Topic: Dr. Jones Update....Final Hearing was Today!!!
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
After almost two years, the appeals hearing for Dr. Jones was held today.
This was the culmination of many evidentiary hearings over the last 21 months, finally leading up to today's appeal.
The appeal was based on the issue of bias by one of the three panelists who made the recommendations in the Dr. Jones case by the Ct Medical Board.
As you may be aware, on the final hearing day of December 18, 2007, two parents who had never attended any of the previous hearings recognized one of the three panelists as a pediatrician who had been treating their child, and who had made numerous disparaging remarks about LLMDs, as well as asserting that Chronic Lyme Disease did not exist.
Based on this, Atty Elliott Pollack filed an appeal to have the entire decision by the Medical Board vacated (thrown out.) After many legal steps, today was the day of the final hearing.
The only witnesses at the hearing were the two parents and Dr. Senechal, the pediatrician who had expressed bias to these parents on numerous occasions.
The hearing today went exceptionally well! Elliott Pollack is confident that there is a "fighting chance" that the judge will vacate the order against Dr. Jones.
The two parents who testified today were myself and my husband Blake. The child whom Dr. Senechal was treating when he made the numerous derogatory comments was our son, Ryan.
I believe both Blake and I gave very strong testimony, were very credible witnesses, and that it went as well as it could possibly go.
Furthermore, much to our surprise, Dr. Senechal did not even attempt to deny any of our testimony. He freely admitted he does not believe in Chronic Lyme Disease and that he did in fact tell us that some of these labs and doctors were working together and that the labs were not recognized by mainstream doctors, among other things.
So, it went better than we could have ever expected!!! Blake and I had both breakfast and lunch with Elliott Pollack and we were all elated at the way things transpired today.
The judge appears to be very fair and reasonable and a decision is expected to come down within a month. This is huge!!!! Let's keep our fingers crossed and hope that discrediting this panelist is enough to get the entire decision by the Medical Board thrown out!!!!
BTW, Dr. Jones did not attend today. He was busy seeing patients.
It feels good to finally be able to come out and tell our story openly! It's been tough being so close to the case but having to keep it quiet for almost two years!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
I am just really grateful for all you just did.
Posts: 822 | From midwest | Registered: Apr 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That's great news Tracy. Did this doctor have proof on paper of these docs / labs working together to back up that bold statement?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Congrats on stepping out and telling the world your story and helping a good doctor in the process!
-------------------- Diagnosed with :yme and mycoplasma pneumonia Aug 08. Treating with Doxy and Ceftin ever since. 15 sessions in hyperbaric o2 chamber Posts: 183 | From all around | Registered: Jul 2008
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posted
I too am very grateful to you and Blake, Tracy!! I don't know where our family would be today if it weren't for Dr. Jones. Thank you for standing up for him!!
Posts: 962 | From Charleston | Registered: Jan 2002
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posted
Thanks Will & Tracy ... I'm certain everything will turn out OK for Dr J. It is unfortunate that such a vast sum of $$$ had to be spent to prove the truth!
-------------------- Lou B
Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
It is awesome. I hope you got to tell the judge you now work for thousands of chronic lyme patients, educating them in roads to treatment, and earning only grace.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Thanks everyone!!!!! This is the most gratifying thing I have done in memory.....so blessed to have been a part of it.
Hoping desperately this works....and all the charges against him are dismissed!!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy and will,
god bless you both for stepping forward and informing the attorney what you heard your dr. say about dr. jones, chronic lyme, etc!!
it takes very SPECIAL PEOPLE to stand up to the plate and do this; then to SIT ON THIS FOR 2 YEARS NOT SAYING A WORD!!! uffda ... you can keep a secret!
thanks for the most informative post; keep us informed, and we pray the right decision will be made to THROW IT OUT!
you are a succinct writer; therefore, you would be as a speaker as well !! thanks for doing the right thing.
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posted
Thank God for honest and willing people like you. Thank you for coming forward and standing up for Dr. Jones. Hope this will all be resolved in his favor very soon. -p
Posts: 641 | From So. CA | Registered: May 2008
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posted
Making history starts with all of us - congrats on your important part of it!
Posts: 13116 | From San Francisco | Registered: May 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Yeah!! I can't wait to hear the results. I'm praying for a good outcome.
