WELCOME To LYMENET
Here's more goodys! A typical response to newcomers.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Conflicts in Lyme
How to Search Courtesy of Danq
TC LymeNet Links for New Members
Newbie's Lingo
Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society
Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M
Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B
Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!
Labs
MDL
Igenex Labs
Western Blot Info
FDA It is important that clinicians understand the limitations of these tests
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)
Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction
Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help
Legal Help
Legal Help
Legal Help
Legal Help
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH
Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1
Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7
Pregnancy
Pregnancy?
TC Link Pregnancy
Herbs Be Careful
HerbsCancer Center
[This message has been edited by treepatrol (edited 28 December 2004).]
Thanks a lot for that information. I will plough through it.
I only asked because my doctor uses that lab and has already done some tests for me. I am waiting for the results but I am wondering whether they have any chance of being positive, and whether the lab is reknowned or reviled.
Did you have a rash at bite area ?? dont panic if you didnt because I have been bitten 70 or 80 times and never had a rash.
If you have a rash at the bite and you saw a tick there you deffinatly have lyme.
Get a LLMD there better at this than normal Drs.
I am in the UK also, and unfortunately the reason it's "rare" in the UK is because of doctor ignorance. They don't know how to recognize it, therefore it doesn't usually get diagnosed, this equals - "it's rare".
It isn't rare at all - it's only GP literacy on the subject that is VERY rare, but it is hugely underdiagnosed and equally under-treated IF treated at all.
My GP, who is sort of supporting me in my private treatment by providing ONE private prescription for me on my LLMD's orders, is very ignorant about Lyme Disease DESPITE me trying to educate him for over a year now. He does not want to know. When he recently said to me "I treat other people with Lyme Disease you know" in response to something I was trying to make him understand - I asked him how. His response was: If I think they have LD I watch and wait. (not sure what he's waiting for though).
Have you visited Eurolyme?
http://health.groups.yahoo.com/group/EuroLyme/?yguid=143366118
DLL
Welcome to Lymenet. I'm thrilled to see that you are taking charge of your health.
Lyme Disease is really a do-it yourself disease. Hope you will take Treepatrol's advice about seeing a Lyme Literate Medical Doctor.
You can go to SEEKING A DOCTOR section and someone will privately e-mail you an LLMD's name. A support group from your state can be helpful and Lyme Disease Association (LDA) is always available for everyone.
Just click on the LDA Logo on the left column of your screen; Click on Doctor Referral.
I wasted a year thinking I didn't have Lyme Disease (LD) because my Igenex was negative. Some of the sickest folks have negative Western Blot results.
I had to find an LLMD who prescribed the ABX, Zithromax 250 mg twice daily for like 10 days to elicit a positive Western Blot from Igenex. The ABX pulled the bacteria into the bloodstream and I finally got a positive Igenex.
However, the LLMD diagnosed me with LD on the first office visit without the Igenex test results.
I sure hope your doctor knows that LD is a diagnosis based on symptoms. The test only supports the physician's clinical diagnosis.
In case your WB test returns negative, here are 19 reasons for a negative LD test:
http:/flash.lymenet.org/ubb/Forum1/HTML/001744.html
Also, wanted to warn you about steroids. Do not let anyone give you steroids as this will further depress your immune system and the Lyme will flourish.
Also, if you do develop any rash or a bulleye's rash, it's not a bad idea to get a disposal camera and take a picture. Place a coin beside the rash for size comparison. Secure the photos & keep them forever.
Here's a great booklet I was given at my last office visit. You can download your copy. It has a 7-page comprehensive symptom list and is great at explaining LD.
The title is:
"Lyme Disease and Associated Diseases: The Basics."
It's published by the LDA of Southeastern Pensylvania.
Click on: http://www.lymepa.org
To download the entire Booklet-- When you reach the site, click on the Booklet icon located below the Lyme Teens icon.
You deserve to know with certainty if you have Lyme Disease, as it is a potentially debilitating disease if left untreated or if it is undertreated.
Also, an LLMD will eventually want to check for tick-borne co-infections such as Babesia, Erlichiosis, Bartonella and mycoplasmas. LLMDs each have their own protocol to fit each patient.
So, please keep asking questions, as we understand firsthand how overwhelming this quest can be.
Well, happy reading & let us hear from you.
Best Wishes,
Jan
[This message has been edited by RECIPEGIRL (edited 28 December 2004).]
Do you mind emailing me and letting me know who this private doctor is? It would be of great interest to others in the UK.
Virtually all Lyme patients in the UK are unable to get their NHS GP's to support them in treatment, if those patients have managed to go outside the NHS system and get a proper diagnosis. I know only of one such patient in the UK and her doctor has basically blackmailed her by letting her know that if she lets others know what he's doing (i.e. treating her long-term on NHS) he will stop her treatment.
There is only one or two doctors that I'm aware of who are up to the job, both private, in the UK.
Just click on my profile link, and emails' there.
DLL
[This message has been edited by dontlikeliver (edited 28 December 2004).]