Did you have MRI's/EMG's, etc? And if they all come back normal, does that mean it's idiopathic (no known med. reason) or is that the way it presents itself when Lyme has damaged your body?
I've had an MRI and a EMG and both were normal.
Thanks, Cutie
Posted by docjen (Member # 7510) on :
I had an EMG and a nerve conduction study, and both were normal (but no fun at all).
Jen
Posted by LYMESCIENCE (Member # 9259) on :
Did the MRI include your spinal colum?
Was the MRI specific in technological updates as to be able to visualize the white matter with a high degree of precision?
Mynoclonus from Lyme, it has been reported, is often due to slerosis in the spine as opposed to the brain.
Posted by cutie (Member # 8468) on :
Interesting...no, my MRI was only of the brain I believe.
Wouldn't the Emg show something though? I also had a nerve conduction study.
Posted by seibertneurolyme (Member # 6416) on :
LymeScience,
Is there anything in the medical literature or even in print that discusses Lyme and myoclonus -- especially regarding spinal MRI's?
Hubby did have spinal MRI but it was early on before he started having brain changes show on his MRI's. He had 5 white matter lesions at one time and we think he now has only 4 based on most recent MRI.
His EMG was also normal.
Bea Seibert
Posted by dmc (Member # 5102) on :
my myoclonis is from the inflamation around the nerves in lower back. Much better now since I started chiropractic, & new PT regime.
When my back muscles are "spazing" or inflamed, get the jerks in the whole left leg. Icing my back helps as does the new stretches I am doing, though it took about a month with lots more "jerks" when I first started the new stretches.
Posted by cutie (Member # 8468) on :
I've been on doxy for about 6 weeks now and I think it's gotten worse. Is this herxing?
Posted by pq (Member # 6886) on :
speaking in the "vein" of seizures, and differentiating two kinds of seizures, generally speaking, john bleiweiss, m.d., in his treatise,"When to Suspect Lyme," writes of "true seizures" verus "pseudo-seizures,"the latter due to [lyme(?)]neuritis.
Posted by hiker53 (Member # 6046) on :
My myoclonus gets worse with herxing--also worsens with noise and crowds, stress, and fatigue.
I show no abnormalities with an EEG or a spinal MRI, but two small nonspecific lesions in the brian MRI. Doc says they may or may not be Lyme related lesions. Hiker
Posted by seibertneurolyme (Member # 6416) on :
pq,
When LLMD's use the term "pseudo-seizures" it means something entirely different than when a neurologist uses the term.
Hubby was evaluated by a neuropsych exam for "pseudo-seizures." I have a one page handout filed somewhere with a neurologist's description of pseudoseizures -- usually occur in women of a certain age who were abused as children or have a history of sexual abuse. Treated with various psychotropic meds and counseling etc. and do not respond to seizure meds.
Hubby did not quite fit the profile and he passed the neuropsych exam with flying colors.
Bea Seibert
Posted by pq (Member # 6886) on :
Bea thanks for the clarification. Posted by Aniek (Member # 5374) on :
My LLMD diagnosed myoclonus, the neurologist said it is really motor tic disorder.
I've had MRI's of the spine, EEG, EMG and brain MRI. All was normal. There were a couple of "tiny lesions" in the MRI of the brain that the neurologist thought were unremarkable. I haven't met with my LLMD since the MRI yet.
The neurologist is very Lyme friendly and did research between visits. He discovered there are documented cases of motor tic disorder in Lyme patients. No known mechanism of the cause, but it is often temporary. It may go away with or without treatment.
Posted by cutie (Member # 8468) on :
What is the difference between myoclonus and motor tic disorder?
Thanks, Cutie
Posted by Aniek (Member # 5374) on :
quote:Originally posted by cutie: What is the difference between myoclonus and motor tic disorder?
Thanks, Cutie
Honestly, I'm not 100% sure. This is from the website www.wemove.org:
"When patients are being evaluated for a possible diagnosis of myoclonus, it is important that the clinician rules out other movement disorders, including tremor, tics, chorea, and dystonia, although some patients may have a combination of myoclonus and these other movement disorders. The movements of myoclonus are most often confused with those of tremor, although the rapid speed and brief duration of myoclonus are unquestionably associated with myoclonus. Brief, explosive tics may appear to be myoclonic movements; however, the patients' ability to temporarily suppress their tics, as well as the waxing and waning of these tics, are not indicative of myoclonus."
The wemove website is really helpful for learning about movement disorders. Adults don't usually develop tics, but Lyme can be a trigger. I also have realized that my father has small tics, limited to his hands/fingers.
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