It doesn't need to be refrigerated, a plus if you have to go to work.
B. ProBio PCC Pharmanex (for variety) C. A few spoonfuls of live-culture, no-sugar yogurt with meals, to reach the upper GI tract. Perfect Food Super Greens from Garden of Life Liquid Grapefruit Seed Extract Garlinase** 4000 from Enzymatic Therapy Yeast Fighters from TwinLab Saccharomyces boulardii from Allergy Research Group ******************************* C0-Q10 (Don't take with Mepron) CORDYCEPS ESSENTIAL FATTY ACIDS Optimum Omega from Pharmanex ($11.90)
Also, sublingual Vitamin B12 tablets are great when you need to get your energy and verbal skills back in a hurry, and alpha lipoic acid is gaining a great reputation as an antioxidant.
Robi--I've never heard of Green Vibrance. Is this similiar to Perfect Food supplements or the drink Xango? KrisKraft--Thanks for giving some insights on some supplements I haven't heard of. I'm trying to incorporate Dr. B's list gradually to see how the response will be to them. Questions: On the CQ-10, I can't find what dosage of mg is the most beneficial. I'm taking 30mg, but I've seen 50 and 100mg...which is recommended and can you take too much? Perfect Food--You take the powder form, I have the tablets. Are these as effective and when is best time to take? "Cordy Max"--This is for stamina right? I haven't heard of this one...what makes this so effective? Lastly, are there ANY suggestions out there for the best methods on taking supplements (for example, best time of day...combination with meals...using along with other supplements to gain the most benefit or which ones NOT to combine with any others? I just hate to think I'm taking these willy-nilly when there is a better method of consuming them for maximum benefit. Thanks for all ideas and suggestions....and thanks again Robi and KrisKraft! JavaBeing
Robi--I've never heard of Green Vibrance. Is this similiar to Perfect Food supplements or the drink Xango? KrisKraft--Thanks for giving some insights on some supplements I haven't heard of. I'm trying to incorporate Dr. B's list gradually to see how the response will be to them. Questions: On the CQ-10, I can't find what dosage of mg is the most beneficial. I'm taking 30mg, but I've seen 50 and 100mg...which is recommended and can you take too much? Perfect Food--You take the powder form, I have the tablets. Are these as effective and when is best time to take? "Cordy Max"--This is for stamina right? I haven't heard of this one...what makes this so effective? Lastly, are there ANY suggestions out there for the best methods on taking supplements (for example, best time of day...combination with meals...using along with other supplements to gain the most benefit or which ones NOT to combine with any others? I just hate to think I'm taking these willy-nilly when there is a better method of consuming them for maximum benefit. Thanks for all ideas and suggestions....and thanks again Robi and KrisKraft! JavaBeing
I was planning to look through some vitamin catalogues tomorrow, I especially like Swanson Vitamins for their prices. Now, I can just go down your list and go to the website you recommended. Many thanks.
It has a lot of lecithin in it. While some consider lecithin a filler. I value it because it is helpful in nerve function and cell membrane maintenance. Website for Green Vibrance...http://www.vibranthealth.org/gv.html I like it better than Perfect Food. Personally , I don't buy any of the Garden of Life Proucts.......... I don't trust the whole story behind it. Just a feeling.
1. When I first wake up, I take my first antibiotic with fish oil, so it coats my stomach. Then I work out for an hour, hopefully pumping the abx into the nooks and crannies. 2. At breakfast, I mix up the Super Food with water and take LifePak, my probiotic, and most of the other supplements on my list. 3. About 11am, I take a second antibiotic. 4. At 1pm, I have lunch with a probiotic. 5. Mid afternoon, if I'm having fungal problems, I take 5 Yeast Fighters, which includes probiotics. If not, I skip it. 6. At dinner I take my second LifePak. 7. About an hour before bed, I take my last antibiotic/fish oil, and any brain repair drugs, figuring sleep time is when your brain goes through all it's chemical rebalancing. Lately I've been trying Myelin Repair and BrainStorm, which includes ALA, and lots of other good brain chemicals. It's too soon to tell if they work, but I'll let you know if I feel a difference. KrisKraft
BrainWave Plus from Nutricology http://www.nutricology.com/store/product.php?productid=16432 Myelin Sheath Support from Planetary Formulas http://www.vitacost.com/Store/Products/ProductDescription.cfm?SKUNumber=021078104711 Has anyone else tried these?
Thanks for the your timing outline, that's exactly a huge piece of this puzzle that I'm really trying to focus on. How do you incorporate the other supplements, such as CQ10, Mg and Garlinase for examples? Do you find it more beneficial to take all at once, say in the AM...or spread out through the day? No other supplement is similar to the mangosteen juice. Only the mangosteen fruit has more than 43 different xanthones. It's the xanthones which have the amazing medicinal qualities. And only the Xango has been able to change my life. I have more energy and less pain than I did 20 yrs ago. But don't take my word for it. Research it on your own. There's a mountain of medical abstracts on the mangosteen fruit. [This message has been edited by Lymetoo (edited 29 March 2005).]
