posted
Dr. Sapi recently did an interview with Better Health Guy on YouTube, she talked about a lot of important things related to Lyme, but the one that stuck out for me was the lady who passed away.
After 16 years of antibiotics, Dr. Sapi said she still found biofilms and spirochetes in multiple organs and tissue.
I don't know if that case has ever been talked about on here, but that shows how resilient the bacteria and biofilm is to antibiotics and why you must incorporate a biofilm buster in your protocol, whether you're using antibiotics or herbs.
Dr. Sapi said she believes the reason Lyme is chronic, is because of biofilms.
Persister cells, aka cyst forms is also a problem along with coinfections.
Point is, if you're not treating with a biofilm buster with your antibiotics or herbs, chances of remission are going to be slim.
And I must say, 16 years of treatment? I really don't like how LLMDs go on TV and mention how longterm lyme treatment can be only around 2-4 years, a few years... I've seen multiple LLMDs from ILADs state this on Television over the years. We all know this is a lie... I love Dr. H in New York, but I can tell from reading through the hundreds of cases on forums, even the stats he comes up with are blatant lies. The guy has made some profound breakthroughs in Lyme Disease, helped thousands, but I don't like the stats being told by LLMDs when they're on TV and in the public eye.
I get the feeling, if people knew the truth how chronic and resilient borrelia burgdorferi is, it would truly scare the crap out of them, I think even the top LLMDs from ILADS, tone it down quite a bit about the suicide rate and how long treatment can be when their in the public eye talking about this disease. And how a lot of people never really reach remission!!!
I even saw the backstory on the documentary of Under Our Skin, how they decided to not talk about how long treatment can be, the suicide rate and how lyme patients lose their minds.
Some food for thought after hearing that "16 years" from Dr. Sapi, I'd say most likely the patient died from the overuse of antibiotics or committing suicide, than the actual infection though... C Diff...
I think Chronic Lyme is very much like AIDs in my own experience and listening to people's cases over the years.
I wonder if Dr. Sapi got a little too detailed than she should have, considering the valuable information she recently gave out, especially about the dead patient.
There's still without a doubt hope for a lot of people, as I remember Mandy Hughes reached remission after aggressively treating with 7 months of IV antibiotics through Dr. J, she was sick for 10 years. I really wonder if she ever relapsed. Sucks we don't know more, as a lot of people's cases are kept in the dark by the news, people, patients, and LLMDs. YouTube and the forums are the most valuable tools for finding out these things, but it's not easy. As some people say, some people just reach remission and disappear from the forums, I think it's the other way around, a lot of people just end up leaving the forums and finding away to deal with the disease mentally...
16 years of antibiotics is a scary thought, isn't it? And yet they still found biofilms and borrelia in her afterwards, that'll never ever make TV... But something like that, would really wake up the country, wouldn't it, about Lyme Disease?
quote:Originally posted by Tincup: Sad... you sound as if you are on the IDSA band wagon in some ways.
Criticizing treatment protocols without having any medical records or even seeing the patients.
Criticizing docs who are trying to learn and do what they can to help.
Criticizing researchers who are trying to learn and do what they can to help.
Critizing the news media.
Pushing treatment you think should work with little to no science behind it except your own.
Wishing you could pry into patients private lives to get more info than they want to share.
Accusing Lyme treating doctors of lying to the public...
Just because you don't agree with my opinions on Chronic Lyme Tincup, does not make me a supporter of the IDSA. lol
Everyone has the freedom of speech, this is what makes this country great!
I think what we're seeing is a large amount of lyme patients, as well as some of the lyme literate specialists not accepting the recent breakthroughs on biofilms and persister cells because it doesn't fit their ideology and protocols now so they don't want to change. Science is always changing and you have to adapt to the recent breakthroughs, not just sit there banging on a hammer, hoping that a rife machine or herbal protocol is going to save the day.
