posted
Met with the ortho yesterday and the knee cap replacement is scheduled for mid July. He is also going to get a sample of the "fibrous" material in the lower femur for biopsy. At this time doc doesn't think it's cancer but he's making sure. Also no other "hot" spots in the full body bone scan except to say my ankles are a mess (knew that!).
On the 13th of June I'm having blood work, more x-rays, and talk with anesthesiologist about anti-inflammatories. Doc recommended stopping them a week before and we told him I go from functioning to bedridden in 24 hours because the arthritis is systemic.
Edited to add I have another MRI on the 5th of July. Hopefully this time they will actually "see" whats up.
So it's off to the races!
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
| IP: Logged |
posted
Let's hope and pray that you will be all fixed up SOON!! Seems a long time to wait, but you know how time FLIES!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hope your surgery is a success!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6136 | From Columbus, GA | Registered: Jul 2004
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well, at least they know you exist and are starting to make progress. That's good!
You said they may do a biopsy on tissue for cancer. Can you PUSH them to also send some tissue to labs to test for Lyme and Bartonella? And I don't mean stupid labs, one of the good ones. It won't take them but one minute more to make the effort.
If they don't agree at least they will always be wondering about it, hopefully for the rest of their lives coming back to them in nightmares, and if they do agree perhaps it would come back positive and teach them something that can help you and others down the road.
And if you don't mind, I gotta comment on them trying to take away your ibuprofen too. Ever see the TV show Home Improvement? Remember what Al use to say to Tim when Tim wanted Al to do something stupid? Here it is...
I actually told a doctor this same thing when they said they wanted me off ibuprofen for a week prior to surgery.
I told them nicely, but bluntly, they would just have to work around it because I wasn't going to do that. And they CAN work around it easily, they just don't think about the problems people have and make it a standard procedure for all. The "status quo".
Now the trick is, and my doc was great, but I had another one that was a PIG. The pig didn't add my ibuprofen to the list of meds the nurses were to give me and it was a weekend and the PIG wasn't coming back till Monday so the nurses wouldn't give it to me. (being the prepared person I try to be, I had some with me so nah nah nah nah nah.)
The docs do these things out of spite and just to make themselves seem important.
Be SURE if you have any length of stay in the hospital after the surgery it is CLEAR you want that ibuprofen and you don't want to have to go looking for the doc to get it. Don't let them pull one over on you.
Otherwise I'd say you are good to go (notice I said YOU, not me), and I hope the procedure is able to do all it is suppose to do and you'll be better off for the effort.
PS- All of the above are "suggestions", not orders. ~smile~
Just don't want you to be any more miserable than absolutely necessary!
posted
Ibpro, aspirin, tylenol are like drinking a glass of water when it comes to being effective on my arthur. I used NSAIDS, feldene, indocin and now am using Dicolfinac now and I tell any and all of them that if they pull me off, I want a special van, motorized wheelchair and an attendant who will load me, drive me, and cook (I'm the cook at the house).
Then I get dumbfounded looks cuz like I said, if I don't take my NSAID this morning and then again forget tomorrow morning, by nightfall I will need a couple (if not 3) big burly EMT's to get me out of my chair and then once in my bed it's game over!
The VA has consistently refused to test any and all patients for vector born diseases - even knowing we had spent a year in Thailand, two years in N.H. and growing up in R.I. playing "Army", football and baseball in the fields.
They (VA) want nothing to do with TBI's, or any other biting insect.
Just asking can make me a "difficult patient" and may reflect in further necessary treatment.
Not trying to sound political, but this is what single payer would look like insurance-wise.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic