posted
Nothing different. That is what is puzzling the doc.
-------------------- I still have a good time wherever I go! Posts: 138 | From Lost Wages | Registered: Oct 2016
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Trekc' and Lymetoo >>>>>,
The rash where I sit, has worsened again too, that is why I think it is the unfiltered water here.
I am sure the nasty winds have made things worse too. I hope the new med's work w/ no serious side effects. I start on the creme tonight. So we'll see how that goes.
Sore stingy Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Jus an idea..
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< jory >>>>>,
No,I wish we did, have to wait for payday.
Thanks for the idea! I was just trying to remember the name of the flower it comes from.
Marigolds?? We used to have some when we lived up in Idaho.
Will research a bit, thanks for the links!
Jus' that almost masked looking Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
oh hon I'm so sorry. I wish I knew what to suggest.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Randi' >>>>>,
Thanks for the commiseration! We are waiting to get in to a Dermatologist, have a referral but it takes awhile.
Meanwhile trying not to cry or smile a lot, because it gets sore really quick, and it's as bad or worse on the rash 'where I sit' as well.
Have Clortrimazole,and some other stuff in a creme for that to try again... we'll see.
I know this Wolfi girl is gettin' dog tired of the rashes.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Yes I think Calendula is of the same genus as Marigold. I find it's great for the stomach when mixed with a carrier like coconut oil.
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Now that I see the picture, I know that I came down with this once many years ago.
The dermatologist named it and said it is just Latin for "red around the eyes." He gave me a very small tube of something and it took it away. It was likely a steroid cream.
The redness lasted probably a month or more.
I found a webpage where people are suffering with this for looong periods of time--like years and months. Take a look at it and be sure to hit "read answer" near the top of the page to get the doctor's answer to the problem. Hope this helps you:
"One other common cause of redness around the eyes is shampoos that contain the ingredient sodium lauryl sulfate (SLS), in the United States, with an "f," also known in some parts of the English-speaking world as sodium dodecyl sulphate, with a "ph." This product causes skin inflammation and acne-like breakouts. The solution to this problem is simple. Get rid of shampoos that contain SLS. If you don't know whether your hair care products contain the offending ingredient, then at least be sure to rinse your hair from front to back when you shampoo."
Thanks for the tip to look for "Read Answer" TF!!
Since Silver thinks it's the water, it could indeed be the shampoos or body washes.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I looked around and found some info for you.
And here is mention of "raccoon eyes" I have listed in the symptoms list of Bartonella. (Dr. J originally described this in children he was seeing a long time ago.)
"... eye related problems such as raccoon eyes (dark circles under/around eyes)."
I just highlighted it (BOLD) on this page so you can find it easier. Typically it is more purplish, but hey, who knows.
100% guarantee a dermatologist won't even think of Bartonella as the source- and few LLMD's would be able to tell you because we only have 1 decent term (foreign country) as a LLMD.
On this page check out the pics of the eyes- should be 4 of them- 4 pics of eyes, not eyes. They don't look like yours, but they show involvement similar to yours- meaning around the eyes.
Treating it topically may not provide relief? It may take something like Clarithromycin or zithromax?
Since you have been on antibiotics recently, chances are blood tests for Bartonella titers won't be positive.
And before they want to biopsy the site around the eyes you need to know if the samples are going to regular labs. VERY important. Almost 100% sure they would be.
More often than not a specialist working with bartonella must run special tests. The "regular" ones won't know how to test for it and aren't prepared to at all.
I refused a biopsy for the same areas around my eyes to check for Lyme ACA (which this could be) or Bartonella.
My skin is too thin and fragile and even though GOOD doc was sending it to someone special who "should" know, I didn't want to go thru it just for a fishing expedition.
I figured skip the painful part and just treat. And that worked.
Keep in mind this amateur assessment is totally my own opinion and I could be totally wrong.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Jory, TF, Lymetoo, Carol', and Tinny >>>>>,
Thanks for the tho'ts, info',Links, and prayers ,as I know many pray!
I have to brave going out for a bit, so we'll see what happens. They have now cleaned up our lot,and the one where we are moving to, hopefully getting rid of weeds and grasses will help!
The water here is so awful, plus with all of the weeds and grasses,and all the ABX I was on, and reacting too. It is likely yeast and other factors together.
Some of these weedy grasses are interrelated to Oats, which I am extremely allergic to, so I'm thinking that was playing a part in all this as well.
I'm reading thru the links, some of it is really similar issues to mine, rashes attacking thinner skin,round eyes, diaper zone and so on.
Will be back in later to look at more, gotta take care of some business, and then I can rest and do laundry.
Thank You, thank You , Thank you all so much for the info'.
I'll check back in a bit
Jus' Silverwolfi -wild-Husky canine masked one
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo, and Randi' >>>>>,
I already do check foods shampoos and make-up for Oats/Aveena [sometimes w/ varied spellings].
And foods too, even GF foods some of them use steel cut oats, I cannot do ANY Oats.
Randi', actually I've had deep, hollow, dark, under eye areas. I have since I was a child. Have had lots of sinus/allergy.
It was so blotchy red when TrekC' took the picture, it was hiding the dark circles. I usually have to use make-up concealer to hide them.
Every shampoo we have including the Baby Shampoo and our Dog/puppy shampoo has SLS in it. The baby shampoo has it 6th on the list, the others are first after the water.
Hard to find a good dry scalp shampoo that doesn't have SLS in it.
So far I've been able to stop the eyelids from bleeding,like they did in February/early March, but they each something fierce,and are starting to darken like a bruise in some areas.
Where upon I sit is worsening again too, this time we have Clotrimazole again/ with a mild steroid agent in the creme.
It was easier to get in to a Cardio doc' than the dermatologist so far. I have a Cardio' Appt. late mid April, nothing so far for the Derma' Doc's.
I'm also checking from that angle, what could cause chest pain on exertion [like going up our few steps on the porch], and rashes on thinner skin?
I tend to blame everything on the Lyme and Co's, but it could be something else too. Like the UTI/Bladder infections. Tho' I think the LD and Co's had a hand in that. And this mess too, because it weakens us so much.
I am wondering about the Bartonella issue too, and maybe the Babseosis rearing its' orneriness again.
We have a hopeful possible lead on an LLMD we may be able to get into, but it will take awhile. And of course they wont take insurance,for the obvious reasons.
They did salvage my Medicaid, I was surprised. But it helps sorta, for now, still a lot it wont cover.
I am going to get a cold compress [homemade], after I get some laundry started. Some of the links had good info' on that too. Evidently we should all be airing pillows and bedding, more than most folk realize.
Especially with folk prone to rashes and eczema, which I used to get as a child. Some say it is wise to just let everything air daily even. I am lucky if I have the energy to make a bed a few times a week,and wash sheets and stuff a few times a month.
But good to know about airing bedding,so I'll see what I can do,as we get this mystery unraveled.
Off to try doing some laundry...
Jus' Silverwolfi the laundress, trying to keep the den clean.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Jus' Me-Wolfi,
The eyelids itch...uhm not each...
And Tinny, the culture/biopsy thing will likely be the rash, whereupon I sit [ the Diaper Zone, as it were]. Altho' I suppose they might want one around eyelid area.
I'm not sure what sort of lab it would go to, when I eventually get in to a Derma' Doc'... most Drs. here don't get Chronic Bb and it's co-infections, they are trained not to believe it.
And the -they-, who salvaged the Medicaid, is thru the state? I think..., not something to do w/ an LLMD. Just in case I'm clear as mud, my tho'ts don't connect as well as I'd like right now.
Jus' That Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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