This is topic How do you keep all the drugs and suppliments straight?! in forum Medical Questions at LymeNet Flash.


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Posted by HEATHERKISS (Member # 6789) on :
 
I am on a load of stuff and feel a little worried. And I don't even take the recommended amounts on the suppliments.

5am synthroid
(then back to sleep)

OATMEAL BREAKFAST
Biaxin 500
valtrex
Plaquenil 200
Artemisinin 100
teaspoon meprom


diflucan 2 twice a wk

Primal Defense Probiotic 1x a day

YOGURT SNACK
Multi vitamin Life Pak
Psyllium 1 capsule
Grapefruit Seed Extract 250
Kyolic 1 capsule
Coral Calcium 600 1 cap
Magnesuim 250
Vitamin C 1000
Milk Thistle 475
4 life trasfer factor Immune Booster
Optimum Omega fish oils

wormwood complex 1 capsule 1x a day
(before lunch)

LUNCH
Biaxin

Pau D'Arco 2 tablets 784 1x a day
(1 hour before dinner)

DINNER
Biaxin 500
Plaquenil 200
Artemisinin 100
teaspoon meprom

raw garlic in salad on a full stomache
(w/ dinner)

2 acidophilis pills
1 MAGNESIUM 250
2 hours after antibiotics
(before bed after brushing teeth)

That's 22 things to keep track of!!

Oh, yea and then there is:
the occasional

xanax


[This message has been edited by HEATHERKISS (edited 03 May 2005).]

[This message has been edited by HEATHERKISS (edited 30 May 2005).]
 


Posted by arg82 (Member # 161) on :
 
That is a lot to keep straight. What I've done when I've been on a lot of different things is just what you did here - make a schedule. I wrote it out and kept it with all my medicines so I could refer to it when I needed to. After a while I got better at remembering what to take when, but it's hard. Especially with brain fog and memory problems!

Good luck!

--Annie

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Posted by HEATHERKISS (Member # 6789) on :
 
I have little sandwich bags with all the pills in it for the day.

Primal defense probiotic is a scoop of green powder that I put in the end of a water bottle.

and the acidophilis is in the fridg.

It's freakin work!
 


Posted by TheCrimeOfLyme (Member # 4019) on :
 
Blend them and mix them in a drink

except the abx


 


Posted by Neenny (Member # 7224) on :
 
Heather,

I am married to a transplant patient, you wanna talk about a lot of meds to keep track of, we should have stock in the pharmacutical company!!

I didn't count up how many times a day you take meds. But we have a pill organizer, that has a med dispenser for each day of the week, each with 4 compartments. We use it for his morning, noon, 5:00p.m, and evening meds. So there are 7 daily containers, each with the 4 compartments. We do his meds once a week on Sunday afternoon.

Someone gave him this organizer. I bet your drug store could help you locate one. Or maybe even online it could be ordered. This approach really makes our life much easier.

Initially we did the daily meds. Which was confusing and time consuming. So I can relate to how difficult it is to keep track of what meds and when. This way he also knows if he has taken a specific dose of if he has forgotten it.

Jane

 


Posted by HEATHERKISS (Member # 6789) on :
 
Are you joking? or do you really do this?

what kind of drink? Frozen berries and yogurt smoothie w/ additions?
 


Posted by laserred (Member # 6796) on :
 
I, too, have a pill organizer, definately get yourself one of these, it's a whole lot easier to fill it once a week, then to try to figure it out every day. You don't need the extra stress of trying to remember if you took them or not.

You can find them at your local drug store or even at some grocery stores.

Alot of them have a removable "daily" compartment you can remove, if you are going to be gone for the day, to take with you.

Good luck!
~laserred~
 


Posted by Lymetoo (Member # 743) on :
 
You don't want to see my list! I admit I don't do a very good job of separating things. I take alot of stuff at once. I'd never make it otherwise!

------------------
oops!
Lymetutu

 


Posted by Neenny (Member # 7224) on :
 
The pill case that my husband uses has the removable daily cases. It is amazing what a help such a simple plastic case can be!!

[This message has been edited by Neenny (edited 30 April 2005).]
 


