This is topic Newbie Learning Help Links 5/21/08 in forum Medical Questions at LymeNet Flash.


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Posted by treepatrol (Member # 4117) on :
 
Newbies Links 5/21/08





WELCOME To LYMENET



NATIONWIDE SUICIDE HOTLINE 1-800-784-2433
NATIONWIDE SUICIDE HOTLINE



Public Health Alert Website



Victims of Domestic Violence


Compiled By Melanie Reber 12-30-06



Wild Condors Newbie Help



Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses


IDS Guidelines they should read them!



Get your county declared endemic!


hshbmom Posted this-1-12-07 Public Health Surveillance



If you have been treated for lyme or you think you have beat it read this below.





Survival Under Adverse Conditions



Wikipedia on Lyme







How to Post what where explanations

Posting

Remember This

Rules LymeNet.Org Webmaster

Rules

Go to Lymetimes click on Order the Lyme Times, then click on the $10.00 option and you'll see the Patient Issue.12/14/05

Lyme News

Caution AL?F Link on Site Lyme News Site

Virginia T. Sherr

Human Side Of Lyme

Tick Tips For Kids

Devin's ticktips4kids Site

Here's more goodys! A typical response to newcomers.



Page 1.



Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and

foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.



Support Groups





Support Group Links



Cumulative Lyme Cases 1980 To Current = 273,805

Cumulative Lyme Cases 1980 To Current Link



Lyme Disease symptoms 2005

Lyme Symptoms 2005

Symptom Study



Post for a LLMD in

Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

Support Links LLMD's

CDC"This surveillance case definition was developed for national reporting of Lyme disease; it is not intended to be used in clinical diagnosis.

From the CDC case definition:

From: Cheryl



Publications by ILADS Members

Publications by ILADS Members

Lymerix Vaccine Stories



New Book for Kids with Lyme Disease

Book for Kids with Lyme Disease

Lyme State Info Cheryl's

Why we Don't Use Dr's Names Here



LYME DISEASE TREATMENT & DIAGNOSIS

Cheryl's LDT&D

Lyme Disease Misdiagnosed As ...

Art Doherty Misdiagnosed

Art Doherty Lots a Links



The following is information on diseases known to be transmitted by ticks. Multiple infections may be transmitted at one time by a single tick, lymeinfo.



LYME DISEASE COINFECTIONS





Immune System

Immune System Series

Endocrine_system



Endocrine_systemm



Action Lyme

Action Lyme

Conflicts in Lyme

The problem with Wormser, Steere et al is that they have a simple minded and simple view of a very complex family

Prophet Gloating T Parkman

How to Search Courtesy of Danq

TC LymeNet Links for New Members

TC 50 Questions



Cranial Nerves repost TC

Cranial Nerves repost



MAY IS NATIONAL LYME DISEASE AWARENESS MONTH by Lucy Barnes aka TINCUP March 2006

 -

TC & Betty's Upgrade Article 9 Points

Betty to Tincup, breaking this up for us neuro lymies

NeuroLymies





Tin Cups - My eye problems- info that might help you?

TC's Eye Problems

LUCY BARNES/TINCUP'S personal story...very detailed

TC's Story

TC Warning To Posters

Lida Mattman

BorreliaBrain Letter

DISEASE INFO - COINFECTIONS



Page 2.

Newbie's Lingo

WildCondors Medical Abbreviations

Common Medical and Non Medical Abbreviations

Links for family members

Lyme Disease Audio Network

Dr B's Treatment Guidelines



Burrascano's 2005 Treatment Guidelines

Dr. Joseph J. Burrascano's Treatment Guidelines

CDC Website on Lyme Disease

International Lyme and Associated Disease Society



Prof. Garth L. Nicolson DIAGNOSIS AND THERAPY OF CHRONIC SYSTEMIC

CO-INFECTIONS IN LYME DISEASE

AND OTHER TICK-BORNE INFECTIOUS DISEASES


Prof. Garth L. Nicolson View Guidelines







Lyme Symptoms

Ringing in the ears

Lyme Disease Symptoms PDF

Lyme Disease Symptoms

Rashes



Tick Pictures & Graphic



Assorted Ticks Pics

mediscan CloseUps

Tick Pictures

Ticks ISU

Assorted Skin Photos Not Just TBI's

Tabbytamer's Assorted Skin Photos

Co-IinfectionsThanx M

Symptoms & Associated Conditions

Rose's 15 Facts for Newcomers

Making the Most of Your LLMD Visit

Camp A and Camp B, The Lyme Disease Contoversy

2nd Version Camp A Camp B

Citations for Underreporting CDC

MP Controversy

MP 2

MP 3

MP 4

Borrelia burgdorferi infection may be the cause of sarcoidosis

Pub Med

Why You Can't Trust Medical Journals Anymore

Something to share with friends and family members But You LOOK Good!



Labs



MDL

Igenex Labs

Bowen Lab

Bowen Lab Forms Protocol

BowenNewSite LymeResearch

IGeneX Which Tests to Perform?

Dr Fry Post

Dr Fry Link to Airpark Medical Center

Fry Labs Scotts Link



Compounding Pharmacist Locator

Compounding Pharmacist Locator



New Test for Lyme Disease

CENTRAL FLORIDA RESEARCH



Vaccine 2007 OspC

This is the one in Humans expression!! Vaccine 2007 OspC

OspC Information



Laboratory Tests By Tom Grier M.S. Three Main Categories of Lyme Disease Tests:

Laboratory Tests By Tom Grier M.S.



Aristo Vojdani

Western Blot and Elisa tests explaining differences between tests developments and this guy uses both antigens from cultured Bb and Cultured from mammal blood give it a listen Here

Pick this one bottom page:NeuroScience Inc. (2..> 28-Jan-2008 12:19 2.5M



Drawbacks of Serodiagnosis of LD





In vivo induced antigen technology: the most sensitive method of detection for Lyme disease and other tick-borne diseases,Part One of a two-part article



The use of lymphocyte proliferation assay and cytokine production in seronegative patients with Lyme arthritis or neuroborreliosis





Western Blot Info

Band 41 might show up in the absence of Lyme IF you have a gum disease

Plum Isand --Lyme and Mycoplasma and the Lyme cover-up

Info on spirochetes, which COULD make band 41 show up:

Band 41kd Most important?

More on 41K

FDA It is important that clinicians understand the limitations of these tests

ILADS W Blot

Explaining Borreliosis (Lyme) Western Blot Tests

Explanation of Western Blot Bands

Igenex Labs on the Western Blot

Melissa Kaplan's Lyme Website Explains Western Blot

Dr. C Explains Western Blot

Western Blot

( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.

- = Not Present

+ = Low

++ = Medium

+++ = High

+/- = Equivocal = Indeterminate its there but not as intense as low) )






See this ( . )thats the size of the larva stage tick...

Next nymph size... ( * )

Next is adult ( o ) to ( 0 )

Pretty small????? HUH





Blood Brain Barrier



ABX `s Cross Blood Brain Barrier

Antibiotics that will cross the blood brain barrier

DIFFUSION OF ANTIMICROBIALS INTO THE CEREBROSPINAL FLUID

Blood Brain Barrier



BBB

antibiotics penetration of aqueous humor of the eyes

Antibiotics penetration blood brain barrier





Blood Tests Meanings



Blood Tests Meanings



Page 3.

Flagyl,= List of ****dazole's that I have found





Cyst's Treatment

ABX= Antibiotics

ABX's SpreadSheet

Blood abx peak and trough levels measured



Recommended Choices ABX Dr B

Todar Site

Drugs Matthew Goss

Todar Explore for yourself

Milk Thistle Warning





Antibiotics



New uses for older antibiotics

Headaches & the cyclines ie doxy,tetra,mino.

Ketek Experiences

ADVERSE INTERACTIONS DRUGS TAKEN IN COMBINATION

WARNING: cranberry and warfarin = BAD!!

KETEK CAUSES LIVER DAMAGE

What are your flagyl experiences?

Levaquin questions again...need opinion

benzylpenicillin isnt that injected bicillin?

Antimicrobial Therapies

Antimicrobial Link

Antimicrobial Link wayback machine

Antibiotics for mycoplasma

Drugs for Intracranial Infections

Drugs for Intracranial Infections waybackmachine

OTOTOXICITY, PREVENTION AND MONITORING

BICILLIN INJECTIONS Compilation of posts from Lymenet
BICILLIN INJECTIONS Compilation of posts from Lymenet

Flouroquinolones, and Quinolones by PQ

Ciprofloxacin & Quinolones

1



2



3



4



5



6



7



8

9



Flagyl" by Martin Atkinson Barr

Nitroimidazoles



Drug Interactions and Other Drug Info

Drug Digest & Interactions

Drug Interactions including prescriptions, over-the-counter drugs, herbals and vitamins

Drug Interactions

American Medical Women's Association

Tiscali Reference Encyclopedia



Biochemical Abnormalities

Biochemical Abnormalities

Abby Normal Blood

Hypercoagulation, or Thrombophilia Explanation

Low platlet WBC

low wbc

borrelia burgdoferi inhibits lymphocycte

Low WBC

MINOCYCLINE Low WBC

Models of Immune Systems:

Nose Bleeds

BLOOD SUPPLY

Our blood supply IS protected! DON'T BELIEVE IT

Thanks imanurse Pubmed Tick-borne disease transmission through blood transfusion

Itching ??? This Helps!!!



Itching??? THIS HELPS!





Herxing *@*^#*Or Ouch



Treating the Herxheimer (JH) Flare Reaction



Jarisch-Herxheimer reaction spirochete:Google Scholar

What Is a Herxheimer Reaction?

What Is Herxing?

The Herxheimer Reaction

The Herx Reaction

Herxheimer Reaction Explained

Endotoxins -- Is This What Causes Herxes???(Long)

Posted by : seibertneurolyme


What is happening when you stop herxing on abx



Key Terms for Lyme: Cave76

Key Terms for Lyme

Candidiasis

Quote Lida

Ilads

Yeast Problem Diet too



Candida diet and elimination:tutu



Flash yeast

Whole Diet Approach

Lyme symptoms list compared with yeast symptoms

Candida Page



Oral Yeast

Oral Yeast

ZIPZIP Thanks



Oral Thrush Pics



Check Diet Link Atkins Diet

Atkins Carb Counter PDF



Artificial Sweetners Side Effects?



Mold enthusiasts

Mold enthusiasts--aspergillus web info

Flora

 -



Beneficial Flora: Bifidobacterium bifidum, B breve, B infantis, B lactis, B longum, Lactobacillus acidophilus, L brevis, L bulgaricus, L casei, L gasseri, L plantarum, L paracasei, L rhamnosus, L salivarius, Lactococcus lactis, Streptococcus thermophilus

Types of Probiotic Bacteria

Alt cancer Microflora

Microflora

Arthrobacter agilis

Arthrobacter citreus

Arthrobacter globiformis

Arthrobacter leuteus

Arthrobacter simplex

Azotobacter chroococcum

Azotobacter paspali

Azospirillum brasiliencise

Azospirillum lipoferum

Bacillus brevis

Bacillus macerans

Bacillus pumilus

Bacillus polymyxa

Bacillus subtilis

Bacteroides lipolyticum

Bacteroides succinogenes

Brevibacterium lipolyticum

Brevibacterium stationis

Kurtha zopfil

Myrothecium verrucaria

Pseudomonas calcis

Pseudomonas dentrificans

Pseudomonas flourescens

Pseudomonas glathei

Phanerochaete chrysosporium

Streptomyces fradiae

Streptomyces cellulosae... and...

Streptomyces griseoflavus


IntestinalFlora



Supplements



More on B Vitamin deficiency or B 12

[url= http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=060871] B 12 shots whos getting them?[/url]

Bulk Supplements

First the IDSA , NOW THIS ! CODEX !

Vitamin D Information

Vitamin D

melatonin and perimenopause

Melatonin







Parasites

ParasiticLinks Diseases

Intestinal Parasitic Diseases

Parasitic Diseases

Worms and Epilepsy!

Put word Diarrhea in Search

Morgellons

Infestations

Lyme Parasite or Bacteria?

The Merck Veterinary Manual

Spirochete Parasitic

Intestinal Cleanse

IntestinalParasitic Cleanse Herbal Natural



Leishmaniasis Parasites



Leishmaniasis Parasites



More Tick Disease & Other Bugs

Now For something Completely Different Genus's

Chagas disease Acts a lot like Bb

Infections by Bugs Ticks Mosquitos Lice Etc

WEBMedicArchive

Coinfections 1

Coinfections 2

Mycoplasma Infections &Antibiotics

Effects of rokitamycin and other macrolide antibiotics on Mycoplasma pneumoniae in L cells

ncbi pumed mycoplasma's

Mycoplasma Support Links

Mycoplasma's NIH Links like pubmed

Role of infections Mycoplasma, rickettsia,Lyme etc



Ehrlichia, family Rickettsiaceae Order of Rickettsiales 07



Georgia USA Ehrlichia Cowdriosis Heartwater



Ehrlichiosis Names

Scholar Google Search Ehrlichia Strains

Babesiosis,Babesia



A slightly different babesia treatment (lower cost)

Capillary Angiomas a sign of Babesia

Buddies wanted! Anybody starting zith/mepron?

Mepron Buddies Reunite !



Bakers Cysts

Bakers Cysts Pics

Bakers Cysts Discussion



Skin Things

URGENT -- Petechiae -- Bart or Babs



Bartonella

BARTONELLA-LIKE ORGANISMS BLO Dr B

New Bartonella's

Bartonella Rash's

RMSF Tree

Bartonella Cat Scratch Fever Pics

Neurological dysfunction (including the hemiparesis) has improved

Lesions Improved Pics





Need information on ACA/ Linear Scleroderma, please

Linear Scleroderma Link





Tularemia

Tularemia

Tularemia2

Testkit

Tularemia Rabbit Fever



Tick Paralysis

Tick Paralysis 1

Tick Paralysis 2

Army Tick Paralysis Pdf

Toxoplasma gondii or Neospora caninum

Toxoplasma gondii or Neospora caninum



Babesia Trimethoprim



Mycoplasmal Infections

Mycoplasma? How to get tested? Treatment?

Mycoplasmal CDC

Mycoplasma

Autoimmune Debate

Mycoplasma Treatments

Autoimmune patients
radiogirl Posted 14-12-2006



Alzheimer's

ILADS_Alzheimer_Borrelia_Lecture_Oct_2005

Spirochete_hieroglyphics PDF

Spirochetal Diversity PDF



Microbes in tissues living under the Alzheimer Name -- Identity Theft

Images of Borrelia in Alzheimer's Cave76

Borrelia in Alzheimer's disease

Elderly Alzheimer's

Dr Macdonald's Pod Cast Plaques in Alzheimers Not Just ALZ



Dr Macdonald's Pod Cast Plaques in Alzheimers resurrect the NeuroSyphilis Literature



ALS

Another Story

Lou Gerhrig's ALS

Lida Mattman als

Good Article ALS MS And More Etc

Good Article ALS

ALS

Lou G ALS



M S

This is MS cycilines

lymeinfo Lyme & MS

LYME AND MS (Kathy Cavert)

Lyme Disease Misdiagnosed as Multiple Sclerosis

MS in 1954

MS

Danette MacDonald

I'm not giving up

ALSO trigger MS

Lyme a hidden danger

The saga continued

Tom Grier

Lyme & MS



Links ALS



Lupus Lyme

Lupus Lyme Misdiagnosed



Lyme Disease Misdiagnosed as Fibromyalgia

Fibro Lyme



Lyme Misdiagnosed as other disease's

Lyme Disease Misdiagnosed As ...



CFS CFID

CFS CFID

CFS

INDEX of Bacteria

INDEX of Bacteria

Parkinsons



Lyme Parkonsinism

Parkinson or Lyme with links on page

Should read this also it relates to PD

Antibiotic hope for PD

Lyme-Associated Parkinsonism

Dx MILD Parkinson's





Page 4.

Hereditary Angioedema

C1 Inhibitor Deficiency

"Bell's Palsy of the Gut" and

Other GI Manifestations of

Lyme and Associated Diseases




"Bell's Palsy of the Gut" by V.T. S, MD Not just intestinal issues but a lot of info!!!



Garlic Proper way to eat it

Garlic

Warning Epson Salts Discussion

Warning about Epsom Salts



PORT-A-CATH (catherter)

Abx's Port



Prolotherapy

Transmission Lyme

Transmission Fleas Mosquito's Food Etc

Transmission Etc

Black Flies & Lyme



Non-Tick Transmission

N-T-T

Transmission Art Doherty

Babesiosis/Lyme & Blood Transfusion



Sexually Transmitted ???

Transmitted Through Sex?

Sex Question-Serious-Adult Content

Talking Transmission ?

Is LD contgious via sex?

Is our saliva contagious?



sexual transmission date: 1-12-07



Sex and Lyme ? 5-8-07





Looks like like they killed this one hmm Blood Supply, Its back!

Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections

Good Site Canadian Lyme Disease Association

FDA on Lyme Testing



Legal Help

Lyme Literate Attorney's PA

PA



InsuranceLaws

Medical Records Privacy

Search Drs Background



Link1

Link2

Search Dr's Backgrounds link



Do Employer's have the right to ask why employees?

Question

Legal Help

Legal Help

Legal Help

Legal Help

Legal Help



MatthewGoss Site

GreatSite

MedicalDictionary

Cheryl's Site

Lymenews

MorphologySimplified

Tonsils crimson crescents

Killing of Lymphocytes By Spirochetes



Antibody Production Sounds like what happens to lymphocyte by Spirochetes

CellsAlive Great Site

How Lymphocytes Produce Antibody

Invasion and Cytopathic Killing of Human Lymphocytes by Spirochetes Causing Lyme Disease 12/16/05

A life cycle for Borrelia spirochetes

Wealth of Info





Bio Film





Bio Film 1

Bio Film 2

Bio Film chitosan 3

Bio Film mg-furanones 4



Support

USA Support

SupportGroups Canada

Canada SupportGroups

Associations, Foundations, and Support by Country

Help For those in need

liveforthechallenge



Marnies......

Updated Nutshell...12/02/05 for Newbies

Ten Points Regarding Mg and Lyme Disease

In a Nutshell P1



In a Nutshell P2

Part1 Long over Due

Part2

Part3

Part4

Part5

Part6

Part7

Updated in a Nutshell

For My Friends

Canlyme MAG

Functions of Magnesium

Function of Mg



Marnies Theories and compilation's on Biological's of Body and Bb

7/24/2006





Antioxidant enzymes,NFkB,bicarbonates, Mg transporter protein



Made Big Connection!

