Some choices can be very toxic if discovered in time..Think lyme is hell, well it is, but try frying your liver(which we are praying has not happened but was on the table of possibilities) and having to try to survive.Not sure milk thistle would do any good.

And now, she has a chance to spend Christmas in the psych ward..That will be memorable.

[This message has been edited by lymemomtooo (edited 19 December 2004).]
 

I am so sorry to hear that your family is going through this. I understand wanting to get away from the pain of Lyme. But you are right. It's not the answer.

I wish I had words of wisdom, but I don't. But know that there are people here that know how Lyme can "try" to tear up a family, but know too that you have the ability to see this through too. Remember that all the days even with Lyme are not horrible.

Being there for her, and holding her hand will help in the short run and the long run. She will know she isn't alone in this. Knowing she has you there is everything. Knowing you're still fighting with her means so much.

Emotional support and antibiotics are the things that helped me through it.

Good luck. Love her up. Be strong. And get rest for yourself too.

Meem
 

Fill us in as you feel you can.

hugs,
AK
 

DLL
 

I will certainly keep both your daughter and your family in my thoughts and prayers , and a special one that she'll come home for the holidays....

Lisa
 

[This message has been edited by lymemomtooo (edited 19 December 2004).]
 

She has tried 4 times before but the last attempt was in June and by all indications the danger was over..A good friend had moved to W. Va and fatally shot herself.My daughter found this out at school on Friday..It put her over the edge..

B. and others, Hug those babies for me guys and keep them safe..

I hate lyme and bartonella sooooooo much!!!!
 

Leslie
 

If there was only some way to ease her inner pain. And yours.

Know that we have your family in our hearts. Please keep us up to date with your daughter's recovery.
 

Lyme and Bartonella together are deadly when they go ro that part of the brain.

We hid everything in the house and my son tried to do it with masking tape..during the IV Herx this was everyday situation.

Rifampin was added later and did not cause this kind of Herx, but bursts of anger, more benign.

Then, the added stress of loosing a friend while still battling this brain infection.

Just praying here for yout girl and you to get through this , body and mind, one day at a time till she's safe again.

You have your LL's?

You'll pull through..I know it feels like it's not possible, but it is and you will.

XO,

Mo

[This message has been edited by Mo (edited 19 December 2004).]
 

May I ask how old she is?
 

from my deepest pores...
 

I just read this post and can't believe you and your dear daughter are going through this right now.

This a hell no child or mother should endure.I cannot imagine what the past 24 hours have been like for you. The burden you are carrying is beyond comprehension.

I am so glad that for the moment, she is safe and coming out of the woods! Tender, loving hugs and kisses on her sweet head.

You are doing a miraculous job of keeping your heart and reason about you during a time of incredible duress.

You set such an example for all of us and I cannot tell you how many times your wisdom, courage and openess about your situation have given me hope and the strength to go on.

Many of us would feel alone were it not for you. Thank goodness it is you, there, by your daughter's bedside. She knows how much you love her.

Please know that you are completely in my thoughts and I am sending you a heart full of love and compassion.

Please know that my thoughts and prayers are with you as you go through today and the days to come.

For both you and your child I pray for MERCY and no more despair,

That somehow she will feel ALL THE LOVE that the people here and at home have for her.

That she knows how many here want to HELP her and that she need never feel she has to do this overwhelming task alone. We are here for her every day, no matter what.

That the SUPPORT of everyone together can truly ease her pain. We get better TOGETHER.

Through all that she endures, we bring a ray of HOPE to sustain her.

That the way out WILL be found, and she will someday be a shining example to others.

Let this event, coming at this time, be a turning point and that the coming year will be the one of a NEW BEGINNING.

I wish I could be there just to give you comfort, hugs and and a shoulder to rest upon. You, too are included in all of the prayers above.

I know her greatest gift is having you for a mom. Bless you.

All our love,
andie, JC and Julie

AND She was with me..They let her come home..They believed she was going to get thru this with my constant monitoring and a trip to see Dr. V. S. They had even let her have IVDoxy last night..

There are miracles..Bless you all and happy holidays..
 

Carol

 

what came first the bipolar or the lyme?

Or a little bipoar and a lotta Lyme bringing out really bad bipolar.

Or One good day screaming at everyone cause your sick of them not beliveing you and your treatment and now your nerves are shot and having anxiety panic and then depession form dealing with all these doctors and strange symptoms that come and go.
 

Lot's of love and thoughts coming from us, my son as well.

Mo

 

I sent you a personal email...

Your family is in my thoughts and prayers!

Jamie

------------------

 

About the bipolar, we thought bipolar II at one point..That is with only angry highs, not really manic ones..They tried some meds for it with no change..

Almost no psych drugs help us..Dr. V.S. has come the closest but she is all to much aware of the horrors of this disease. We need more such angels.

G-my heart also goes out to you..You have had some things that are equally as rough as what we are going thru as have so many of you..I do not think I have lyme, so it blows my mind to know that some of you do and are also living thru some of what I am going thru..You give me strength..

I was advised to not appear too knowledgeable..Dr told me to be careful of M.by proxy..So the Drs bought all without me going overboard..Thank God..Maybe it was because I messed up the scientific name so many times even after Dr. A.C.told me exactly what to say.