I take Mg and multivitamins with food (breakfast and dinner) because studies say they are absorbed better when mixed wtih food. Then I try to take antibiotics two hours away, at 5:30am, 10:30am, and 8pm. I find that the powdered SuperFood keeps yeast at bay better than the tablet form, for some unknown reason, but my husband takes the tablet form, because the powder is too much of a pain to mix at work. KrisKraft [This message has been edited by KrisKraft (edited 31 March 2005).]
------------------ Also, in morning - End Fatigue Daily Energy Enfusion - 1 scoop (citrus flavor) mixed w/ large glass of water - also, its comes with This is distrubted by PhytoPharmica - its designed by Jacob Teitelbaum Also, I take Saventaro 20 mg in morning Whatever it is - my energy and clarity has greatly imporved.....I hope this helps in some way at least! All the best.
The supplements (when you're still being treated, and for a while after) are primarily to help you heal -- so don't take every drop of extra energy you get and spend it on "doing stuff" or trying to live the pre-LD life until you really are healed. It's very easy to get a burst of energy, get all excited, go galloping around, and burn out. Been there, and the T-shirt ain't so great. The idea is to have fun, but still have a little oompf left over at the end of the day, week, month, year.
I swear I felt best eating rice, soy, and fresh veggies, but of course rice and soy I'm now allergic to. So no more of that. sorry I think I got a little ranty there. opps. I swear I felt best eating rice, soy, and fresh veggies, but of course rice and soy I'm now allergic to. So no more of that. sorry I think I got a little ranty there. opps.
Balance is the key to just about everything we incorporate into our LD lives. Bc
First, thanks KrisKraft for all your great input and time in putting your info out there, especially interested in the brain fog supplements you mentioned...boy, can I use some of that at this point. Also had neglected the EFA's, which I will be correcting! HapCarlessdave, Brodius, Burnbitter and Beachcomer--thanks for reminding me (and others) about the issues regarding carbs and finding the right balance to maintain blood sugar levels..it something I know I should be more diligent on, but am balancing things like a bad plate spinner, that I'm not always doing this for myself. BTW, How does someone tell if they are having a 'food allergy' versus a 'herx' moment/day? Minoucat--Good point on not quickly burning up those pockets of energy we may be fortunate to experience. I know I'm SO guilty of getting excited when my body has those pre-LD moments that I just rush around like I'll never get another one. It's easy to do, but really makes the healing process harder in the long run. PS Always good to hear from another Pacific Coast lymie, feels isolated here from everyone on the other coastline. Lymetoo--Hi Tutu, you know I've heard and read about some of the benefits from Xango from others here (thanks SkyKing!) as well as from friends here who surprised me when they said they've tried it (non-lyme) and it did wonders for their energy. I emailed someone here (forgot who now..) on how to get a bottle to try, but never heard back. Any ideas how to go about that and what the cost is? Is this similiar to Robi's 'Green Vibrance'? Sorry this is abit long...but everyone is so wonderful to take time to respond, that I wanted to make sure I give my many thanks to you all... Health and Healing,
I emailed someone here (forgot who now..) on how to get a bottle to try, but never heard back. Any ideas how to go about that and what the cost is? Is this similiar to Robi's 'Green Vibrance'? Nope, not similar to anything green! The mangosteen fruit has more xanthones than any other fruit in the world. And it's the xanthones that have all the action in the body. Truly amazing stuff. Check your email. ------------------
Recently, we've added this green powder, "The Perfect Food" from the Garden of Life, which is equivalent to eating 5-10 servings of vegetables. The thing that's great about it is that it seems to suppress GI tract yeast overgrowth, as well as providing immunity-boosting antioxidants. http://www.webvitamins.com/?AID=1629565&PID=1620614
About 6 drops in a glass of water, once a day, or more, if thrush on the tongue gets out of hand. I use Nutribiotic GSE, but I think any brand will do.
Amazing at flushing out the fungus/yeast. Works MUCH better than Nystatin for us. Beware of a big die-off (i.e. diarrhea) when you first take it. Take one before bed, more if you have an outbreak. Garlic thins the blood, so make sure you're not mixing it with other blood thinners. This is processed so it doesn't give you stinky breath.
Includes Lactobacillus, Garlic Bulb Extract, Caprylic Acid, and various other herbs.
A friendly strain of yeast that hopefully will win the battle against Candida.
