This is topic Off ABX about 2 Days ................ in forum Medical Questions at LymeNet Flash.


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Posted by robi (Member # 5547) on :
 
Had to stop I was feelng so toxic ............. and emotionally enraged/drained/despondent.

I am feeling better brain wise ...... could physical symptoms be coming back so soon or am I just paronoid? My syptoms never completly resolved, but I still feel like I needed to stop after a year and 4 months straight.

I see my LLMD in a couple of weeks and plan on staying pff until at least that time.


Thoughts? Opinions?

robi
 


Posted by troutscout (Member # 3121) on :
 
I've been going almost 3 years straight.

Taken small breaks...they never were gone...the symptoms....I learned to do liver flushes, ect instead.

Trout
 


Posted by Jellybelly (Member # 7142) on :
 
Hi Robi

I just saw my LLMD on Tuesday. I have been treating for yeast with Diflucan over the last 6 weeks. Since I last saw him I haved been herxing pretty bad on the Diflucan alone. I tried to tough it out for the first 2 1/2 weeks, but it got so bad that I couldn't even drive. Nearly ran 2 people over. Scared the crud out of me. I felt so toxic, especially in my brain.

I stopped the Diflucan, just couldn't do it. Then a couple of weeks later I tried again. This time was better, but the herxing in my feet was the problem. After about 2 weeks it got so bad I couldn't hardly walk so I stopped again.

When I told my doc, he said, "why didn't you call me"? He then totally changed everything around. Lowered the Diflucan even lower, but I'm not to even try it unless, I can be comfortable with the Cortef I'm starting at very low doses, the additional magnesium in the form of a powder, the multi vitamin, and the fish oil. The later 2 make me get muscle cramps right off. Then I am to take the Diflucan as tolerated, stopping if I have to. He does NOT believe "pain means gain". Sure we are going to herx likely, but it doesn't have to look like a train wreck.

I haven't even gotten to the ABX again. Can you believe all of this and I generally feel in 95% remission?

In my experience, taking a break and letting the body recover seems to be a good thing. It often seems that in my case, my body goes on repairing things even after I stop treatment. After a break, back to work I go. When I can get to a full dose of Diflucan and ABX, without herxing, I'll know I am finished.....for now.

Give your body a rest. It might even surprise you the subtle little positive changes that are there. There might even be some big changes, who knows.
 


Posted by tjtighe (Member # 4057) on :
 
Hi Robi. "Enraged, drained, despondent" sounds exactly like me on Ketek. Took 800 mg. for 3 weeks, then just had to stop. After 5 days started taking 400mg. Felt like you the first two weeks--very unlike me. Still giving me rotten headaches, tho. Tried adding half dose of Omnicef 2x/day and had to quit that too. Was getting totally drained of any energy or spirit. I will try starting that again in a few days.

I've been thru this scenario sooo many times. Usually if I stop for a while and start it again, my body seems to tolerate it. Hope so.

Crossing country to move I put myself on low dose of minocin and 2 doses of CSM and did better than I expected.

Just one more person's experiences.

Good luck. Take care.

tj
 


Posted by robi (Member # 5547) on :
 
I do feel better off than on for now..... still I am worried I am letting the bugs multiply but I guess they just don't move that fast. If they did we would be rid of this by now.

I am going to do several cleases in the nexr few weeks. Next month I hope to start a metal detox. If I can stay off abx for all of this I will be happy ..... not sure.

Thanks for the shared experiences.

Trout ..... how much longer do you think you will stay on without a break??

robi
 


Posted by Monica (Member # 224) on :
 
Just my story:

I feel I have wasted 7 1/2 years by never treating my LD properly, and as a result I now have an even steeper uphill battle.

The LLMD I am seeing now treats until all symptoms are gone. For me, that must be the case or I will never lick this thing.

Fortunately, I tolerate the meds well. Yes, I herx, but aside from missing a few days of work here and there because of weakness, I seem to be doing well.


 


Posted by groovy2 (Member # 6304) on :
 
Hi Robi

I have been taking Doxi for 2 years--
There has been several times I ran
out of meds for a few days--
Each and every time this happened
my symptoms came back hard in 2 days
and I lost ground each time--

I was very suprised the germs could
react this fast--but they did--
Made me realize just how nasty
these germs are---Jay---
 


Posted by hiker53 (Member # 6046) on :
 
Robi,

I weaned off antibiotics in May after 9 months of use. I feel much better off the antibiotics than on them. I do take nystatin and diflucan for one more month.

I felt the time off helped my body kick in its natural immune system and helped me detoxify.

In August I started the vitamin C/salt protocol and did herx for awhile, but feel good again. I will ramp up slowly. I do rife, too.

Sometimes I think too many antibiotics or being on them too long can really mess the body up. I am not a doctor and I am not telling people what to do. I my case getting off them was the best decision I ever made in regards to lyme. Hiker
 


Posted by robi (Member # 5547) on :
 
Day 3 off .... can't say I feel greta but I am not still wanting to jump off a building .... so that's good.

Thanks for all the input. Hiker I would love to go the rife route. When I have more enrgy I would like to email.

robi
 




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