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» LymeNet Flash » Questions and Discussion » Activism » News from ILADS and petition

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Author Topic: News from ILADS and petition
hansemand
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Member # 35305

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It seems as if Things are slowly turning in the right direction. In the newest information material from ILADS this is highligted.
However, in order for the CDC not to block and hinder the small positive Things-Sign the petition in !Activism"

Increased Effort To Combat Lyme Disease in 2014 Omnibus
From Congressman Frank Wolf’s office

Washington, D.C. (January 27, 2014) – Efforts to combat Lyme disease get a much-needed boost in the FY 2014 Omnibus spending bill recently signed into law, according to Rep. Frank Wolf, one the leading champions to find a cure to the debilitating disease.

In addition to providing $9 million to Centers for Disease Control (CDC) to help to combat Lyme, the bill directs the CDC to develop better diagnostic testing and national surveillance systems.

The measure also directs the National Institute of Sciences to continue its efforts to more accurately assess the presence of acute and chronic Lyme disease and encourages the National Science Foundation to continue to support Lyme research efforts.

The four research agencies within the Department of Agriculture are also directed to build on ways to protect humans and livestock from tick-borne illnesses and to consider how such diseases impact the local economy.

The increased effort comes in the wake of recent news reports that suggest Lyme disease affects nearly 300,000 people each year, up to 10 times more than previously thought.

“I know that many are suffering from this devastating disease,” Wolf said. “My approach to Lyme disease always has been two-fold: help those who are sick get the treatment they need; and help prevent healthy people from becoming sick. This Omnibus continues these efforts.”

Wolf has hosted a number of forums in Virginia’s 10th District to help educate residents and medical professionals about the dangers of Lyme. In addition, he is cosponsoring two bills with Rep. Chris Smith (R-NJ) and Rep. Chris Gibson (R-NY) that would change permanent law.

One measure, H.R. 610, would require the secretary of Health and Human Services create a federal Tick-Borne Diseases Advisory Committee charged with coordinating research and advising federal agencies on priorities

related to Lyme and other tick-borne diseases, while also recognizing that patients can provide valuable and needed feedback.

The other, H.R. 611, builds on H.R. 610 but further increases authorized funding for Lyme disease research.

Lyme is the most prevalent vector-borne disease in the U.S. today. If not diagnosed and treated early, Lyme can lead to disseminated infection and can affect every system in the body, including the central nervous system.

Later symptoms of Lyme disease include arthritis of weight-bearing joints; neurological problems such as facial paralysis, encephalopathy, memory problems and weakness of the extremities; and heart symptoms, such as blockages and inflammation.

.................................................

Breaking up the text for easier reading for many here -

[ 05-05-2014, 05:21 AM: Message edited by: Robin123 ]

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hansemand

Posts: 160 | From europe | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Mvdr
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there's hope
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398

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Please post a link to the petition thread in Activism... I went there, but couldn't tell which one it was...

Thanks,

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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steve1906
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Razzle, here it is...

http://www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf#

Steve

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Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Catgirl
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Thanks for the link Steve!

We only need 5000+ more supporters! Stand up! [Smile]

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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BobG
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Why do you need 5000+ more? What does that do?
Posts: 360 | From Massachusetts | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
   

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