Magnesium

Silver Discussions

Silver Treatments

Colloidal Silver 9/19/05

Tom Grier on Silver

Grier



Articles By Tom Grier

NMDA Receptor Lyme Brain

Great Article Below

Microbiology Tutorial

Help Free

Diabetes Financial Assistance

Diabetes Financial Assistance



Help with Meds

Help! Free Meds

Vitamins you should Know

Tests Synonyms Guide

Lab Tests Looky:D

Lab Reports

Abbot Lab Reports

You can get your medical record for free once a year from the Medical information Bureau(MIB) if company participates

MIB



Melanie Reber



Coping with Financial Burdens

But You "LOOK" Good!

Minoucat



Bankruptcy, Credit Debt, Financial Damage Control, Getting Meds At Low Cost $





Blood Donor Info

Pain Info

Pain Info

German physicist March 1999 Interesting



Female Related Problems





Tin Cups Pregnancy & Lyme Update 5/24/05

Female Issues

Unplanned Pregnancy

Pregnancy

Pregnancy?

TC Link Pregnancy

Gestational Lyme Borreliosis



Insurance Help

Insurance Help Melanie R

Here are the websites of the California LDA:



Calda



lymedisease.org



LymeTimes



Timaca's Appeal Letter to Insurance Company on IV COVERAGE



Timaca's IV COVERAGE



{Ann - OH} Insurance commissions for every state

OptiMisTicK Advice College aid

nannies advice Insurance Company made me cry



Disabilities Links

Social Security Disability FAQ

IDA = Invisible Disabilities Advocate

Minoucat's Disabilities Link 12/19/05

ConnieMc Disability Advocate

Connie MS, CRC, CVE, CCM Disability Advocate



Permethrin

How to apply Permethrin

How to apply Permethrin Pic

Permethrin Site

Discussion on Repellants

ALDF Four Poster Coup

Anyone have any experience with TKO Orange

Tick Testing

Tick Testing

Proper Tick Removal

Proper Tick Removal



 -



 -



The on-line Virtual Tick Museum is a searchable database containing 49 993 peer reviewed tick collection records.



Virtual Tick Museum Data Base Link



Respiration in Ticks



Plastron respiration in ticks





Herbs

Patients On Herbal Medicines And The Interactions

Peppermint

Original CheapHelp PDF Large6.98MB

Ken Lassesen Cheap Help

TC & Tea Recipe's

Links to recent herbal threads MariaA 3-26-07



MariaA Posted these Links 1-12-07



Dichroa febrifuga Treat babesia ??Maybe more than Babs

Dichroafebrifuga + Hydrangea

Natural Net 1/19/06

Organic Pharmacy 10/31/05

Herb Site

NaturalMedicine

Samento

arteminsin

Arteminsin Medical Dictionary

CDC Malaria Arteminsin

Wormwood



Herbs Be Careful

Interactions



HerbsCancer Center

Pycnogenol Extract



Adaptogens



Adaptogen Test



Adaptogen Rhodiola rosea



Adaptogens PubMed Put word adaptogen in hit search



Text Search Adaptogen



adaptogen Rhodiola rosea



Rhodiola rosea PDF



Rhodiola Rosea Marnie





Withania somnifera Ashwagandha

Adaptogen Ashwagandha

Withania somnifera

pubmed Withania somnifera

Withania somnifera remedyfind

P57AS3-Hoodia gordonii Searching Poss liver Side effects?

Increased ATP content/production

Hoodia gordonii



Colon Cleanse

Colon Cleanse discussion

Psychiatric Lyme





Ilads Brochure

Fallon & Tager Report

Duramater NeuroPsych Info Kids&Adults

Neurologic Lyme

Neurologic Lyme



Dirty Truth

Sporadic Schizophrenia

Psychiatric Manifestations

Columbia Lyme

Positive Pause

Neuro-Cognitive Lyme

Schizophrenia & Lyme Disease

Sunra links

Neurologic Exams (Earmarks Narrative and Examination)Caves76

Neurologic Exams (Earmarks Narrative and Examination)



Page 5.



CDC Stuff



8man12 Lawmakers Sever Ties Between CDC And Big Pharma



CDC Citations for the Underreporting of Lyme disease From Cheryl



Emerging Infectious Diseases, March-April 2000

"In North America, Lyme disease and endemic relapsing fever pose the greatest threat to human health and have received the most attention of the borrelial diseases. Approximately 14,000 cases of Lyme disease are reported in the United States each year; however, the actual number of cases may be 10-fold higher (2)."



MMWR January, 2002

"The findings in this report are subject to at least three limitations. First, because LD is reported through passive surveillance, LD is underreported, and the distribution and demographics of reported cases could be biased. Second, LD is underreported in areas where disease is endemic and might be overreported in areas where disease is nonendemic. Third, not all LD patients present with typical manifestations; other conditions might be confused with LD and laboratory testing might be inaccurate."



MMWR April, 2000

"As with a majority of diseases reported through a passive surveillance system, Lyme disease is underreported. Studies in Connecticut and Maryland estimated 7--12 unreported cases for each reported case (20,21). Additionally, the case definition has limitations of sensitivity and specificity."



MMWR 2003 & 2004





CDClinkdead removed?

"The overall incidence rate of reported cases in the U.S. is about 5 per 100,000 population, but there is considerable underreporting."



The public health impact of Lyme disease in Maryland

(Referenced in CDC publications)

"Results show that LD is underreported by 10- to 12-fold in Maryland,"







Scans & How they Work



How Cat Scan Works



How PET Scan Works



How MRI Works



How XRAY Works



How UltraSound Works

Brigham-Harvard Spect

SPECT

S.P.E.C.T.

SPECT Wikipedia



Here's another outstanding site! It tells about the brain and all testing for it. Exceptional is the Brigham/HARVARD site shown that has SLIDES showing MRI, CT, etc.



Links in here



Great Search Site's

COPE Great Search Site





Cancer & Lyme

Cancer & Lyme Tc

Chemo-Lyme

Stopping Cancer Good News tetracycline minocycline and doxycycline Borrelia burgdorf





Explains LD50 Chemicals Toxicities

MSDS SITE

Silver

Ionic Silver Patent Discussion



Interested in what Trolls are?

Lou B's Troll Link

1. 1

2. 2

3.Sorry to See it

4.Sorry to See it Happening



pq's Article on Trolls

The latest example 9/12/06



Success Stories



LouB's Replacement Link For Success Stories Reply to this one

Success Stories

Chat

LD Chat Room Links

Spirochetes Pics Link

I want my own Microscope...

SPIROCHETES FORMS 1

SPIROCHETES FORMS 2

SPIROCHETES FORMS 3

SPIROCHETES FORMS 4

A life cycle for Borrelia spirochetes



Movies on Lyme

MovieLink1

MovieLink2

MovieLink3

MovieLink4

MovieLink5 18mgBig

MovieLink6 52mgBig

MovieLink7 70mgBig

MovieLink8 Fast3mb

Motile spirochete in spinal fluid from Alzheimer patient

Deer Meat CWD Link A & B Below

A Link

B Link Video CWD {copy Link paste into internet address}



rtsp://128.205.242.20/Title_01_01.rv




Genetics Animations

Biochemistry Animations

Immunology Animations

Physiology Animations

Microbiology Animations

Max Animations




Max Animations







LITERATI WITH LYME VIDEO



WinPlayer



UNDER OUR SKIN



Kris Kraft New Lyme Film Trailer!



San Francisco Lyme Disease TV Talk Show now posted online!



Excellent video on Lyme Controversy- from Fox News in Virginia


ILADS DVD AVAILABLE FOR PURCHASE

DVD Order Form



Poll : Did you Have Rash OR Not From A Tick Bite /Rash Yes or Rash No

Rash Poll

Polls here on everything

Abx's Poll

Ask a patient Opinion Polls

Gallbladder Loss Poll

New Poll: What's the most outrageous thing a doctor has actually said to you?





Conspiracy Theories

US Patent Pathogenic mycoplasma

Niaid slip up





Bioterrorism

The truth about the military potential of Lyme

link1

link2

link3



Megan Blewitt : Thesis



Megan's Thesis





CDC CITATIONS

Citations

Mold Report after Katrina

DIFFERENT map of Lyme Disease



The top 10 things most important to know about lyme tx

The Top 10



FDA



FDA Drug Safety List



Anxiety and Panic Attacks





What do you take for anxiety and panic attacks



Spoon Theory

Spoon Theory Original Link11/1/05

Spoon Theory 11/1/05

Sympathy Poems



Posting Correctly

Post in the appropriate Forums



PETS & LYME

Melanie's Feline Canine Lyme link 1/11/06



The face of lyme from someone who knows

--the patient


THE FORGOTTEN

The Singing Forest, A Journey Through Lyme Disease by PJ Langhoff

The Singing Forest



Questions about duck clinics in the northeast

Duck clinics

Lyme patient obituaries

Lyme patient obituaries



The National Lyme disease Memorial Park Project

Memorial Park Project



LYME DETAILED BROCHURES & Tincup's ongoing jobs; can you VOLUNTEER to help



Puter stuff

Enlarge Print



Studies LYME DISEASE MEDICAL LITERATURE

Important Medical Literature

Effect of UV Irradiation on Infection of Mice with Borrelia burgdorferi

Dr Macdonalds Website on What's been found in Alzheimer's Definite Lyme {{in all it's form's}}Correlation's

SHEFFIELD CONFERENCE SPIROCHETAL COMMENTARY

Medical Literature

Lyme Disease Medical Summaries

Scottish lab admits that 33% of negative Lyme test results should be positive

Roundtable on Evidence-Based Medicine

Fighting Back: How Borrelia burgdorferi Persists

Borrelia Attack Model

Biochemistry of Lyme Disease: Borrelia burgdorferi Spirochete/Cyst

Erp H Factor Binding- Do they have this like HIV aids virus and other virus's bacteria,spirochete-parasite?

J.A. Livengood, R.D. Gilmore / Microbes and Infection







Page 6.



Learning by Phages

HCI Therapy Furnished by The Arthritis Trust of America

HCL Protocol hydrochloric acid curing lyme patients



HYPERCOAGULATION & Fibrin



Prokaryotes + Eukaryotes {Seperate} But one in the Spirochete!!!



Military Lyme Support

Medical Air Transport for Wounded Warriors, Veterans and Active Military



What the Heck !!! Stuff

Original antigenic sin This might be whats happened in Bb





The information presented above is for informational purposes only. No information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is not necessarily that of treepatrol or of lymenet.

Please PM me of bad links


[ 29. May 2008, 10:25 AM: Message edited by: Lou B ]
 
Posted by treepatrol (Member # 4117) on :
 
Temporary links the above getting to full


Links below Date 1-26-2007

bettyg's 46 pages newbie links/advise [Smile]

[ 26. March 2007, 07:20 AM: Message edited by: treepatrol ]
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
^

 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
revisions
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by 3greatkids (Member # 3838) on :
 
Up for Smudge
Best wishes to you and daughter for recovery from Lyme.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
UP
 
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UP
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by HEATHERKISS (Member # 6789) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
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up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by bg (Member # 46416) on :
 
Hi Tree,

Another suggestion with you adding things all the time to your 1st post,

when you add something to your list, would you put the date at the top of the list;

example, updated May 17, 2005

we don't want to miss anything, and 2005 doesn't reflect that you are continuing to add to your/Tincup's marvelous list of sites for newbies/oldies...

Thanks for considering my request to help all.

This way they could print your list like once a month so they won't miss any info they are really looking for. Thanks Tree!

bettyg, Iowa
 


Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by bg (Member # 46416) on :
 
Tree, thanks for implementing the latest date of updating all your links! Will be most helpful to me/others.

Tree, I had a separate link about Igenex's new May 1, 2005 price list, etc. Could any of that be added to your links list? thanks.

bettyg, Iowa
 


Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
Tree, thanks for implementing the latest date of updating all your links! Will be most helpful to me/others.

Tree, I had a separate link about Igenex's new May 1, 2005 price list, etc. Could any of that be added to your links list? thanks.

bettyg, Iowa



Put the link in here and Ill take a look

 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
upcy daisey
 
Posted by HEATHERKISS (Member # 6789) on :
 
to the top
 
Posted by bg (Member # 46416) on :
 
up for trailgirl....herxing articles

bettyg
 


Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
UP
 
Posted by HEATHERKISS (Member # 6789) on :
 
up
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by 3greatkids (Member # 3838) on :
 
gitty up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by trueblue (Member # 7348) on :
 
hehehe, now that I found you I'm sending you back to the top for Rick.

Sneaky thread.

 


Posted by minoucat (Member # 5175) on :
 
bump
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by HEATHERKISS (Member # 6789) on :
 
http://www.mib.com/html/request_your_record.html
You can get your medical record for free once a year from the Medical information Bureau(MIB)

Call the 1-800 number.

 


Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by HEATHERKISS (Member # 6789) on :
 
UP
 
Posted by treepatrol (Member # 4117) on :
 
>up
 
Posted by Marnie (Member # 773) on :
 
To the top.
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by HEATHERKISS (Member # 6789) on :
 
up
 
Posted by bg (Member # 46416) on :
 
hi Tree,

You'll want to edit your list.

Art Dougherty took down his 300 OTHER illnesses mimic lyme disease sometime this past 30 days.

bettyg
 


Posted by ivebinlymed2 (Member # 7330) on :
 
Up for Dbag. Treepatrol is a true lifesaver. You will learn a lot here Deb!


 


Posted by treepatrol (Member # 4117) on :
 
upfixing some links
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up for weekend
 
Posted by bg (Member # 46416) on :
 
Treepatrol, would you add Ann's breakdown to your newbie links info on Bowen? Perhaps you could list it UNDER BOWEN, QRIBB.
=====================================

They were very specific to me with my posting this on the web that the below breakdown of the pages they fax/mail are for BOWEN ONLY!

Tree, QRIBB name is very confusing for someone knew....no one would know it actually means Bowen labs in Florida. Could you rename that one:

example, Bowen - QRIBB...thanks tree!

Bettyg

Hi folks,

Using Ann's wonderful suggestion, I emailed Bowen, and here is what I received back promptly today!

"All the pages that were faxed to your pcp is not for him.

Breadown:

pg 1 letter of Protocol physisican
2 information page about test
3 letter to office manager
4 protocol for lab if blood is collected in pcp office
5 Final Report Request is the ONLY page that the physician is require to sign and sent to us
6 copy of patent for our test
7 protocol for patient to take to outside lab to have blood drawn
8 is kit order form for the blood test(our kit consist of 2 tubes, stryoform & mailing sleeve not necessary unless lab requires it)
9 thru 13 is paperwork that the PATIENT needs to fill out and RETURN with the blood once it is drawn for us.

The cover page that is faxed with the protocol explains to KEEP the last seven pages for master file copy for other patients.

If after this breakdown and you still have problems, have them to call the office back 727 937 9077 and I will try to help them understand the paperwork.

This is the protocol for all physicians, this is the first time that I have had anyone to say that all the pages were for the physician.

Please email me back if you still have a problem. Alice, Bowen labs"

bettyg, Iowa

[This message has been edited by bettyg (edited 12 July 2005).]
 


Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
updating
 
Posted by bg (Member # 46416) on :
 
Tree,

I just edited my note on BOWEN labs 13 pages they fax/mail MD.

Changes are for NO. 8 and renaming your QRIBB to show BOWEN - QRIBB so newbies know at a glance you mean Bowen labs; not qribb lab.

Would you show the BOWEN BREAKDOWN as a separate entry under Bowen - QRIBB?

