LymeNet Flash: So far..this has been a crappy New Year..Need to Vent...

This is topic So far..this has been a crappy New Year..Need to Vent... in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/40456

Posted by lymebrat (Member # 3208) on :

Hi Guys,

I know this should be over in general,(i'll post there as well) but many of my lymenet buddies seem to hang out over here...

I am having a crappy New Year and just wanted to come to my Lymenet pals to vent...

This has been a horrible holiday season for us. First, as most of you know, my 7 year old daughter was diagnosed with type 1 juvenile diabetes 7 months ago. She was in the hospital on dec 21st, due to large ketones ( a complication of diabetes) she had to have IV therapy and it was a pretty scary night....what a way to start the holiday season and her Christmas vacation.

We are still having to struggle every day to get her blood sugars under some type of control. Things like sickness and stress can send her blood sugars sky high.

Well, my Grandmother had a bad heart attack on Dec. 29th. The tech in the ER said they had never seen anyone have such a severe heart attack and not die while in the ER.

We were blessed, as Gram did make it out of the ER and was admitted to the heart unit at the hospital. We had 3 wonderful days with her there. She looked so good, you would never know how sick she truly was. She passed away on Jan. 3rd.

We are so blessed to have been given those 3 days to say our goodbyes and to let Gram know how much she was loved. Not many people are given those final days to say goodbye, so I am truly thankful, I was given them.

Mikayla has always been Gram's little princess and when Mikayla was diagnosed with diabetes, Gram worried about her constantly.

So much so, that the last words that Gram spoke to me were, to watch over Mikayla.. and the last coherent words she spoke, were to my nephew and his wife- she kept saying "Tell Mikayla I love her"...

Mikayla took Gram being in the hospital and passing away very hard, her blood sugars were so high that they wouldn't even register on her meter, it just read "hi" ( which read as high as 600).

We did let her go to the hospital the 3 days Gram was well and Mikayla just loved being with her gram, but when gram got to the point where she didn't recognize any of us, I wouldn't let her go.

So the stress of knowing her gram was dying, and the fact that I never left the hospital until Gram passed, really took it's toll on Mikayla's blood sugars.

Thankfully now that things have settle down a bit, she is doing a little better. But as luck would have it, she got a cold yesterday, so her blood sugars are acting up again. Last night before dinner her blood sugar was 595 ( should be 80 -120) and when I checked her before bed she had gone down to 57, which is too low.

So I had to stay up most of the night, making sure that her blood sugar didn't drop into a dangerous low. It is such a daily balancing act, to get her blood sugars in the target area. I am told it is very hard to get any type of control the first year, but that it does get easier..I hope so.

And on top of all of this, I have been fighting pneumonia since Dec 15th. I went back to the doc last Wed. and my chest is clearing up, but now I also have a sinus infection. Figures. lol!

So, there's my story...

I feel like Eeyore from Winnie the Pooh, with a giant rain cloud over my head. [Wink]

Those of you who know me, know I am not a stranger to bad luck.. (I have lyme as do both of my kids) but it sure does seem like life is throwing me a little more bad luck than usual lately.

Maybe I should start carrying a rabbits foot or something..any ideas? lol!

I do feel a bit better after venting..thanks!

But hey, even with all the bad stuff, I still am continuing to look for the good in every situation. Gram died and I miss her dearly, but she lived a good, long life and we were blessed by having 3 days to spend with her and to tell her how much we loved her...

Mikayla was diagnosed with diabetes, that definitely sucks! and her having diabetes, has been the hardest thing I have ever had to face..

but when I take her to the children's hospital, I am reminded how blessed I am, that my daughter has a disease that with constant supervision, blood sugar monitoring and daily insulin injections... she will hopefully be able to live a long, healthy life..many of the parents at the children's hospital, aren't so lucky..

And as far as lyme goes, things are okay. My daughter and I are still off meds and so far.. so good, ( though I am wondering if with the pneumonia and stress is giving me a relapse?)

And my son is still on meds, but he is doing better. His biggest problem continues to be the bad joint pain and the issues he has to face at school, due to joint pain effecting his handwriting and school work.

So while I do feel like Eeyore with a Giant rain cloud pouring down on me, I guess I feel a bit lucky as well. I think I need to get a bigger umbrella LOL [Big Grin]

Thanks again for letting me vent! I hope you all have a wonderful New Year!!!

~Missy

Posted by Melanie Reber (Member # 3707) on :

Hi there Missy,

Goodness, you have had your share and then some of hard times recently, haven't you?

Just letting you know that you and yours remain in my thoughts and prayers.

Much love,
melanie

Posted by Beverly (Member # 1271) on :

Hi Missy,

I am so sorry to hear of all that your family has had to go through. And very sorry for your loss.

I will keep your family in my prayers. [group hug]

Posted by lymie tony z (Member # 5130) on :

Hey there Brat,

I have a golf umbrella I'm not using at present!

Maybe you need one of those beach umbrella's...but don't open it in a lot of wind or you'll be doin a Mary Poppins.....

Hang in there......zman

Posted by timaca (Member # 6911) on :

Missy~

You are doing the right things by trying to look at the bright side in each and every situation. You are an inspiration to all of us in that regard.

Chuck Swindoll writes the following...and you exemplify it. I keep it on my refrigerator:

The longer I live, the more I realize the impact of attitude on life.

Attitude, to me, is more important than facts. It is more important than the past, than education, than money, than cirumstances, than failures, than successes, than what other people think, say or do.

It is more important than appearance, giftedness or skill. It will make or break a company, a church, a home. The remarkable thing is we have a choice every day regarding the attitude we embrace for that day.

We cannot change our past, we cannot change the fact that people will act in a certain way. We cannot change the inevitable.

The only thing we can do is play the one string we have, and that is our attitude. I am convinced that life is 10% what happens to me and 90% how I react to it. And so it is with you. We are in charge of our Attitudes!

Posted by lymebrat (Member # 3208) on :

Thank you all for posting. I truly appreciate it. [Smile]