FIGHTING FATIGUE
*******************************
Deficiencies have been related to poor function of the heart, limitations of stamina, and poor resistance to infections. Tissue biopsy studies have resulted in the recommendation that a patient with chronic Lyme should take between 200 and 300 mg daily of standard brands, or 90 mg daily of the pharmaceutical quality product marketed by Pharmanex, in two or three equal doses. Improvements do not begin for several weeks. The body will manufacture its own Co-Q 10 when the original infection is controlled, but only if stimulated by aggressive exercise. Therefore, use this supplement until you are feeling well and exercising regularly.
Pharmanex CoQ10 ($16.20)
This well-known herb from Tibet has been shown in clinical studies to improve stamina, fatigue, energy, and to enhance lung and antioxidant function. It is the only compound known to raise Superoxide Dismutase activity. Although the use of this is optional, the effects can be so dramatic, I strongly urge all people with fatigue to use this, long term. Available from Pharmanex as "Cordy Max".
Cordy Max from Pharmanex ($24.70)
*******************************
BRAIN REPAIR
*******************************
Studies show that when EFAs are taken regularly, statistically significant improvements in fatigue, aches, weakness, vertigo, dizziness, memory, concentration and depression are likely. There are two broad classes: GLA and EPA, derived respectively from plant and fish oils.
Plant Oils (omega-6 oils): borage oil, evening primrose oil, or black currant seed oil (choose one)
Fish Oil (omega-3 oils): "MAX EPA" (or any similar preparation containing 1,000 mg of EPA)
Optimum Omega gives your body healthful nutrition with a rich source of omega-3 fatty acids, vitamin E, and deodorized garlic.
Posted by liz28 on :
I can vouch for the last three on the above list: Co-Q 10, cordyceps (a wonder herb, and the cheap stuff seems to work as well as the pricey), and flaxseed oil, even though everyone says to avoid it as a fatty acid source. Also, phosphatidylcholine is good for patching the brain back together.
Posted by JavaBeing (Member # 6321) on :
Thanks for the response Robi and KrisKraft,
Posted by JavaBeing (Member # 6321) on :
quote:
Originally posted by JavaBeing:
Thanks for the response Robi and KrisKraft,
z
Just a quick edit...sorry liz28 I hadn't seen your response when I added mine. Thanks for the reinforcement on the CQ10 and Cordy Max...perhaps you can offer answers to the questions I asked regarding these two supplements?
Posted by lhm312 on :
KrisKraft, you are a genius!! I can't tell you how much I appreciated your concise list of supplements and what they are good for.
Posted by robi (Member # 5547) on :
Yes Java,
green Vibrance is like Perfect Food. The cheapest pace I have found it is at the Vitamin Shoppe www.vitaminshoppe.com
The 11/12 oz. (can't remember) is enough for 1 drinak a day for 30 days. Usually you can find it for around $31.00.
robi
Posted by KrisKraft (Member # 4329) on :
On timing of supplements, here's my strategy:
Posted by KrisKraft (Member # 4329) on :
Oops. I messed up the names of the brain repair drugs I'm taking. (Does that mean they're not working ;-)
Posted by JavaBeing (Member # 6321) on :
Hiya KrisKraft--
Also, you mentioned the Perfect Food supplement, I'm assuming you're using the powder version? I'm using the tablet form myself...have you notice a better outcome with the powder form?
Thanks again!
JavaBeing
Posted by Lymetoo (Member # 743) on :
quote:
Originally posted by JavaBeing:
--I've never heard of Green Vibrance. Is this similiar to Perfect Food supplements or the drink Xango?
http://www.researchmangosteen.com http://flash.lymenet.org/ubb/Forum1/HTML/032080.html
------------------
oops!
Lymetutu
Posted by KrisKraft (Member # 4329) on :
More on timing of supplements...
Posted by Lymetoo (Member # 743) on :
Kris...is SuperFood the same product as PerfectFood????? If not, where do you buy the SuperFood?
oops!
Lymetutu
Posted by brodius (Member # 6835) on :
My new combination has given me a lot more energy - even dancing around with my dogs! -Mag Taurate 125mg and Coq10 60mg 1x morning and 1x b/f bed
Daily Evergy B Complex (large pill)
and Diflucan (I was 3x a day now I have cut down)
Posted by brodius (Member # 6835) on :
Oh yeah, I wanted to add that cutting down on carbs - especially complex carbs helps alot too. Food allergies also cause fatigue....
Posted by KrisKraft (Member # 4329) on :
Oh, sorry, I meant Perfect Food. I
K
Posted by Lymetoo (Member # 743) on :
Thanks!
Posted by minoucat (Member # 5175) on :
Not to rain on anyone's parade, but just a reminder:
Posted by burnbitter (Member # 7088) on :
quote:
Originally posted by brodius:
Oh yeah, I wanted to add that cutting down on carbs - especially complex carbs helps alot too. Food allergies also cause fatigue....
