Is tachycardia the main symptom for any of you? I have supine and standing tachycardia along with adrenaline surges. I feel so alone. Anyone else have this?
tidegal
Posted by klutzo (Member # 5701) on :
Hi Tidegal, Tachy is a major problem for me too. Do you know what type of tachy you have? If not, a Cardiac Event Monitor would be a good idea. A Holter monitor often will not reveal the problem. I turned out to have Paroxysmal SupraVentricular Tachy, and the drug Verapamil, in slow release form, has been a major help to me. I also have the adrenaline surges, which raise my blood pressure into the "hypertensive crisis" zone. Clonidine is the only thing that helps with that, and avoidance of over stimulating circumstances and toxic people....hard to do sometimes. If you can tolerate Klonopin, it may help with this more than Clonidine. (I can't take Klonopin, since it makes me stop breathing.) Also, hypoglycemia can contribute to adrenaline surges, so make sure you are eating enough protein and eating often enough, and avoid simple carbs. Regards, Klutzo
Posted by Lymetoo (Member # 743) on :
I have tachycardia, but I don't really know the cause. I have mitral valve prolapse with regurgitation, but I don't know if that affects it or not.
It first showed up as a real problem when I was herxing on meds for babesia. Hasn't left me and that was 4 1/2 yrs ago.
I take atenolol for it and that keeps my heart rate between 80 and 110....usually.
Are you on meds for it??
Posted by WildCondor (Member # 434) on :
It sounds like Lyme-induced Neurally Mediated Hypotension. I have the same thing, and it has been my most difficult symptom to get rid of. It is diagnosed with a TTT (Tilt Table Test) done by a Cardiologist. Basically, it is a drop in blood pressure and an increase in heart rate upon rising from a seated position. You get symptoms from exercise, prolonged standing, getting up to quickly, after eating and in the heat. You are right, it is an adrenaline surge as well, that is a big part of it. You can go to a cardiologist and they may do a full workup, the stress test, holter, etc. Treatment for me has consisted of beta blockers (Atenolol, florinef, and zoloft) all have helped very much. email me if you would like more info. [email protected] Posted by arg82 (Member # 161) on :
There's something else that's related to NMH (what WildCondor mentioned) called POTS - Postural Orthostatic Tachychardia Syndrome. It's similar to NMH in that it's caused by dysfunction of the autonomic nervous system (Dysautonomia) but it doesn't have as much of the blood pressure swings as NMH does. I have NMH (also called Neurocardiogenic Syncope or NCS for short) which was diagnosed with a Tilt Table Test but I didn't have the increase in my heart rate that some people have. And actually the "classic" NMH or NCS response is to have brachycardia, or slower heart rate, when the blood pressure drops (it's actually the brachycardia that causes the blood pressure drop for some people).
So, here are some sites about Dysautonomia and POTS specifically:
I hope that helps! There are various things that can cause tachycardia so I think it's important to investigate all of them to figure out what it really is from! It might be something that can be treated in addition to the Lyme to help you feel better (with Dysautonomia there are certain things you can do to reduce problems and some medications that can be given).
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