I have a hard time reading your post the way you broke it up. I copied it so I could read it better.
"Hi everyone,
I dont post often but I check posts pretty much everyday. I was wondering if anyone who has gotten better, even to 75 % or so, can tell me if this is progress.
I have probably had Lyme for about 15 years but got seriously ill about a year and a half ago. Had off an on symptoms till this time but always brushed those symptoms off till I got dizzy, fatigue, serious visual problems, all the neuro stuff. Have been on antibiotics for about a year.
When I first started the antibiotics it was like a trin hit me. I was sick for six straight months. Then I woke up one day feeling a little bit better. This lasted for maybe two days. Then I got sick for another month and then maybe a little better for three days.
After a few months of this it seems like I am sick for a month and maybe 65% for 5 or six days and maybe two days of feeling pretty darn good. And of course I start feeling sick again after that. I should add that the one symptom that never goes away, it does feel better when Im having my good days, is the visual problems.
Please let me know if this is progress, and if its the course that any of you felt as you get better. Also, is the whole month that I'm sick for considered a herx? Sorry for the long post and I hope that we are all well someday, because we deserve it!
Snapper"
It does sound like your making progress. Everyone is different, it depends how long you were sick prior to treatment, and how many co-infections you have. If you haven't improved with years of treatment then most doctors usually treat for babs or change ABX.
I've had lyme for so long that I do expect to be well any time soon, and I am gratefull for any improvement I have at all. I really don't know what it feels like to be normal.
I hope this helps you, Lisi
Posted by snapper (Member # 7779) on :
up
Posted by snapper (Member # 7779) on :
Id love to hear from more of you
Posted by Dave6002 (Member # 9064) on :
It's resonable to think that if you feel sicker on abx it's not because of drug side efffects, then the abx is doing it's job: weekening or killing the bacteria.
Posted by Michelle M (Member # 7200) on :
Hi Snapper.
Well, progress is sometimes SLOOWWWW, isn't it?
What's the status of your co-infection testing? Sometimes a co-infection can be holding you up terribly. I treated 10 months before getting a clue, then tested postitive for Babesia WA1. DUH. No wonder it was takin' me so long.
What symptoms of yours have gotten better?
As to the visual stuff that ISN'T getting better, what exactly is the problem, visually? Have you had an eye exam? Co-infections can sometimes be responsible for vision problems too, y'know...
More info!!!??
Best to you,
Michelle
Posted by snapper (Member # 7779) on :
Thanks for writing Michelle,
I actually found out I had Lyme because a test thru an id doc came up positive for Babesia. Ive been treating for that with Rifampin. I was also treated for Bart with Levaquin. I dont know if any symptoms have necessarily improved just that I seem to be getting days where I feel better. My visuals symptoms are floaters, blurry vision, visual trails, and light sensitivity.
Rich
Posted by trails (Member # 1620) on :
sounds like progress to me.
CONGRATS! Posted by Andie333 (Member # 7370) on :
Rich,
You and I are at about the same place in treatment, and there are days I wonder the same thing -- am I actually making progress here?
To me, it sounds as if you've made quite a bit of progress. I'm at about 65 to 70% after the year on antibiotics, which includes treatment for Bart.
But, like you, I've got some symptoms that still persist-- in my case, burning pain in my right thigh and numbness in my right foot. Some swelling also in that knee.
Many symptoms have completely gone and others are better. Those pesky few persist.
I see my LLMD in a week and will know more after that, I suspect. But I think we're both getting better. From what I've read in the posts, Rich, a year in Lyme time isn't that much!
Andie
Posted by groovy2 (Member # 6304) on :
Hi Snapper
Yep progress can be real slow--
But it sounds like progress to me--
I have been sick longer than you and have been taking meds longer--
I remember the Day that the sick feeling left me for only 2 minutes but it was the start
Now I feel perty good most of the time- still tired -but No Pain--AAhhh
So stick to it--Take meds on time- eat good- get rest and keep a positive attitude and with a little luck you will get over this--Jay--
