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» LymeNet Flash » Questions and Discussion » General Support » Desperate Mom needing advice

   
Author Topic: Desperate Mom needing advice
Sunshine1984
Junior Member
Member # 52144

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My son had Lyme Meningitis when he was 3. He had extremely high fevers, rash, fatigue, body weakness, etc. He was on a medication through a Picc line for 2 weeks and that was it. He is now 15 with Autism Spectrum Disorder and ADHD. He has and continues to suffer from migraines and over the years has developed pain in his legs. He has been to several neurologists when he was younger and nothing came of those appointments.

With this leg development issue my husband brought back up the Lyme of possibly being the culprit. No doctor thinks this is a possibility but they say no without testing. Should I take their word for it or pursue it? Not to mention, I have no clue who to go to, to pursue it. Thanks for reading this and any and all advice you can give.

Posts: 1 | From Philadelphia | Registered: Jul 2020  |  IP: Logged | Report this post to a Moderator
Lymetoo
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You will need to seek out an LLMD in PA or nearby state. We have lists of doctors if you request over in "Seeking a Doctor."

Mainstream doctors DO NOT GET IT. .. They never will and won't know how to treat even if they know how to test. (and most will NOT use the best testing)

I would suggest using Igenex Lab for testing. The Western Blot is very reliable.

I'll move this to Medical Questions so you will get the most exposure and help for your question.

THERE IS HOPE FOR YOUR SON!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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