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» LymeNet Flash » Questions and Discussion » Activism » Please Attend NH Lyme Senate Hearing

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Author Topic: Please Attend NH Lyme Senate Hearing
tdtid
Frequent Contributor (1K+ posts)
Member # 10276

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ACTION ALERT FOR NH HOUSE BILL 1326

PLEASE ATTEND THE
Senate Executive Departments and Administration Committee hearing on House
Bill 1326
This Monday, April 26th

YOUR PRESENCE IS CRITICAL TO THE PASSAGE OF HB1326

WHAT TIME: 1 p.m.

WHERE: Rooms 206 and 208 Legislative Office Building (located behind the
State House).

WHY: Your very presence in the room on Monday will send a powerful message
to the Senate that this is a statewide issue. We believe our stunning
success (300-56) in the House was due, in large part, to the sheer number of
residents who attended the hearing and called their representatives to alert
them to one of the most serious public health threats in our state. We must
build on that momentum at the Senate hearing. Please know, whether you speak
or bear witness, your presence is critical at this hearing.

WHO CAN SPEAK: The Lyme Legislation Committee has arranged for key people to
testify before the Senate committee to help the members understand the grave
importance of this proposed legislation. We believe we have selected an
excellent cross-section to represent the Lyme community.

We have also already submitted to the Executive Departments and
Administration Committee more than 200 pages of written testimonies that the
Lyme Community submitted in January to the House Health and Human Services
committee. Please know, your stories will be read by the EDA committee.

Still, we want to invite members of the Lyme Community to tell their
stories, as this is a unique opportunity for our legislators to hear from
their constituents. Your story is very important. However, unlike the House
hearing (which went on for more than five hours), most Senate committee
hearings last only about 1-1.5 hours. So it is imperative our message
remains clear, on point and tight.

If you would like to speak, please consider the following recommendations:
* Limit your time to 1.5 to 2 minutes maximum.
* Keep your message tight
* Tell your personal story
* Weave into your story the fact that doctors are not currently free
to practice according to both guidelines.
* This does not legislate care, but rather gives doctors the freedom
to make treatment decisions based on individualized clinical evaluations
rather than a set of guidelines.
* If your doctor has ever stated s/he is afraid to treat with
long-term antibiotics because of fear of repercussion, now is the time to
state that without using the doctor's name.
* Please write your speech before the hearing.
* Practice It
* Time It
* Shorten it

In the interest of time, we ask that you be vigilant of the messages being
shared by others before you speak. If your story is much like those that
have already been told, you might want to consider simply standing and
stating your name, hometown, and indicate your support House Bill 1326 in a
statement such as:

"Hello. My name is Julie Hall. I live in Kensington, New
Hampshire and four out of five of my family members have been diagnosed with
Lyme. I am here today to strongly urge this committee to support House Bill
1326."

RSVP: If you plan to attend the hearing on Monday, April 26, please send an
email to the committee member who sent you this Action Alert.

Directions to the State House:
http://www.gencourt.state.nh.us/misc/directions/


What Else Can You Do?

Call Your Senator
Feel free to use the enclosed scripts to contact YOUR OWN Senator to request
that they support HB1326. It is best to speak to your Senator by phone if
possible, as they receive many emails each day. If you call them, BE SURE TO
SAY THAT YOU ARE A CONSTITUENT (from their district), as they are more
likely to respond to constituent calls.

You can call at home or office (see contact information below). Legislative
aides will pass your message along to the senator. If you would like to
follow up your phone call with an email, it is also imperative to note that
you are from that senator's district. Please be respectful about the hour of
day you call and the amount of time you take.

Who is Your State Senator?
To find your state senator, follow this link:
http://www.gencourt.state.nh.us/whosmyleg/

To get contact information for your senator, follow this link:
http://www.gencourt.state.nh.us/senate/senatemembers.asp

SAMPLE PHONE SCRIPT:

"Hello, may I please speak to ________ . I am calling to ask you to support
New Hampshire House Bill 1326, which will give doctors the freedom to use
all of their skills and training to assist Lyme patients without fear of
retribution.

