She is not diagnosed with lyme, but her sister and brother are being treated for possible lyme. They both had attached deer ticks for 48 hrs. Since I found the ticks two months ago I have been reading as much as I can about lyme and I have been reading everyone's posts on lymenet trying to learn what I can.

With that said, I have become extremely paranoid that I might miss early symptoms of lyme with any of us. I have been watching my 8 year old closely these last two months and the only thing that has ailed her were a few mild morning headaches, ear pain (she swims everyday so I have thought swimmer's ear although doctor says ears look good but could be the beginning), and now this stomach pain that came on very suddenly and is not getting better. I did take her to the doctor Wed. and they ruled out apendicitis. Her white cell count was high on a urinalysis but the culture came up negative. So they don't know what is wrong.

Should I be alarmed? What experience have any of you had with subtle symptoms in children? Should I not be worried anymore since two months have passed since the "terrible" hike we took and I haven't seen any "classic" symptoms?

As any mother, I just want to do what is best for my kids.

Thanks
 

UP
 

slides then

corson

[This message has been edited by janet thomas (edited 15 July 2005).]
 

THERE ARE MANY STORIES WHERE JUST BECAUSE THE WHOLE FAMILY WAS SOMEWHERE OR BROUGHT HOME TICKS...THE WHOLE FAMILY EVENTUALLY CAME DOWN WITH LYME....
SO BEING CAUTIOUS ABOUT IT IS VERY GOOD.
THE WHITE BLOOD COUNT BOTHERS ME CUZ I HAD THAT FOR THE LONGEST TIME BEFORE I EVER GOT MY LYME DIAGNOSIS....AND NONE OF THE DUCKS EVEN CONSIDERED IT...
IT COULD BE THE 'SWIMMERS EAR' AND THE TUMMY ACHE MAY BE JUST THAT BUT WHY RISK IT.

IF IT WERE ME AND KNOW WHAT I KNOW NOW I WOULD HAVE EVERYONE CHECKED FOR LYME AND FAST. YOU CAN'T BE TOO CAREFUL....CUZ IF YOU CAN CATCH IT EARLY YOU MAY BE ABLE TO AVOID A LOT WORSE JUNK LATER.......THE MISINFORMATION ABOUT THE TICK HAVING TO BE ATTACHED FOR 48 HOURS IS A GRAVE MISTAKE...THE SALIVA THE TICK USES TO ANESTHETIZE IT'S BITE SITE CAN CONTAIN DISEASES......ZMAN
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[This message has been edited by lymie tony z (edited 15 July 2005).]
 

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Do you see Dr. J the pediatric lyme specialist in CT?
I wonder if you called him and asked the office what they recommend for stomach pain relief then do the testing etc...

hope she feels better soon...5 days is too long and is worrisome.
let us know how it goes!
 

This is just my opinion but, if I were you I would get ALL my children tested with a

Western Blot test at either IgeneX or MDL Labs and FAST!! My daughter was bit by a

tick when she was 11 in a place where there is NO LYME and she is 24 now. There is

still NO LYME cases reported here. Do not mess with their lives. I know from

experience that it can and will steal their young carefree lives away if they get

infected. It is just a blood test, do it and rule it out, if for no other reason than for peace of mind.

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ICEY

IDAHO LYME SUPPORT GROUP
[email protected]

[This message has been edited by ICEiam (edited 16 July 2005).]
 

She did NOT want to go be tested. She felt great. She hates needles. She hates pills.

I stressed every time she had a headache.

Her knee started bothering her for no apparent reason and I stressed.

Finally I drug her down with me and had her tested through IGeneX.

I told her, "If you grow up with Lyme disease really bad, how would you forgive me for not MAKING you go get tested?"

I prayed she would be negative.

She was CDC positive.

You will feel much better when you go get her tested at IGeneX.

Good luck and I hope she feels better soon (and is negative, too!)

Michelle M
 

I would have loved to have had the opportunity you have, early testing, early treatment is always a plus with lyme.

I don't recommend "chance taking" with such a debilitating disease.

Facing fears head on is the way to go with this disease. Chances are much better now that she will recover fully from it! I think it is great you are being so careful, and no you are not paranoid.

Another thing, don't ever let anyone (especially a reg. doc) talk you out of your parental instincts.

If it had not be for our God given instincts with our daughter's diagnosis and treatment, she would still not be undergoing treatment for lyme!

Still as Michelle said, I hope that she doesn't have it.

I also want to add that all testing is not completely accurate and I would continue to write down and pay attention to any unusual symptoms, head, stiff neck, joints (migratory), etc....

Those are big clues that you cannot afford to miss.

Please take care and let us know how things go.
 

We did the IGeneX Western blot IgM and IgG. Showing past/present infection. She had four 'indeterminates' on IgG (past infection), and six positive bands on IgM (18, 23-25m 39m 41m 58m 66).

That will set you back about $190 these days.

But if your "gut" is worrying you this much, you ought to listen to it. You will spend much much more down the road if she has it!

Fingers crossed for all negatives since it looks like you've got a serious handful going on already!!!

Michelle M

[This message has been edited by Michelle M (edited 16 July 2005).]