does anyone have experience with HBOT. my son is 2 1/2 and is autistic and has lymes and I am planning to try this treatment. any thoughts on it or advice? thanks.
Posted by Linda LD (Member # 6663) on :
I corresponded with a lady recently whose child was autistic and he COMPLETELY recovered after being treated for Lyme.
The doctors said she had menchovers by proxy when her child got better--you might want to read that recent thread over on the other discussion site.
Best of luck to you,
Linda
Posted by marciap (Member # 7268) on :
thank you for your note. where is the other discussion site where i might find the info on lymes and recovery from autism!? thanks.
quote:Originally posted by Linda LD: I corresponded with a lady recently whose child was autistic and he COMPLETELY recovered after being treated for Lyme.
The doctors said she had menchovers by proxy when her child got better--you might want to read that recent thread over on the other discussion site.
Best of luck to you,
Linda
Posted by ibrakeforticks (Member # 6785) on :
I heard Dr. Buttar (www.drbuttar.com) has had success with autism, by treating mercury toxicity with transdermal DMPS.
Posted by 24bit (Member # 6531) on :
All I can say is HBOT has helped me a lot.
Posted by tikbit (Member # 6629) on :
Several of the members of my lyme support group do HBOT and they all have had positive results including herx's.
I am in the process of getting aproved for it by my ins. Most of them have an erroneous dx for ms and the only good thing about that is their ins will pay for HBOT for ms, but not for lyme.
I am (hopefully) getting it for migraines since it has been approved for that. It definitely works for lyme although personally I believe that you must do bx too.
My group leader has recently had to go back on them in spite her HBOT and Colloidial Silver, but she has chronic lyme like a lot of us.
Posted by 24bit (Member # 6531) on :
There's a tremendous amount of misinformation in what you just posted, and it's called HBOT, not HBOC.
[This message has been edited by 24bit (edited 10 June 2005).]
Posted by davidsmom (Member # 9900) on :
I have given my son 10 treatments with low pressure hbot(3PSI) and so far I see no improvement in fact he is getting worse. He is autistic as well..He is now talking to himself more and has sinus congestion.Additionally he is more hyperactive. Is this what herxing is and how many more treatments do I do?I am afraid I am making the Lyme worse. Thankyou Laura Ballen>
Posted by oxygenbabe (Member # 5831) on :
It is annoying when people who do not use a treatment post that it is not valuable.
David's mom...have you looked into the DAN! doctors or Amy Yasko's work? They're having success with autistic children.
Posted by BOEJR (Member # 1734) on :
Hi Mari and all,
I have a little experience with these kids. Here is what I have seen and my opinion...
If a child is autistic he has to have his system checked for allergies,, especially gluten etc.
He has to be checked for metal toxicity and have it treated. Chelation is give oral IV and transdermal. The parent is the one to make that choice along with their doc but it's vital to include the therapy IMHO.
Right know there is a great void if you will in the connection to what I call lyme related autism. I have started to include the question to my clients as to whether any on their children has ADD or ASD... I have gotten more yeses then I care to hear! HELLO!
Most DAN (Defeat Autism Now ) Not (Divers Alert Network) docs are not familiar with the link of these kids ( Lyme Autistic ). At least I haven't found one.
Finally, When treated with HBOT for the most part and as a concensus in the HBOT professional community they should be treated at higher (1.75- 2.0 ATA) pressures. They do not show much benefit at lower pressures (ie 1.5 ATA)
Blessings,
Julia
Posted by oxygenbabe (Member # 5831) on :
The parents get lyme/cfids, the kids get autism, they have similar vulnerabilities...
Chelation can be a problem if their methylation pathways aren't working correctly.
Sometimes they start dumping metals on their own, from recent research I've been doing...if you correct methylation, diet etc...get infections under control. That would be true of us, too, hopefully. The infections--viral, fungal, bacterial--and the metals seem synergistic.
You can monitor this through urine tests.
You're right, not many get the lyme connection as of yet. Also, taking the kids off gluten and casein helps most of them, whether or not "sensitive" on allergy tests...
I am not sure that the consensus is that higher pressures are necessary. Mild chambers are very popular now in the autism community and I just spoke with a parent last week whose child saw good improvements with home hbot..however, they also did lots of stuff...with various interventions, each one brings some improvement.
Posted by pq (Member # 6886) on :
any leads and links, best authors on methylation, and other pathways?
Can you have the clinician or DAN doc rule out fungus? This will sometimes cause that type of reaction in ASD kids undergoing HBOT. You may have to add in difulcan.
Is he taking antioxydants? Detoxing?
You should also observe him closely and make sure that his ears are not inflamed from the descent.
I will tell you that a mild regression is not uncommon before you can see benefits begin.
Hope this helps,
Julia
Posted by oxygenbabe (Member # 5831) on :
Julia, it is nice you are working with autistic kids. That is another community you can really help. Did you read Pangborn and Baker's book, Biomedical Approaches to Autism? Much can be applied to lyme.
Posted by BOEJR (Member # 1734) on :
Hi Oxybabe,
No I didn't, But I will look into getting them if you email me the names and authors. Thanks for the tip.
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