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» LymeNet Flash » Questions and Discussion » Activism » misrepresentation on facebook

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lymewreck36
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Have any of you looked at the garbage said about lyme disease on facebook.com. Sickening. What can we do about it? Is there a way to show our presence and dispute what is said there.

From "lyme disease" on facebook:

Late, delayed, or inadequate treatment can lead to the more serious symptoms, which can be disabling and difficult to treat.[5] Occasionally, symptoms such as arthritis persist after the infection has been eliminated by antibiotics, prompting suggestions that Borrelia causes autoimmunity.[6]

Chronic neurologic symptoms occur in up to 5% of untreated patients.[21] A polyneuropathy that involves shooting pains, numbness, and tingling in the hands or feet may develop. A neurologic syndrome called Lyme encephalopathy is associated with subtle cognitive problems, such as difficulties with concentration and short-term memory. These patients may also experience profound fatigue.[27] However, other problems such as depression and fibromyalgia are no more common in people who have been infected with Lyme than in the general population.[27][28] Chronic encephalomyelitis, which may be progressive, can involve cognitive impairment, weakness in the legs, awkward gait, facial palsy, bladder problems, vertigo, and back pain. In rare cases untreated Lyme disease may cause frank psychosis, which has been mis-diagnosed as schizophrenia or bipolar disorder. Panic attack and anxiety can occur, also delusional behavior, including somatoform delusions, sometimes accompanied by a depersonalization or derealization syndrome, where the person begins to feel detached from themselves or from reality.[29][30]

Lyme arthritis usually affects the knees.[31] In a minority of patients arthritis can occur in other joints, including the ankles, elbows, wrist, hips, and shoulders. Pain is often mild or moderate, usually with swelling at the involved joint. Baker's cysts may form and rupture. In some cases joint erosion occurs.

Lyme arthritis usually presents in the knee? Autoimmunity? This has Allen Steere all over it.

Mary

Posts: 1013 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
Pinelady
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Lyme arthritis usually affects the knees.[31] In a minority of patients arthritis can occur in other joints, including the ankles, elbows, wrist, hips, and shoulders. Pain is often mild or moderate, usually with swelling at the involved joint. Baker's cysts may form and rupture. In some cases joint erosion occurs.
GRRRR..I would like to tell them about that mild to moderate...
Yes a link would be nice.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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gatorade girl
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Where on Facebook did you see this? So curious.

--------------------
gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".

Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
lymewreck36
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Here's the link.

http://www.facebook.com/home.php?#!/pages/Lyme-disease/105517266149427?ref=ts

Mary

Posts: 1013 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
   

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