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» LymeNet Flash » Questions and Discussion » General Support » Annoyed

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Author Topic: Annoyed
Amberlite17
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I just happened to catch an episode of The Doctors. They were discussing Lyme and how it was completely curable in just a few weeks with antibiotics. Pretty sure they said 2 weeks. How can people be so oblivious to the truth!
Posts: 10 | From Ford City, Pa | Registered: Nov 2017  |  IP: Logged | Report this post to a Moderator
Keebler
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Sadly, this is the stance of the government agencies such as the IDSA / CDC and the medical establishments (AMA) / university hospitals and such..

This is their plan, truly.

These political entities "own" the broadcasters and newspapers, so to speak. Many contribute major bucks in advertising and, often, the university hospitals are the largest employers in the city or region / state. That carries weight with the media outlets.

Pharmaceutical industry is behind this, too, in that they want patients with chronic illness to require handfuls of daily Rx for management of symptoms for ever and ever. Then such patients will also require additional Rx to cover the side effects from the first Rx but none will address any underlying infections, of course.

To address infection might mean treatment for 6 months to a few years but they want life time Rx management prescriptions. They put pressure on the IDSA and other doctors, too.

Insurance companies, too, put pressure on so they don't have to cover the intense, combination and rotations of lyme /TBD treatment that often need to go for a few years' time. That concentrated cost they are so against.

We know it's not correct, what they say in their little news blurbs and - once in a while as station might do a real segment.

But for the erroneous ones . . . .

[although, sometimes some people do seem to get lucky with short treatment but there are so many variables - and many don't really get well but are told they don't have lyme anymore and to just cheer up]

and we know where else to find the proper educational materials but, yes, it's not just frustrating to hear this

but people can be harmed if they settle for this garble and it undermines severely patients with chronic lyme & Co. in the eyes and minds of family / friends to hear this and then wonder about those who are not well, etc.

Undermining the patients who are ill seems actually to be a plan of the IDSA, CDC, etc. regarding lyme, etc. They want to paint the picture of losers and moochers. It's very demeaning and it does make a lot of families mistrust their loved ones who are ill.

However, if those who are ill say that to loved ones, it also makes the ill family member look crackers, paranoid and conniving or full of deceipt. Double sigh.

Argh.

Also very disconcerting that most often they never seem to mention the severity of OTHER tick borne infections that most often travel with ticks and that antibiotics do nothing at all against some of those - they require far different treatment approaches.

Or anything about how antibiotics can cause chronic lyme to develop and antibiotics, alone, are never enough to treat lyme.

But they don't mention that so most viewers are in the dark.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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If you find you ever have to "explain" or "defend" yourself to others. Links below are good to share rather than trying to defend yourself. Let them read from the real experts.

For anyone new to lyme or other tick-borne disease, these are among the top patient education, advocacy and public awareness organizations:


http://www.ilads.org

ILADS - International Lyme & Associated Diseases Society


https://www.lymedisease.org/

Lyme Disease.org


http://www.lymediseaseassociation.org

Lyme Disease ASSOCIATION


https://globallymealliance.org/

Global Lyme Alliance
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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As you are new here (and a good strong "welcome" to you) . . . you might also want to access various books and a range of ways people approach this when the medical system fails them:

For those considering complementary support methods / or other avenues entirely:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS-educated LL:

N.D. (Naturopathic Doctor);

L.Ac. (Acupuncturist);

D.Ay. (Doctor of Ayurvedic Medicine);

D.O.M. (Doctor of Oriental Medicine);

Herbal Safety considerations & reference books; etc.

BOOKS - Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:

knowing which methods offer assertive & direct impact, which are only support and which are both. And when to use what, how to combine, & when to step back.

You can compare and contrast many approaches with links to articles, books, methods . . .
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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The documentary set below explains a lot about the politics and stance beyond my thoughts of the IDSA / CDC / AMA, too. Just Google to find its own website:

Under Our Skin

Emergence
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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[rant] [shake]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Typical mainstream Doctor rubbish.
Doctors who cause harm to their patients. It's got to STOP !

People in my area know better and are scared ####less of getting Lyme. Because we all know someone who is battling and struggling with it.

In fact, they can't wait till the new Lyme vaccine comes out.
Which is a whole new can of ####.
Almost as worse as getting bit by Mr Tick himself.

That's why I share my story where ever I go.
I am not embarrassed. I do not wallow in self pity.
I fight everyday, as many others do, and it should mean something.

I am the face of a Lyme advocate.
For me, the right thing to do is TO PROTECT OTHERS FROM THIS DEVESTATING DISEASE.

Strength in numbers always.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Tincup
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This show is disgusting.

But, I smile at all the advocates here who KNOW better and are attempting to change things for others.

Love you all!

[group hug]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Amberlite17
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Thanks for all the great information. I’m aware of some of it, but some is new to me. I knew it’s the CDCs position, but it’s so frustrating. Grrrr
Posts: 10 | From Ford City, Pa | Registered: Nov 2017  |  IP: Logged | Report this post to a Moderator
   

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