It must have been hard to be so quiet about it for so long! Dr. J is so overdue for a break on this madness.
Posts: 3771 | From around | Registered: Mar 2008
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LisaS
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Member # 10581
posted
Kudos Tracy and Blake! I'm so glad it went well and will deep my fingers crossed and say many prayers justice is done!
I bet it was hard to keep all this quiet! But it's nice now for us to put faces with the people standing up for Dr. Jones. It makes it even more real and personal.
If we all just do what we can when we can, this madness can end.
You guys are great!
Allie
Posts: 300 | From Northeast | Registered: Dec 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Tracy & Blake:
You are both so amazing and did a great thing!
Please keep us posted on the outcome!
WE LOVE DR J!!!!!!!
xoxoxox Katie, Roy & Roy Jr
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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METALLlC BLUE
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Member # 6628
posted
What happens in the end when the person "proves" their innocence? Do they still have to pay with their life savings and lose a great sum of credibility just because some scum bag had a chip on their shoulder?
Dr. Jones should be reimbursed for all he lost by the people who brought this BS charge against him. I hope they sue.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Not to mention, "we" spent a huge sum of money too as a community that we ourselves need for medical care.
He deserves to have not only his name cleared publicaly but officially in the newspapers and media. There should be a public apology when this is said and done.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Agree with Metallic Blue (a big hello-by the way) I have read from mothers that Dr. J has a waiting list for children to see him. He is backed up until April 2010.
This is probably because of all the time he had to spend away from his practice. Imagine all the stress this has caused him as well.
This suit has badly effected Dr.Jones and his patients and children who are in need of their first appointment to get dx'd and started in treatment. Lot's of people paid the price for this reckless law suit. -peedie
Posts: 641 | From So. CA | Registered: May 2008
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Tracy9
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Member # 7521
posted
I think it says a lot about Dr. Jones that he would not even take a day away from his practice to attend the hearing, as he was not needed to testify....although I'm sure it would have been very gratifying for him to be there.
The first time he saw our younger son, Cody, was the night of the Turn the Corner Foundation Gala where he was being honored. At 6 pm, as he was taking his time with our son on his lap, I asked him, "Why aren't you at the Gala?"
He replied simply, "Because then I wouldn't be here to see Cody. And Cody is more important."
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wow, he sounds like some doctor!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bettyg
Unregistered
posted
quote:Originally posted by Tracy9:
.The first time he saw our younger son, Cody, was the night of the Turn the Corner Foundation Gala where he was being honored.
At 6 pm, as he was taking his time with our son on his lap, I asked him, "Why aren't you at the Gala?"
He replied simply, "Because then I wouldn't be here to see Cody. And Cody is more important." ********************************************
I think that says it all.
tracy, thanks for the powerful statement above! we're getting to know dr. jones thru all the many statements from his patient's parents; thx for sharing
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posted
Wow - what an amazing person Dr J is! He honors the need for his services above all else.
Posts: 13116 | From San Francisco | Registered: May 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Jeez Tracy,
You just made me cry!!!!
I really hope that this makes the difference & the appeal is successful. Enough is enough already!!!
Why are people so selfish that they would do anything to get out of paying their children's medical expenses in a divorce, no matter HOW many people they hurt in the process?
That creep has no consideration for all of the children that Dr Jones is helping now or will help in the future, nor the children he would have been helping when he had to be taken away from practice for the other trials.
It's one thing when selfish, spiteful people living in their vindictiveness hurt other adults but C'MON don't do things that hurt sick, innocent children!!!
The evil in this world really frightens me sometimes!
You've done a wonderful, selfless thing, Tracy. May God bless you.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
yes, when he is cleared, i feel THEY should repay back every $1 paid by him, us, and all he lost early on due to these bogus charges!!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Any one of us would have done the same thing. We just happened to be in the right place at the right time. I'm fortunate we were given the gift of the chance to help such an amazing and deserving man.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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You and your husband performed an incredible service on behalf of Dr. Jones, his young patients and all of us parents. Thank you so much.
You say that anyone of us would have done the same thing, and maybe you are right. But any family dealing with lyme and co realizes how very difficult this must have been for you and your family with the health problems you've all had.
Testifying when there are no health issues is hard enough.
