Topic: Post and vote at CHANGE.GOV!! NOW, please!!!
ltshepler
Unregistered
posted
There's an opportunity to make your voice heard to the Obama Administration at Change.gov. Given the Lyme community's prowess in using the Internet to foster change, we should be able to FLOOD the site with stories, suggestions, and appeals for help. I suggest EVERYONE go to the site, register, click on the CITIZEN'S BRIEFING BOOK, search "LYME' and share your idea!
As of tonight, there are reasonable suggestions that Lyme activists have posted that are being voted down! This should not be happening. When I looked for the entry someone had placed for the federal Lyme legislation, it appeared it had been removed.
WE NEED EVERYONE'S HELP TO GO TO THE SITE, VOTE ON LYME-RELATED SUGGESTIONS, AND LEAVE YOUR COMMENTS AND SUGGESTIONS. THIS IS AN OPPORTUNITY THAT SHOULD NOT BE WASTED.
IT APPEARS THAT THOSE IN LEADERSHIP ROLES IN THE LYME COMMUNITY EITHER DIDN'T KNOW ABOUT, OR HAVE CHOSEN NOT TO INFORM THE LYME COMMUNITY OF THIS OPPORTUNITY TO MAKE **INDIVIDUAL** VOICES HEARD. THIS IS AN ERROR OF JUDGEMENT IN MY OPINION. I DO NOT KNOW WHY WE HAVE NOT BEEN INFORMED THROUGH THE USUAL CHANNELS.
good for you! saw your post over there but could NOT read anything since it ended up totally SOLID BLOCK TEXT.
can you copy your post from there over here and break it up for us neuro lyme folks so we can comprehend and read it. then we could add to your comments over there.
i too have been astounded we haven't heard anything from the lyme leadership, but again, this has been posted for 1 WEEK ONLY.
but it didn't stop others in top 10 who were approved for hundred of thousands of votes on THEIR TOPIC.
thanks for trying to get the word out; i posted earlier too and my 1 in medical was moved since it was ACTIVISM vs. medical.
anyway thanks for sounding off and your post here ok. betty xox
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