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» LymeNet Flash » Questions and Discussion » General Support » The Weirdness of Medication Use instructions

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Author Topic: The Weirdness of Medication Use instructions
Silverwolf
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Hi <<<<< Lyme Family >>>>>,

Dropping in to chat a bit. I was just thinking about some of my medications [mostly prescription], and various things I take.

Sometimes it all seems so weird... recently I was given a new medication for arthritis problems.
because of allergic reactions, I have to use one that absorbs thru the skin.

This is the basics of the usage instructions:
Do not use on skin w/ cuts, scrapes, abrasions or a rash. Apply w/ applicator [ a small plastic ruler type object w/ measure for dosage.

Do not get in eyes, ears, nose, mouth or other delicate skin areas. Do not wash the area or get it wet for one hour after application.

I have to us it on hands,fingers, and other areas that arthritis can affect.

Okay now, I have IC and IBS, even with meds to help ,when I need to use the rest room, I NEED to use the restroom. But remember for one hour, one musn't get the product anywhere near sensitive skin, or get the areas of treatment wet.

[By the way, this cream treatment,has a strong ammonia warning which I really don't like using a medication w/ ammonia in it.].

That gets interesting... and then there is an injection, I now am supposed to be using 2 x's a month. It is sub-Q, and supposedly should not be painful,uhm, they lie... [ it was prescribed by my Cardiologist.

Then there is the, you must take this Med' morning and evening w/ food [another heart health prescription]. You must have this vitamin/ mineral for heart health, but you cannot take it for two hours before or after the morning and evening medicine.

I know it is common w/ LD and Co's to have several meds and vitamins one must take,and often they cannot be taken near each other. Now I've had to add Heart meds' and other meds too.

And of course there are certain vitamin/mineral/herbal supplements to balance all together in there.[ We discuss this w/ the doctors]. I wonder how many Doctors have to use a regimen of all sorts of meds, supplements and so on?!?

I am grateful, that there are doctors and some meds/supplements to help,but none of the DRs. here are Lyme Literate, which as many of y'all know is difficult.

So this is just me, rambling here, trying to figure this out. Anyone else want to let off some steam, about medicines etc. and their effects,or odd instructions???

Here is hoping that each of you is finding help,and getting better!!!

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
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Hellooo, Helloo, Hello,


Anyone around ?? Laptop is acting up so hopefully this will show up, hopefully y'all aren't having to many meds side effects!

Laptop is will postis skipping around so I have to redo a few times... hoping th...arghh!!!

Let's hope what is readable posts

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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-
Oh, dear.

With all sympathies for the complexity and reality of symptoms with what all you deal with, it's not so much just the specific directions but the reasons for them that sure pops open my eyes.

I wish there was some other way to approach at least this element of treatment. Good luck however you proceed, though.

One thing for sure, paper towels are likely to enjoy the surge in your purchases (so as to keep the ointment off your regular towels). One you get the routine down and figure out all the ways to avoid cross touching things & others' skin, it should become easier.
-

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Silverwolf
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Hi <<<<< Keebler >>>>>,

Yup, paper towels are my friend, I couldn't believe the ammonia factor, I use a glove to keep the meds off anywhere I don't need the cream.

The cream med' product is for anti-inflammatory, since I can't use most of them in pill,or capsule form w/o serious gut issues.

The other med', an injection is not fun either[ from my Cardio doc'], but at least it doesn't have ammonia in it!

I wish I could use more herbal supplement meds, but I have to be watchful, the allergies really took off after my heart surgery. That makes it difficult to find flavorful foods.

I am still researching, other ways to ease arthritis.

Thanks for the kind remarks! Have you had any odd reactions, to meds, supplements and such?


I know balancing everything, is something many Lyme and Co' sufferers have to figure out. Sometimes I feel caught in a web of meds/supplements, and so on. I tho't I had it sort of figured out t 'til the heart issue and surgery.


Now it is kind of 'start over' what should you take,or not take, what is safe with this medicine,what will cross react... at least some of the Doctors realize that some herbal meds/vitamins and so on can help, which is a good thing too.

