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» LymeNet Flash » Questions and Discussion » Activism » What all in Lyme needs changed?

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Author Topic: What all in Lyme needs changed?
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

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There are so many things I do not want to leave anything out.


The reporting system.

The Guidelines.

The Hoarding of Information.


Please help me make this list.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

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Perfect testing!

A cure!

Insurance coverage.

Doctor protection.

Full public education.

Understanding of treatment variety.

Access to meds.

Funding sources for destitute patients to apply to for financial aid.

Maybe some social services, like AIDS patients have (hospices, homecare, meals, etc)

Ultimately, tick eradication, like what they're trying to do now with groundcover experiments with Alaskan cedar nootkatone and carvacrol, both plant-based acaricides. So far - 42 days reported of ticks killed with high-pressure spraying! Stay tuned!

Are you doing a project?

Posts: 13117 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
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That would be wonderful to get rid of ticks! Looking for slogan bites.

Like:

What don't you understand?
We haven't got AIDS----We need LYME AID!

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

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Or a twist on it?

We haven't got AIDS, but we need Lyme aids!

Posts: 13117 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255

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We need to get to the root of the political /medical corruption that is preventing our progress
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jblral
LymeNet Contributor
Member # 8836

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Ultimately, we need to get the earth's environment into better balance. We are spewing so many toxic chemicals into our bodies, our food, our air, soil, water, our oceans, etc, that it is profoundly affecting everything in the eco-system. (Today, babies in the US are born with significant levels of the pesticide DDT in their bodies--even though DDT was banned in this country more than 30 years ago. Unfortunately, toxins like that are the gift that keeps on giving...And DDT is just one example...)
Posts: 991 | From California | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

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How about:
Give us back our Bands.
Give the people a chance.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

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How about:

Get Your Drugs Half price!
Buy Canadian...
Buy Mexican...
Buy Indian...

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

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How about:

You Don't Want Any Blood

Until They Give Us A Better Test!

I know that sounds awful, but it is true.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
kam
Honored Contributor (10K+ posts)
Member # 3410

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Good idea to identify what the needs are and then start working on those needs.

Better testing and or acceptance from Igenex Lab's tests by Main Stream medical.

I had several doctor's round file my lab tests from them as they did not believe it.

Or if they were willing to accept the test results, they felt 2 weeks of abx at the most was the treatment.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
   

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