoo >>>>>,
Welcome CC', Hello ev'body! Been off on estate business, got back home, saw ID DR. today and am trying a different ABX.
Dr. cautioned me, to watch very carefully for symptoms,anything unusual,etc., on a 2wk stretch, of meds this time. We and DR. are hoping,I don't need to be IV'ed.
Will have at least one more trip to make, hopefully after the Holidays are over. We'll see what happens.
As stated above tho', Y'all are family, And I am grateful for each person. And for these LymeNet boards. It is hugely helpful,and keeps me from giving up!!
We didn't talk about LD and co's with the ID Dr. just the UTI issues. We'll see if we can get the problem stopped.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Oy, I forgot, <<<<< Lymetoo >>>>>,
Thanks for the Mast Cell info' link. I am suspicious that that may be part if these health issues. PCP didn't really know much about it,just tho't is was basically allergy issues.
Speaking of Issues, my Laptop is still playing 'Skippy/Switch-words. so TxC' says it has to go back in for a bit more work. We'll see what happens in a few days.
[Evidently 'Skippy' thinks that more and happens should coglomerate into "Moreppens"... Uh alright-y-then...].
Oh ,jus' general info' these brackets <<<<< >>>>>,are my chicken scratch way of sending Wolfish hugs to all!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Good to "see" you Silver! Hoping the new meds will be the final answer for you after going thru so much! Bet you do too!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Tinny,and various Lyme Family,well Allayall! >>>>>
We are hoping this ABX works w/o to many bad side effects.It's kinda a high dose, 2000 Mg a day for a couple weeks... scary for me.
Gotta close for now...
Jus' Sleepy Silverwolfi ... I think it is the meds'
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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