Bowen's office staff were very specific to me since I informed them I was posting their breakdown on lymenet and you would be putting their info on the newbie links under Bowen; NOT other labs.

`````````````````````````````````````````````

Treepatrol, would you add Ann's breakdown to your newbie links info on Bowen? Perhaps you could list it UNDER BOWEN, QRIBB.
=====================================

They were very specific to me with my posting this on the web that the below breakdown of the pages they fax/mail are for BOWEN ONLY!

Tree, QRIBB name is very confusing for someone knew....no one would know it actually means Bowen labs in Florida. Could you rename that one:

example, Bowen - QRIBB...thanks tree!

Bettyg

Hi folks,

Using Ann's wonderful suggestion, I emailed Bowen, and here is what I received back promptly today!

"All the pages that were faxed to your pcp is not for him.

Breadown:

pg 1 letter of Protocol physisican
2 information page about test
3 letter to office manager
4 protocol for lab if blood is collected in pcp office
5 Final Report Request is the ONLY page that the physician is require to sign and sent to us
6 copy of patent for our test
7 protocol for patient to take to outside lab to have blood drawn
8 is kit order form for the blood test(our kit consist of 2 tubes, stryoform & mailing sleeve not necessary unless lab requires it)
9 thru 13 is paperwork that the PATIENT needs to fill out and RETURN with the blood once it is drawn for us.

The cover page that is faxed with the protocol explains to KEEP the last seven pages for master file copy for other patients.

If after this breakdown and you still have problems, have them to call the office back 727 937 9077 and I will try to help them understand the paperwork.

This is the protocol for all physicians, this is the first time that I have had anyone to say that all the pages were for the physician.

Please email me back if you still have a problem. Alice, Bowen labs"

bettyg, Iowa
 


Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by bg (Member # 46416) on :
 
Hi Tree,

THANKS so much for your prompt action on adding the Bowen info I received & changing the headings making it user-friendly for all.

YOU ARE WONDERFUL for giving up so much time to be adding/modifying newbie links as needed!

bettyg, Iowa
 


Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by bg (Member # 46416) on :
 
Tree,

Here is another link of a different subject that someone mentioned it would be nice having it archived somewhere. Can't remember everything in your links.
http://flash.lymenet.org/ubb/Forum1/HTML/035892.html

bettyg
 


Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
.,
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by 3greatkids (Member # 3838) on :
 
Up for snodude
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
updating
 
Posted by treepatrol (Member # 4117) on :
 
updating
 
Posted by Loribelle (Member # 6293) on :
 
up for my sister... Love you, Cheribelle!
 
Posted by treepatrol (Member # 4117) on :
 
updating
 
Posted by treepatrol (Member # 4117) on :
 
up for SForsgren
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up for the weekend.
 
Posted by minoucat (Member # 5175) on :
 
^
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by mbroderick (Member # 5220) on :
 
up!!!
 
Posted by treepatrol (Member # 4117) on :
 
I will update whenever we get that ability back.
 
Posted by treepatrol (Member # 4117) on :
 
up maybe last time
 
Posted by Corgilla (Member # 4066) on :
 
.
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
Finally updated
 
Posted by minoucat (Member # 5175) on :
 
^

 
Posted by treepatrol (Member # 4117) on :
 
updated
 
Posted by Angela Bachmann (Member # 43) on :
 
up
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
.
 
Posted by DJP (Member # 5893) on :
 
Up

 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by Pocono Lyme (Member # 5939) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
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up
 
Posted by shassler64 (Member # 3479) on :
 
up
 
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up
 
Posted by treepatrol (Member # 4117) on :
 
up
 
Posted by treepatrol (Member # 4117) on :
 
updating
 
Posted by shassler64 (Member # 3479) on :
 
up
 
Posted by seibertneurolyme (Member # 6416) on :
 
To the top for CMarie

Bea Seibert
 
Posted by treepatrol (Member # 4117) on :
 
Up editing is back fixed
 
Posted by treepatrol (Member # 4117) on :
 
[Eek!]
 
Posted by treepatrol (Member # 4117) on :
 
[Cool] [Wink]
 
Posted by treepatrol (Member # 4117) on :
 
[bonk]
 
Posted by WildCondor (Member # 434) on :
 
Can we make this post stay at the top of the board for good? Can't the moderators just keep it up there? Thanks tree! [Smile]
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree!

I'm so glad they put your NEWBIE LINKS at the top of medical as we had suggested for a long time.

Now I have a BIG favor to ask of you Tree.

I'm so glad you also implemented my suggestion to put the current date on list when you have added.

BUT now I have another favor to ask you to consider.

Only you knows for sure what you are adding each time to your extensive, invaluable list, would you consider the following:

1. Show the new topic headings you are adding at the very top of the list before your updated date of 10-3-05?

This way those of us who have been around awhile and have been reading your extensive list can save time by going exactly to your NEW links vs. trying to find what is new in the 7-8 pages of total links?

2. Next time you add links, move the other links to where you want them to go, and then show the new links again above the current date of list.

All of our time is very precious on internet, and each of us wants to use our time wisely.

Tree, thank you for considerating my request of you in order to help ALL of us faithful newbie readers. [bonk]

bettyg, Iowa
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree, me again!

Happy holidays to you & wife...hope she is doing much better now.

Glad they have your post at the top and it STAYS there...saves all that bumping.

Tree, I have another suggestion to you since you show the latest date of your UPDATES.

Please reread my May suggestion to you.

Since that wasn't done....here's my new suggestion.

Could you just REPLY to your post and show whatever is NEW is being included in that NEW UPDATE?

For example, posting reply

added 2005 Dr. B. guidlines,
newest CDC developments, etc.

This way I/others could go to the last page and NEWEST reply to read what you added vs. having to look at ALL 8+ pages of the newbie links.

I'm confused as is....sorry; lyme mind! THANK YOU!
 
Posted by treepatrol (Member # 4117) on :
 
Betty like this?
Updated on 12/30/05
just under welcome in newbie links.

If you have been treated for lyme or you think you have beat it read this below.

Survival Under Adverse Conditions
 
Posted by treepatrol (Member # 4117) on :
 
Killing Lymphocytes By Spirochetes
Antibody Production Sounds like what happens to lymphocyte by Spirochetes
CellsAlive Great Site

How Lymphocytes Produce Antibody


Page 4
 
Posted by bettyg (Member # 6147) on :
 
Treepatrol, CONGRATS on doing what I asked of you! This is EXACTLY what I had in mind as I saw you updated the site again.

So I went to your 1st screen of sites & noticed a few dates but not the 12-30-05. This will help me tremendously!!

I wonder how we can get the word out to others except your starting a new post saying you are showing the individual additions or changes to the NEWBIE LINKS and they will be found on the LAST page, last entry...use the "new comments shown" ... sorry can't remember the wording for it there.

Thank you Tree for working with me on this to save us all time but to know in a quick manner what you added to all these valuable lyme links!

Hope you are feeling better now than the post from the other day when you are overwhelmed. Also, do NOT let keeping your list up to date stress you out ok; we APPRECIATE EVERYTHING YOU DO ON THIS LIST, and sharing your expertise/experiences with us all!

God bless you Tree & Mrs. Tree; hope she is better now too.
 
Posted by mbroderick (Member # 5220) on :
 
up, and up, and up!!!
 
Posted by treepatrol (Member # 4117) on :
 
Page 4.

Marnies......
Updated Nutshell...12/02/05 for Newbies
New one
 
Posted by treepatrol (Member # 4117) on :
 
New added as of 1/10/2006
Page 4.
Check Diet Link Atkins Diet
Atkins Carb Counter PDF
 
Posted by treepatrol (Member # 4117) on :
 
update

Page 5 bottom

PETS & LYME
Melanie's Feline Canine Lyme link 1/11/06
 
Posted by treepatrol (Member # 4117) on :
 
Update 1/12/06

Page 3.

Recommended Choices ABX Dr B
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree, I posted yesterday, but my reply went to never land!

If you do NOT have Tincup's web site below about her detailed EYE problems symptom list/post, would you add to newbie list? It's very detailed plus other folks tell other problems too....thanks!

Trueblue posted this yesterday,

"TC hasn't been around in a while but I searched and came across this old topic of hers.

http://flash.lymenet.org/ubb/Forum1/HTML/016997.html

It's a couple of years old but sure covers a lot of eye problems.

Entirely too many that I have at this point. I need to reread but can't right now. I hope it helps. "
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
Hi Tree, I posted yesterday, but my reply went to never land!

If you do NOT have Tincup's web site below about her detailed EYE problems symptom list/post, would you add to newbie list? It's very detailed plus other folks tell other problems too....thanks!

Trueblue posted this yesterday,

"TC hasn't been around in a while but I searched and came across this old topic of hers.

http://flash.lymenet.org/ubb/Forum1/HTML/016997.html

It's a couple of years old but sure covers a lot of eye problems.

Entirely too many that I have at this point. I need to reread but can't right now. I hope it helps. "

Page 1.moved it1/24/06

Blood Tests Meanings


Blood Tests Meanings
Tin Cups - My eye problems- info that might help you?
TC's Eye Problems

[ 24. January 2006, 12:27 PM: Message edited by: treepatrol ]
 
Posted by mbroderick (Member # 5220) on :
 

 
Posted by treepatrol (Member # 4117) on :
 
Herbs
Natural Net 1/19/06

Update its at the bottom of page 4.
 
Posted by treepatrol (Member # 4117) on :
 
Added one here at bottom of page 5.
Conspiracy Theories
US Patent Pathogenic mycoplasma
Niaid slip up
date 1/20/06
 
Posted by treepatrol (Member # 4117) on :
 
update 1/24/06
From:page 1.
TC's My eye problems- info that might help you?
TC My eye problems- info that might help you?

TC Warning To Posters

Located:
Page 3.
Antibiotics
Ketek Experiences
KETEK CAUSES LIVER DAMAGE
What are your flagyl experiences?
Levaquin questions again...need opinion


Located:Page 5.

Spirochetes Pics Link
I want my own Microscope...
I want my own Microscope...

[ 24. January 2006, 09:14 AM: Message edited by: treepatrol ]
 
Posted by treepatrol (Member # 4117) on :
 
update Page 1.

Action Lyme
Action Lyme
 
Posted by treepatrol (Member # 4117) on :
 
update 1/26/06 Page 4.

Canlyme MAG
Functions of Magnesium
Function of Mg
 
Posted by bettyg (Member # 6147) on :
 
morning Tree,

could you add this link about diabetis financial assistance to your links? thank you Tree!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=040766
 
Posted by treepatrol (Member # 4117) on :
 
1/30/06
Update page 4.

Help Free
Diabetes Financial Assistance
Diabetes Financial Assistance

Help with Meds
 
Posted by treepatrol (Member # 4117) on :
 
Update Page 1.

Immune System
Immune System Series
Action Lyme
Action Lyme
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree!

I just read this thread in general about what good article, etc. could you give family/friends who don't believe you about your lyme symptoms, etc.

Someone posted LUCY BARNES/TINCUP'S personal story...very detailed! This is what I'd like to see on your links IF it isn't now.

If it is, I apologize...this was too good not to be around for years for ALL LYMIES coming to board. Thanks Tree.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=3&t=014465#000003
 
Posted by treepatrol (Member # 4117) on :
 
update date 2/8/06

Types of Probiotic Bacteria

Altcancer Microflora


Page 3.
 
Posted by treepatrol (Member # 4117) on :
 
LUCY BARNES/TINCUP'S personal story...very detailed
TC's Story


Page 1.
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree! Have you recouped from all the excitement I gave you all Thurs.? Hope so.

Carol had this wonderful info in my emergency herx post that I thought would be good in your newbies info ... locating a member without having ALL the info needed. Please add if you feel it qualifies for what you've done. Thanks Tree.
Try it on yourself ok.


[QUOTE]Originally posted by Carol in PA:
If you know her last name, you can do a search on the white pages, for Iowa.

http://www.dogpile.com/info.dogpl/white-pages/

Just a thought. I have no idea if the surname is common or not. If there are only a few, I would call some of them, might get a relative or something.

Hmmm, better probably to call the local police department, once you know the town.
Carol [QUOTE]

EVERYONE: PLEASE ADD ABOVE WEB SITE TO YOUR FAVORITES/BOOKMARK. I never heard of this before. I used it typing in my 1st & last name plus Iowa. It brought up 2 of us; I was no. 1 listed. I was really impressed. Thanks Carol for providing a valuable resource in an EMERGENCY!

Bettyg, Iowa
 
Posted by bettyg (Member # 6147) on :
 
Early morning to you Tree,

could you add my sympathy poem collection to your links .. at end?

Sooner or late we all experience it, and they may help others who are losing their loved ones.

I did a search earlier & couldn't find them. Did it again for 100 days...there they were. Thanks for your consideraion Tree.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=014207
 
Posted by treepatrol (Member # 4117) on :
 
I put it in right below spoon theory Betty on 2/16/06

Spoon Theory
Spoon Theory Original Link11/1/05
Spoon Theory 11/1/05
Sympathy Poems
 
Posted by bettyg (Member # 6147) on :
 
Thanks Tree; I'll go in to print the latest web links so I'll know what's there for now until you UPDATE again!

This has worked well for me your showing what is added to your replies here at the bottom. Thanks for doing this...hope others may have discovered this trick of ours. [Smile]

Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
M S
MS in 1954


On page 3 update MS links on 3/1/06
 
Posted by bettyg (Member # 6147) on :
 
Evening Tree,

Would you add this link .. "lyme, MS, and breast cancer THESIS written by Megan Blewitt, the 15 yr. old for HS paper, and submitted for natl. competition. This is a college level thesis!

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=041575#000027

Thanks Tree for your consideration....
Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
Positive Pause
Schizophrenia & Lyme Disease
Sunra links

Page 5.

Pausitive Pause posted on 3/10/06 bottom of Page 4.


And Megan Blewitt : Thesis

Megan's Thesis

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=041575#000027
Posted 03/10/06 Page 5 3/4 of the ways down.
 
Posted by bettyg (Member # 6147) on :
 
Good morning Tree!
Thank you for positing Megan's LYME/MS/BC thesis and the positive pause! I appreciate it.

Hope this finds you/wife doing ok right now. [Cool] Bettyg
 
Posted by blueskyfaith (Member # 8723) on :
 
Brief Summary
GUIDELINE TITLE

Evidence-based guidelines for the management of Lyme disease.
BIBLIOGRAPHIC SOURCE(S)
COMPOSITION OF GROUP THAT AUTHORED THE GUIDELINE

Working Group Members: Daniel Cameron, MD, MPH, Internal Medicine and Epidemiology, Mt. Kisco, New York; Andrea Gaito, MD, Rheumatology, Basking Ridge, New Jersey; Nick Harris, PhD, Immunology, Pal Alto, California; Gregory Bach, DO, Family and Integrative Medicine, Colmar, Pennsylvania; Sabra Bellovin, MD, Family Practice, Portsmouth, Virginia; Kenneth Bock, MD, Family Practice, Rhineback, New York; Steven Bock, MD, Family Practice, Rhineback, New York; Joseph Burrascano, MD, Internal Medicine, East Hampton, New York; Constance Dickey, RN, Registered Nurse, Hampden, Maine; Richard Horowitz, MD, Internal Medicine, Hyde Park, New York; Steven Phillips, MD, Internal Medicine, Ridgefield, Connecticut; Laurence Meer-Scherrer, MD, Internal Medicine, Flamatt, Switzerland; Bernard Raxlen, MD; Psychiatry, Greenwich, Connecticut; Virginia Sherr, MD, Psychiatry, Holland, Pennsylvania; Harold Smith, MD, Emergency Medicine, Danville, Pennsylvania; Pat Smith, President, Lyme Disease Association, Inc., Jackson, New Jersey; Raphael Stricker, MD, Hematology and Immunotherapy, San Francisco, California
* Evidence-based guidelines for the management of Lyme disease. Expert Rev Antiinfect Ther 2004;2(1 Suppl):S1-13. [66 references]

GUIDELINE STATUS

This is the current release of the guideline.
BRIEF SUMMARY CONTENT
RECOMMENDATIONS
EVIDENCE SUPPORTING THE RECOMMENDATIONS
IDENTIFYING INFORMATION AND AVAILABILITY
DISCLAIMER

Go to the Complete Summary
RECOMMENDATIONS
MAJOR RECOMMENDATIONS

Highlights of Guidelines

* Since there is currently no definitive test for Lyme disease, laboratory results should not be used to exclude an individual from treatment.
* Lyme disease is a clinical diagnosis and tests should be used to support rather than supersede the physician's judgment.
* The early use of antibiotics can prevent persistent, recurrent, and refractory Lyme disease.
* The duration of therapy should be guided by clinical response, rather than by an arbitrary (i.e., 30 day) treatment course.
* The practice of stopping antibiotics to allow for delayed recovery is not recommended for persistent Lyme disease. In these cases, it is reasonable to continue treatment for several months after clinical and laboratory abnormalities have begun to resolve and symptoms have disappeared.

Diagnostic Concerns

The most important method for preventing chronic Lyme disease is recognition of the early manifestations of the disease.

Atypical Early Presentations

Early Lyme disease classically presents with a single erythema migrans (EM or "bull's-eye") rash. The EM rash may be absent in over 50% of Lyme disease cases, however. Patients should be made aware of the significance of a range of rashes beyond the classic EM, including multiple, flat, raised, or blistering rashes. Central clearing was absent in over half of a series of EM rashes. Rashes can also mimic other common presentations including a spider bite, ringworm, or cellulitis.

Physicians should be aware that fewer than 50% of all Lyme disease patients recall a tick bite. Early Lyme disease should also be considered in an evaluation of "off-season" onset when flu-like symptoms, fever, and chills occur in the summer and fall. Early recognition of atypical early Lyme disease presentation is most likely to occur when the patient has been educated on this topic.

New Chronic Lyme Disease Presentations

A detailed history may be helpful for suggesting a diagnosis of chronic Lyme disease. Headache, stiff neck, sleep disturbance, and problems with memory and concentration are findings frequently associated with neurologic Lyme disease. Other clues to Lyme disease have been identified, although these have not been consistently present in each patient: numbness and tingling, muscle twitching, photosensitivity, hyperacusis, tinnitus, lightheadedness, and depression.

Most patients diagnosed with chronic Lyme disease have an indolent onset and variable course. Neurologic and rheumatologic symptoms are characteristic, and increased severity of symptoms on wakening is common. Neuropsychiatric symptoms alone are more often seen in chronic than acute Lyme disease. Although many studies have found that such clinical features are often not unique to Lyme disease, the striking association of musculoskeletal and neuropsychiatric symptoms, the variability of these symptoms, and their recurrent nature may support a diagnosis of the disease.

The Limitations of Physical Findings

A comprehensive physical examination should be performed, with special attention to neurologic, rheumatologic, and cardiac symptoms associated with Lyme disease.

Physical findings are nonspecific and often normal, but arthritis, meningitis, and Bell's palsy may sometimes be noted. Available data suggest that objective evidence alone is inadequate to make treatment decisions, because a significant number of chronic Lyme disease cases may occur in symptomatic patients without objective features on examination or confirmatory laboratory testing.

Factors other than physical findings, such as a history of potential exposure, known tick bites, rashes, or symptoms consistent with the typical multisystem presentation of Lyme disease, must also be considered in determining whether an individual patient is a candidate for antibiotic therapy.

Sensitivity Limitations of Testing

Treatment decisions should not be based routinely or exclusively on laboratory findings. The two-tier diagnostic criteria, requiring both a positive enzyme-linked immunosorbent assay (ELISA) and western blot, lacks sensitivity and leaves a significant number of individuals with Lyme disease undiagnosed and untreated. These diagnostic criteria were intended to improve the specificity of tests to aid in identifying well-defined Lyme disease cases for research studies. Though arbitrarily chosen, these criteria have been used as rigid diagnostic benchmarks that have prevented individuals with Lyme disease from obtaining treatment. Diagnosis of Lyme disease by two-tier confirmation fails to detect up to 90% of cases and does not distinguish between acute, chronic, or resolved infection.