I had been worried since I remembered some horrible posts on here so made a hard decision to come home the first night from the hospital..I did not want protective services to take custody of her.She would surely die..It was a hard night but think it worked to protect the family..

Bless you all. lymemomtooo

[This message has been edited by lymemomtooo (edited 20 December 2004).]
 

((((HUGS))))

I was so happy to see your news. Way to play it cool with the ducks! Probably a good call to get her out of there if she was stable. What an obstacle course!

Sorry you had to go through that blizzard to get home yesterday! Sheesh! Enough already, right?

How's the sweetie feeling today, btw? Probably sad, tired and a bit relieved.

How are YOU today?
HA!
Probably exhausted and really relieved!!!

So now, are you able to stay tucked and cozy at home? Is there anyone around who can run some errands for you so you can just rest a little? If not, try to let as much go as you can, ya know?

A thought for the coming week and Christmas: Jammies and Boston Market take out! And tea! Quite the stress reliever, if I do say so.

I'm thinking of adopting a new motto for myself and all the minutia I tend to think is so important: When in doubt, lower the bar!

But I do wish I could be there to help and give you both TLC.

I think you've run your Christmas spirit tank dry and must have wings sprouting from your back at this juncture.

You know we're thinking 'bout cha all the time and sending much love your way.

Give the sweetie an extra kiss on the head and say it's from (what my niece calls me)
"Dandi".

love,
andie, JC & Julie

She's lucky to have a mom like you.

Lymiecanuck
 

Today, I plan on trying to stay awake and bake cookies..They have been chilling for two days.Will be a test to see if they even
rise..

Will try to shovel a path thru my house incase we go ahead with a small cookie and drinks thing after church on Christmas Eve.

Also am drinking some of Tincup's brew recipe..It's keeping me going, that and the caffeine, I "snuck" into the pot..
 

I am so sorry for what you have gone thru and will pray for her and add her name to my prayer groups that meet.

Hugs and prayers
Mule
 

I am currently worried about someone's safety because of his intense pain. Hope I can find a pain management specialist to at least buy him some time until he can address the cause.
 

We did have a rough day with being on the road for over 6 hours seeing all Drs..

FFWW, the best advise I can offer is to do what ever it takes to keep them alive until they can get well..I have been lucky..We have had many tries now..And one bad stressor can ruin all..Good luck..lymemomtooo
 

Thinking of you and your chld and hoping that all is ok.

Thank you so much for passing along your wisdom. So kind of you.

 

It made me wonder what other meds might be triggering a chemical imbalance in the brain.
 

You both are amazing to be enduring this. wish I could help.
warmest regards
paisley

 

So sorry to read about all you and your daughter have been through. I am glad to hear she is doing better but I can understand her pain. I've thought it many times but not acted. It's amazing how this illness can crash so many of your dreams - and that is so difficult to deal with.

One thing I have also noticed is that this problem becomes larger for me when I consume processed foods or the supplement L-Glutamine (a glutamate precursor). The chemicals in these foods are over the top, I think, for many of us. Despite the fact these things are added into our foods, they are still chemicals, not food, and they are primarily neurotoxins.

Through careful observation, I have discovered that my neurological symptoms increase when I consume standard, normal foods. MSG is in almost everything and it is hidden in the ingredients of so many things to the point you will not find it unless you know exactly where to look.

Just off the top, avoid all soups, pickles sauces, packaged meals, etc. Switch her to a diet of whole foods and see if this makes a difference. Fresh or frozen fruits and vegetables, grains, and meat. Use herbs and spices but only those which have a single spice, avoid blends like Mrs. Dash, etc. because those are the worst for sneaking in MSG-a flavor enhancer.

These changes have helped me tremendously. Last year at this time I was a wreck and very down. I clued in on this problem and stopped eating anything packaged. I actually went through a withdraw period as well before I started feeling better.

I'd love to say that the reason the worst of the depression cleared was due to my life getting easier but, in fact, it actually became worse because I had to recover from gallbladder surgery as well as the abandonment of a lawyer I had working on a case for me. The lawyer scooted out after running up $12,000 in fees and slammed a judgment on me when I was too sick to go to court to opose him. So, despite all of that and the nightmare I was forced into, I'm still doing better than I was last year at this time.

Go to www.truthinlabeling.org and start reading up on some of the information there. Also, I'd recommend "Excitotoxins" it's a good but very dry book. You may find some helpful information there as well. It talks about the effects on the brain of chemicals added to foods. In a nutshell, many of these chemicals excite to death the neurons in the brain.

Just something to think about. I hope maybe there is something helpful here and that you and your daughter come through this and never have to face it again.

Take care,

Angie
 

We had some stressors over Christmas and so far, my daughter has been no worse. Thank God.

There is also a new possibility, strep..She always has allergy problems and sinus stuff and the Dr thinks we may be dealing with strep..We go today for a test. If she is positive and it has become systemic, it may be causing many of the psych problems..

Dr. V.C knew of another situation where it caused almost as many mental issues as Bart, etc, does.

The journey continues..Prayers to all of you and wishes for good health and a cure in 2005. lymemomtooo