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I am just wanting to know, I am not alone and what I can do. I was misdiagnosed by a couple of doctors and several ER doctors, I through networking found a doctor in Atlanta who diagnosed me with lyme.
I have pretty strong neurological symptoms, pins and needles, trouble with speech and balance, my memory is terrible. I have one symptom that is horrible, I feel like my brain is pushing out of my head, there is terrible pressure it feels like it is pushing on my sinuses and the vision in my left eye is effected.
I have mentioned this to my doctor. I was diagnosed about one month ago and was first prescribed 100 mg of doxy for about two weeks, with no real change, I had a picc line installed and am taking 1g of rocephin daily for thirty days I am getting ready to start my third week.
I have not noticed any big changes with this either. my ability to urinate has improved (which had almost stopped) before being on rocephin.
Does anyone else have this almost daily pressure of their brain feeling swollen and feeling disoriented a lot. I know I went too long without having diagnosis and have chronic lyme.
I look forward to feeling like I am not alone in this. I have not been able to work and worry I can't hold down my job with this disorientation and memory loss. simple things seem so hard and I find myself exhausted.
I am a 44 year old male who once was in the gym everyday and had a vibrant life and career....no longer. I recently got a card from friends at work and reading the names I don't remember them This is the most horrible disease!!
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This is the most horrible disease!!
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