been seeing a psychiatrist & psychologist and both never heard of lyme rage. i have been educating them on dealing with lyme disease and chronic diseases also. given them much literature, but none of the literature speaks about the treatment for the lyme rages. Dr. Bran**** mentions aggression and lyme disease.
my llpsych's want to know how to treat short and long term, any suggestions????? one thinks the rages are part of a larger bipolar disorder and wants to treat with bipolar meds. the other feels it should be treted symptomatically with xanax or fast acting clonopin until it clears.
all opppionions welcome and appreciated
dr. dave130
Posted by hardynaka (Member # 8099) on :
hi Dave, I'm not a serious sufferer, but get rages only when herxing.
But rage episodes are serious. I'm a calm person otherwise.
I go for a jogging if I can, if not, take Chitosan, from shellfish. It does help for me. Recommended by S. Massie, who deals with many lyme patients (not a doctor, I think she's a nutritionist or something like that).
Problem with Chitosan, no side effects for me so far, but it may take out Vit B from the bowel, so you need to take all fat soluble supplements far from Chitosan.
Drinking tons of water doesn't help when it's too serious, but I also drink a lot.
I'm sure other people here could give you more advice.
Selma
Posted by ebrischoux (Member # 7281) on :
Well I can only tell you that my son herxed in RAGES.....I couldnt get any help from our two LLMD's on it either...He is taking risperdal and topamax for previous aggression but once herx started it got pretty nasty here..
So far I have used Charcoal a few times....I have used Alka Selza Gold and that seems to calm him down quickly if I catch it at the beginning....Has something to do with neutralizing toxins......I dont know why it helps...
I have just started using Burbur Extract for Detox too.....I also give him magnesium and zinc which being low in either can cause aggression (in my son anyway).
I have also used the Chitosan but only twice and it did help....
Posted by vitch (Member # 8094) on :
I give the rage to the air. My neighbor gives it to God.
Posted by liz28 (Member # 4946) on :
For me, the rages were entirely about systemic inflammation. I had bart and Lyme for five years, and am pretty close, hopefully, to being done with babs. The entire time, Celebrex, theanine, and provigil helped with the rages and moodiness. If you do try provigil, you can break it up and take 50mg four times a day, instead of the standard 100mg twice a day. As the bart and Lyme faded away (and pray to God, never return), the rages they caused stopped right away. No kidding.
Here's what worked, or seems to be working, for right now. These are 100% NOT the only answer! Who knows what will happen tomorrow?
Lyme: omnicef, ketek, pulsed flagyl, liver support (required with ketek). 1 1/2 year treatment, delay of at least one month until you start seeing improvement.
Bart: rifampin, ketek. Five month treatment, herx lasted six weeks.
Babs: mepron, ketek, artemisinin supplements, with primaquine as "cyst buster."
Posted by bettyg (Member # 6147) on :
docdave,
Wondered where you had been! Several people have dental problems & I thought of you immediately.
Zoloft helps me control my temper outbursts! Just a couple of times recently when I got upset.
Posted by Aligondo Bruce (Member # 6219) on :
opium derivatives such as morphine, hydrocodone, and heroin are unfortunately addictive.
intense exercise will help.
I've found that most of my rages are provoked by pettiness, nagging, sound in general, bright lighting, and lack of understanding. People who you see regularly such as close friends and family should be informed as to the nature of your problem.
If they still harass you and cause unneccessary noise and stress, then stay away from them.
To avoid *****ing about washing dishes and other petty household tasks that some professional hags enjoy torturing lymies with, try using paper plates and plastic silverware and sleep on top of the covers.
Stay away from obsessive-compulsives, heavy metal fans, and type A personalities. You might severely injure someone.
I have concluded that I could only find true love with a fellow lymie who understands my aversion to noise, haglike behavior, nagging, and long conversations about how terrible someone's day has been.
Anyone who is interested, female, late 20's all the way to mid 40's, email me. You must have at least half of a brain and be content on your own. I'm handsome enough but it's all going to waste because I'm a lymie who can't stand other humans in more than tiny doses.