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Keebler
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-
yes, I have had serious reactions to many things over the years. hence, no more vaccines or really any pharmaceuticals at all for me - I'm glad I've found other things that help though can barely afford more than just the basic approach.

My skin has has serious looking stuff and it took a couple years to figure that out - even some of the "natural" products had hazards. Finally, that's better.


I've also had bad reactions to alcohol based homepathics. Very bad. I do okay with most herbs, though, so that's lucky.

Assume you are gluten free, corn free, soy free, GMO-free and diary free ? You don't have to answer but each one of those can cause serious inflammation and odd body stuff.

Even for any creams, shampoos, soaps to be GMO-free & gluten free, too. I was surprised to find out how much that mattered to my skin.

INSULIN can drive inflammation. Key thought for LCHF / ketogenic.

I thought I'd read that you are on a very low carb high fat (LCHF) / ketogenic diet? Though it may need to be 20 grams of total carbs a day or below from what I've gathered from lectures from

Virta Health at a univ. in Indiana with Drs. Sarah Hallberg & Steven Phinney,

Ivor Cummins (though he's Irish, many of his lectures are through the Aussie group) " Low Carb Down Under" lectures on YouTube and at their own sites.

His own site is "The Fat Emperor" I think.

Dr. Tim Noakes, though, is the top expert from S. Africia. Find his lectures on YouTube and his books. He's often with Jeff Volker (sp?), too. His personal story is amazing and so helpful.

20 grams of carbs is about 3 cups per day of above ground veggies, non-starchy. Eric Westman, MD with Duke University has a fairly easy outline for this.

Since I've started that June 1, the inflammation has gotten so much better - as a result of not letting glucose into to the body and thereby, not having insulin spikes - for my body.

Just a thought as another way to approach whether or not one has diabetes yet if they tend toward insulin resistance, it may be of good help (even if normal weight or slim).

Can you not tolerate turmeric?

Mycoplasmas can cause what looks like autoimmune inflammation. As it's fungal related olive leaf extract, and the real cat's claw (not TOA-free) might be a good helper.

Garth Nicolson, PhD is the expert on mycoplasmas (Nicholson?)

Just a few thoughts.

I know you have heart issues and I cannot venture into that at all - for obvious reasons -- yet hawthorn has some excellent research for the heart as does the

LCHF diet. Ivor Cummins lectures are exquisite regarding the heart healing capacity of LCHF. Being sure to get enough good fat - from "happy" animals, certain wild fish, olive oil, etc. is vital to the heart. And Vitamin D3.

The "happy" eggs and animal protein also really help in repairing mitochondrial damage that occurs with lyme & co. Adequate animal protein is something I neglected for years. So much better with it.

The thing is, though, as with what most of us have learned it's not about any processed foods, though, so don't be tempted with packaged "keto" foods. Other than specific dried meats, done in a specific way.

Sadly, for myself, although cheese can be a wonderful addition to a LCHF approach, diary tends to cause inflammation for me. My sinuses are the first indicator so I'm often testing that and always come back to the fact that I need to avoid dairy.

But, with key veggies, good meats / some fish and the right kinds of fats from "happy" sources -- along with herbs for seasoning, it's really a very satiating meal plan for me.
-

[ 10-30-2018, 09:29 PM: Message edited by: Keebler ]

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Keebler
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-
Another thought about inflammation - EBV and various herpes viruses. IMO, most with lyme also deal with multiple strains so it's important to always have on board things to help against.

Certain medicals mushrooms like Chaga, and Olive Leaf Extract help. As cost can creep up, even using a good olive oil (never get hot, though) can do double, triple duty in various ways.

There are so many pro-active things one can do but when it's a matter of not having the funds, it can be demoralizing. Still, something to consider as I don't really believe the body is going to attack itself but some of the stealth infections. Many foods have supportive properties. Good luck.
-

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Lymetoo
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Wow, Silverwolf .. That does not sound like fun. I really had trouble with creams for inflammation. They just inflamed me more. It's the salicylates in them. Sigh.

(ammonia??) .. eek

For meds management .. writing it down is key. My brain doesn't work very well when it comes to schedules!