The Centers for Disease Control and Prevention (CDC) considers a western blot positive if at least 5 of 10 immunoglobulin G (IgG) bands or 2 of 3 immunoglobulin M (IgM) bands are positive. However, other definitions for western blot confirmation have been proposed to improve the test sensitivity. In fact, several studies showed that sensitivity and specificity for both the IgM and IgG western blot range from 92 to 96% when only two specific bands are positive.

Lumbar puncture has also been disappointing as a diagnostic test to rule out concomitant central nervous system infection. In Lyme disease, evaluation of cerebrospinal fluid is unreliable for a diagnosis of encephalopathy and neuropathy because of poor sensitivity. For example, pleocytosis was present in only one of 27 patients (sensitivity 3%) and with only seven cells. The antibody index was positive (>1) in only one of 27 patients (sensitivity 3%). An index is the ratio between Lyme ELISA antibodies in the spinal fluid and Lyme ELISA antibodies in the serum. The proposed index of 1.3 would be expected to have even worse sensitivity.

Several additional tests for Lyme disease have been evaluated. These include antigen capture, urine antigen, and polymerase chain reaction. Each has advantages and disadvantages in terms of convenience, cost, assay standardization, availability, and reliability. These tests remain an option to identify people at high risk for persistent, recurrent, and refractory Lyme disease but have not been standardized.

Seronegative Lyme Disease

A patient who has tested seronegative may have a clinical presentation consistent with Lyme disease, especially if there is no evidence to indicate another illness.

Although many individuals do not have confirmatory serologic tests, surveillance studies show that these patients may have a similar risk of developing persistent, recurrent, and refractory Lyme disease compared with the seropositive population.

Continued Importance of Differential Diagnosis

The differential diagnosis of Lyme disease requires consideration of both infectious and noninfectious etiologies. Among noninfectious causes are thyroid disease, degenerative arthritis, metabolic disorders (vitamin B12 deficiency, diabetes), heavy metal toxicity, vasculitis, and primary psychiatric disorders.

Infectious causes can mimic certain aspects of the typical multisystem illness seen in chronic Lyme disease. These include viral syndromes, such as parvovirus B19 or West Nile virus infection, and bacterial mimics, such as relapsing fever, syphilis, leptospirosis, and mycoplasma.

The clinical features of chronic Lyme disease can be indistinguishable from fibromyalgia and chronic fatigue syndrome. These illnesses must be closely scrutinized for the possibility of etiological Borrelia burgdorferi infection.

Clinical Judgment

Clinical judgment remains necessary in the diagnosis of late Lyme disease. A problem in some studies that relied on objective evidence was that treatment occurred too late, leaving the patient at risk for persistent and refractory Lyme disease.

As noted, time-honored beliefs in objective findings and two-tier serologic testing have not withstood close scrutiny. Lyme disease should be suspected in patients with newly acquired or chronic symptoms (headaches, memory and concentration problems, and joint pain). Management of patients diagnosed on the basis of clinical judgment needs to be tested further in prospective trials, and diagnostic reproducibility must be verified.

Testing for Coinfection

Polymicrobial infection is a new concern for individuals with Lyme disease, and coinfection is increasingly reported in critically ill individuals. Although B. burgdorferi remains the most common pathogen in tick-borne illnesses, coinfections including Ehrlichia and Babesia strains are increasingly noted in patients with Lyme disease, particularly in those with chronic illness. Bartonella is another organism that is carried by the same ticks that are infected with B. burgdorferi, and evidence suggests that it is a potential coinfecting agent in Lyme disease.

Recent animal and human studies suggest that Lyme disease may be more severe and resistant to therapy in coinfected patients. Thus, concurrent testing and treatment for coinfection is mandatory in Lyme disease patients.

Treatment Considerations

Since Lyme disease can become persistent, recurrent, and refractory even in the face of antibiotic therapy, evaluation and treatment must be prompt and aggressive.

Prompt Use of Antibiotics

Although no well designed studies have been carried out, the available data support the prompt use of antibiotics to prevent chronic Lyme disease. Antibiotic therapy may need to be initiated upon suspicion of the diagnosis, even without definitive proof. Neither the optimal antibiotic dose nor the duration of therapy has been standardized, but limited data suggest a benefit from increased dosages and longer treatment, comparable to the data on tuberculosis and leprosy which are caused by similarly slow-growing pathogens.

Choosing an Antibiotic

In acute Lyme disease, the choice of antibiotics should be tailored to the individual and take into account the severity of the disease as well as the patient's age, ability to tolerate side effects, clinical features, allergy profile, comorbidities, prior exposure, epidemiologic setting, and cost.

Conversely, persistent and refractory Lyme disease treatment is more likely to include intravenous and/or intramuscular antibiotics. The choices depend in part on the patient's response to antibiotic therapy and on the success of antibiotics in treating other Lyme disease patients.

Therapy usually starts with oral antibiotics, and some experts recommend high dosages. The choice of antibiotic therapy is guided by weighing the greater activity of intravenous antibiotics in the central nervous system against the lower cost and easy administration of oral antibiotics for B. burgdorferi.

Oral Antibiotic Options

For many Lyme disease patients, there is no clear advantage of parenteral therapy. Along with cost considerations and pressure to treat patients with Lyme disease with the least intervention, there is growing interest in the use of oral therapy.

First-line drug therapies for Lyme disease may include (in alphabetical order): oral amoxicillin, azithromycin, cefuroxime, clarithromycin, doxycycline, and tetracycline. These antibiotics have similar favorable results in comparative trials of early Lyme disease.

Intravenous Antibiotic Options

It is common practice to consider intravenous antibiotics upon failure of oral medications in patients with persistent, recurrent, or refractory Lyme disease, and as the first line of therapy for certain conditions, (i.e., encephalitis, meningitis, optic neuritis, joint effusions, and heart block).

Ideally, the intravenous antibiotic should be selected on the basis of in vitro sensitivity testing or clinical experience. Intravenous antibiotics are also justified by concern for penetration into the central nervous system.

Until recently, ceftriaxone, cefotaxime, and penicillin were the only intravenous antibiotics routinely studied for use in Lyme disease. Intravenous imipenem, azithromycin, and doxycycline have an adequate antispirochetal spectrum of activity and may represent suitable alternative therapies. However, the latter two drugs are often considered for intravenous use only if they are not tolerated orally.

Intramuscular Antibiotic Options

Intramuscular benzathine penicillin (1.2 to 2.4 million units per week) is sometimes effective in patients who do not respond to oral and intravenous antibiotics. If intramuscular benzathine penicillin is used, long-term therapy may be necessary due to the low serum concentration of this form of penicillin. Benzathine penicillin has mainly been used in patients who have had multiple relapses while receiving oral or intravenous antibiotic therapy or who are intolerant of oral or intravenous antibiotics.

Combination Antibiotic Treatment

Combination therapy with two or more antibiotics is now increasingly used for refractory Lyme disease and has also been given as initial therapy for some chronic presentations.

This approach is already used for another tick-borne illness, babesiosis. Oral amoxicillin, cefuroxime, or (more recently) cefdinir combined with a macrolide (azithromycin or clarithromycin) are examples of combination regimens that have proven successful in clinical practice, although controlled clinical trials are lacking in persistent, recurrent, and refractory Lyme disease.

Combination therapy in patients with Lyme disease raises the risk of adverse events. This risk must be weighed against the improved response to combination therapy in Lyme disease patients failing single agents.

Sequential Treatment

Clinicians increasingly use the sequence of an intravenous antibiotic followed by an oral or intramuscular antibiotic. In two recent case series that employed combination therapy and sequential therapy, most patients were successfully treated. A logical and attractive sequence would be to use intravenous therapy first (e.g., intravenous ceftriaxone), at least until disease progression is arrested and then follow with oral therapy for persistent and recurrent Lyme disease.

Dosage

Increasingly, clinicians recommend that certain drugs used for Lyme disease be given at higher daily doses: for example, 3,000-6,000 mg of amoxicillin, 300-400 mg doxycycline, and 500-600 mg of azithromycin. Some clinicians prescribe antibiotics using blood levels to guide higher doses. Close monitoring of complete blood counts and chemistries are also required with this approach.

With higher doses, there may be an increase in adverse events in general and gastrointestinal problems in particular. Acidophilus has reportedly reduced the incidence of Clostridium difficile colitis and non-C. difficile antibiotic-related diarrhea.

Serious adverse effects of antibiotics, however, were less common than previous estimates. In a recent clinical trial of chronic Lyme disease, the overall serious adverse event rate was 3% after three months of antibiotics, including 1 month of intravenous antibiotics. Clinicians who have experience with higher dose antibiotic therapy must balance the benefit of higher drug levels achieved with this therapy against the modest risk of gastrointestinal and other side effects.

Duration of Therapy

Because of the disappointing long-term outcome with shorter courses of antibiotics, the practice of stopping antibiotics to allow for a delayed recovery is no longer recommended for patients with persistent, recurrent, and refractory Lyme disease. Reports show failure rates of 30-62% within 3 years of short-course treatment using antibiotics thought to be effective for Lyme disease. Conversely for neurologic complications of Lyme disease, doubling the length of intravenous ceftriaxone treatment from 2 to 4 weeks improved the success rate from 66 to 80%.

The management of chronic Lyme disease must be individualized, since patients will vary according to severity of presentation and response to previous treatment.

Concurrent risk factors (i.e., coinfections, previous treatment failures, frequent relapses, neurologic involvement, or previous use of corticosteroids) or evidence of unusually severe Lyme disease should lead to the initiation of prolonged and/or intravenous antibiotic treatment. Physicians should always assess the patient's response to treatment before deciding on appropriate duration of therapy (i.e., weeks versus months).

Empiric Treatment

The importance of establishing the diagnosis of Lyme disease is heightened in light of increasing concern about antibiotic overuse. After an appropriate history, physical examination, and laboratory testing are completed, empiric antimicrobial therapy should be initiated on the basis of clinical clues, the severity of the patient's acute illness, underlying disease, and the likelihood of B. burgdorferi infection. The International Lyme and Associated Diseases Society (ILADS) working group recommends that empiric treatment be considered routine for patients with a likely diagnosis of Lyme disease.

Persistent Lyme Disease

Persistent Lyme disease is more resistant to treatment and more likely to produce a relapse. Although persistent Lyme disease may resolve without additional therapy, many experts believe that this condition should be treated with repeated and prolonged antibiotics. Physicians should extend the duration of antibiotics to prevent or delay recurrent and refractory Lyme disease.

Recurrent Lyme Disease

Despite previous antibiotic treatment, Lyme disease has a propensity for relapse and requires careful follow-up for years. The data suggest that failure to eradicate the organism may be the reason for a recurrence of symptoms. Early and aggressive treatment with antibiotics is indicated for recurrent Lyme disease. The ultimate impact from retreating each episode of recurrent Lyme disease is currently unclear.

Refractory Lyme Disease

Refractory Lyme disease is a devastating condition that usually affects patients with persistent symptomatology and long-term disability. Prompt and aggressive institution of antibiotic therapy may be essential to prevent refractory disease. Increasing evidence shows that antibiotics have a beneficial effect on the course of refractory Lyme disease even in cases where the patient is intolerant of antibiotics or when a previous regimen has failed. Several months of therapy are often required to produce clear evidence of improvement. During this time, symptomatic treatment may be combined with antibiotic treatment.

Treatment Failure

When patients fail to respond or their conditions deteriorate after initiation of empiric therapy, a number of possibilities should be considered other than Jarisch-Herxheimer reaction. These include adverse events that limit treatment, allergic history to medication, inappropriate or inadequate dosing regimen, compliance problems, incorrect medication, immune sequelae, and sequestering of the organism (e.g., in the central nervous system). An alternative diagnosis or coinfection should also be considered.

Symptomatic Treatment

Although there may be a potential role for symptomatic treatment in chronic Lyme disease, this approach has little support due to the strong possibility of persistent infection. Owing to the potential hazard of immunosuppression and the poor outcome in one study, steroid therapy is not recommended. Surgical synovectomy is associated with significant morbidity and does not address neurologic presentations; it should be reserved for knee pain failing antibiotic treatment. Intra-articular steroid injection may be useful as a temporizing procedure in patients with persistent knee pain but this runs the risk of masking persistent infection.

Symptomatic therapy (particularly anti-inflammatory medications, tricyclic antidepressants, selective serotonin re-uptake inhibitors, and hydroxychloroquine) may be useful in concert with antibiotics and in individuals failing antibiotics.

Hyperbaric oxygen therapy (HBOT) is under study but is not recommended for routine therapeutic use. Other treatments, including cholestyramine (CSM), antifungal therapy, and antiviral agents require further study.

Since patients are becoming more interested in alternative therapies (e.g., traditional Chinese medicine, anti-oxidants, hyperthermia, bee venom, naturopathy and homeopathy), physicians should be prepared to address questions regarding these topics.

Fibromyalgia

The outcome of treating fibromyalgia secondary to Lyme disease with nonantibiotic regimens has been poor. The most encouraging clinical trial showed success in only one of 15 patients and only modest improvement in 6 of 15 individuals with fibromyalgia despite 2 years of treatment.

Antibiotic therapy has been much more effective than supportive therapy in symptomatic patients with fibromyalgia secondary to Lyme disease.

Fibromyalgia treatment alone without antibiotics raises the risk of conversion to refractory chronic Lyme disease and/or exacerbation of an undiagnosed persistent infection and is not recommended. Increasingly, clinicians do not feel comfortable treating fibromyalgia in Lyme disease without antibiotics.

Decision to Stop Antibiotics

Several studies of patients with Lyme disease have recommended that antibiotics be discontinued after 30 days of treatment. Complicating the decision to stop antibiotics is the fact that some patients present with disease recurrence after the resolution of their initial Lyme disease symptoms. This is consistent with incomplete antibiotic therapy. Although the optimal time to discontinue antibiotics is unknown, it appears to be dependent on the extent of symptomatology, the patient's previous response to antibiotics, and the overall response to therapy (see below).

Rather than an arbitrary 30-day treatment course, the patient's clinical response should guide duration of therapy. Patients must therefore be carefully evaluated for persistent infection before a decision is made to withhold therapy.

The decision to discontinue antibiotics should be made in consultation with the patient and should take into account such factors as the frequency and duration of persistent infection, frequency of recurrence, probability of refractory Lyme disease, gains with antibiotics, the importance to the patient of discontinuing antibiotics, and potential for careful follow-up.

The ideal approach would be to continue therapy for Lyme disease until the Lyme spirochete is eradicated. Unfortunately there is currently no test available to determine this point. Therefore, the clinician must rely on the factors outlined above to decide on the length of antibiotic therapy for chronic Lyme disease.

Alternative Antibiotics

There is compelling evidence that Lyme disease can result in serious and potentially refractory illness. Use of alternative antibiotics to treat early Lyme disease with erythema migrans is generally not indicated unless coinfection is suspected.

The ILADS Working Group believes that the risk of alternative antibiotics is acceptable in selected Lyme disease patients presenting with chronic Lyme disease. Alternative antibiotics include less commonly used oral antibiotics (cefixime, cefdinir, metronidazole) and intravenous antibiotics (imipenem, azithromycin). The role of alternative antibiotics in low-risk patients is less certain and there is less consensus among the guideline developers as to whether the potential benefits outweigh the risks.

Therapy for Coinfection

Therapy for polymicrobial infection in Lyme disease is a rapidly changing area of clinical practice. Uncomplicated Lyme disease may be managed without addressing coinfection by means of standard oral or parenteral antibiotic therapy. Some but not all experts recommend therapy for subclinical or chronic coinfection with Ehrlichia, Babesia, or Bartonella on the basis of their belief that responses are more prompt with this approach.

The dose, duration, and type of treatment for coinfections have not been defined. Published reports of coinfection are limited to a small number of patients treated in open-label, nonrandomized studies. Doxycycline has been indicated for Ehrlichia. A recently published randomized trial determined that treatment of severe Babesia microti with the combination of atovaquone and azithromycin was as effective as the use of standard oral therapy with clindamycin and quinine.

The decision to use alternative antibiotics should be based on the individual case, including a careful assessment of the patient's risk factors and personal preferences. Patients managed in this way must be carefully selected and considered reliable for follow-up. Further controlled studies are needed to address the optimal antimicrobial agents for coinfections and the optimal duration of therapy.
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree,

please add this thread from Melanie Reber to her other posts on your page 4 of newbie links with this title please:

But you LOOK good! Wrong thing to say to a person with CHRONIC ILLNESS.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=008886

I recommended this in 04 to someone; but it didn't get here ... so I'm making sure this valuable article is never lost!

Thanks Tree for adding this.
bettyg
 
Posted by treepatrol (Member # 4117) on :
 
Done its on page 4 right before P 5. Under Melanies stuff
 
Posted by bettyg (Member # 6147) on :
 
Morning Tree,

Thanks for adding previous link!

Here's another outstanding site!

It tells about the brain and all testing for it.
Exceptional is the Brigham/HARVARD site shown that has SLIDES showing MRI, CT, etc.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=017171

Bettyg ... thanks Tree! [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
Insurance links added for help with stubborn insurance non payments.

On page 4.

Insurance Help
Insurance Help Melanie R
Here are the websites of the California LDA:

Calda

lymedisease.org

LymeTimes

Disabilities Links
Minoucat's Disabilities Link 12/19/05
Permethrin
 
Posted by treepatrol (Member # 4117) on :
 
Updated 3/22/06 page 5.

How UltraSound Works
Here's another outstanding site!
Links in here

It tells about the brain and all testing for it.
Exceptional is the Brigham/HARVARD site shown that has SLIDES showing MRI, CT, etc.

 
Posted by treepatrol (Member # 4117) on :
 
Lyme News
Lyme News Site

Here's more goodys! A typical response to newcomers.


New as of 3/27/06 Top of page
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by cave76:
