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Posted by isabel (Member # 8022) on :
 
Hi, I'm from Canada (Qu�bec)
Sorry my english is very bad
I have many questions?

I have lyme desease, trip to Virginia june 2004
Test Igenex IGG and IGM positive, I have also a co-infection bartonella (positive).

We start ABX after 3,5 months after my trip
(lyme neuro)

Traitments
ceftriaxone (2gr. by day) for 6 weeks
doxy (200mg)for 4 months
biaxin (1000mg)and doxy (200 mg) for 2 months
flagyl (1000 mg) and biaxin (1000 mg)2,5 months (very heavy)
Now I take cipro (1000mg) and biaxin (1000mg) for 4 weeks for trait bartonella.
Do you think it's enough 4 weeks for bartonella, my doctor,think the bartonella gones alone.I'm not sure.
My futur traitement is plaquenil and biaxin.

Many symptomes gones but i have always headhach,tired and anxious. Sometimes difficult to my articulations.

One years traitement and i'm not O.K
My doctor don't understand why I'm not O.K.
Did he have somebody O.K. after traitement and have a life normaly?

I smoking also, is it for that i'm not O.K.?
We don't have specialist in Qu�bec, do you think i have a good traitement
How long before the life come back normaly?
Thank you
Isabel
 
Posted by NP40 (Member # 6711) on :
 
Hi Isabel,

One year is not a long time to be treated. Many here have been treated much longer. Here in the US doc's often use levaquin, or rifampin along with an abx to treat bartonella. Many here are treated for several months to get rid of the bart. You mentioned that your doing much better, however, you have to get rid of the bartonella first before you can get rid of the lyme.

You should quit smoking as well.

Click on the following link and print it out to show to your doc. Dr. B is one of the best lyme doc's in the world.
http://www.ilads.org/files/burrascano_0905.pdf
 
Posted by Lymeblue (Member # 6897) on :
 
4 months on levaquin for my bartonella and I don't know if I'll get retreated for this co-infection again.
 
Posted by isabel (Member # 8022) on :
 
Thank you

For my test bartonella
Igm was n�gative
Igg was positive 1:160

It's for that reason my doctor said you don't really bartonella. I don't understand why?

When you take Levaquin, is it important take plaquenil also, for the cellules?
Thanks Isabel
 
Posted by christelleny (Member # 6719) on :
 
Isabel,

Je voulais juste te souhaiter bonne chance.
Je suis dans le meme cas que toi et n'en vois pas la fin!

J'allais beaucoup mieux apres 8 mois de traitement contre Lyme quand le test est devenu positif pour la Bartonella. Mon docteur a arrete Zithromax et l'a remplace par Rifampin (en conjonction avec Doryx, que je prennais deja). Il pense que Rifampin est ce qu'il y a de mieux contre la Bartonella et m'a explique qu'il faut en effet traiter la Bartonella AVANT Lyme, car c'est plus dangereux (car ca agit au niveau du cerveau et du foie).

Mon docteur m'a dit plus d'une fois que mon hygiene de vie m'a probablement sauvee la vie. Essaye d'arreter les cigarettes tant qu'il est encore temps.

Bonne chance.

Christelle (une francaise dans le Connecticut)
 
Posted by Corgilla (Member # 4066) on :
 
Hi Isa,

I guess having a French brother-in-law has helped my French language because I pretty much understand what Christelle wrote in her message.

Cipro and Levaquin are both quinilones and can have the same results against Bartonella. I believe the mainstream treatments are either Levaquin or Cipro (a quinilone) along with Biaxin or Zithromax (a macrolide).

Rifampin is also used as an alternative to the quinilone/macrolide treatment. It seems that adding a tetracycline (doxy or mino) with Rifampin is also done.

If you don't think you have treated the Bartonella enough in 1 month tell your doctor you want to continue treatment. I've read that 4 months is what has worked for some.

You may already know about it but I would like to recommend the Canadian Lyme Disease Foundation site to you. It has lots of information for Canandian Lymies. Go to www.canlyme.org and see all the info they have.

I am positive IgG for Bartonella but have not been treated for it (yet).

Take care,

Corgilla
 


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