House Bill 1326 does NOT legislate medical care or carve out exemptions for
doctors. It simply states that prescription of long-term antibiotics for
Lyme patients, in and of itself, is insufficient grounds for a medical board
investigation. House Bill 1326 is also a reaffirmation of the legislature's
commitment to strong relationships between doctors and patients giving our
physicians the freedom of choice to make Lyme-disease related treatment
decisions on a case-by-case basis.

HB 1326 does NOT prohibit the board of medicine's ability to oversee
physicians. Nothing in HB 1326 protects physicians who are negligent in
treating patients. HB 1326 simply clarifies that the prescription of
long-term antibiotics, in and of itself, is insufficient grounds for a
medical board investigation. Removing this physician concern opens the door
for patients to receive expanded treatment information and options, and
honors patient choice.

I believe the New Hampshire House of Representatives did the right thing
when they passed this bill 300-56 and trust the Senate will do the same.
Please know that I am not asking you to do something that has not been done
before. I AM asking you to address what has become one of our country's
fastest-growing public health care threats. Connecticut, Rhode Island, New
York and California have already enacted legislation to protect the rights
of physicians to treat Lyme disease patients with long-term antibiotics
based on their clinical evaluation. In fact, the Connecticut House and
Senate passed very similar legislation UNANIMOUSLY. I am asking that you now
do the same for New Hampshire residents like myself.

Thank you for your time."


YOU CAN FOLLOW YOUR PHONE CALL WITH AN EMAIL:
SAMPLE LETTER:
Copy and paste the letter below OR draft your own letter and use it.

Dear Senator ___________,

I am writing to ask you to support House Bill 1326. This bill will give New
Hampshire doctors the freedom to use all of their skills and training to
assist Lyme patients without fear of retribution.

We live in the state with the highest reported incidence of Lyme disease in
the country. We must respond to this public health epidemic by allowing
physicians in our state to provide treatment to their patients based on
individualized clinical evaluation, without fear of retaliation from state
medical boards. Connecticut, New York, Rhode Island and California have
already passed similar legislation, and Virginia, Massachusetts and
Minnesota are reviewing bills with the same purpose.

Although there are two standards of care, the New Hampshire Health and Human
Services website still links to only one. Like patients who suffer from
other diseases, it is important that physicians in New Hampshire tell
patients about all available treatment options, as required by the American
Medical Association.

Too many of your constituents are refused long-term treatment in New
Hampshire and must cross state lines to find Lyme-literate doctors who will
treat chronic Lyme disease based on a clinical evaluation. Many of these
Granite State residents, once seriously disabled by Lyme or tick-borne
diseases, have seen significant improvement with long-term antibiotic
treatment. It is time we support New Hampshire physicians who seek to
provide treatment for Lyme and other tick-borne diseases based on their own
clinical training and research of medical-based evidence.

To do so opens the door for patients to receive expanded treatment options
and information, an individualized approach to care, and honors patient
choice. Patients who are diagnosed with cancer, back pain, etc. actually
have more treatment options available to them than Lyme patients. I believe
House Bill 1326 actually extends the medical board's mission of protection
to Lyme patients and the physicians caring for them and, thus, serves the
public good.

Thank you in advance for giving serious and thoughtful consideration to this
bill. Please know I am available to speak with you about my own story at any
time.

___________________________ (your name)
(your district)
(your contact information)


Thanks to all of you who are helping with the passage of this important
legislation.

Our Best,

The New Hampshire Lyme Legislation Committee

--------------------
"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

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Up for great work.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
tdtid
Frequent Contributor (1K+ posts)
Member # 10276

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We had a meeting today with Gov. Lynch of NH for the Proclamation ceremony.....proclaiming May 2010 Lyme Awareness month. We've done this the last couple of years and a good thing to have under our belt before going in on Monday for the Senate Bill.

Wish us luck.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

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