LymeNet Flash: Facebook vs lymenet

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»	LymeNet Flash » Questions and Discussion » General Support » Facebook vs lymenet

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Author

Topic: Facebook vs lymenet

Marz
Frequent Contributor (1K+ posts)
Member # 3446

posted

I've heard mentioned here that lymenet is not as active as it used to be because of Facebook.

I dont get it! I've been on FB for mold and lyme--really my only experience with FB.

There's no organization to it and cant search
topics that I can tell.

I so appreciate lymenet!!!

Posts: 1297 | From USA | Registered: Dec 2002 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

True .. FB is really more for the social part of having Lyme disease. The real nitty gritty is right here!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

map1131
Frequent Contributor (5K+ posts)
Member # 2022

posted

Marz, try to find a local or state Lyme support group, that has a private Facebook group.

In my Lyme support group we have 150 active members with a lot of activity. I will tell you there can be differences in Lyme support groups.

Some groups can be all about activism, some can be all Traditional medicine for Lyme & co and some groups like my own are more Alternative/Functional medicine oriented and not about beating activism drum but helping folks come up with solutions to getting better. My group does have a "search" feature, so one can look for posts about specific topics.

So you would want to join group that you fit into. With private groups, you would need to be asked a couple questions for admin to accept you into the group.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6478 | From Louisville, Ky | Registered: Jan 2002 | IP: Logged |

Marz
Frequent Contributor (1K+ posts)
Member # 3446

posted

Thanks Pam. I'll try that.

Posts: 1297 | From USA | Registered: Dec 2002 | IP: Logged |

map1131
Frequent Contributor (5K+ posts)
Member # 2022

posted

Marz, did you find a Lyme FB group in your area?

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6478 | From Louisville, Ky | Registered: Jan 2002 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

Lymenet has it all - referral, discussion and archived threads with lots of info.

Facebook groups are by topic and region. You can find your state or local groups if they exist. Sometimes local Lyme support groups have a private facebook group.

Posts: 13116 | From San Francisco | Registered: May 2006 | IP: Logged |

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