I understand the rages and would even look forward to the occasional fisticuffs. Perhaps we could take up boxing.
Posted by pq (Member # 6886) on :
contributors/inducers/"augmentors" of lyme rage seem to me to be :
gingko bil.,definitely. this affects people with thyroid problems, and Bb affects thyroid gland functioning.
high doses of B6,B2,at least oral vitamin C,in some individuals. i don't know if i.v. vit. C does this though. these things facilitate production of quinolinic acid production, which in turn is manifested as, at the least, irritability.
check lit. on babesiosis, since some docs state that babs makes the manifestations of lyme look worse than they are as opposed to having lyme alone. i'm paraphrasing here.
Posted by Carol in PA (Member # 5338) on :
Doc Dave: Hi, glad to see you around.
When the neurologist started me on Zoloft in an attempt to control the migraines, one of the delightful side effects was that I had improved self control.
I pretty much stopped bi#ching about crap. Oh, the crap was still there, and I wasn't happy, but I could keep my mouth shut. I do have problems when my pain level increases.
Another idea that may help is low dose Dilantin. See "A Remarkable Medicine Has Been Overlooked," by Jack Dreyfuss. Available used at Amazon for a ridiculously low figure.
I bet she could give your docs some useful advice.
Take care, Carol
Posted by ebrischoux (Member # 7281) on :
pq
I have seen the rage with the B6 and the oral C too....I tried to supplement my son with both these items per pfeiffer clinic on several occassions and he was a mess...I have stayed away from it for some time now...EB
Posted by spookydew (Member # 8432) on :
Be careful with antidepressants. Some will raise blood pressure and increase sound/noise sensitiv- ities therefore causing aggression. That happened to me.
Posted by SayYesh (Member # 8343) on :
Aligondo Bruce, thanks for my first really good laugh of the day. Your sense of humor is intact at least.
Posted by Aligondo Bruce (Member # 6219) on :
quote:Originally posted by SayYesh: Aligondo Bruce, thanks for my first really good laugh of the day. Your sense of humor is intact at least.
Well, I wasn't trying to be funny you *****!
%$*#&@!!! you!
Posted by pq (Member # 6886) on :
Aligondo excellent points made! funny Posted by pq (Member # 6886) on :
ebrischoux
at first, i was able to pinpoint increased symptoms to the vitamin C, and then later on to the liquid B-complex i was taking.
approx. six months after this, l/n member, a scientist,published on vit C in a now defunct newsletter, and in the same or another newsletter he mentioned the vitamins B2, B6 being culprits--as well as the vit.C---conducing to quinolinic acid production by brain macrophages(?).
also, he mentioned magnesium and niacin(vit.B3) temprorily quelling quinolinic acid production.
like clockwork, when i was agitated, and o/w "symptomatic," and took niacin, i was able to reduce the intensity of my "irritation", and speak more calmly over the phone.
i don't recall the magnesium having this effect, but a distinct effect within approx. 20 min. after having taken the niacin.
l/n.org member tom grier wrote some essays on the effects of vit. C, magensium, and some of the B vitamins in lyme disease. check Wildernetwork.org for essays.
Posted by ebrischoux (Member # 7281) on :
PQ-Thanks again for the info you sent me....I have started giving the mag in a liquid at night far away from abx's as per doctor.....
I have not tried the niacin and will look into all this....I have had another Mom tell me the very same thing about the quinolic acid....Most definelely going on with my son....
Today he is still complaining of headache and in an angry mood...It is three weeks since staring Mepron/Zith and doctor told me that this is when we would see a herx..
From past experience my son herx's faster than what doctor says, so I thought this is great NO HERX...He has been so happy the last three weeks. I hate to see the anger come back.....EB
Posted by pq (Member # 6886) on :
the niacin causes a histamine release, and is dose dependent. check with your doc.
Posted by pq (Member # 6886) on :
gingko made me crazed. were i to do this in the future i wouldn't do more than 10mg, better yet make that 5mg. and when not on abx., esp. doxycycline.
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