"I am not a big fan of the biofilm hysteria that is common among the lyme community right now. ALL bacteria form biofilms. It is just a grouping of bacteria together in one location and the formation of a kind of rigid structure, similar to coral formation in the oceans, that they use to protect themselves. This is just ONE of a great many mechanisms bacteria use to protect themselves from immune responses or antibacterial substances and so on. It is no more dangerous or important than the bacterial ability to use efflux pumps to remove antibacterial substances from their cells or to use the immune system itself to hide from assault. Most herbal medicines are effective against biofilm formations just as are most immune systems. A biofilm may slow down effectiveness of immune response or herbal antibacterials but it does not stop them. It is not the terminator of bacterial protection. Biofilms have been around for eons and plants and immune systems have developed mechanisms for dealing with them. I would not worry about them as of being of particular importance in becoming healthy."
quote:Originally posted by Tincup: Pushing treatment you think should work with little to no science behind it except your own.
I don't base my opinion to "little to no science," you must have me mixed up with someone like Stephen Buhner!
Tincup, you claim I'm pushing treatment with little to no science behind it. Yet two of the top Lyme Doctors, Dr. H and Dr. J are using Stevia and Xylitol on biofilms, as well as the new persister cell antibiotics like Dapsone and Pyrazinamide in their new modern day protocols. As well as other persister cell drugs...
This is from Dr. H himself - "Closest, getting to what I think's leading to a cure, starting to use these persister drugs with biofilm busters."
By the way, lol, doesn't this forum push rife machines and other alternative treatments with "little to no science?"
I'll admit, some of these new persister cell drugs won't be for everybody due to sensitivities, herxing and side effects. But just because they aren't meant for you, doesn't mean they aren't going to help a good portion of patients get over plateaus and reach remission.
And by the way, criticizing is what keeps Doctors and people honest! I hope you're aware of that, soon as you're not allowed freedom of speech and criticize others, that's when fascism starts peaking it's head through.
Half the country doesn't believe in Climate Change, it drives me nuts, but hey that's their right, isn't it? Even though it's the scientific consensus!
I feel strongly against Alex Jones opinion on Climate Change and think he's completely wrong, yet I feel he's right on so many other things. Does the climate change topic make us enemies, of course not. That's why I feel alternative media should be allowed to speak, just as someone like Jesse Ventura did on his show Consiparcy Theory on Lyme Disease.
Be careful what you wish for Tincup, I can assure you that I have many of the same ideologies as you!
Someone like Stephen Buhner and Dr. K has helped so many patients, but I feel that they still should be criticized due to new information coming out. Just like anyone else, Stephen Buhner and Dr. K are wrong on some things... What they say isn't set in stone, remember that! And many times, they aren't basing their opinions with scientific studies either.
Just because I don't agree with some of their views, doesn't make me part of the IDSA. I've seen many lyme patients say that all ILADs Doctors thinks about is kill kill kill, when it comes to treatment of Lyme Disease. In a way, I hear where they're coming from and there's times where you have to take breaks from antibiotics and go on herbal treatment for months, to give your liver and kidneys a rest.
At one point in my treatment I went on CBD and Rick Simpson Oil for 7 months, before I got on antibiotics again.
Sadly, human beings have this mentality, where they think you're either with us or against us, this tribalism Joe Rogan speaks about, it's currently dividing the country. Just because I criticize LLMDs and certain treatments, doesn't makes me against them Tincup, which you fail to realize. https://youtu.be/jU9DnXejAYQ
Criticizing and debate allows truth to surface... So if you're not aware of this yet people, there's obviously a disagreement between the lyme literate naturopaths and the lyme literate medical doctors from ILADs on biofilms and borrelia persister cells. As I provided proof up above... Again, look at what criticizing and debate brings about on the forums! I'm sure lyme patients will pick sides, as I'm starting to see this myself... But that's our freedom to do so, isn't it? Even if Dr. H or Buhner is wrong...
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