posted
I am not sure I will even have the energy to start a local support group, but at this moment a conviction that I should is strong.
I live between Milwaukee and Chicago. If anyone in that area, or adjoining it thinks they would be interested in attending, or helping would you pm me?
With the bs just perpetuated by the IDSA and insurance companies jumping on the bandwagon to deny lyme patients treatment who were getting it on the basis of IDSA new guidelines, I think greater solidarity is needed. We need to stand up to this bullying. We need to provide a counterbalance to the excessive power that has built to a momentum I find alarming. This is all about money. It should be and needs to be about patient needs.
Posts: 48 | From Wisconsin | Registered: Sep 2006
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bettyg
Unregistered
posted
Cheryll, try this link to Wisc. support groups ... 3 in existence now!
last one, I've gotten to know that leader well! She's the writer of THE SINGING FOREST, a journey of lyme and continuing that story into a 2nd bok about being in/out of court trying to get custody of her 2 untreated lyme teens!
Otherwise, look into Illinois for their support groups, with 3 in Wisc.; 1 should work for you! good luck Cheryll. Bettyg
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