tree,

bettyg suggested adding this link, if you don't already have it.

http://www.thehumansideoflyme.net/

An article titled BRAIN DISEASE is one of the ones I posted here at Lymenet.

TIA

done top of page tc too 9 points

[ 27. March 2006, 02:41 PM: Message edited by: treepatrol ]
 
Posted by bettyg (Member # 6147) on :
 
Morning Tree!

Here is another link for you:

TINCUP'S "9" FAQ, frequently asked quesions 3-06 that I edited last night.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042541#000000

Hope this finds you/wife well as can be.
Bettyg
 
Posted by bettyg (Member # 6147) on :
 
Evening Tree, another link for you. You could just add it to your "eye" section. Thanks Tree! [Smile]

This is a conversation between Scott Forsgren & me concerning enlarging print size for low vision folks like me. I showed 2 and he showed 4 ways.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=5&t=000702

Bettyg
 
Posted by bettyg (Member # 6147) on :
 
another link

Wonderful answer back from ANIEK, a future lawyer, with his answer if employer's have the right to ask why employees will be off for surgery & specificaly what ....

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=014757#000005

Bettyg
 
Posted by bettyg (Member # 6147) on :
 
morning Tree; are you "hung" over today after your big BD celebration yesterday?

What all did you add to your revision today?
Was it just the links I showed at the bottom of replies OR MORE than that.

I use your reply area w/new info & write it in on my printed copy vs. printing it each time you update entire list. Thanks Tree.

Bettyg
 
Posted by bettyg (Member # 6147) on :
 
Tree, below is a poem/story written by lyme league owner, PJ Langhoff, and how her lyme disease has affected her.

A good one to print off to hand to family/friends who say YOU DON'T LOOK SICK. Tree, perhaps this could be added right in the area where you have these 2 stories. It will touch your hearts as it has ours. Thanks Tree.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=014836#000003

Bettyg

[ 08. April 2006, 12:44 PM: Message edited by: bettyg ]
 
Posted by lymelighter2 (Member # 6953) on :
 
Hi "Tree"? Is it? I don't know if this is the right place, but here is the correct information for you to consider posting.

Below is prose written by PJ Langhoff, (me), founder of www.lymeleague.com (and www.sewill.org)

The prose is written to describe the face of lyme disease, by those who know it best, its victims.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=014836#000003

Please consider adding it to your site. The prose is well received by the lyme community and it would be an honor to post it on your board.

PJ Langhoff
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by lymelighter2:
Hi "Tree"? Is it? I don't know if this is the right place, but here is the correct information for you to consider posting.

Below is prose written by PJ Langhoff, (me), founder of www.lymeleague.com (and www.sewill.org)

The prose is written to describe the face of lyme disease, by those who know it best, its victims.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=014836#000003

Please consider adding it to your site. The prose is well received by the lyme community and it would be an honor to post it on your board.

PJ Langhoff

Its Posted at the bottom of Newbie Links.

The face of lyme from someone who knows
--the patient

THE FORGOTTEN

Puter stuff
Enlarge Print
 
Posted by bettyg (Member # 6147) on :
 
Morning Tree,

Someone brought up Tincup's very detailed CRANIAL NERVES post, so I took the time and DOUBLE spaced it as well as breaking up the long paragraphs. Can you mention to folks when they go there & see TC's single spaced essay, that there is a double-spaced user-friendly version there as well. Thanks Tree! Have a great week.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=001807#000022
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
Morning Tree,

Someone brought up Tincup's very detailed CRANIAL NERVES post, so I took the time and DOUBLE spaced it as well as breaking up the long paragraphs. Can you mention to folks when they go there & see TC's single spaced essay, that there is a double-spaced user-friendly version there as well. Thanks Tree! Have a great week.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=001807#000022

MAY IS NATIONAL LYME DISEASE AWARENESS MONTH
by Lucy Barnes aka TINCUP
March 2006

TC & Betty's Upgrade Article 9 Points
Betty to Tincup, breaking this up for us neuro lymies
NeuroLymies
 
Posted by bettyg (Member # 6147) on :
 
Tree, have you hidden all your Easter eggs yet for the kids?

If you get a chance, will you look at my post about Abbott Labs 2005 reports/meds and have they ever tested WB there?

My pc is acting up and I lost the location line where the web site is, so can't copy/paste for you below. thanks for your consideration.

You/Mrs. Tree have a good one; we'll celebrate quietly.

Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
Fixing links some are gone did the best I could.

Betty Abbot Lab Reports on page 4
 
Posted by bettyg (Member # 6147) on :
 
Tree, thanks for latest updates. Sorry to hear some were lost in translation, but that's life.

Took a look at the list; still looks wonderful & so informative.

Tree, I don't know if you saw my lengthy post about my new LLMD out of state I saw last Thursday and the 18-20 vials of blood she took for testing everything under the sun on food allergies, mold, mercury, magnesium, and regular lyme stuff.

I listed ALL the blood labs done by lab sent to & specialty it was to be tested for as well as some current $$. If you think that might help anyone, please add to your newbies list in the future.

Thank you for your LABOR OF LOVE to keep this going & up to date!

from your humble servants/lymies, [Big Grin]
Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
update: 5/8/06

Biochemical Abnormalities

Biochemical Abnormalities
Antibiotics for mycoplasma
AbbyNormal Blood
Low platlet WBC

low wbc
borrelia burgdoferi inhibits lymphocycte
Low WBC
MINOCYCLINE Low WBc
Models of Immune Systems:
 
Posted by treepatrol (Member # 4117) on :
 
Updated: 5/15/05

Drug Interactions and Other Drug Info
Drug Digest & Interactions
Drug Interactions including prescriptions, over-the-counter drugs, herbals and vitamins
On page 3
 
Posted by treepatrol (Member # 4117) on :
 
Cheryl's Site
Lymenews
MorphologySimplified
Page 4 LYMENEWS
 
Posted by bettyg (Member # 6147) on :
 
Good morning Tree!

Carol in PA responded to a computer problem I had and gave this wonderful TIMESAVING TIP on reading posts.

Could you post it in your links? I believe a computer Q/A was at the end of your links.

Okay, you guys REALLY need to know about the "shift click" method.

When you want to click on a link, you can open the link in a new window by doing this:

Press down the "shift" button with your left hand,
and left click on the link with the mouse in your right hand.

This opens the link in a new window.

When you're done reading, just click on the x in the upper right corner to get rid of the window.

This saves tons of time.
Carol in PA

Bettyg
 
Posted by bettyg (Member # 6147) on :
 
Tree another COMPUTER TIP from Ann-Ohio on SUPER WIDE POSTS on reading them! Wonderful! [Big Grin]

Ann - Ohio shared this tip with me to read SUPER-WIDE posts, and it's posted below.

I'll copy it to Treepatrol's newbie links asking him to add it to his computer area & also will show in COMPUTER QUESTIONS on lymenet.

READING SUPER WIDE POSTS FROM ANN:

It is not on the front page of the site, or even the second page.

First you have to go to something that has been posted, like something that is very, very wide and is driving you nuts, or actually anything that has been posted on any of the boards.

Then you should see the following at the bottom of the page with the original post and all the responses to it:

Printer-friendly view of this topic Hop To: Select a Forum:
If you click on "Printer-friendly view" you will get a readable version of the person's too-wide posted material.

PLUS THIS LINK also from Ann on another thread.

http://www.tickinfo.com/protickremedy.htm

left hand had a lot of info; I noticed 3M deet product that MILITARY uses!

Bettyg
 
Posted by bettyg (Member # 6147) on :
 
hi Tree!

Would you post this link I found tonight from Iowa State University's Entomology Dept. showing photos of ALL TICKS in various stages and having something by each for comparison purposes.


Site of photos of ALL ticks from Iowa State University Entomology Dept. http://www.ent.iastate.edu/imagegal/ticks/defaulttn.html


Also, for those LIVING IN IOWA, if you find a tick, send it to ISU TO DO A "NAME TICK SURVEY" ON FREE! for those LIVING IN IOWA, if you find a tick, send it to ISU TO DO A "NAME TICK SURVEY" ON FREE!

For those living OUTSIDE OF IOWA, they give you some suggestions to use to send tick to YOUR state's entomology dept.

They had details about these ticks in Iowa:
BAT, DOG, AND DEER TICKS.

Thanks Tree!
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
hi Tree!

Would you post this link I found tonight from Iowa State University's Entomology Dept. showing photos of ALL TICKS in various stages and having something by each for comparison purposes.


Site of photos of ALL ticks from Iowa State University Entomology Dept. http://www.ent.iastate.edu/imagegal/ticks/defaulttn.html


Also, for those LIVING IN IOWA, if you find a tick, send it to ISU TO DO A "NAME TICK SURVEY" ON FREE! for those LIVING IN IOWA, if you find a tick, send it to ISU TO DO A "NAME TICK SURVEY" ON FREE!

For those living OUTSIDE OF IOWA, they give you some suggestions to use to send tick to YOUR state's entomology dept.

They had details about these ticks in Iowa:
BAT, DOG, AND DEER TICKS.

Thanks Tree!

yep
 
Posted by bettyg (Member # 6147) on :
 
Good morning Tree!

Hope you are feeling better than the other day when we talked. [Smile]

What all did you add when you updated today? I did notice the ISU TICK PHOTOS were added.
Thank you my dear friend.
 
Posted by treepatrol (Member # 4117) on :
 
added link on mycoplasma abx to page 3.
 
Posted by treepatrol (Member # 4117) on :
 
Top page 4.
warning on epson salts added
 
Posted by treepatrol (Member # 4117) on :
 
Newly added today 7/18/06
Topics
Lyme patient obituaries

Cranial Nerves repost

Images of borrelia in Alzheimer's disease
Key Terms for Lyme

Questions about duck clinics in the northeast

The National Lyme disease Memorial Park Project

 
Posted by bettyg (Member # 6147) on :
 
Thanks Tree for the update of the new links you added! good additions! [Big Grin] Bettyg
 
Posted by bettyg (Member # 6147) on :
 
duplicate
 
Posted by treepatrol (Member # 4117) on :
 
Updated Page 4.

Marnies Theories and compilation's on Biological's of Body and Bb


Antioxidant enzymes,NFkB,bicarbonates, Mg transporter protein

Made Big Connection!
 
Posted by treepatrol (Member # 4117) on :
 
Updated Page 4.Non-Tick Transmission


Garlic Proper way to eat it
Garlic
Warning Epson Salts Discussion
Warning about Epsom Salts
Check Diet Link Atkins Diet
Atkins Carb Counter PDF
Artificial Sweetners Side Effects?
PORT-A-CATH (catherter)
Abx's Port

Prolotherapy

Transmission Lyme
Transmission Fleas Mosquito's Food Etc
Transmission Etc
Black Flies & Lyme
Non-Tick Transmission
N-T-T



Transmission Art Doherty

Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Talking Transmission ?
 
Posted by bettyg (Member # 6147) on :
 
a light bulb momenet after I started reprinting your latest editions to your links...

1st, I just write on my copies what updates Tree has done since I asked him to show in the replies what his updates to the list are so "frugal" folks like myself don't have to keep reprinting over & over since he does this weekly/biweekly/monthly depending on amount of NEW stuff to add.

If you are printing this, like I did; don't just screen print it! It showed 50% across of stuff taking 33 pages to printing in my LARGER FONT reading style for me.

INSTEAD CHOSE THIS: Go to the bottom of Tree's 1st screen of info. Go to lower LEFT hand corner, and click on PRINT FRIENDLY USER COPY or something like that. It uses the entire screen width, so less pages will be used! light bulb!!
[Big Grin] Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
newly added

Sexually Transmitted ???

Is our saliva contagious?

Proper Tick Removal
Proper Tick Removal

Colon Cleanse
Colon Cleanse discussion
Polls here on everything
New Poll: What's the most outrageous thing a doctor has actually said to you?

Studies
Scottish lab admits that 33% of negative Lyme test results should be positive
Roundtable on Evidence-Based Medicine
Fighting Back: How Borrelia burgdorferi Persists
 
Posted by bettyg (Member # 6147) on :
 
Tree, can you add this? I don't think we have anyone shown in your list for a COMPOUNDING PHARMACIST, correct? Thanks! Bettyg [Big Grin]

For all interested, here is the name and phone no. of the NEW compound pharmacy in my area.

PARKVIEW PHARMACY in NEVADA, IOWA! 515.382.2134

ADDED: Ask for PETE, the compounding pharmacist.
www.parkviewpharmacyonline.com


Again, this is a NEW business adventure and they are getting their feet wet but want to make this "competitive" to BUILD their business clientele.

I can't think of anyone more deserving of this than my LYMEnet friends! Please pass the word along to anyone you know who needs COMPOUNDED PHARMACIST ok! Bettyg

[ 09. August 2006, 12:32 AM: Message edited by: bettyg ]
 
Posted by bettyg (Member # 6147) on :
 
Tree, would you add this liink next time:

It's my DETAILED list of LYME BROCHURES from LDA, LD Foundation, Igenex western blot igm/igg, my lyme brochure, and I typed a very detailed list of what was in the various brochures available. Thanks Tree for the outstanding job you do on the newbie's list & ALL THE TIME it takes for you to do it well! [bow] [Big Grin] Bettyg

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=8&t=000346#000008
 
Posted by bettyg (Member # 6147) on :
 
8-7-06 NATIONWIDE SUICIDE HOTLINE 1.800.784.2433 now please! If you are feeling suicidal, please call the SUICIDE HOTLINE. We care about you.


Tree, please post this! Lymefighter's 6th post tonight in medical talked about feeling suicidal.

Could you approach LOU B about having this suicide hotline at the top of EACH of the sections here?

I know he'll be unhappy with me when he gets back from vacation and finds I posted my email to him stating the reasons I felt PJ Langhoff should be reinstated from banning, and then his response to me on the board. I'm staying my distance from him for awhile.

SUICIDE, however, can NOT be ignored!

If you end up putting in your LINKS, could it be right up there at the BEGINNING of all the links instead of being buried. I spent 20 minute looking thru my phone book tonight before I found a local crisis no. who lead me to 2 more folks before I got this national suicide hotline phone no. Thanks for understanding Tree! [group hug] [kiss]
Bettyg
 
Posted by treepatrol (Member # 4117) on :
 
updated betty NATIONWIDE SUICIDE HOTLINE and DETAILED list of LYME BROCHURES
 
Posted by treepatrol (Member # 4117) on :
 
Adaptogens
Adaptogen Test
Adaptogen Rhodiola rosea

Adaptogens PubMed
Page four at bottom.
 
Posted by bettyg (Member # 6147) on :
 
Tree, I just EDITED my Iowa compounding pharmacy info and added this:

Ask for PETE, the compounding pharmacist.
www.parkviewpharmacyonline.com

Would you add that to your post collecting other state's comp. pharmacy info? Thanks tree. [Big Grin]
 
Posted by bettyg (Member # 6147) on :
 
Hi Tree, can you add this to your links under MINOUCAT'S DISABILITY INFO ....

separate entry:

CONNIE MC'S "DISABILITY LETTERS FROM MD FOR SSDI/SSI PURPOSES"

[her actual response is in Ann-Ohio's medical response to DISABILITY LETTER]...

I made a few format changes adding bullets for clarification of IMPORTANT points not to be overlooked when furnishing DDSI ifo.


Connie Mc, lymenet.org

I wrote the following for my LLMD:


Guidelines for Use in Writing Letters/Reports in Support of
Social Security Benefits for Patients With Tick-borne Diseases

By: Connie MS, CRC, CVE, CCM, from www.lymenet.org
Disability Advocate


General principles of focus to consider when preparing this report:

1. The report/letter must have a longitudinal perspective that allows Disability Determination Services (DDS) to see the frequency, duration, and recurrence of major symptoms of tick-borne diseases.
 Medical records will generally show this, but a letter needs to state the general course of disability thus far, as well as the projected length of the disabling condition.

2. The report/letter must include descriptions of all treatment regimens and responses to therapy must be given; example:

 oral antibiotics, and general response.
 Did this result in limited improvement, which necessitated the initiation of intravenous therapy?

3. The report/letter must include any significant restrictions the patient has experienced in his/her normal activities since the onset of the diseases.

 Here, we are asking the physician to describe changes in lifestyle, such as:
 household, personal care, and social activities, as may be determined through history.
 Also, the physician can report any observed limitations; such as,
 walking, climbing, etc. as the patient functions in the exam room.
 A ``Incapacity Checklist'' can be helpful, and the physician can have the patient complete this for reference before the support letter is written. (A copy is at the end of this document).
 The patient needs to provide specific examples of limitations in function, which the doctor can document in the letter.
 The advocate can then obtain supporting statements from others (friends, family) to confirm what the patient has reported to the doctor.

4. The report/letter must report on any objective testing which has been done to determine the appropriate diagnosis. For example,
 any positive lab studies,
 and other supporting evidence such as positive SPECT scan
results,
 positive findings of joint inflammation on x-rays, etc.
 Any testing which supports the presence of illness is acceptable.
 Includes the clinical examination, not just lab studies.


Once the above is established, the physician must then identify and describe the most significant and disabling symptoms frequently associated with TBD, tick-borne disease. For example:

1. Fatigue - the existence of chronic and/or recurrent debilitating tiredness, which is demonstrated by an inability to perform basic minimal tasks of daily living (ADLs).

2. Neuropsychological - the existence of forgetfulness and distractability, inability to concentrate, memory impairments, confusion, difficulty thinking, photophobia

3. Neurological - numbness and tingling, sensory impairment.

4. Pain - recurrent and chronic pain which significantly impedes the performance of ADLs and unrelieved by prescribed treatment.

Location of such pain and any objective findings utilized to diagnose the origin of such pain. This includes: chronic headaches and myalgia.

5. Sleep disorder - Any disruption of normal sleep patterns that is recurrent and does not respond to treatment.

6. Depression -
 Is depression primary or secondary?
 Is it related to the patient's reaction to the daily physical symptoms?
 Are there other psychiatric symptoms present which are apparent to the physician?

7. Cardiac - heart block, hypertension, and other cardiac complications.

Sample Letter

Re:
DOB:

Please be advised that I have provided medical care for Ms. Blank since 5/7/2003. Ms. Blank carries a diagnosis of persistent Lyme Disease made on the basis of a number of clinical features, including: marked fatigue, chronic relapsing pain, CNS irritability, nonrestorative sleep and severe cognitive dysfunction.

This patient is disabled by incapacitating fatigue and myalgias aggravated by repetitive or sustained physical activities.

Her symptoms are consistent with her disease, which has been confirmed by positive IgM Western Blot in May of 2003.
There is also evidence on examination of persistent disorganization of motor function as evidenced by peripheral nerve dysfunction.

 She frequently becomes confused during discussion of treatment recommendations, and must rely on others to insure she has information she needs to proceed with recommended treatment.
 Ms. Blank has had marked impairment of her daily activities and finds it difficult to get out of bed on most days.
 She routinely requires assistance with showering and dressing.
 She uses a cane for ambulation.
 She cannot stand for more than 5 minutes to prepare meals, and must obtain assistance from others.
 She cannot lift or carry dishes or a gallon of milk.
 She cannot vacuum or mop or garden.
 She is unable to do laundry.
 She has difficulty managing her medication and must receive assistance from others to make sure she takes the recommended medications at the recommended times.
 She has difficulty getting in and out of a car and is unable to drive due to cognitive dysfunction.

Ms. Blank has been treated vigorously with oral antibiotics as well as supplements and other supportive care. There has been limited improvement thus far, and therapy with intravenous antibiotics is recommended for the near future.

By reason of the unpredictability of the frequency of her multiple physical symptoms, Ms. Blank has been totally and permanently disabled from engaging in, and more importantly, in sustaining any gainful employment activity, even light part-time sedentary work at home.

 Ms. Blank's status has been consistent since I first began seeing her in May of 2003.


