I was found the next morning by someone who I knew from the town hall. She said that everyone was looking for me.
Next thing I knew was I was in the ER. From there, was transferred to the phych ward.
This is where my nightmare started. Told them that I had lyme and that phych drugs make me worst, they magnify the lyme symptoms. Guess what, I was given phych drugs and did not even take in account my lyme. They did not heed my request to get abx for the lyme, so for 5 days went without any lyme abx. The med Dr did not follow up with my LD.
The only good thing that came out of my stay, I meet two other patients that had symptoms of lyme.
One of them has the symptoms just like mine, also his lyme symptoms got worst from taking the phych drugs!
The other I overheard that he was going from Dr to Dr with no results, BINGO/RED FLAG - lyme!
Both were relieved to what I had to say about lyme and both are going to see a LLD.
I will keep all of you posted on their outcome.
When I had my consultation with the phych Dr, I told her that patient with symptoms like mine could have lyme, her response was he is totally different and no way that he can have LD, duck, duck, duck!
Was to get my PIC this past Monday and start my Rocephin on Wed. Phych ward does not allow anyone with a PIC on the unit.
Anyway, does any one out there ever had a fog episode that lasted for a few hours or more?
I had similar episodes, but never lasting that long.
------------------
Alex
I'm so sorry this all happened. In fact, I was just thinking about posting in General Support to check on you.
How scary & frustrating this must have been. I can't even fathom how you must have felt.
I figured you already had your PICC line in & was going strong now on ABX.
I thought we hadn't heard from you because you might be feeling worse on ABX IVs.
Are you doing o.k. now?
There you are sick & still helping other patients. Well, their lives will change-----bigtime.
You were really brave to approach that Psych
about her other patients & possible LD, while you were trying to get out of that place! I'm not that brave.
Maybe you could get a MEDIC Bracelet, key ring, or information in your wallet. They discussed that over in Gen Support.
We should all do that. (We should all get a "NO STEROIDS" bracelet, at the very least.)
When do you get your PICC line in & start Rocephin?
I'm sure others will visit this post & have some answers for you. I'm sure that the experts LLMDs in neuro lyme would not be surprised by your story.
You should e-mail your experience to Dr. F at Columbia.
Hope you're home & o.k. now.
You need that Rocephin now.
Let us know how you're doing. We're concerned for you.
Take Care,
Jan
-----------------------------------
You are NOT your disease!
[This message has been edited by RECIPEGIRL (edited 28 October 2004).]
Going to the LD next week, where he will reschedule my PIC. After it's in, I can then start with my Rocephin.
I was on Rocephin two years ago. I had no problems with it. I did get better with it, only to go downhill again a year later.
------------------
Alex
Hope they will keep you on Rocephin long enough to really help this time. If they have to change your IV, I believe Doxycycline IV goes to the brain. Not sure about Claforan IV.
When you eventually go on orals, I know Minocin goes to the brain.
Nature's Sunshine Liquid Chlorophyll is a great detoxifier. It will pull old meds out of the liver & is full of magnesium.
I'm glad you survived your ordeal. Hope you'll take good care of yourself now.
You can even post your experience in the topic, "Official Alligator Pit" which someone just brought up over in General Forum. (It's 7 pages long.)
Patients symbolically throw their non-LLMDs in the pit by sharing their unbelievable experiences.
Take Care,
Jan