Jordana
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Last night on Netflix for some reason I watched a documentary about the 85 Bears Superbowl season.
J Mcmahon was the quarterback that year; bigtime famous for a couple years, then he disappeared.
There's a lot of talk these days about the concussions these guys get over their lifetimes and how they contribute to early onset dementia. And McMahon had a really messed up cervical spine that wasn't discovered for years. In fact he broke his neck at one point and the trainers and his coach never told him.
Years later he developed debilitating symptoms.
So they fixed the cervical spine and he felt a whole lot better. it took years for someone to figure out how to help him. But he still has dementia and lots of other arthritic issues.
But...listen to the rest of what he's saying. In the video clip he's talking indoors with sunglasses on.
Their practice field used to be in Pleasanton Wisconsin, now known as endemic for Lyme.
bluelyme
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I was in Wisconsin when i was young...jim mc and walter Peyton were my faves ...along with the fridge...any who my uncle just got dx with alheimers and 9 of 10 brains have lyme..
his daughter ,my cousin has had "scleroderma"? And has gone downhill with tx (immune suppression)hmmm? Another daughter of his has pituitary disfunction?
His grandson has lyme and of course i do too ...hmm we all grew up rocky Mountain way.....so i was at my rhuemy doc who was nice enough to send me to id duck and not give me roids for my vasculitis that bactrim /lyme kicked up
and i was staring at the thousands of med records in there and realized all those ra and ms and lupus, thick blood patients all have a root of infectious cause .i cried for the older lady in there who was getting methotrexate iv..
Any way was trying to get rifampin, he gave me plaqunil which has nuttin to do with da bears but i dont know if i have babs...probably definitely bart ...starting clove oil and Houttunyia .
Glands are swollen and i may be treating to hard to fast but i want relief like everyone else. Whats the point of winning the superbowl if you cant remember..i read some of betty g posts about her hubby losing it ..hallucinating and forgetting...i prayed for remission and or an honorable way out today..
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Jordana
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. Hey. You can't afford to think that way.
JM is doing all right. He said he used to lie on his bed and stare at the ceiling and wait to die because there was an icepick in his brain. He came out today and said the only thing that helped besides getting his neck fixed was cannabis. Now he smokes all day and says his pain just disappears.
Where have we heard all this before?
Who knows, maybe all the cannabis will cure him .
Plaquenil kills Lyme, according to LymeMD.
You just hang in there. You are doing everything you possibly can.
You, me and JM are all gonna get a lot better .
Posts: 2057 | From Florida | Registered: Feb 2015
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droid1226
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Jordana,
It could be lyme. Here's some observations I've had through the 4 yrs I've been sick. Specifically in sports & I want to preface that I'm not trying to be negative or scare anyone. More like I want to think positively, learning from other's mistakes when it comes to their health. Lyme patients aren't always right but at least we can offer an answer that mainstream medicine can't & are so much more up to date with knowledge.
I've seen Jim Mcmahon along with many,many other athletes. I think there's a lot of ways to injure the brain. Trauma is one. I also know that these guys spend most their lives practicing on grass fields w/ little protection.
A study was done on Italian football(soccer) players & they are 7x's more likely to develop ALS. Even Dr. K in Wash says he's never met an MS, ALS, or parkinsons patient who tested negative when he tested the patient enough times.
Ben Petrick was a starting catcher on a Pennant winning MLB team (Rockies) ten years ago. He became ill in the offseason & diagnosed, treated lyme for 6 months. He developed parkinson's right after he stopped treatment.It ended his career at a very young age.
Ben was the baseball player in "Under our Skin", was on 60 minutes, & plastered all over ESPN. Even with the best Dr's, they still convinced him that it wasn't lyme. Ben is in very bad shape today after a life saving surgery that took a huge piece of his brain. But he was able to stay alive long enough to have a child. The hospital's awful solution to "cure" him was to put a brain stimulation machine in his brain, taking much of it. It was a 50/50 life or death surgery. Lyme was never discussed....Why? Idk.
