that said...
my sister is REALLY sick. she just got a state certified lyme diagnosis friday and started on doxy. she is.. just.. SO.. sick.
i would like to be able to refer her here for information once she is a little better because i have learned a LOT here in the past year of knowing i have lyme.
BUT!
quite frankly (some of) you guys are acting like a bunch of idiots, and i am embarrassed to send her here. she is way to sick for all the crap going on.
you know what, dammit? so am i, and i am quite functional.
maybe those who want to scrap can take it over to sci-med and let the valuable MEDICAL information here be shared with people who are sick with lyme disease, who need it.
and btw, some of the ones crying "foul" the loudest are worst offenders of all.... and a few of you have surprised me lately.
Is there anything we can do while she is waiting to come here for some information?
Perhaps emails would be better for now?
If she needs anything.. please let us know.
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If you get the choice to sit it out or dance...
sorry to hear about your sister.
consider giving her a collection of links, passages, writings,guidelines,etc.
Wrtitings of Burrrascano, Bransfield, Fallon, and Bleiweiss. Spot-on phenomenological rendering of lyme and other TBDs.
wishing best of outcomes
pq
Well, aside from that, she might try www.lymeinfo.net and there is a yahoo lyme group that doesn't seem to attract as many trolls and sales pitches. The format is not as user friendly, though.
Just double checked the lymeinfo site. Not able to get in at this moment, so try later maybe.
[This message has been edited by lou (edited 16 July 2005).]
Thanks for the plug! HEHEHE
DO you mean the site was down or you couldn't find the yahoogroup? The site works for me at this second, and the list of forums is found at: http://www.lymeinfo.net/directory.html
There's also the LymeInfo email list.
Loribelle, I don't support your name-calling, but I do hear your frustration and hope some of this info helps your sister.
Cheryl
quote:
Originally posted by lou:
Sorry about your sister. One big source of info she has is YOU!!!Well, aside from that, she might try www.lymeinfo.net and there is a yahoo lyme group
Just double checked the lymeinfo site. Not able to get in at this moment, so try later maybe.
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*Lyme Disease Information By Email
*Lyme Disease Information Online
*Computer Infection Info
It used to be tightly moderated and was a much happier place to be!
http://flash.lymenet.org/ubb/Forum3/HTML/013149.html
[This message has been edited by Lymetoo (edited 18 July 2005).]
Hope she is religiously taking her medication and drinking a lot of fluids. Try Poweraid for electrolytes during the summer heat. Made by Cokacola and tastes better than Gatorade. She should start feeling better within a week, but will feel worse when she herx's every three weeks or so - when those damn little bugs reproduce inside of her. But, at least the Herxing will show that the medicine is working and getting them.
Just be sure she's treated for at least three months and that the dose is high enough, like 400 mg of Doxy a day. Don't let her doctor give her only three to six weeks worth of medicine. It won't begin to do the job and she will only suffer a relapse sometime later. I know, having been through that myself and learning the hard way.
Tell her she will get better. I have been improving steadily since last winter and feel great now, yet last fall I was close to flattened. I began to be able to function, had bad days, went through a stretch last fall when I thought I would have to live with Lyme always. Now I seem to be free of all symptoms. I even took my mother and son on a trip to Europe last winter while on Doxy. It was hard, but I did it and actually felt better afterwards.
I found a lovely yoghurt like pro-biotic drink in my supermarket's organic section. It came in quart size and different flavors. I still enjoy it.