IDSA is afraid of your voice. Use it today to defeat them and your disease!
Do you know!
While you are struggling to get diagnosed, treated, reimbursed for your medications and trying to protect your doctors right to clinically diagnose and treat, a medical specialty society is quietly working behind the scenes to eliminate the opportunity for research into your disease--research which could hold the key to your health.
Last week LDA uncovered a behind the scenes maneuver initiated by the Infectious Diseases Society of America, IDSA− a letter, sent to doctors in specific states, asking them to oppose the Lyme bill, which they describe as one ``that would establish a federal advisory panel on Lyme and other tick-borne diseases heavily weighted with patient advocate group representation and with a special seat reserved for a chronic Lyme disease physician.''
In the letter to doctors, the IDSA president said, ``the bill's overt support for chronic Lyme disease and other views promoted by Lyme disease activists is troubling.
We are concerned about the federal government backing `chronic' Lyme disease when Lyme disease has never been shown to be a chronic infection, and when those patients diagnosed with this dubious condition are frequently treated with long-term antibiotic therapy, exposing them to significant risks for questionable benefits.
Our mission is to promote public health and good patient care, and we are concerned that this bill would do neither.''
To defeat the bill and the research monies, IDSA asked doctors to sign onto a letter to Congress that states, in part, ``we are alarmed at the references to `chronic' Lyme disease.''
It stated some study patients with a ``previous diagnosis of chronic Lyme disease did not have Lyme disease at all, but actually had something else, such as rheumatoid arthritis or other autoimmune disorders, fibromyalgia, or depression--conditions that need treatment with something other than antibiotics.''
IDSA ``urge[s]'' our Congressman to, ``oppose it and to not cosponsor the bill.''
IDSA is trying to silence treating physician and patient voices in DC. It does not want research which can help you be accurately diagnosed and treated, but continues to promote the ``not Lyme'' diagnosis, which means no antibiotic treatment for you and your families.
We NEED you to CALL your federal representatives this week to combat this assault.
We MUST ensure our representatives are not swayed by the IDSA's propaganda!
TAKE ACTION NOW!
* Click here to determine who your own US House Member is and who both your Senators are.
posted
Sent this to family and friends to try and guilt them into calling:
Hi , As you all know I have relapsed with Lyme disease and am now fighting the fight once again! There is a very important bill HR 1179 that we in the Lyme Community are trying to get passed.
If the bill is passed it would authorize a much needed increase in total research and education of $100 million over five years.
" Lyme disease is growing at four times the rate of AIDS and is quickly becoming our nation's most misdiagnosed and fastest-growing infectious disease. Educating the public and physicians regarding the disease and the progression of treatment is essential."
If any of you could can help it would be greatly appreciated. I just made the call to NH reps and it took less than 3 minutes to call all of them and could potentially help many, and save lives. So I am asking that you please call and simply leave a message asking that they co-sponsor HR 1179.
The numbers are listed below thanks so much! Please forward to anyone you know who has ever been diagnosed with Lyme disease! Ann
Senator Judd Gregg (R- NH) 202-224-3324 Senator Jeanne Shaheen (D- NH) 202-224-2841 Representative Carol Shea-Porter (D - 01) 202-225-5456 Representative Paul Hodes, II (D - 02) 202-225-5206
posted
I see that the IDSA letter says Lyme patients have something other than Lyme that needs treatment other than antibiotics.
In my case, not knowing I had anything, I threw everything at my fibromyalgia for 25 years, but couldn't shake it off.
It wasn't until I found out I actually had a bacterial infection and treated with clindamycin ANTIBIOTICS that the fibromyalgia pain went to zero in one week.
Their statement is totally untrue in my case.
Posts: 13116 | From San Francisco | Registered: May 2006
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bettyg
Unregistered
posted
well, i made my 3 calls this morning about the above.
i asked each of them if they had received letters or phone calls from idsa about KILLING OUR BILLS; NOT 1 OF THEM HAD!!
told each of them they would be hearing alot from us all.
i was asked WHY IDSA wants to kill our lyme bills... said it's because they don't believe in LONG-TERM ANTIBIOTICS; they give only 3 wks. max abx.
so others may be asked this question also! betty
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Tincup
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