My neurologist read an article and attended a conference about Lyme. One of the presenters was from Stony Brook Medical Center. Now my neurologist want me to see someone there.
Has anyone seen a LLMD there? Good or bad?
E-mail me privately if you wish as I know we are not to use MD names on this site.
Posted by lou (Member # 81) on :
Bad place to go for lyme. Duck Hotel.
Posted by Aligondo Bruce (Member # 6219) on :
go to stony brook, and you risk getting the good ole 2 weeks of doxycycline routine even though 4 weeks doesn't work on dogs so basically what is going to happen is you are going to be treated with less respect than a dog. Patricia Coyle is a hag.
Posted by duramater (Member # 6480) on :
I saw Patricia Coyle at SUNY-SB, and while her social skills aren't stunning, she's a cracker-jack neurologist.
She's not as free & easy with the antibiotics as many LLMDs, nor is she a two-four weeks of low dose doxy person either.
I would say she is great if you need to figure out if you have Lyme and/or some other neurological disorder, but not a prime pick for your primary LLMD.
In the course of my treatment several years ago, I had meningitis and some other neuro problems and my LLMD (Dr L in NY) sent me to her for a consult. She was VERY helpful in that situation, but she runs a few different clinics and does more than just neurolyme stuff, so....not a PRIMARY LLMD candidate. But if you have some major neuro issues, she may be someone quite good with whom to consult.
Posted by NP40 (Member # 6711) on :
Our LLMD uses Stonybrook for testing because they accept the main insurance providers in our state. He treats clinically for lyme anyhow, so the test doesn't sway him one way or the other.
Posted by tickitout (Member # 6982) on :
My experience was a total waste of time, money and spinal fluid...
Must admit out of all the horrible things I have been through this is on the top of the list as far as a dr/pt relationship...which was non-existance.
Posted by Monica (Member # 224) on :
I personally have not been to Stony Brook, but have never heard anything good about their doctors and/or Lyme treatment.
Posted by hiker53 (Member # 6046) on :
Thanks for the information. I don't have a lot of confidence in my local neurologist as he (and Mayo) failed to diagnose my lyme. He's good for monitoring my seizure meds, though.
I did get a chuckle when I asked him about rife and he said the electromagnetic waves would kill my body cells. So I asked him if the MRI I had killed my brain cells and if so, wouldn't he then be responsible since he wrote the order for it. He shut up pretty quickly.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by hiker53: I did get a chuckle when I asked him about rife and he said the electromagnetic waves would kill my body cells. So I asked him if the MRI I had killed my brain cells and if so, wouldn't he then be responsible since he wrote the order for it. He shut up pretty quickly.
ROTFLMAO!!!!
Posted by HEATHERKISS (Member # 6789) on :
up for wocoli
Posted by savebabe (Member # 9847) on :
I live two minutes down the road from StonyBrook and I would not take my worst enemy there.
I drive 3 hours north to see Dr. H and it is worth every penny.
