LymeNet Flash: LDASEPA Meeting Reminder July 15, 2009; Lyme Patients to be Heard at IDSA Hearing

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»	LymeNet Flash » News and Information » Press Releases / News » LDASEPA Meeting Reminder July 15, 2009; Lyme Patients to be Heard at IDSA Hearing

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Topic: LDASEPA Meeting Reminder July 15, 2009; Lyme Patients to be Heard at IDSA Hearing

Lou B
Administrator
Member # 64

posted

This message sent from the Lyme Disease Association of Southeastern
Pennsylvania
by Harvey L. Kliman
==================================================
1. Next Regular Meeting - Wednesday, July 15, 2009
7-9 PM at our REGULAR LOCATION:
The Kennett Friends Meetinghouse

Program: Lynne Anderson, Ph.D. will speak on "Corporate & Self Interest In
The (Mis)Treatment Of Lyme Disease"
About Dr Andersson =>

Lynne teaches courses at Temple University at the undergraduate and graduate levels in the area of Business, Society and Ethics, and has been lauded for her curricular innovation and ability to inspire critical thinking in her students. She will discuss the issues around treatment and mis-treatment of patients with Lyme disease.

2. California Lyme Disease Association (CALDA) sponsored

Survey will send message from patients to IDSA* Lyme panel
Have you taken CALDA's new Lyme survey? If not, click here to participate. CALDA CEO Lorraine Johnson will present the results at the IDSA's Lyme guidelines hearing in Washington DC on July 30. (The hearing will be streamed live over the internet. Stay tuned to the CALDA web site for details.)

http://www.lymedisease.org/news/lymepolicywonk/134.html is the CALDA web site link.

The Infectious Diseases Society of America's (IDSA) new Lyme disease guidelines review panel will hold a one day hearing on July 30. This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated. Of the 18 speakers selected to testify, two are patient advocates, including me, Lorraine Johnson. The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input. Results of the survey will be included in my testimony to the IDSA panel.

Speak out and be heard. Help CALDA represent your views to the IDSA at the July 30 hearing.

--------------------
Lou B

Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000 | IP: Logged |

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