 It is my opinion that she is likely to remain disabled for the foreseeable future, but, in any event, for not less than 12 consecutive months. Prognosis remains guarded and uncertain.

Sincerely,


Name: ____________________________Date: _________


Incapacity Checklist

How does your condition affect:

1. Your daily activities


2. Your ability to stand, sit or walk for a long period


3. Your ability to lift or carry weight


4. Your ability to understand, carry out, and remember instructions


5. Your ability to respond appropriately to your supervisor and coworkers


6. Other physical or psychological functional restrictions


7. Your ability to adjust to the stress of a work environment

Anyone who wants to provide this to their LLMD for use is more than welcome to do this .

I have used this same format many times and DDS and ALJs seem to be receptive to it. It includes all the information SSA is looking for to help them allow claims. Connie

[ 14. August 2006, 12:00 AM: Message edited by: ConnieMc ]
 
Posted by treepatrol (Member # 4117) on :
 
done betty
 
Posted by bettyg (Member # 6147) on :
 
Cave and Tree, I copied & pasted Minou's link letting her decide where she felt it would be best in her links.

Tree, I don't think this is in your links but resurfaced lately; would be outstanding addition since it covers IV insurance coverage!

Could you show it as is in the links so folks know exactly what the link is? Thanks my good friend Tree! [group hug] [kiss] Bettyg [Big Grin]

Timaca's Appeal Letter to Insurance Company on IV COVERAGE
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=3;t=014009
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
Cave and Tree, I copied & pasted Minou's link letting her decide where she felt it would be best in her links.

Tree, I don't think this is in your links but resurfaced lately; would be outstanding addition since it covers IV insurance coverage!

Could you show it as is in the links so folks know exactly what the link is? Thanks my good friend Tree! [group hug] [kiss] Bettyg [Big Grin]

Timaca's Appeal Letter to Insurance Company on IV COVERAGE
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=3;t=014009

2/3 way down I put it in on Page 4.
 
Posted by treepatrol (Member # 4117) on :
 
Updated a bunch
 
Posted by treepatrol (Member # 4117) on :
 
updated page 3


Page 3.
Flagyl,= List of ****dazole's that I have found
Cyst's Treatment

ABX= Antibiotics
ABX's SpreadSheet
{Compounding Pharmacy} Give me your links to each State,Local.
 
Posted by treepatrol (Member # 4117) on :
 
The top 10 things most important to know about lyme tx
The Top 10


updated p 5.
 
Posted by treepatrol (Member # 4117) on :
 
Updated section on troll behavior.

Interested in what Trolls are?
1. 1

2. 2
3.Sorry to See it
4.Sorry to See it Happening
pq's Article on Trolls
The latest example 9/12/06

The highlighted bold one is the updated near bottom of page 5.
 
Posted by treepatrol (Member # 4117) on :
 
Page 3. Update


IntestinalFlora
Supplements
Bulk Supplements
 
Posted by treepatrol (Member # 4117) on :
 
updated page 3.

Itching ??? This Helps!!!

Itching??? THIS HELPS!
 
Posted by treepatrol (Member # 4117) on :
 
page 3 update


Alzheimer's
Images of Borrelia in Alzheimer's Cave76
Borrelia in Alzheimer's disease
Elderly Alzheimer's
Dr Macdonald's Pod Cast Plaques in Alzheimers Not Just ALZ

Dr Macdonald's Pod Cast Plaques in Alzheimers resurrect the NeuroSyphilis Literature

ALS
 
Posted by treepatrol (Member # 4117) on :
 
Updating

Here
Studies LYME DISEASE MEDICAL LITERATURE

Dr Macdonalds Website on What's been found in Alzheimer's Definite Lyme {{in all it's form's}}Correlation's
Medical Literature
 
Posted by Tincup (Member # 5829) on :
 
Woah! TREE!

I hadn't checked in for a while.

This is fantastic! Looks REALLY nice!

Thank you!!!

[Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
I have been trying to hold my end up since went the more direct route [Big Grin] TC good to cya here
 
Posted by treepatrol (Member # 4117) on :
 
Iam on vacation from 10/07/2006 until 10/16/2006


[Big Grin] [woohoo] [Big Grin]
 
Posted by bettyg (Member # 6147) on :
 
Tree, please add after you get well-rested from your much needed vacation!

OSTEOPENIA, OSTEOPOROSIS from Kitycat. 2002
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=1;t=007952

Thanks Tree! Bettyg [Big Grin]
 
Posted by bettyg (Member # 6147) on :
 
DRUGS ASSOCIATED WITH LIGHT SENSITIVITY by Minoucat
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048201
******************************

please add as time permits Tree! Hoping you're enjoying all the fall foliage colors everywhere you go...Bettyg [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
updated page 5.

Interested in what Trolls are?


Lou B's Troll Link
 
Posted by treepatrol (Member # 4117) on :
 
Flouroquinolones, and Quinolones by PQ
1

2

3

4

5

6

7

8

9
 
Posted by treepatrol (Member # 4117) on :
 
updated your gona have to seach to see whats new this time! [Big Grin] [hi]
 
Posted by AP (Member # 8430) on :
 
Betty Suggested I bring this to your attention:

Hello fellow Lymies, I've been reading the posts about citruslyme, and know others are in need...

I don't know why this didn't dawn on me earlier (probably the neuro problems), but there's a website called Live for the Challenge ( liveforthechallenge.com ) that is a registry for "everyone wo is currently struggling with medical difficulties."

Basically, those who register, pick out things that they need to survive, and people come around, read about you and your needs, and donate what they can. The perk to this is that people know exactly what you need.
 
Posted by treepatrol (Member # 4117) on :
 
updated
 
Posted by bettyg (Member # 6147) on :
 
Hereditary Angioedema by BLACKBIRDSINGS 11-3-06

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=016282

Tree, would you add this next time; DON'T think you have anything about EDEMA swelling like BBS has. HOPE YOU ARE BEGINNING TO FEEL BETTER!
Bettyg [group hug] [kiss] [group hug]
 
Posted by lymedad (Member # 8074) on :
 
We were able to purchase the following Rocephin (Ceftriaxone) and infusion supplies from a pharmacy in Anaheim California.

The total cost is $1300 and the supplies are for 30 days.

Of course we had to provide a prescription from our LLMD and the pharmacy required a credit card payment up front.

Our health insurance company has already denied payment on these supplies more than three months ago.

I have to mix the antibiotic and sterile water, load all of the syringes and make sure everything stays sterile, but compared to the $760 per week cost of our previous supplier, it's well worth the effort.

Unfortunately I haven't received a cost per item breakdown on the supplies.

1. Ceftriaxone 2 Gram Vial Powder Form - 30 each

2. Sterile Water 20ML Vial - 30 each

3. Sodium Chloride 0.9% 30ML Vial - 22 each
(10ML NaCL for each flush - 30 X 22 = 660ML total, enough for 66 saline flushes)

4. Heparin flush 30ML Vial - 5 each
(5ML Heparin at end of each infusion - 30 X 5 = 150ML total, enough for 30 flushes)

5. IV 12'' extension tubing - 10 each
(Change extension each time bandage changed)

6. Syringe 20 ML - 30 each
(Used for reconstituting antibiotic and for infusion)

7. Syringe 10 ML - 90 each
(Used for infusing saline and heparin)

8. Dressing Change Kits with Chloral Preps - 5 each
9. Alcohol prep pads - 200 each
10. Latex Gloves - 100 each
11. Sharps Container 8 Qt size - 1 each
12. 18gauge X 1'' needles - 30 each
13. Stat Lock dressing - 5 each

The procedure for infusing the antibiotic is always:

SASH

Saline - Antibiotic - Saline - Heparin

I'm certainly not a medical doctor, nurse or anything else other than a father with a daughter who needs my help.

I have had several extensive classes in first-aid over my 25 years in the military.

But to be honest with you, my daughter does her own infusions about half the time.

In addition, she's even been doing her own dressing changes. She's had the PICC line since June 13th and it still looks great.

When or if I get a complete itemized cost breakdown I'll share it with you.

I hope this has been beneficial for some of you. I do know the Rocephin has worked wonders for our daughter. She's gone from a stooped over zombie in great pain to at least a human being again.

We still have a long road ahead, but we can see the light ahead. Thanks to all of you on this board who have helped with your knowledge, encouragement and prayers, they're working.

LymeDad
 
Posted by treepatrol (Member # 4117) on :
 
up dated
 
Posted by treepatrol (Member # 4117) on :
 
Fixed a bunch of links and added new ones. Sorry I havent been doing much lately but this is the first day since my vacation return {{oct19th till nov 13th}}that I havent felt really bad.
I started feeling relly crappy even before mepron&biaxin xl treatment started nov4th/06 now Iam hoping its effecting whatever I have.I havent been sweating hardly at all thank god. I even stained front porch posts and allmost all the railing on 11/10-11/06 and no sweating but really sore whew. I hope this continues to get better.
 
Posted by treepatrol (Member # 4117) on :
 
updated abx's bloodbrain barrier stuff bottom page 2.
 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/scripts/ultimatebb.cgi

Tree, please add the above please; thanks!

Hope you are FINALLY feeling better and like your OLD/YOUNG self again! [Big Grin] [group hug] [kiss]
 
Posted by lymedad (Member # 8074) on :
 
TreePatrol,

I was asked to post the following letter here. If you think it inappropriate, please don't hesitate to delete it, or let me know and I'll delete it.

Betty G thought other newbies might get some benefit from our story.

LymeDad

------------------------------------------------

A couple of weeks ago I read two separate posts from young people suffering from Lyme who were really struggling with convincing their families that their disease was real.

I offered to write a personal letter to their families highlighting what we have gone through as a family for the past 5+ years (my daughter suffers from Lyme and 3 co-infections).

One of the posters to whom I sent the letter has asked that I post it here in the General forum. My only reason for doing so is in the hope that someone else might benefit from our experience and be able to share our story with their family.

I've included the letter below (I deleted all the personal references from the original letter).

-------------------------------------------------

I'm not really sure where to start so I'll just write what I know.

My name is XXXXXX. I am a retired SMSgt (4 years in the Seabees, 21 years USAF), living in southern California. I'm 59 years old, a veteran of two tours in Vietnam and a Christian man with a family that is hurting.

I'm not trying to sell anything and I'm certainly not trying to get involved in anyone's family business.

I just know that my family has been through a nightmare for the past 5+ years and I thought that if I could help anyone else by simply writing a letter, I would certainly try to do so.

I hope that you will take the time to read the following and see if maybe your family is experiencing some of the same things we have.

My daughter, Nicole (28 years old), has Chronic Lyme disease. She suffers every day from pain in most of her joints and muscles.

She also gets migraines so severe that she's unable to get out of bed for days at a time. She's had flu-like symptoms so bad she's been unable to keep much on her stomach for weeks at a time.

She's experienced time where she's been unable to speak clearly and she has problems with her short term memory.

This has been going on since January 2001.

Nicole was and is a very bright, engaging young woman who is now stuck living with her parents.

She has been so ill that she was forced to move back home and that is probably the worse thing about this illness, she's just not capable of taking care of herself.

Her first family doctor diagnosed her with Fibromyalgia Syndrome, Chronic Fatigue/Chronic Pain Syndromes.

The typical treatment for these ``diseases'' was to prescribe pain medications, antidepressants and anti-anxiety medications. Of course this only treated the symptoms, not the cause.

Nicole then began the rounds of being tested by all of the specialists. For a period of more than 4 years she saw so many different doctors we've lost count.

She's been to a rheumatologist, a cardiologist, two neurologists, a psychiatrist, a psychologist and two different family doctors; you name it she's seen one.

She's had at least six MRIs of her brain, two spinal taps, so many x-rays we've lost count.

She's been to the Emergency Room of our local hospital so many times that they know her by her first name.

She's been admitted to the hospital on three separate occasions for more than a week each time.

She's had so much blood drawn that she no longer even cringes when they stick her with a needle.

It wasn't until we were referred to a doctor in northern California that we finally found out what she has.

She and I made the 9 hour drive up the coast to see this doctor. He spent more than 3 hours just talking with us. He then drew blood and had it sent to a laboratory that specializes in testing for Lyme disease.

The results were just what he predicted, she tested positive for Lyme disease and three other co-infections.

All of the bacteria in her body came from a tick bite. In fact we even remember when she was bitten.

In 1996, Nicole and several of her friends went camping in the mountains above Ojai California.

When she returned four days later, she discovered a fully engorged tick in her scalp. We didn't think much about it.

We now know what it has done to her.

Nicole has been taking several courses of oral antibiotics from late 2005 until June of 2006.

In June she had an intravenous tube placed in her arm, called a PICC line. She now infuses antibiotics through the PICC line directly into her blood system.

This IV infusion has made a world of difference.

She no longer needs her wheelchair, she is able to get out of her room for about 6 hours every day and her ability to communicate with us and her doctors has improved tremendously.

We're starting to get our child back.

I wanted to tell you that when she first became ill I thought it was just her imagination. I thought she was just being lazy.

She would call me from work and say she was just too sick to drive home. I'd go to her job and drive her to her apartment.

I wasn't very patient with her. I just didn't understand.

The cause of the pain and other neurological symptoms she goes through doesn't show up on an x-ray or in routine blood tests.

She doesn't look sick from the outside. It was an extremely rough time between her and I the first four years of her illness.

I am probably the world's biggest cynic (must be the military training).

If I couldn't see the problem, I didn't believe it existed.

How could my daughter be so sick and not have it show up on any routine blood test or x-ray.

I assumed she was either faking it or like I said, just lazy.

The real problem with this disease is that there just isn't much known about how it works in the body. In fact many doctors don't even believe it is real.

Most health insurance companies won't even cover the procedures needed to treat this nightmare.

We've had to pay for about two-thirds of her treatments out of our savings.

Let me tell you, it's been a tough ride. I've gone to almost all of her doctor's appointments over the past five years.

I've listened to them tell her nothing is wrong. I've seen the disappointment on her face, especially when she and I have had arguments about her illness.

I've not been the easiest person to get along with, in fact, at times I've been a real jerk.

Her mother and I have watched and listened when she has been so sick she can't get up off the bathroom floor for hours.

We've watched as the paramedics have come into our home to take her to the hospital.

We've watched as she has become so ill she has to have a wheelchair to even get to her doctor's appointments.

I've done all the research I can over the internet and from books.

Lyme disease is real.

I'm not sure where you and your family are with this problem. I just know it's been one of the toughest things I've ever had to face.

Well that's about it. That's our story. I hope I've been able to convey to you and your family how real this thing is.

It wasn't until I saw a difference the antibiotics have made for my daughter that I finally became convinced that she has been suffering beyond anything I could have imagined.

Maybe I just didn't want to admit I couldn't fix it, so it couldn't be real.

I have a lot of things to work out with Nicole when she is well enough. I've hurt her and I have a lot to make up for, but that's going to come.

I'm convinced we will lick this thing.

I only hope that others can read this and understand that someone else has gone through the same things as you are.

You are not alone.

If you'd like more information, one of the best sources I've found is at the LymeNet website.

I've spent many hours reading of other peoples struggles and advances on this site:

www.lymenet.org

Your family is in our prayers.

Sincerely,


LymeDad
 
Posted by bettyg (Member # 6147) on :
 
tree, i thought this would goo added around the BUT YOU LOOK SO OOD/ NO SLEEPING.

tree, thx; nd hoping youfeeling bettefr.
 
Posted by bettyg (Member # 6147) on :
 
hi tree, how are you feeling now? over that crap you got while on vacation in oct?? hope so!

just readthis about someone's bad dr. visit, igenex testing, and this poster's response was very enlightening;

not sure where you can post this, but good stuff here!


radiogirl
Frequent Contributor
Member # 9202
posted 14-12-2006 06:31 PM

Hi Panic,
I wanted to tell you that first your concerns are valid.

But science is leeps and bounds ahead of your ID doc.

What scientists learn now could be 10 to 20 years away from your doctors office.And IM not talking about big pharma scientist.Interests are different there.

If you would like to investigate a microbial basis for your condition you might be surprized to find that infection should be considered suspect number one according to some of the worlds leading scientist.

Start with www.immed.org look at the qualifications of the people associated with that organization.My panel of ID docs couldnt hold a candle to those scientists read the bios of the doctors there.

You can also go to www.roadback.org and chat on the bulletin board and speak with many who treat diseases with abx alot of those diseases people are given no hope in the traditional world and treated with chemo-like drugs and immune suppressing drugs.

On abx they go on to live normal lives.But of course the earlier the better for recovery

I am a former radio show host who had CFS/FM and treated by a panel of doctors because friends of the family were large contributors of the hospital and I was feeling so ill.One member of that family passed away yesterday and Espn has run tribute to him all day .Well deserved I might add.I dont watch alot of football but my husband is from Kansas City and adored said philanthropist who played a huge part putting together NFL.

The point Im trying to make is I thought I had the best care anyone could have and yet I was getting sicker.The more I tried to tell the ID docs to look at infection (I felt sick) I just became an annoyance.Their tests always showed nothing so It was all in my head after that.

Then one day I had Dr.Katherine Poehlmann on my show and a whole world opened up.She led me to many resources that said of course if you feel sick you probably are.She was ill herself.She is no slouch as she was a part of the Rand think tank.And cured her RA with abx not immune suppressing drugs.

Her website is www.RA-Infection-connection.com its about alot more than RA .Many illnesses explored there being of microbial origin.

I went to www.immed.org and my regular GP said what the heck lets try it.You can find treatment considerations on the site.Three days into doxy I sware I wanted to die and I even called Prof.Nicolson and said are you trying to kill me.

He said you are now on the road to regain your health.Keep going and I did.You see the microbes are many and I understand you wonder if its Lyme.

There are many bacteria that can cause all kinds of havoc in the body.But testing is another matter .Its not like House where they scratch their heads and he looks under the microscope and says AH-HA.I tested with Igenex one doc said it was neg one doc said positive.

I also tested positive for C.and m.pneumonia with c.pneumonia out of range .I went ahead with the abx knowing that I might not ever know exactly whats running around in there as Ive been so immune compromised.

Dont ever let a doctor ID or otherwise tell you lyme or any other illness is a fad or unreal.They ARE NOT QUALIFIED to tell you that.

Go ahead and begin your investigation and you will find that there are many doctors who do subscribe to the infectious theory behind disease.
Lyme as well as other microbes.

Roadback.org helps autoimmune patients find them and when you read the history and maybe the book recommended there it will help too.Although I am not on the marshall protocol a very serious protocol not to be taken lightly but there are many infectious conferences and access to published material you can look at on that board but I am not promoting that treatmant.(contriversial)www.marshallprotocol.com

Well Ive rattled on abit but if you get a positive Igenex believe it.And give yourself a shot at health if you have felt unwell.ABX will either help or not.But be informed.I wasnt and I paid a price.I hope Ive helped somewhat.