Posted by HaplyCarlessdave (Member # 413) on :
 
This sounds like a good, comprehensive treatment plan, similar to what I had.
I kept a calendar-notebook, on each page of which I put a "med check-off tem[late"- a set of a small circle, square, and triangles of various orientations,. and occasionally other shapes/

the circle was for pharmaceutical abx- (at first I put an abbreviation for each med- but just got used to the position in the field after awhile) . A Square was for gse and ole. Triangles were supplements-- right side up for vits, upsidedown for sam-e and other joint aids, diamond for
artimisinin and garlic and 'malarone'. So I knew how many checks should be in each shape. I had one ser of shapes for am and one for pm. Acidophilus was just the letter "A".
For me this system worked well.

Well, I better zoom to see if I can see some birds without getting some ticks!
DaveS


 


Posted by TheCrimeOfLyme (Member # 4019) on :
 
Newp, I swear Im not joking I really do this.

I could NEVER remember to take everything or I would skip a few things I needed to take and look at what I had left and think "no way".

I've put it in V8 quite a few times.
 


Posted by aliyalex (Member # 6976) on :
 
Actually that was helpful to see what people were taking. If others could list theirs as well, it would be very supportive. I will list mine after I wake up more. It isn't 7am yet. Thanks HK
 
Posted by HEATHERKISS (Member # 6789) on :
 
Everyone,
yes please list!!! It would be nice too see what everyone else is taking.

Am I taking too much stuff? Should I take the recommended doses of vitamins and minerals? How could I fit vitamins and minerals in 2x aday?

AAAAAHHHHHHH!!!! Help.......

Heather
 


Posted by Aniek (Member # 5374) on :
 
I also use the pill organizer that has a seperate thing that comes out for every day, which 4 compartments each day. I have two, the blue one has medicine and herbal supplements, the green one has vits and minerals.

Here's my list. I'll admit, I'm not perfect at getting the mag and calcium in every day.

Wake up: Synthroid

Breakfast: (atleast one hour after Synthroid)
Ketek
Plaquenil
Acyclovir
Artemisinin

Lunch:
Multi vitamin
Calcium

Late afternoon:
Artemisinin

Dinner:
Plaquenil
Acylcovir
Diflucan
Magnesium

Late Evening:
Magnesium

Bed:
Augmentin
Flexeril

I've gotten bad with the probiotics. I've actually been completely yeast symptom free since starting Ketek.
 


Posted by lymeinhell (Member # 4622) on :
 
All my bottles are lined up on the counter, in the order that I take em. Here's a tip from my RN sister who works in nursing homes -

Do what the old people do - take the pill, flip the bottle over.


When I'm not home, I use the pill organizer with the compartments. Easy to do with the bottles lined up.

------------------
Julie G.
___________
lymeinhell
 


Posted by HEATHERKISS (Member # 6789) on :
 
Julie G.,

I do the flip over with my synthoid since basicly I'm still sleeping when I take it.
That way when I wake up in the morning I'll know I took it.

How many bottles of stuff do you have? Does my regimin seem too much? or is it normal?

Heather
 


Posted by RJPII (Member # 5876) on :
 
I really like the idea of sharing what meds/supps. we are taking. I will assemble mine shortly, but wanted to bump this up to hopefully keep the thought alive.

I get the feeling I am 'behind' on this issue big time. Nice thread!
 


Posted by Aniek (Member # 5374) on :
 
quote:
Originally posted by HEATHERKISS:

How many bottles of stuff do you have? Does my regimin seem too much? or is it normal?

I think your's seems comparable to others. It sounds like you are taking a lot for yeast.
 


Posted by aliyalex (Member # 6976) on :
 
Finally I have time to compile mine. I hope I don't forget anything important, which is what I am often feeling. ?This is part of the overwhelm. So glad we are sharing this...

100 mg doxycy
1 nystatin
150 mg rifampin all with food 4 X per day (rifam2X)

Now the fun begins...

3 reacted magnesium
1 Iodoral iodine/potassium
1 milk thistle
2 oz OsteoProCare
4 oz BodyBalance
2000+ Comprehensive C
2 Cascara Sagrada
1 Bio-bead (probiotic)
Vit E
Vit D
2 Coral Calcium
1 CoQ10
1 grapseed extract
??? Did I forbet something? That old - did I leave my child at the mall feeling...