[group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Silverwolf
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Hi <<<<< Keebler, and Lymetoo >>>>>,

Thanks for the replies,and info', I appreciate it!

The medicine is Diclofenac Sodium Topical Gel 1%, I cannot take the oral, and that's like most all anti-inflammatory meds. [Cream/Gel dose 1-2 grams 4 x's a day, I've only done once a day at the lower dose, and only a coupe times so far.

I am required to take one 81mg. Aspirin a day [that is scary enough for me].

I wish I could take normal Turmeric supplements, but it hurts my stomach, so I've gone to Curcumin on a limited basis.

Here's a food/herb allergy list I have to follow now: Gluten,Wheat,Oats,Barley,Rye, Parsley, Basil,Coriander,Dill,Fennel,Cilantro, Celery, Caraway, Cumin, Parsnip, and I am now having to start excluding basic Turmeric.

Sometimes my food tastes quite boring now-a-days. Many of the items in the above list,herbs, are in the Celery/Fennel family.

For the Meds/and Supplements/Vitamins, I have been using a pill minder pack. Sometimes I get to take a mini break form some supplements.

Vitamin B12, D3, D-mannose,and a good fish oil are a daily requirment, along w/ heart meds. I use most of my supplements at lunch time, away from the heart meds. I do the Ubiq.Co-Q 10, as well.

I am on a lower carb, diet, and use real butter. We cook w/ Olive oil too!

I actually have some Hawthorn supplements here, but am still checking many things with cross reactivity list, and Drs.

I feel like i have to live by the clock and the pill pack, along w/ frequent restroom trips. That's and area the Lyme and co's seems to have attacked. The meds help sometimes, but I have to use a lower dosage than normal.

Gotta close for a bit rest, and then play laundress.

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
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Jus' me again,

The LD and Co's are acting up more since my surgery last year, which I figured might happen. But it really shows up w/ restroom issues, arthritis now, and I believe the heart problems themselves.

Brain fog, has gotten rough as well, which I was told can happen after heart surgery.

Jus' Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Keebler
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Light bulb went off as I woke up: an INFRARED light bulb.

There may be a couple different ways you could do this, even with a basic sun-lamp shape one. There are more expensive models such as SOTA Lightworks yet this might be more affordable.

I'm not talking about making your own sauna but just getting one lamp / bulb for your hands, other joints.


https://drlwilson.com/Articles/SINGLE%20LAMP.HTM

INSTRUCTIONS AND CAUTIONS FOR USE OF A SINGLE RED HEAT LAMP

by Dr. Lawrence Wilson - March 2014
-

[ 10-31-2018, 02:40 PM: Message edited by: Keebler ]

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Keebler
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I know with your heart history that you take aspirin for some reason. However, just in the past month, there has been news about about the risks - major risks of GI bleeding - and that the benefits are not what they had hoped.

You'd have to do a good new cross search for more recent articles yet some here have good explanations.

Even if there are some plant based medicinals that you can't take, there may be others that could work well for your blood viscosity & more safely than aspirin.

Prickly Ash Bark comes to mind. It's often used with lyme / babesia to correct thick blood.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=130977;p=0

Topic: will one baby aspirin a day make gastritis worse? - 23 January, 2015

Why Aspirin can be so dangerous.
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Keebler
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Of course, you'd want to read all you can from a variety of top sources - and consult a LLMD or LL ND if possible - or some trusted doctor considering your specific body and all that.

Still, this may be very promising not just to help blood viscosity to a more normal state but also to help reduce overall body pain.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/37980

PRICKLY ASH BARK - Links set
-

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Silverwolf
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Hi <<<<< Keebler >>>>>,

Thanks for the various info' links, lots of info' there!

I was gifted a light wand of sorts, if I can find it after our last move... is was sometime back, but we still haven't found everything.

It can be used to help joint pain and skin irritations, things on that order. It might be worth a try when I find it.

One problem I've had,is especially w/ having to take the low dose aspirin, so many herbal plants contain natural aspirin/salicylates. So I must be very cautious now.

Thanks again for the links,it is all valuable information. And also good to know even low doses of aspirin can cause some serious problems.

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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