And if anyone comes along and reads this and is a football fan or from the great state of Mo.Im sorry for your loss of the gentle giant who so loved your state and the game of football....Lamar Hunt one fine fine gentleman,RG
------------------------------
Posts: 118 | From: Texas | Registered: May 2006 | IP: Logged
 
Posted by hshbmom (Member # 9478) on :
 
The CDC published their case definition of Lyme disease for Public Health Surveillance to provide uniform criteria for reporting cases of Lyme Disease. Part of this definition is listed below.

(Revised 9/96) Clinical description http://www.cdc.gov/mmwr/preview/mmwrhtml/00047449.htm


Get your county declared endemic!

The CDC's definition of an endemic county is a county with 2 confirmed cases of Lyme disease. TWO!

You may know of at least 2 confirmed cases of LD in your county.

We can get our county declared endemic for Lyme disease. This step will help overcome one familiar obstacle to the diagnosis of Lyme disease...the "We don't have Lyme disease here" syndrome.

A history of "exposure" depends on whether your county is considered endemic.

Also, many of us have photos of our EM rashes...and have been diagnosed with LD on the basis of having this EM by a LLMD.

Once a county is recognized as being endemic for Lyme disease it should be easier to get a correct diagnosis.

Your input is welcome. I need someone to take this idea and put legs on it.

Nancy

"Case Definitions for Infectious Conditions Under Public Health Surveillance

State and local public health officials rely on health-care providers, laboratories, and other public health personnel to report the occurrence of notifiable diseases to state and local health departments. Without such data, trends cannot be accurately monitored, unusual occurrences of diseases might not be detected, and the effectiveness of intervention activities cannot be easily evaluated.

In the United States, requirements for reporting diseases are mandated by state laws or regulations, and the list of reportable diseases in each state differs. In October 1990, in collaboration with the Council of State and Territorial Epidemiologists, CDC published Case Definitions for Public Health Surveillance (MMWR 1990;39{No. RR-13}), which, for the first time, provided uniform criteria for reporting cases.

This report provides updated uniform criteria * for state health department personnel to use when reporting the nationally notifiable infectious diseases listed in Part 1 of this report."


The following is a part of the CDC's definition of Lyme Disease:

"Definition of terms used in the clinical description and case definition:

Erythema migrans. For purposes of surveillance, EM is defined as a skin lesion that typically begins as a red macule or papule and expands over a period of days to weeks to form a large round lesion, often with partial central clearing. A single primary lesion must reach greater than or equal to 5 cm in size. Secondary lesions also may occur. Annular erythematous lesions occurring within several hours of a tick bite represent hypersensitivity reactions and do not qualify as EM. For most patients, the expanding EM lesion is accompanied by other acute symptoms, particularly fatigue, fever, headache, mildly stiff neck, arthralgia, or myalgia. These symptoms are typically intermittent. The diagnosis of EM must be made by a physician. Laboratory confirmation is recommended for persons with no known exposure.

Exposure. Exposure is defined as having been (less than or equal to 30 days before onset of EM) in wooded, brushy, or grassy areas (i.e., potential tick habitats) in a county in which Lyme disease is endemic. A history of tick bite is not required.

Disease endemic to county. A county in which Lyme disease is endemic is one in which at least two confirmed cases have been previously acquired or in which established populations of a known tick vector are infected with B. burgdorferi."

This web page is huge, use "Control" and "F" to search for Lyme.
******************

Betty broke this statement up to make it easier to read. She also posted the statements at the bottom.

Erythema migrans. For purposes of surveillance, EM is defined as a skin lesion that typically begins as a red macule or papule and expands over a period of days to weeks to form a large round lesion, often with partial central clearing.


A single primary lesion must reach greater than or equal to 5 cm in size. Secondary lesions also may occur.


Annular erythematous lesions occurring within several hours of a tick bite represent hypersensitivity reactions and do not qualify as EM.


For most patients, the expanding EM lesion is accompanied by other acute symptoms, particularly fatigue, fever, headache, mildly stiff neck, arthralgia, or myalgia. These symptoms are typically intermittent.


The diagnosis of EM must be made by a physician. Laboratory confirmation is recommended for persons with no known exposure.
*********************************

Now for us to take action!


so we call our COUNTY HEALTH DEPT. to get our county declared endemic
 
Posted by bettyg (Member # 6147) on :
 
hi my dear friend tree! hope you get to feeling better soon; we have missed your replies to posts! here's to a healthier new year!


COMPILED BY MELANIE REBER 12-30-06:


Victims of Domestic Violence help:

* Crisis Support Network: http://crisis-support.org/index.html
Family Violence Statistics: http://crisis-support.org/family.htm
24 hour help- 1-800-435-7276

* Office for Victims of Crime (OVC): http://www.ojp.usdoj.gov/ovc/welcovc/welcome.html
Help for Victims: http://www.ojp.usdoj.gov/ovc/help/welcome.html
National Organizations: http://www.ojp.usdoj.gov/ovc/help/dv.htm
Programs and Online Resources: http://www.ojp.usdoj.gov/ovc/help/dv.htm#2
Pennsylvania Victim Assistance: http://www.ojp.usdoj.gov/ovc/help/map/pa.htm

OVC Victim Assistance for Pennsylvania
Phone: 717-787-2040
Web Site: http://www.pccd.state.pa.us

OVC Victim Compensation for Pennsylvania
Phone: 717-787-2040
Web Site: http://www.pccd.state.pa.us

VOCA Funded State Wide Analysis: http://www.ojp.usdoj.gov/ovc/help/map/pava.htm
List of VOCA Victim Assistance grants/programs funded for the State of Pennsylvania listed by city.

* Pennsylvania Coalition Against Domestic Violence: http://www.pcadv.org/hotfiles/Final%20PressRelease11_15.pdf

* Pennsylvania Child Support Program: http://www.tiny.cc/str9u
Child Support Helpline: 1-800-932-0211

Domestic Violence Program Information: http://www.tiny.cc/WDWeO

Helpline Telephone Numbers:

Welfare Helpline: 1-800-692-7462
Medicaid Information Helpline: 1-800-842-2020
CHIP (Children's Health Insurance Program) Helpline: 1-800-986-5437
LIHEAP (Low- Income Energy Assistance Program) Information: 1-866-857-7095
SSP (State Supplementary Payment) Hotline: 1-866-502-9105

Non-custodial Programs and Projects: http://www.tiny.cc/RQETt

* Pennsylvania Domestic Violence Crisis And Support Resources: http://www.aardvarc.org/dv/states/padv.shtml


Keeping you and your family close in my Heart and Prayers...hope some of this information is helpful.

Much love, now as always,
Melanie
--------------------
The National Lyme Disease Memorial Park Project
[email protected]
 
Posted by MariaA (Member # 9128) on :
 
This post is crossposted from here:
]http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050753


The following are links to a few threads in which herbal medicine is discussed for Lyme and yeast- mostly those herbs from Stephen Buhner's protocol from his book Healing Lyme.
I've included a few which come from Dr Zhang's protocol, and some candida/yeast probiotics discussions.

Please note: although these herbs can be purchased without a prescription, there can be side effects and you should do this under a doctor's direction. Some posters below indicate they have had serious side effects from some of the herbs. Do not take these herbs without AT LEAST reading Stephen Buhner's book. This thread does NOT give you enough information to self-treat safely!!!

Remember that some of the positive experiences on this forum are the same people posting over and over again. Not everyone has the same experiences with herbal treatment or herbal-and-antibiotic treatment. Some of the posters who report positive experiences are doing many other forms of treatment besides Buhner herbs alone.

The Buhner book contains a 30-page bibliography of studies which support his conclusions, and those references are a good start for more information that may help you evaluate whether to try this treatment.

Our testimonials on the Internet are not a substitute for a decent LLMD's advice and guidance.
********************

Stephen Buhner's book Healing Lyme:
http://tinyurl.com/y4wgbk (amazon.com link, includes good reviews)

Buhner's website with book updates/corrections:
http://www.gaianstudies.org/lyme-updates.htm

Buhner's advice column on Planet Thrive website:
http://planetthrive.com/cgi-bin/members/pub9990215891170.cgi?categoryid=9990235248536


***********************************************

questions about where to buy Buhner Protocol herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050713
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

********************
member experiences with Buhner protocol, sources of herbs, and mentions that Raintree cats' Claw uses gelatin capsules and why:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

more 'member experiences' threads (some of these are the same people reporting in multiple threads):
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048986
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050014

Robi initially feeling better on herbs, then relapsing, and others talking about boneset, artimisin, and Buhner herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=046141


**************

bee venom therapy (mentioned in Buhner's book, though not part of the core protocol):
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=045611

***************

discussion of Dr Zhang's recommended herbs and a little discussion of Buhner protocol:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048986


***************

encapsulating your own herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050738

***************

thread about a 34-page paper by Dr. Dietrich Klinghardt, MD PhD (Seattle), who incorporates Buhner's protocol (along with detoxification, treatment of coinfections and parasites, various naturapathic methods, salt/C, and many other treatment methods)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050656

******************

poster reporting heart issues on artemisin:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050316

artimisin/artimisia/artesunate
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050530

*******************

garlic threads (buhner does not recommend garlic for treating Lyme itself mentions this in his online column):

liver safety animal study
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=049438

******************

reishi and other mushroom products (mentioned in some of Buhner's other books):
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050274

******************

yeast threads:

oregano oil and a herx or a yeast die-off:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050518


yeast and sexual transmission, and some suggestions for controlling the yeast:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050613


thread discussing an OLD (2000) study on potency of various brands of probiotics:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=049257
more on probiotics:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050683

*************************

milk thistle discussion:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050531
 
Posted by treepatrol (Member # 4117) on :
 
Updated 1-12-07
 
Posted by bettyg (Member # 6147) on :
 
if anyone else prints out TREEPATROL'S NEWBIE LINKS after he updated, you might want to hold off today for a bit.


i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE. so this way when you print this off, you'll get ALL OF HIS LATEST WORK! [Big Grin] [Wink]
 
Posted by trueblue (Member # 7348) on :
 
Tree! Good to see you! [hi]

How are things?
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
if anyone else prints out TREEPATROL'S NEWBIE LINKS after he updated, you might want to hold off today for a bit.


i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE. so this way when you print this off, you'll get ALL OF HIS LATEST WORK! [Big Grin] [Wink]

{BettySaid} i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE.

I said, They are in NewbieLinks Betty I post them in computer questions more room there then I link to them in Newbie Links.
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by trueblue:
Tree! Good to see you! [hi]

How are things?

Thanks true things are bad right now in my life. Thanks for asking.
 
Posted by treepatrol (Member # 4117) on :
 
UPDATED BABESIOSIS
 
Posted by treepatrol (Member # 4117) on :
 
Ehrlichia, family Rickettsiaceae Order of Rickettsiales 07


Georgia USA Ehrlichia Cowdriosis Heartwater


Updated 1,26,07
 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=051350#000015


tree, would you add this later:

it's OFFICIAL ALZHEIMER'S HEADQUARTERS POSITION ON LYME AND ALZHEIMER'S ... NO CONNECTION! thanks my friend. [group hug] [kiss] [group hug]
 
Posted by bettyg (Member # 6147) on :
 
page 5

tree, somehow this important link below wasn't shown with this info

"It tells about the brain and all testing for it.
Exceptional is the Brigham/HARVARD site shown that has SLIDES showing MRI, CT, etc"


http://brighamrad.harvard.edu/education/online/BrainSPECT/Lymes/Lymes_Images.html


next time you add/edit, would you add this above the " " paragraph; thanks my friend! [group hug] [kiss] [group hug]
 
Posted by treepatrol (Member # 4117) on :
 
updated
 
Posted by treepatrol (Member # 4117) on :
 
All on page 3.

Mycoplasmal Infections
Mycoplasma? How to get tested? Treatment?
Mycoplasmal CDC
Mycoplasma
Autoimmune Debate
Mycoplasma Treatments
Autoimmune patients
radiogirl Posted 14-12-2006

Parkinsons
Parkinson or Lyme with links on page
Should read this also it relates to PD
Antibiotic hope for PD
Lyme-Associated Parkinsonism

 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=051656#000016

hi tree,

can you add this advise from NANNIE about fighting denials of health insurance approvals for testing, etc? outstanding advise. thanks my friend! [group hug] [kiss]
 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=3&t=016914#000010

tree, this is OPTIMISTICK'S ADVISE ON COLLEGE ASSISTANCE; outstanding advise!! [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
{Ann - OH} Insurance commissions for every state


OptiMisTicK Advice College aid

nannies advice Insurance Company made me cry
UPDATED [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
Updated:Page 2.

New Test for Lyme Disease
CENTRAL FLORIDA RESEARCH


Western Blot Info

Band 41kd Most important?
More on 41K
FDA It is important that clinicians understand the limitations of these tests
ILADS W Blot
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
Western Blot
 
Posted by bettyg (Member # 6147) on :
 
TREE, please add; thanks!

donating $$ to charities, like
LDA & LYME RESEARCH CENTER; legal wordage needed.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=052294

also, lyme research center $$ can be sent to LDA headquarters EARMARKED FOR LYME CENTER!!
 
Posted by treepatrol (Member # 4117) on :
 
Updated this section

Deer Meat CWD Link A & B Below
A Link
B Link Video CWD

Genetics Animations
Biochemistry Animations
Immunology Animations
Physiology Animations
Microbiology Animations
Max Animations


Max Animations
 
Posted by Tincup (Member # 5829) on :
 
Tree...

You continue to amaze me.

TC

[Big Grin]
 
Posted by bettyg (Member # 6147) on :
 
tree, would you add my newbie links/advise LINK to yours since i'll be off internet 7-10?? days for my hip surgery; thanks tree! bettyg
[group hug] [kiss] [group hug]
 
Posted by treepatrol (Member # 4117) on :
 
Started new page page 6. also put betty's help links in on 3-26-2007
 
Posted by treepatrol (Member # 4117) on :
 
updated this area

Herbs
Peppermint
Original CheapHelp PDF Large6.98MB
Ken Lassesen Cheap Help
 
Posted by bettyg (Member # 6147) on :
 
hi my friend, tree! what did you add this time? very handy to show the highlites here! [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by bettyg:
hi my friend, tree! what did you add this time? very handy to show the highlites here! [Big Grin]

fixed some links added one or to hunting is fun

>Nose Bleeds <
BLOOD SUPPLY

hunt the other one [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
updated page four


Antibody Production Sounds like what happens to lymphocyte by Spirochetes
CellsAlive Great Site
How Lymphocytes Produce Antibody
Invasion and Cytopathic Killing of Human Lymphocytes by Spirochetes Causing Lyme Disease 12/16/05
A life cycle for Borrelia spirochetes
Wealth of Info


Bio Film


Bio Film 1
Bio Film 2
Bio Film chitosan 3
Bio Film mg-furanones 4

Support
USA Support
 
Posted by TerryK (Member # 8552) on :
 
Hi Tree,
Posting a request for this to be added per a request to me from our Bettyg

Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=055861

Much appreciate the work you have done on this vast amount of valuable information.

Terry
 
Posted by treepatrol (Member # 4117) on :
 
updated

Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses
IDS Guidelines they should read them!
top of newbie links


this is in tick section
Respiration in Ticks

Plastron respiration in ticks

 
Posted by bettyg (Member # 6147) on :
 
WOW TREE, you've been editing your whole format here with all your links, etc. FANTASTIC JOB organizing this WEALTH OF GOOD INFO!


well done my friend; what a labor of love you have given to your project sharing it with ALL OF US LYMENETTERS! [group hug] [kiss] [group hug]
 
Posted by bettyg (Member # 6147) on :
 
for your site IF you already don't have....

from JAKKI, new member:

Here is the link, it pretty much covers just about every type of vasculitis, however there are no boards associted with it, it's just an information site. Hope it is helpful!

http://vasculitis.med.jhu.edu/
 
Posted by treepatrol (Member # 4117) on :
 
added page 3

Herxing *@*^#*Or Ouch

New-->Treating the Herxheimer (JH) Flare Reaction

Jarisch-Herxheimer reaction spirochete:Google Scholar
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction
The Herx Reaction
Herxheimer Reaction Explained
Endotoxins -- Is This What Causes Herxes???(Long)
Posted by : seibertneurolyme
What is happening when you stop herxing on abx
 
Posted by treepatrol (Member # 4117) on :
 
updated: 8/14/07

New--->Support Group Links
old
Cumulative Lyme Cases 1980 To Current = 273,805
Cumulative Lyme Cases 1980 To Current Link
 
Posted by treepatrol (Member # 4117) on :
 


[ 20. August 2007, 08:11 AM: Message edited by: treepatrol ]
 
Posted by treepatrol (Member # 4117) on :
 
Updated 0n 8/16/2007
Labs
MDL
Igenex Labs
Bowen Lab
Bowen Lab Forms Protocol
BowenNewSite LymeResearch
IGeneX Which Tests to Perform?

New-->Dr Fry Post
New -->Dr Fry Link to Airpark Medical Center
 
Posted by bettyg (Member # 6147) on :
 
hi to my good friend tree,

what did you add this time as i went to last post, and it still shows 8-16 date?

thanks! i looked thru first 2 pages but didn't notice anything.

thanks big guy; you tower above all the rest of us! lol [lol]
 
Posted by treepatrol (Member # 4117) on :
 
Victims of Domestic Violence
Compiled By Melanie Reber 12-30-06

this one added Wild Condors Newbie Help

Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses
 
Posted by treepatrol (Member # 4117) on :
 
page 5.robin123 interview

LITERATI WITH LYME VIDEO

WinPlayer

UNDER OUR SKIN

Kris Kraft New Lyme Film Trailer!

San Francisco Lyme Disease TV Talk Show now posted online!

ILADS DVD AVAILABLE FOR PURCHASE
 
Posted by bettyg (Member # 6147) on :
 
tree,, outstanding job getting these on here and all together! [bonk] [bow]

thank you for all the hours you volunteer keeping your archives alive and adding things as well as finding things in there to present to members!!!

you're our "tree dream" come true! we love you tree! [group hug] [kiss] [group hug]
 
Posted by Looking (Member # 13600) on :
 
Hi Tree:

Betty would like you to add this to your list:

Here's a link to the FDA Drug Safety Alert Page:

http://www.fda.gov/cder/drug/DrugSafety/DrugIndex.htm

Good thing to check out for peace of mind if you are taking medications.

Thanks!
Looking
 
Posted by treepatrol (Member # 4117) on :
 
up added FDA link towards bottom
 
Posted by treepatrol (Member # 4117) on :
 
Disabilities Links
Social Security Disability FAQ
IDA = Invisible Disabilities Advocate

Page 4. updated
 
Posted by bettyg (Member # 6147) on :
 
please add to disabilities area:

CBS' DISABILITY RESOURCES LIST 1-15-08
***************************************

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=062504

i added it to mine also.. BG [Big Grin]
 
Posted by treepatrol (Member # 4117) on :
 
Updated page two 2.

Aristo Vojdani

WesternBlot and Elisa tests explaining differences between tests developements and this guy uses both antigens from cultured Bb and Cultured from mammal blood give it a listen Here Pick this one bottom page:NeuroScience Inc. (2..> 28-Jan-2008 12:19 2.5M

Drawbacks of Serodiagnosis of LD
In vivo-induced antigen technology: the most sensitive method of detection for Lyme disease and other tick-borne diseases, Part One of a two-part article

The use of lymphocyte proliferation assay and cytokine production in seronegative patients with Lyme arthritis or neuroborreliosis