B12 IM injection when I remember- hydroxylcobalamin

Used to do my Power green stuff shake with nuts and seeds, but appetite not great. Now I try to eat yoghurt.

If I am missing something important, please let me know. Also I read something perhsaps controversial about Vit D and doxy? and grapeseed extract vs grapefruitseed extract. Thanks. Ilene


 


Posted by lymeinhell (Member # 4622) on :
 
Hey Heather,

The only things I see missing are

Vitamin C

Milk Thistle (you need to flush your liver and protect it from toxins)

Magnesium - why not take a lower dose more frequently. You can only absorb so much at once - the rest goes 'through you', so 250mg once a day isn't the optimum. And adding a lower dose right before bedtime will help you sleep better. But what do I know anyway..

And what type of multivitamin is it??

------------------
Julie G.
___________
lymeinhell
 


Posted by HEATHERKISS (Member # 6789) on :
 
Julie,

ONE A DAY WOMENS MULTI. I used to take a fancy multi pack from the health food store but I got tired of all those pills. One a Day has been on sale for cheap lately.

H
 


Posted by Lymetoo (Member # 743) on :
 
1 nystatin won't do much, IMHO. I take 4 daily as maintenance.
 
Posted by aliyalex (Member # 6976) on :
 
I meant the doxy and the nystatin was 4 tmes a day and rifampin was 2 X per day. Sorry.
 
Posted by HEATHERKISS (Member # 6789) on :
 
C'mon..........

Who else?

As of today diflucan & valtrex is a daily and biaxin is being bumped up to 3x per day.

Maybe I should change that on the orginal post.... ya

Heather

 


Posted by SteveInMinnesota (Member # 6661) on :
 
For me, the "for better or worse" covers keeping track of my medication schedule. My brain just doesn't work well enough to do it all
 
Posted by HEATHERKISS (Member # 6789) on :
 
up

List everything you take......
 


Posted by HEATHERKISS (Member # 6789) on :
 
up
 
Posted by cmichaelo (Member # 5873) on :
 
Another depressing list for you all...

8am Breakfast
Plaquenil 1/2 dose
Artemisinin 200 mg
LifePak 1 pak
C-vitamin 1 g
Mag 800 mg
10am Snack
DHEA 50 mg
Nattokinase 100 mg
Bromelain 500 mg
Acidophilus 4 tabs
12:30pm Chlorella 1 g
1pm Lunch (fatty)
1:30pm Malarone Full dose
Plant+Fish Oils Not sure bout dose
Saw Palmetto Not sure bout dose
C-vitamin 1 g
4pm Snack
Mag 800 mg
Acidophilus 4 tabs
6:30pm Chlorella 1 g
7pm Dinner
7:30pm Plaquenil 1/2 dose
Curcumin 1 g
Artemisinin 200 mg
DHEA 50 mg
C-vitamin 1 g
8pm Snack
Minocycline 150 mg
Amoxicillin 13.1 g
11pm Acidopholus 4 tabs

I'm also doing chelation at the same time and taking mineral supplements in between chelation periods. Also taking supplements to help liver during the detox process.

Michael
 


Posted by HEATHERKISS (Member # 6789) on :
 
CHANGING.......... my original list is now editied.
 
Posted by pq (Member # 6886) on :
 

a watch with an alarm set to sound-off at certain time intervals.

Gentle, but firm warning, desperate as we are:
Paraphrasing a caveat I heard to use as a heuristic(rule of thumb):

The chances of a serious, if not life-threatening side-effect,and/or adverse reaction increase exponentially if taking more than 3 of a mixture of medicines, herb,dietary suppl., otc medicine,etc.

At 3 of any combination of the above items,it seriously taxes the ability of health professionals to determine whats causing what. My inference from someone quoting a study of mixing "this, that, and the other thing."

The number '3' is the only verbatim word I recall from 3-4 yr. ago.

Personally,anything over 3 items I consider a 100% chance something serious will occur, even if a herx were to occur at the same time.

We can best connect things that occur close in time, but rarely would we connect a serious reaction, side-effect days, week(s), month(s), and perhaps year(s) away from that mixt. taken whence. With lyme and some other TBDs most of can, almost without thought, but we tend not to do so with medicines, and/or a mixt. of stuff, unless specifically instructed to observe for something. Something could develop slowly over time.

 




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