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» LymeNet Flash » Questions and Discussion » Activism » NEW UPDATE- IDSA Panel Review of guidelines- schedule changes!

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Author Topic: NEW UPDATE- IDSA Panel Review of guidelines- schedule changes!
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Good news! Good news!

You may have heard about the IDSA not bothering to set up a place or get together details and accommodations for the IDSA Panel Review Presentation.

If not... see this link.

http://www.lymedisease.org/news/lymepolicywonk/74.html


The good news is ... the date for submissions has been rescheduled .. and the date for the meeting isn't announced yet... but it won't be till summer time now.... giving us even MORE time to get our DUCKS in a row to respond.

WHEW! What a relief and breath of fresh air. We've been dumpster diving day and night... ooouuuuuu eeeee... and it ain't fun!

OH.. and the LLMD's will be getting equal time for presentations as the ducks will get. Coo coo ca chew...

[Big Grin]

Here is a short blog post explaining it.

And thanks to CALDA members, LDA, etc.. for keeping up with it... and doing a good job.

And to Lorraine for working hard and also keeping us all informed.

http://www.lymedisease.org/news/lymepolicywonk/81.html

Good work you guys!

[Big Grin]

[ 03-29-2009, 06:35 PM: Message edited by: Tincup ]

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bettyg
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tincup,

did you receive the email i sent you of PJ LANGHOFF'S lengthy rebuttal for this project?

look in your mail if you haven't.

she also sent 5 pages of direct links to them refuting what they said earlier and NOW.

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Robin123
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It's important that our ILADS presenters get to present and not be pushed aside.
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Tincup
Honored Contributor (10K+ posts)
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BG..

Yes.. I did see it... just a bit ago. VERY nice.

Thanks for sharing it with me!

[Big Grin]

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Leelee
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Thank you for keeping us informed, Tincup. [Smile]

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The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

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Tincup
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Latest news....

IDSA panel submission for input... time extension is official.

http://www.lymedisease.org/news/lymepolicywonk/84.html

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Tincup
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And more news... gotta see it!

I LOVE the can of worms! HA!

[lol]

IDSA: Caution when opening--contents under pressure
When is an open hearing not an open hearing?

http://www.lymedisease.org/news/lymepolicywonk/89.html

IDSA NEW DEADLINES Schedule--Time to get on the stick

The IDSA has a new schedule--applications are open--submissions of contested recommendations are extended--hearing date is not set. A table of the scheduled events follows.

http://www.lymedisease.org/news/lymepolicywonk/88.html

IDSA Application Process Open--Certain restrictions may apply

The IDSA has extended the time to apply for the panel. The window closes April the 17th so those who are interested are encourage to apply promptly.

http://www.lymedisease.org/news/lymepolicywonk/87.html

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lakes592
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Hi,
I absolutely love the CALDA website!There
articles are awesome. I want to create a NH one and be just as witty as they are...Dare to dream:) Thanks for sharing made my night.


Take Care,
Ann

--------------------
If you keep doing nothing...nothing changes!

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bettyg
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copying pj langhoff's letter to me here; more good info and another book to come! thanks pj; i sent her my threads about her outstanding letter. betty [group hug] [kiss]


Date: Sunday, March 29, 2009, 7:38 AM

Thank you Betty....

I certainly have tried to capture the essence of the truth about Lyme disease, and force feed it back to the IDSA panelists--to prove that not only are the guidelines flawed, but they have been using "junk science" to control the paradigm, and keep us patients ill for decades...how tragic that is!


Only days after receiving my books and following that, a letter received from a prominent NIH doctor blasting the IDSA guidelines....and the time period for public input has been extended to April 24th!

Don't think these things haven't affected the process in a very big way.


After all, the evidence from The Baker's Dozen was part of the CT AG anti-trust investigation, brought in when the process had stalled out....


I can't wait to get my next book out, called

God Science: The collateral damage of Lyme disease, human genetics and mutant virus constructs"
because it tells the other "half" of the Lyme story.


That is of the MILITARY history of Lyme as a bioagent, unbelievable topics, ways it has spread in the population, new revelations no one is talking about; important information that will enlighten and probably frighten people somewhat.


But it is all significant that has to be brought forward, because it is affecting people adversely all over the world.

Stay tuned and thank you everyone for your support.

Spread the word--spread the truth. The more we reach, the more we teach.

I want to hear "Lyme disease is curable" in my lifetime. www.Amazon.com and search "PJ Langhoff".


With regard to Lyme, I will work until no one dies....and no one cries....

I try to make our voices loud enough to hear. I think we are collectively all making a difference in a very big way. That is hope on the horizon indeed.
PJ

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