posted
I'm just curious if here or elsewhere, a list of celebs and what therapies WORKED for them. I can't find it when I looked. I know one was stem cell. But of the MANY others that have it, they dont' necessarily say what helped them. Just curious.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A search on "stem cell" treatments can be done but best to seek out all that any of the ILADS LLMDs would have to say on the matter.
I don't know too many who could ever afford stem cell treatments so - as for myself - I don't see the point of even putting forth much energy to research that state of art yet within the lyme experts.
Most reports from "celebrities" are rather lopsided. We don't get the full report, ever. And the variables are just vast.
For instance, one might do all sorts of things, some of which might actually be targeting lyme or other infections yet, when breast implants were removed, she saw a more sustained progress. So many variables.
Yolanda Foster comes to mind there and she did share bits and pieces of some dramatic efforts overseas, etc. but, IMO, her accounts would not be much to really go on - other than to consider all aspects that affect / drain health.
One would need several hours of one-on-one interview with a person to come to some awareness of the path they chose and what they felt worked best for them.
I'd rather spend time and energy on advice from seasoned LLMDs as to what has worked for the hundreds or thousands of patients they've worked with.
ILADS conferences often highlight what is working, what is not and - most importantly - some scientific "musts" such as address the cystic form of lyme as well as biolfim
and that antibiotics just can't touch some of the coinfections as they require different treatments.
Some also stress the "must" of liver support, and of adrenal support. Many just can't get better with these.
Yet, chronic lyme is ALWAYS much more than just lyme and it is ALWAYS different for each person as to the mix of infections, kinds of treatments / support that work best with an individual.
If at all possible, I hope you can work with a good LLMD.
If not, be sure to consider a rife machine
and see all the books / articles here for the range of approaches:
Herbal Safety considerations & reference books; etc.
BOOKS - Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
knowing which methods offer assertive & direct impact, which are only support and which are both. And when to use what, how to combine, & when to step back.
You can compare and contrast many approaches with links to articles, books, methods . . .
RIFE Machine - Reference LINKS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- This well know author has written in several places of having worked with a top ILADS LLMD and (not here but elsewhere) has described a very long and rigorous Rx treatment that was specifically tailored for her -- as every patient should have with combinations / rotations.
She mentions two years here (before feeling really better) yet, I think, in other places she may have described longer treatment even to follow up on that.
Search Google with:
"Amy Tan" lyme, treatment, doctor
see the NYT and the Canadian Lyme group articles and others. Just one:
Ticked Off - how a tiny speck changed my life forever
. . . After two years, I felt I was back to feeling well. . . .
. . . Today, I can once again write fiction, speak at conferences without notes, and walk in my neighborhood alone and without anxiety and panic.
I can follow conversations, understand ironies, and tell jokes. I am not cured but I consider myself healthy by a new definition: It means having your life back in all the ways that matter. . . .
YouTube - Amy Tan, 3:30 interview about lyme - 5 years ago.
I saw her interviewed for other topics recently and she is very coherent, speaks intelligently and has good personality. So glad she is able to write & talk again. She seems strong now. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Author Pamela Weintraub has also found a good solid success. Read all you can from her.
For patients with tick-borne diseases, the path to health can be confounding. Combining integrative and conventional approaches may be the best way forward.
. . . What’s more, many of these hard-to-treat patients, like Makris, turn out to have co-infections transmitted by the same black-legged ticks that gave them Lyme — infections that don’t always respond to treatments for Lyme disease itself.
The blood parasite Babesia, for example, must be treated with antimalarial medications.
And, the co-infections Anaplasma and Ehrlichia do not respond to amoxicillin, a first-line antibiotic often used for Lyme.
Even if these and other co-infections are addressed, [Dr. H] says patients can stay sick for many reasons beyond simple infection itself. . . .
The groundbreaking, award-winning investigation into Lyme disease—the science, history, medical politics, and patient experience—now with a brand new chapter.
Be sure to do a fresh search on her works as the links above have not been updated in quite a while. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Same here, be sure to check for more recent works by any author or LLMD.
See all THREE posts here by Pamela Weintraub (who is a LL journalist who recovered from lyme - and write about her entire family dealing with it in "Cure Unknown" book )
Notice that Burrascano said the first cycle was 26 WEEKS, not 26 months as posted by garnet.
Although there are updates and changes in time - and for each individual, an important "template" of sorts that is essential to understanding the basics & how any treatment protocol might be designed.
Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
Page 27 - SUPPORTIVE THERAPY & CERTAIN ABSOLUTE RULES for self-care
also see the guidelines at ILADS, www. ilads.org & check out the ILADS conference subjects / DVDs, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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I was on abx and a few herbals, but now changed to just herbals. My ll and nd were a bit mad at me that I kept bringing new treatments to try, in to my appts. They wanted me to stay off the net for a bit and just try to let what they have me on, work.
I only half agree w/this, as I've been in treatment for 1.8 yrs and no improvement.
I agree it should be tailored to the individual..they told me basically to put more trust into them and not just go off of all I'm reading. So I'm quite conflicted.
The major things I'm on now are Jap Knotweed, Biocidin, Itraconizole, and Houttyina, the last I havent started yet as I'm working up my dose on the others, and I want to know whats causing what.
I'm also on mag, coq10, NAC, charcoal, Banderol, Pinella, 2 probiotics (Klaire detox and Thorne sacro b) fish oil, collagen, was on 3 different Unda numbers but ran out, curcumin, copaiba oil (internal, external).
then a few things for depression and my thyroid.
Ive been trying other oils siad to help nerve pain, externally (ylang and bergamot) but dunno if they do anything.
My lyme doc says she puts me on things that address all the infections and reiterated that when I brought up specific things for certain infections. I brought up parasites and certain mixes ppl use and she says shes been treating parasites. And that I dont need a ton of things to kill things.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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