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» LymeNet Flash » Questions and Discussion » Activism » Need Lyme SPEAKER for RI...Lyme patients welcome to attend!

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Author Topic: Need Lyme SPEAKER for RI...Lyme patients welcome to attend!
luvdogs
LymeNet Contributor
Member # 9507

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Hi, we would like to have somebody who is LL speak at Providence Rotary (in RI). I posted this in med questions also, but if anybody has any ideas that would be helpful.

Also, any Lyme patients are welcome to come to the Providence Rotary meeting that day to hear them speak, when we arrange it.

I had Tom Forschner of the Lyme Disease Foundation speak years ago and it went great. (I also spoke but was barely functional because I was in the throes of my deepest neuro Lyme - dizzines etc...). Sombody along those lines, or even an MD...

I think it would be a good group to present info to, since they are very active in the community and since more and more of them and their families are becoming affected by Lyme.

Thanks! You can PM me if you would like [Smile]

Sara

[ 11. December 2007, 11:53 PM: Message edited by: luvdogs ]

Posts: 584 | From Rhode Island | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
bettyg
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sara, try these!

Please go to SUPPORT GROUPS, left-hand side column by state.
CALL the nearest group leader for advise.
Do NOT email; many are too sick to reply; thanks!

People seeking doctors in certain states might be able to
get help from their state online information and support group. Over 1200
people belong to these state groups. Many of the groups are small
but quite a few have 20 or more people on them.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, e.g. newyorklyme

For SC, SD, ND and WY, put a hyphen between the statename
and lyme, e.g. northdakota-lyme

The groups are moderated so you have to apply, and we don't
allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

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luvdogs
LymeNet Contributor
Member # 9507

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Thank you Betty! This is a great start!

Sara

Posts: 584 | From Rhode Island | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
   

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