posted
Are your support group listings up to date. One had a notation from 2002?
Posts: 509 | From southern new jersey | Registered: May 2003
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Some state internet Lyme groups can be very helpful, especially in helping Lyme-newbies find emotional support, answer basic questions and seek doctor referrals.
For example, our TxLyme internet group has become rather inactive in the last couple of years, but it continues to be moderated closely by a few dedicated individuals for benefit of Texans with basic questions about Lyme disease, especially those seeking medical support.
To find your state's Lyme group, it is required to join the National LDO group first. Here's a link to join it: https://groups.lymedisease.org/g/Lyme
Most of the really interesting discussions are taking place in the "parent" (national) LDO group. (link above).
You can sign up to receive a Daily Digest format from the national LDO internet group, which is what I do, because I'm so burned out on Lyme disease now after so many long years (decades, really) of worry about our now-adult "child" who is a recovered Lyme patient, that I can hardly force myself to study and keep up with new Lyme research anymore.
Luckily, in Texas we have a half dozen LLMDs now, so hosting internet support groups for new Lyme patients isn't nearly as critical for us as it was during those earlier years after our state medical board had run all of our LLMDs out of state.
We passed protective legislation for our LLMDs back in 2011, but it took several more years before Texas doctors were willing to diagnose and treat Lyme.
Sadly, most Texas doctors don't know very much about treating Lyme even today -- but at age 80+, I'm leaving that challenge to our younger future Texas Lyme leaders to deal with.
Posts: 4563 | From TX | Registered: Sep 2002
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