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The study on Immune Responses and Symptoms in Lyme Disease Patients and Healthy Controls titled "Multi-Method Examination of Diverse Manifestations of Lyme Disease" conducted at Stanford University is still looking for participants.
Please consider participating if you are eligible. Many of you have contacted us and your contribution is greatly appreciated, but we need more!
Immune Responses and Symptoms in Lyme Disease Patients and Healthy Controls
Stanford University
Are you interested in participating in a research project at Stanford University researching Lyme disease?
You could be included in this important research if you: * are a patient of one of the following doctors: Dr. S, Dr. G, Dr. P, or Dr. S * have been diagnosed with Lyme disease * are an adult aged 21 years or older * speak and read English * have never been homeless * have not taken antibiotics for 2 consecutive years in the last 5 years * allow for your medical record to be reviewed within this provider's office for diagnoses and lab results
This study will evaluate and compare the sensitivity of various Lyme disease tests to their clinical diagnoses and test results of persons who are healthy and have never been diagnosed with Lyme disease.
Participants will have their blood drawn for diagnostic tests used for Lyme disease. Following this, they will complete questionnaires related to quality of life, demographics, distress, medical symptoms and treatment, coping and pain during a one-time 2 to 3 hour visit at Stanford University.
By participating in this study you will:
Contribute valuable information that may benefit adults living with Lyme disease Receive a one-time $50 payment
If you are interested in learning more about this exciting study, please let the doctor's office staff know or contact: Lila Castillo, Project Coordinator 650-725-5590 or Alex Aylward, Project Coordinator 650-721-6115
Cheryl Koopman, Principal Investigator For general information regarding questions, concerns, or complaints about research, research related injury, or the rights of research participants, please call (650) 723-5244 or toll-free 1-866-680-2906, or write to the Administrative Panel on Human Subjects in Medical Research, Administrative Panels Office, Stanford University, Stanford, CA 94305-5401
** edited to remove Lyme practitioner's names, sorry I do not know the states to be able to add them **
[ 11-11-2010, 02:38 PM: Message edited by: sixgoofykids ]
Posts: 6 | From California | Registered: May 2010
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Can you test the participants for the novel virus XMRV? That would be valuable...
I guess we'll find just a big of percentage in chornic lyme patients as in the other syndromes (me/ms/fms etc).
Posts: 275 | From Home | Registered: May 2007
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I agree that it would be valuable, but that would have to be a separate or add-on study.
Posts: 6 | From California | Registered: May 2010
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Yes, a add on would be great. Published separatly. There are good chances the WPI or Harvey Alter's NIH lab could give you a discount. Chances are even they would analyze it for free if they could be co authors of the add on...
I think that would take us a leap forward. Many chronic lyme patients are suspecting XMRV. Even burrascano is suspecting XMRV. If you could contribute here than it's greatly appreciated.
Posts: 275 | From Home | Registered: May 2007
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A negative result would also take us forward... Then we've tured that stone, and can keep on looking for something else which might help those patients... Thanks for the reply by the way.
Posts: 275 | From Home | Registered: May 2007
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