Even the best Dr's, Ben himself, & everyone around him still don't consider lyme as a factor, even though his parkinson's started right after he pulled out of lyme treatment early.
All the millions of $ these guys make cannot buy them vital, lifesaving information if they aren't willing to look for it. Most people put Dr's on such a pedestal that they couldn't conceive modern medicine could be so wrong about so much.
Idk if you are new or not to lyme but if u are, you may find yourself seeing lyme in so many people......In the news & in real life. All over. All you can do is mention it to them, I've found the more I press, the less they want to hear it. Now that I'm improving people are more willing to listen but I realize now, they didn't want to hear someone who thought they were smarter than Dr's, especially one that's still sick himself.
Just today on Twitter, I saw that arthritis was trending. I saw someone cite a study that 61% of severe arthritics tested positive for one of five strains of bartonella. That's pretty overwhelming evidence, especially since tests are 50/50 at best. That means almost all severe arthritis has an infectious disease component. NOBODY wanted to hear it. Who knows why. One way is curable, the other isn't....Why not?
All that said, everyone has different paths to health. The fact that you're researching & willing to think a little outside the box means you have a likely chance at getting better. The key is staying the course,persistence, & constant monitoring/experimenting on what works for you.
You said something about plaquenil. I think it's a great drug if you can handle it. I took large doses for a couple yrs, it also has anti inflammatory benefits.
We hear such good stuff on marijuana. It didn't help me so much, but if that's what it takes to improve someone's quality of life or cure them...who is anyone to say no?! Hope the best for you, JM, & all of us!
Jordana
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posted
I know, it's so weird to me with Parkinson's especially. Instead of a noninvasive course of longterm antibiotics the advice is to stick electrodes in your brain? Sure, that's so much safer!
Then again I'm not sure *all* Parkinson's is Lyme. But I bet we find out eventually that most of these nerve issues; even the so-called "genetic"ones, have an infectious initiatior.
There's a protocol now for Rheumatoid Arthritis that includes minocycline, which they call a DMARD-- Disease Modulating something or other. Plaquenil is actually another one.
Both of them are antimicrobial. Hmmmm...
Posts: 2057 | From Florida | Registered: Feb 2015
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droid1226
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Yep. I've had rheum's prescribe abx before. Idk why they prescribed it. I'd fade out halfway thru the appt. Even if they call it modulation, something fungal,viral, or bacterial knocked the immune off it's course & flipped a genetic switch. Arthritis specifically is a cash cow. Devices, pills, constant treatments, lifer patients, etc.
Crazy that some humans are so irrational that they aren't curious what the ROOT of the problem is. Scarier that a lot of them are Dr's
Idk if parkinson's is lyme. I know a lot of lyme patients who go thru trembling phases during treatment,including myself. Maybe it would've just gone away without treatment. I wasn't willing to find out.
I do think a BBB antibiotic is crucial for everyone if they have disseminated lyme, no matter if they choose to label it arthritis, MS, ALS, CTE....
Catgirl
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quote:Originally posted by droid1226: Most people put Dr's on such a pedestal that they couldn't conceive modern medicine could be so wrong about so much.
Ditto.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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For what it's worth, my father had Parkinson's and I'm pretty sure it was from Lyme. My lyme diagnosis came 7 years after he died.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Jordana
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posted
My grandmother had Parkinson's. She was diagnosed in the late 1970's.
We had some exposure to wooded areas since there was a cabin we would go up to in the summertime in Minnesota and Northern Wisconsin. But I'm not sure that Lyme was endemic there at that time.
Anyway the thing about Parkinson's is that you can see it on an MRI. There is loss of pigmentation in the substantia nigra which isn't really what we've seen Lyme do in the brain. It likes collagen and endothelial cells and thus creates white matter lesions; sometimes spinal swelling, syringiomelas, things like that.
However. Bartonella is a good candidate. It goes neuro fast, is very small and people who come down with neuro bart do a LOT of shaking of various kinds.
Just my opinion.
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. Hey. You can't afford to think that way.
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