You put the "act" in activism. Thank you.
Posts: 214 | From where ticks flourish | Registered: Dec 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Abxnomore
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Member # 18936
posted
Indeed, cheering. Tracy and Blake you did a great service for us all and Dr. J.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
If it works, we'll commission a statue of each of you, or at least a bust, to be placed on either side of Dr J's front door - the protectors of these premises.
Posts: 13116 | From San Francisco | Registered: May 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
OK, well on the way back from the five hour trial, in horrible pain, I saw this HUGE billboard that said:
"Lavender Fields Day Spa"
I have no idea what or where it was, but if this works, maybe you could all send me there for a day!!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy, Thank you for sharing what happened at Cody's first appointment with Dr. J. His willingness to be there helping you instead of being present at a gala in his honor speaks volumes about what kind of doctor--and what kind of man--Dr. J is.
Four of my kids have been patients of his for several years now, and I have witnessed this kind of selflessness myself over and over. He is not only the foremost--or should I say only--Lyme literate pediatrician in the world. He is someone who has devoted his life to saving our children from the clutches of Lyme.
He has stayed late into the evening to see my kids, scheduled appts for Sundays, and even phoned and faxed orders for IV treatment when my daughter's health suddenly declined, to save us a trip to CT, without charging us--this was, of course, before those lawyers effectively tied his hands behind his back because of these charges he has been fighting.
A few years ago, I attended a conference on Lyme in Virginia that Dr. Jones had travelled to (along with many other LLMDs) to speak about Lyme. I stopped at his table to say hi, and he greeted me with a fatherly hug and a kiss on the cheek, then he asked about each of my children BY NAME, though he has thousands of patients.
When I gave him an update on their conditions, he took the time to give me medical advice on what regimens he wanted to change for them--something I did not ask for, or expect--while hundreds of people sat waiting to hear his presentation.
That is the kind of man Dr. J is. God broke the mold when he made him. I can't say enough good things about him.
God bless Dr. Jones, and God bless you, Tracy, for standing up for him when he needed you!!
Posts: 962 | From Charleston | Registered: Jan 2002
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posted
Has anyone ever written a book about Dr Jones? These stories are amazing.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Thanks to both of you Tracy and Blake! Keeping your family and Dr. J in prayer!!
-------------------- Wishing You Showers Of Blessings! Lyme since Fall 1983 = Diagnosed Summer 2008 IV Rocephin 7 weeks Stopped due to drug fever Now doxycycline "For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11 Posts: 430 | From Sunny South | Registered: Jul 2008
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bettyg
Unregistered
posted
maryland mom, that was the most touching story i've read.
robin, i agree fully; someone needs to write a book and ask for patient's input stories for it like PJ LANGHOFF did in her 2nd of 3 books or pam weintraub .....
both very talented writers ... *********************************
edited; just sent this link to pj for her info and consideration....
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Tracy9
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Member # 7521
posted
Maryland Mom,
What an absolutely amazing story; thank you so much for sharing it. It just solidifies even more what a saint Dr. Jones really is.
He is saving my children, and I hope we somehow, by some miracle, helped to save him!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Thank you Tracy and Blake. These awesome stories must be shared. He is a great man and deserves to have all charges dropped and PUBLIC apologies made all around.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
We are really touched also to have personally heard from two TOP LLMDs, one by email and one by telephone, thanking us for stepping forward and exposing the biased panelist.
They have indicated it has good implications for beginning to crack the facade that the IDSA has put forward, and may be a first step in exposing them for what their motives really are.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy; way to go girl ... glad you heard from 2 llmds at the top!!! YOU 2 made quite an impression that no one will forget. hugs
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
tracy,
You and Blake have done a very noble thing.
In a world where we usually feel that our lyme voices are not heard at all, you have shouted from the rooftop and have been heard!
Thank you so much on behalf of all parents and children!
What in the world would people do without Dr J?
I've often wondered if he is training any pediatricians to follow in his footsteps?
I doubt that anyone has the guts to do what Dr J does.
Thank you again.
Will be waiting to hear an update.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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bettyg
Unregistered
posted
yes, dr. jones has been training other kids llmds
lucky for us for him to share his wealth of info that he has perfected over the years treating over 15,000 kids!
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