-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks for excellent article. Part 1 of 3 . . . will be sure to look out for the next parts at HuffPost. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Some docs just get it. Oh how I wish the rest of them would get it.
Thanks for the post Tutu.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- They (IDSA / CDC) do not WANT to "get it" so it's best that we just turn to doctors who both want to understand and want to work to make this better.
I'm done with my energy & hope that those who don't "get it" will just read the right article, meet the right person to help them understand.
It's in their very nature, those who live and breathe the IDSA lyme dogma, not to want to, not to be open to learning more, not to care about it or those who previously relied upon them to do their jobs.
They told us in, oh, so many ways & actions that they are not interested and this just leaves such a disgust that sure took me years and years to recognize and to stop trying to change doctors who had been so very clear that they were not open to learn more.
Time to move on and change perspective, to find those doctors who have gone the extra mile in all manner of speaking to understand and work as they should, for the patients, for the sake of their medical oath.
To help, in whatever ways possible through LymeDisease.org and the LDA, etc. to encourage those doctors who have not yet turned to stone.
And to continue to help people new to all this learn the facts about tick borne disease and face the task ahead armed with the best information and guidance possible. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If this talk did not prompt proper change with the IDSA / CDC, I'm not sure what will. This is the most convincing set of facts I think anyone could ever lay out:
- presented to the Institute of Medicine - Oct. 11, 2010
[Full speech at link above]
my thoughts:
"Pamela Weintraub's stirring speech brought a standing ovation from the audience, and spirited discussion from panelists."
The article starts out, noting the audience and guest panelists . . . but what has become clear over time is that no minds within the IDSA were at all opened or changed. And that is mind boggling.
It tells us who they are, indeed. And that we can never count on them under the current reins or leadership, membership.
Still, this is a very important address for so many reasons. And, I am glad that a few good doctors are speaking about the realities of tick borne disease, such as those in ILADS and Dr. F in her new series of articles.
Sadly, though, not that many people will see it. The HuffPost health articles are not exactly front and center. Lyme articles have never been on their main front webpage, but tucked away . . . still, very glad they have been consistently in tune with issue over time with various good articles.
It is clear the importance of places like LymeNet to share links and prompt education in this matter.
And thanks, too, to the top lyme advocacy and education groups such as ILADS, LymeDisease.org and the LDA, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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