Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Announcement From The National Lyme Disease Association!
May 18, 2018--The Lyme Disease Association, Inc. announces the introduction of HR 5878, “National Lyme and Tick-Borne Diseases Control and Accountability Act of 2018’’ into the US House of Representatives by Congressman Christopher H. Smith (NJ-4).
The Act will establish the Office of Oversight and Coordination for Tick-Borne Diseases in the Office of the Secretary of Health & Human Services (HHS) to be headed by a director appointed by the Secretary.
Its purposes are to oversee the creation and establishment of an integrated national strategy to overcome Lyme disease and other tick-borne diseases (TBD) and to oversee and coordinate Lyme and TBD programs and activities across agencies and offices of HHS.
According to LDA President Pat Smith, “There is an urgent need for the House to pass this bill so that Lyme and other tick-borne diseases (TBD) are addressed in a coordinated fashion.
The US needs to play a leadership role in this effort, since Lyme is spreading around the globe as are many other TBD, ~20 in the US alone.
The public is at risk, as are our children, since tick-borne disease cases have doubled over the past 13 years.
I applaud Congressman Smith’s continued focus on the impact upon individuals and families who have TBD and upon the public at large who may contract these diseases from ever increasing existing tick populations, and perhaps in the future, from a new tick such as the invasive longicornis tick now found in NJ—the impact of which tick is yet little understood.”
Objectives of Office of Oversight and Coordination for Tick-Borne Diseases include expansion and enhancement of epidemiological research & basic translational, clinical and biomedical research;
expansion and improvement of surveillance and reporting of Lyme and TBD including coinfections;
development of effective diagnostic tests to accurately and timely diagnose Lyme & TBD, including direct detection tests;
development of treatments to cure or improve the lives of those affected with Lyme & TBD or who suffer from tick-induced disorder;
design and conduct clinical trials of sufficient size and duration to support clinical recommendations;
development of patient registries; documentation of experiences of health care professionals in diagnosing TBD;
inclusion individuals with chronic Lyme disease in clinical, research, and service efforts;
and coordination with international bodies to integrate and inform the fight against Lyme and TBD globally.
The Lyme Disease Association provided input into the development of the bill with the Office of Congressman Christopher Smith.
Below is Congressman Chris Smith (NJ) press release.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
That bill is 39 pages long! Good grief!
If we've ever wanted anything and even if we didn't know we wanted it... it is in this bill!
I found a few typos, but other than that it looks GREAT!!! Better than GREAT!
And it will have the highest of powers, the biggest of idiots and the worst hot-heads coming down on it and us so hard that it will make your head spin!
NO mention of PTLDS. Includes Bartonella in all sections even though the IDiots insist Bartonella is not tick transmitted (it really is).
I will read and reread it over the next week, but for now I give it 10 thumbs up!!!
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