Or it can make it much worse.
It depends a lot on your body. Sinced I started cutting down on carbs, because I'm allergic to most of them has really made me feel a lot worse. And of course makes me question the helpfulness of allergy avoidence. You need carbs. If your body is having trouble digesting things, carbs will give you energy since they are simple to break down, while your body might not be able to process meat and veggies as well. Good digestive enzymes will help some. And checking into your digestive system's ability to function might be good before you start eating only foods your body might not be able to digest. Pro-biotics are also vital.
But I've always felt better eating more carbs. Though I also don't get yeast infections so that probably helps too.
Many people are the opposite however so it all depends on your body.
That eat right for your type book sucks in my opinion. It said I should eat lots of red meat, which makes me sick and always has. So I don't recommend it, some like it.
Listen to your body, but keep in mind the potential that cravings are due to either yeast infections or food allergies. And sometimes cravings are just trying to help you get the food you need. So getting food allergy testing done might be helpful. For me so far it's just been very stressful and I haven't noticed any difference after 3 years, less allergic to many thing but now they tell me I'm gluten sensitive. 
Horrifying. I've hired someone to help me try the horrible diet anyway and make some palatable meals.
I'm in a bad place with the food situation. hopefully my little chef pal will come up with healthy satisfying solutions.
Posted by HaplyCarlessdave (Member # 413) on :
There's good "carbs" and bad "carbs".
I also found brown rice and veggies to be a very good baseline (almost wrote bass line...) for fighting lyme. It helped me tolerate the doxy and 'ceftin; combi and apparently (I had no way to measure) helped maintain steady blood sugar levels, etc. And didn't seem to encourage yeast. I usually took abx following such a combi.
DaveS
quote:
Originally posted by burnbitter:
[QUOTE]Originally posted by brodius:
[b]Oh yeah, I wanted to add that cutting down on carbs - especially complex carbs helps alot too. Food allergies also cause fatigue....
Or it can make it much worse.
It depends a lot on your body. Sinced I started cutting down on carbs, because I'm allergic to most of them has really made me feel a lot worse. And of course makes me question the helpfulness of allergy avoidence. You need carbs. If your body is having trouble digesting things, carbs will give you energy since they are simple to break down, while your body might not be able to process meat and veggies as well. Good digestive enzymes will help some. And checking into your digestive system's ability to function might be good before you start eating only foods your body might not be able to digest. Pro-biotics are also vital.
But I've always felt better eating more carbs. Though I also don't get yeast infections so that probably helps too.
Many people are the opposite however so it all depends on your body.
That eat right for your type book sucks in my opinion. It said I should eat lots of red meat, which makes me sick and always has. So I don't recommend it, some like it.
Listen to your body, but keep in mind the potential that cravings are due to either yeast infections or food allergies. And sometimes cravings are just trying to help you get the food you need. So getting food allergy testing done might be helpful. For me so far it's just been very stressful and I haven't noticed any difference after 3 years, less allergic to many thing but now they tell me I'm gluten sensitive. Horrifying. I've hired someone to help me try the horrible diet anyway and make some palatable meals.
I'm in a bad place with the food situation. hopefully my little chef pal will come up with healthy satisfying solutions.
[/B][/QUOTE]
Posted by beachcomber (Member # 5320) on :
I have also found that completely cutting out carbs caused major fatigue for me. I have problems with yeast when I am on oral abx. But, I have found that my energy and blood sugar levels are more normal when eating some brown rice or Ezekiel Bread or a homemade granola that is mostly nuts and some grain flakes sweetened with stevia & vegatable glycerine (I think that has a bit of corn in it).
Posted by brodius (Member # 6835) on :
blood sugar levels have a lot to do with how one feels - depending on your body - allergies etc. - most people find that avoiding high levels of glycemic burst followed by lows (especially true in adrenals are not functioning well) make them feel more level (and less likely to crash). complex carbs - refined sugars - and for me, white flours - tend to do this..healthy carbs and eating at regular intervals (something like the zone)for a lot of people keep them less likely to bottom out.
Posted by JavaBeing (Member # 6321) on :
Wow..this thread has been so helpful to me, thank-you everyone! Hopefully, it's helping some more folks that can benefit from all the good stuff here. It's incredible how many resources we each have to share from.
JavaBeing
Posted by Lymetoo (Member # 743) on :
quote:
Originally posted by JavaBeing:
Lymetoo--Hi Tutu, you know I've heard and read about some of the benefits from Xango from others here (thanks SkyKing!) as well as from friends here who surprised me when they said they've tried it (non-lyme) and it did wonders for their energy.
It's a totally unique product. And by the way, accept no substitutes!
http://www.mangosteenstories.org http://www.goformangosteen.com
oops!
Lymetutu