Western Blot Info

Betty G I am working on integrating your info but its given me a headache Ill get it eventially.

[ 07. February 2008, 09:28 AM: Message edited by: treepatrol ]
 
Posted by bettyg (Member # 6147) on :
 
hi tree, just saw your note to me; i understand and of those headaches....uffda! [dizzy]

take care tree! [group hug] [kiss]


here's a new article on neurophysciatric disorder from 12.07

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=063373#000006
 
Posted by bettyg (Member # 6147) on :
 
hi tree,

if you don't have ILADS' PSYCHIATRIST BROCHURE, here's info on it and link!


Maybe you could give the ILADS pub "What Psychiatrists should know about Lyme Disease"
to your husband.

In turn, he could take it to your therapist.
Clearly, this family therapist has a lot to learn and this article can help her start!

http://www.ilads.org/PsychiatristBrochure.pdf

Lyme and families are a difficult thing. It strains relationships, tests limits, especially if you are ill too.
 
Posted by Lymetoo (Member # 743) on :
 
Info on spirochetes, which COULD make band 41 show up:

http://www.wholebodymed.com/library_education_details.php?pid=5

Spirochetes

"Spirochetes are the other major type of bacteria that we look for under the microscope. These are corkscrew type, snake-like bacteria. Although there are different types of spirochetes, the one in the mouth is called Treponema Denticola. As an aside, the spirochete called Treponema Pallidum cause syphilis and another type of spirochete called Borellia Burgdorferei causes Lyme disease. All three types of spirochetes are bad guys. But in terms of periodontal microscopic assessment we are concerned when we find the spirochete Treponema Denticola, which has been shown to be associated with periodontal disease."

=============

There is more info at the link above than what is posted here.

Band 41 might show up in the absence of Lyme IF you have a gum disease as stated above.

However, if you're having other Lyme symptoms, it would be reasonable to check that out thorougly.
 
Posted by NMN (Member # 11007) on :
 
Great lyme essay on effects of lyme on the brain along with other great info:

http://cassia.org/essay.htm
 
Posted by daise (Member # 13622) on :
 
Hi Treepatrol,

BettyG thought I should add this. I dearly hope it helps people.

They claim if your insurance company denies coverage for medicine, as long as the other qualifications are met, they will supply meds for $7.00 for each med, per month.

Thread: Prescription Hope--Lot of Lyme Meds!

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065398

daise [Smile]
 
Posted by daise (Member # 13622) on :
 
Keebler and I have started a red-flagged sticky thread at the top of the Medical Forum:

TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801


We will be adding more.

daise [Smile]
 
Posted by bettyg (Member # 6147) on :
 
hi tree,

if you have updated your list, would you show the new date on SUBJECT LINE? thx my friend!! [group hug] [kiss]
 
Posted by daise (Member # 13622) on :
 
Hi tree,

Topic: AIR TRANSPORT for ACTIVE MILITARY and VETERANS who are ill. (The link:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=066596)


Medical Air Transport for Wounded Warriors, Veterans and Active Military

http://www.aircompassionforveterans.org


Information provided by:
Colleen Nicholson
Research Assistant to Dr. Burrascano, MD
Founder, Military Lyme Support
 
Posted by treepatrol (Member # 4117) on :
 
quote:
Originally posted by NMN:
Great lyme essay on effects of lyme on the brain along with other great info:

http://cassia.org/essay.htm

This link is in newbie links already


ps I have been having trouble updating links I sent a letter to Lou so he could talk to his compter wizz.
 
Posted by hshbmom (Member # 9478) on :
 
Please consider adding where to take a biopsy for those with EM rashes....


If you're sending the biopsy to Igenex Labs in California....


Collect several 3-4 mm punch biopsies from
the inner edge of the expanding part of the rash...the inner edge of the outer part of the expanding rash.


Put the biopsies in a dry, unused sterile urine specimen cup. Do not put the biopsies in formalin or alcohol.


Ship the biopsy by overnight express to Igenex Lab in California on a Monday through Wednesday. Do not ship on a Thursday or Friday or your specimen may get ruined over the weekend.


I wasted $300.00 on a PCR biopsy because my helpful, but uninformed physician took the biopsies from the center of the rash where the tick had been attached, not at the active (expanding) part of the rash.


Also, please remind others to take sequential photos of their rash(es) with a ruler in the photo and the date written on their skin...include a photo so you can see the rash and the person's face, if it's possible.


Taking photos got me classified as a "Suspect" case by the state health department. I was told confirmed and suspect cases are the only ones included in the state's Lyme case counts.


I was told I'd be added to the Lyme case count that year, but someone failed to amend the case count and I was excluded from the official statistics.


The health department was too bothered to amend the Lyme case count after they waited 6 moths to contact me and verify my positive Lyme Western Blot test.
 
Posted by bettyg (Member # 6147) on :
 
hi tree,

please consider adding this info on DRY MOUTH by i broke up today...


Xerostomia information for dentists ....
*************************************

Helping patients with dry mouth 7.08

By Cathy L. Bartels, Pharm.D., assistant professor, pharmacy practice, School of Pharmacy and Allied Health Sciences, University of Montana


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=069145#000001


very interesting! thx; hopefully tom brown will have things fixed so you can update again! betty [group hug] [kiss]
 
Posted by treepatrol (Member # 4117) on :
 
Still having trouble updating newbie links.
 
Posted by SilkyRose (Member # 16521) on :
 
Hello.

I'm new, and absorbing everything this wonderful community has gathered.

Great to be here. Thank you.
 
Posted by treepatrol (Member # 4117) on :
 
Your welcome silkyrose read newbie links mine and betty g's
 
Posted by Carol in PA (Member # 5338) on :
 
Nutritional Supplements in Disseminated Lyme Disease, Dr. Burrascano, July 2008

http://www.lymepa.org/Nutritional_Supplements.pdf

This is a four page pdf file.
You should print out a copy for future reference.
 
Posted by bettyg (Member # 6147) on :
 
hi tree,

fyi, lou b deleted my bettyg's newbie links today since i maxed out the system where i could NOT edit/update anything!

i'd edit all places, and then when downloading; it would not complete loading ... some UBB problem of some sort.

lou tried too without success.

if/when i bring it back ... it will have to be divided up into medical vs. support for ssdi info, etc.


unsure if i want to continue tackling this or not! i'm burnt out; you know how it is.

i know you can't update your huge file either.

just thought i'd let YOU know what happened to it.


seemed so strange to have to remove my link from my signature line referring folks there as well as my welcome letter to newbies who post!

hope you are doing as well as possible; how are you coming on your weight loss? [group hug] [kiss]
 
Posted by emla999/Lyme (Member # 12606) on :
 
MOLD TOXICITY, MYCOTOXINS and FUNGALBIONICS


Several years ago three doctors from the World Health Organization (WHO) Collaborating Center For Mycotoxins in Food wrote a book about the negative effects that toxic mold/fungi have on the body. This book was called FungalBionics.

You can see those 3 doctors on the link bellow.

http://www.njmoldinspection.com/fungalbionics.html


The FungalBionics book series:

http://www.fungalbionicbookseries.com/index.htm

http://www.fungalbionicbookseries.com/fungi-my.htm


In this book the authors describe how the exposure to toxic fungi/molds and mold mycotoxins either directly cause or contribute to many of the major health problems and diseases of today.

Dr. Constantini spent much of his life studying the effects that toxic mold/fungi mycotoxins had on human health. And much of his life's work and findings can be found in the FungalBionics book series.
 
Posted by Tracy9 (Member # 7521) on :
 
Another great resource:

www.lymefriends.com

www.lymelog.com
 
Posted by jam338 (Member # 14002) on :
 
KNOW YOUR MOLD & LYME RISKS THREAD:
The symptoms of lyme and mold sickness are basically the same. There could be people on this board, especially those with only clinical diagnosis of lyme disease, who may actually have undiagnosed mold sickness!

Please take the time to read this entire thread and become aware of your possible risks. It is a long thread but information packed with critical information on symptoms, testing your body and testing your home living environment as well as work environment.

When mold is a factor it has to be treated first, before lyme. Mold illness will de-regulate and undermine your immune system. In other words you can spend thousands on lyme treatment and not get as effective results if one of the underlying contributing problems is mold sickness!

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/80966
 
Posted by TF (Member # 14183) on :
 
Lupus and lyme disease:

I have read numerous lyme articles that state that some people are misdiagnosed with lupus but really have lyme disease. The symptoms cannot be distinguished.

It may not be that simple in all cases, but it can be that many cases of lupus will respond to antibiotics for a variety of reasons, including lyme and other infections as part of the problem.

Take a look at this article. It mentions lupus throughout.

http://www.immed.org/illness/autoimmune_illness_research.html

This explains how the two may be related.

At any rate, if I were to be given the diagnosis of lupus which has no cure, I would want a lyme disease test and would want to try antibiotic protocols to see if I could get rid of my lupus.

Look also at The Road Back Foundation website which talks about successful treatment of lupus with antibiotics:

http://www.roadback.org/
 
Posted by bettyg (Member # 6147) on :
 
1 of our members found this wonderful info!! [Smile]


CEREBRAL MALERIA aka encephology

Since babesia is similar to malaria, I thought some here might find this interesting.

http://www.davidson.edu/academic/psychology/ramirezsite/neuroscience/psy324/rebergner/what_is_cerebral_malaria.htm


What is Cerebral Malaria?

Cerebral malaria is a rapidly developing encephalopathy, but much pathology of is not clearly understood. Malaria occurs in millions of people, but only 20-50 % of the cases develop into cerebral malaria. It is unclear why some people develop it and others do not.

Cerebral malaria develops when parasitized red blood cells (PRBCs) adhere to the cerebral microvasculature, causing blockage of the blood's pathway (see photos 6-8). This blockage stops blood flow, leading to a shortage of oxygen and nutrients those areas of the brain. The occlusion of the small vessels occurs diffusely throughout brain. This phenomenon seems to occur in all patients with cerebral malaria, although there are numerous other complications that occur as a result of this disease.

Approximately half of the patients with cerebral malaria have elevated intercranial pressure and seizures. Patients in the Gambia, in West Africa, had rings of PRBCs form around the normal RBCs, which will also lead to microvasculature occlusion.

On rare occations, the parasite causes cerebellar ataxia, but no loss of consciousness. The ataxia can occur up to 4 weeks after a malaria attack occurs, but will disappear after 1-2 weeks.

Physical manifestations of the disease may be an abnormal EEG resulting from the lack of oxygen, loss of sulci, and a MRI may show hemorrhagic lesions and infarction.

A common cause of death for patients with cerebral malaria is acute respitory arrest, which may be a result of the intracranial pressure causing a fatal brain stem herniation.

Most people who survive cerebral malaria have no residual neurologic problems. Only about 10 % of patients surviving cerebral malaria suffer from neurologic deficits such as hemiparesis, hypotonia, or spasticity.

We know we have an unclear understanding of the disease because so many people survive the disease without any neurologic problems. This fact leads us to believe it is unlikely that there is complete obstruction of blood flow.

One hypothesis is that the parasite indirectly causes an abnormally high release of nitric oxide in the brain, which changes brain function in the same way as ethanol. This would result in a unconscious state. However, this state would be reversible without residual neurologic probelms.

This hypothesis explains the reversability of the coma state, however, it does not explain many of the other problems associated with the disease, such as the blocked microvasculature.


look at the 3 photos there folks ... interesting. betty
 
Posted by Cass A (Member # 11134) on :
 
Dear Friends,

Here's a link to a very important article about Cipro, Levaquin, Avelox, and Floxin.

There is also a 6-part video.

Apparently, these drugs all contain FLUORIDE, which is a known neurotoxin that can get into the brain, etc.

Hope this helps!!

http://articles.mercola.com/sites/articles/archive/2009/07/18/Antibiotics-to-Avoid-Like-the-Plague-Due-to-FDAs-Oversight-Failure.aspx


Best,

Cass A
 
Posted by bettyg (Member # 6147) on :
 
http://www.ncbi.nlm.nih.gov/pubmed/8640597

1: Can J Cardiol. 1996 May;12(5):503-6.Click here to read Links
Comment in:
Can J Cardiol. 1996 Nov;12(11):1146.

Cardiac manifestations of Lyme disease: a review.
**************************************************************

Nagi KS, Joshi R, Thakur RK.
Arrhythmia Service, University Hospital, London, Ontario.

OBJECTIVE:
To describe the clinical features of cardiac manifestations of Lyme disease, the most common vector-borne illness in North America, which occasionally results in cardiac involvement.

DATA SOURCES:
A review of the English-language clinical literature pertaining to Lyme disease and Lyme carditis indexed in MEDLINE from 1975 to 1995.

DATA EXTRACTION:
Studies describing diagnosis, clinical features, treatment or outcome were reviewed.

DATA SYNTHESIS:
Cardiac complications of Lyme disease may occur in up to 8% of patients.

Cardiac manifestations occur in the early phase of the illness, at a median of 21 days from the onset of erythema migrans.

Manifestations of Lyme carditis include

atrioventricular block, myopericarditis, intraventricular conduction disturbances, bundle branch block and congestive heart failure.

Temporary cardiac pacing may be required in up to a third of cases and complete recovery occurs in most (greater than 90%) patients.

The overall prognosis of Lyme carditis is very good, although recovery may be delayed and late complications such as dilated cardiomyopathy may occur.

CONCLUSION:
Lyme disease is a tick-borne spirochetal infection caused by Borrelia burgdorferi.

Cardiac complications of Lyme disease generally occur in the early phase and include conduction system disturbances, myopericarditis and congestive heart failure.

PMID: 8640597 [PubMed - indexed for MEDLINE]
no copyright shown....
 
Posted by nenet (Member # 13174) on :
 
Art Doherty's list of Lyme Disease symptoms & misdiagnoses

Main site with links to many resources (some of the links might be dead, but some are still good):

http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html


To get to the list of possible misdiagnoses and symptoms (that could in fact be Lyme), here is the link via the "Way Back Machine," courtesy of www.archive.org -

Lyme Disease Misdiagnosed As ...and Other Diseases/Conditions and Lyme Disease

Here is a list of possible symptoms:

Possible Lyme Symptoms

The only catch is that if you want to follow any of the links that go off of Art's site (like to Medline, etc.), you need to peel the url back to the original link.

So, say you want to learn about the Lyme Disease symptom, Anxiety.

1. You click on the Symptoms List page, then click "Anxiety",

2. then click "MEDLINE - Anxiety Disorders or anxiety AND Lyme disease - 18 on 21 Sep 99"

3. You get an error page. Go to the url box at the top of your browser window, and delete everything that comes BEFORE the http://www.ncbi.nlm.nih.gov part of the address. (You basically want to go to the live version of the site link, if that makes sense.)

4. hit return, and if the link is still valid, it should take you to the correct webpage.


I hope that made sense, and helps anyone that was looking for this old website that was helpful to so many before it stopped being updated.
 
Posted by bettyg (Member # 6147) on :
 
dilly's post 9-10-09 about her son/school ...

on IEP !!

how to explain son's cognitive problems :medical vs. behavioral

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/85711?

MUST READ for every parent going thru here; details galore from around 12-15 parents!!

compiled experiences .... bettyg
 
Posted by WildCondor (Member # 434) on :
 
Just curious as to why sticky's have replies in them. Its so confusing!
 
Posted by bettyg (Member # 6147) on :
 
condor, tree's post is NOT CLOSED; that's why we can reply and add more info even though he himself can't add it to his "links"; he maxed it out as i did mine.


Medicare and IV ABX Policies
read MY3BOYS comments, 9-28-09

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/86119
 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/86639?

SCHOOL TESTED OUR SON (parents with Lyme kids in school - please read)

by dilly 10-8-09; valuable info from all posters there!!
 
Posted by bettyg (Member # 6147) on :
 
NEED HELP PAYING FOR MEDICINE?

this applies to ALL medicines for whatever disease!!

i just got home from visiting with LEAVE IT TO BEAVER, LARRY MATHEWS, representing DIABETES patients, on the

PARTNERSHIP FOR PRESCRIPTION ASSISTANCE bus traveling nationally all over here in town today for 2 hrs. only, 10-12-09!!

they gave me the following info and i'm just going to type it up so it goes here and other places:

SERVICE TO AMERICA

since the alunch of PPA in april 05, more than 5.7 million americans have found programs that can help them pay for their medicines. thousands more find help every single day.

if you do NOT have prescription coverage and can NOT afford your medicines, call


1.888.4ppa-now or 1.888.477.2669 or visit

www.pparx.org

more than 2400 brand-name and generic medicines are covered. you could get them FREE OR NOREARLY FREE!


EXPRESS SERVICE

here's how you find out if you qualify:

1. know the NAMES and dosages of the medicines you take.

2. call toll free 1.888.477.2669

3. a trained specialst will answer your questions and help you apply.


fyi: there are 10 questions asked. i'm copying this OTHER info since it is apparently DIFFERENT FOR ALL 50 STATES!!


Medicaid/Children's Health Insurance Program (CHIP)


There are currently millions of uninsured and financially-struggling patients in America eligible for help through Medicaid and the Children's Health Insurance Program (CHIP) who have not yet enrolled.


Significant health care gaps exist in the U.S. today because low-income patients do not have access to the healthcare coverage they need to better fight disease.


The Partnership for Prescription Assistance is raising awareness of these programs to help ensure that patients get access to the coverage they need to live longer, healthier and more productive lives.

Pick Your State
Get an Application
ApplyInstructions

To find out if you qualify for help, select the state on the map where you live.

The state programs will be shown with a short summary below the map.

To find out more details about that program click on the program name.

The program details will open a new window where you can see the program information including how to apply for the program.

In most states, you can complete a short application and send it through the mail. Applications should NOT be sent to PPA.
***************************************

plus this info from

ADW AMERICAN DIABETES WHOLESALE
************************************

1.877.241.9002

http://www.americandiabeteswholesale.com/-strse-template/contact/Page.bok

so check this out too! hugs/kisses

hope many of you will find success in your meds for LYME/CO-INFECTIONS!
*****************************************

i posted this in support forum on the subject title of what to do when you run out of money too. betty
 
Posted by bettyg (Member # 6147) on :
 
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/86827

from dilly posted 10-13-09 and BROKEN DOWN BY CATEGORY !! must read & print out!!
 
Posted by bettyg (Member # 6147) on :
 
NYTimes mentions lyme as one cause of peripheral neuropathy 10-21-09 by Lou

look for broken up version by bettyg; very specific to body parts and DIABETES!!

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/87071?
 
Posted by WildCondor (Member # 434) on :
 
Treepatrol or someone needs to organize these links then have the moderators delete all replies. They need updating and organization. I hope someone is making this their project.
 
Posted by WildCondor (Member # 434) on :
 
Is anyone doing ANYTHING to organize this mess besides me? Does anyone care about this project? Moderators why not start organizing all these links, and clean up the stickies...???? IS anyone working on it?
 
Posted by treepatrol (Member # 4117) on :
 
Up
 
Posted by Tincup (Member # 5829) on :
 
Love it Tree! Thanks!!!!
 


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